Recent content by Nowhearthis

My surgeon is Dr.Mathew Hanson. There is a website that lists the names and state location of doctors familiar with middle ear myoclonus and can perform the surgery. My doctor is on this list although he was referred by my ENT, an old timer who knows something or two. Perhaps you can ask for...

When I saw Sismanis he recorded a CD of my ear spasms for my use in seeking help back home. It was useless as no ENT was familiar with middle ear myo nor took the time to find out. I still have the CD. Japongus how you managed to live with this for 16 years is amazing. Many ENTs cant...

I saw Sismanis in the US. He was practicing at a University in Virginia and highly recommended by Lib (he did her surgery). I believe he has retired since say 2008/9 unless he practices somewhere else. This I dont know. At that time the consultation fee was reasonable (about $200.00) and...

Funny it was Dr. Sismanis who originally diagnosed me with Myo some seven or so years ago. It took me many years to find an ENT specialist (neuro-otologist) in my area w/ myoclonus middle ear experience. Both my ENT and neuro confirmed seeing my ear drums spasm during examination. I too have...

You bet. Dont give up. You will get pass this and move on with your life. Good luck and keep me/us posted.

Glynis, Wishing you the best day ever. Happy Birthday.

Chelles my procedure was done through the ear - cutting ear dumb to access the muscles. Ive read about the endoscopic procedure being less invasive. As far as my ear being sensitive to noise without those tendons, its not so bad. Honestly, my ear was a lot worse with them. If a problem I...

Yes I noticed T when my ears got much worse from the myo, before the surgery. Aftet the surgery, the pitch got higher but it seems to be improving. I had/will have the surgery in the NYC area.

It is okay to be fearful. This disorder is complicated and rare. Finding a qualified and experienced doctor is half the battle. The muscles can continue to move although cut, but unable to beat/knock against the ear drum. My high pitched T is getting better or I am getting use to the sound...

Chelles I feel your frustration. Ive had MEM for eight years now. It goes into remission for a few years, but always comes back The surgery helped alot. The ear does not thump although I can feel the muscles move, they no longer knock against the ear drum. On the other hand, the bad ear...

Hi Michael, Hope you have found relief and the spasms have stopped. I totally get it. With me its the constant thump. Goes on for hours and hours. Had it in both ears but cutting both tendons in one ear provided some relief. This disorder is the strangest thing. Most ENTs dont know how...

The surgery is a simple out patient procedure. Your ear will be packed while healing resulting in temporary loss of some hearing. There will be some minor bleeding (change cotton swab daily). Hearing may take a few days to get adjusted too but not too bad. No sneezing, blowing nose or water...

My dr. saw the ear drums dimple to confirm myo. Both tendons were cut. When the thumps morphed in a continuous tone it sound like a broken speaker with static and pressure. The pressure feeling I suspect is/was the sensation of the muscles being pulled so hard and tight. It made it difficult to...

Well do my best to explain. The thumps/spasms were so bad it was felt and heard (subjective tinnitus). I felt my ear drumb moving all the time. Sometime with a feeling of fluid in the ear so it crackled, popped, snapped. The thumps would often morph into one long continuous note/thump with no...

Totally understand your hesitation in having surgery. I was desperate and had to take a leap of faith the surgery would offer some relief... it has. I still have myo in the other ear so it continues to thump. Once my doctor clears my healing ear, I will for sure schedule the other. The side...