Ylva

Ylva

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Member 28 From Netherlands
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  • Ylva
    My one year anniversary. I celebrate with covid, which made my T get even worse. I found some short periods of 'habituation' though!
    kingsfan
    Welcome to 1-year-covid-fucking-with-your-tinnitus club! May I take your coat?
    Ylva
    Has anyone's 'spike' from covid settled down? Or is this a new baseline I'd just have to get used to.
    kingsfan
    I'm giving mine 6 months, as that's how long it took for my vaccine spike to settle. It did never go completely back to baseline though, but I take what I can get.
    stepe1519
    Hey I did the exact same thing of snorting 3mmc and my tinnitus is 8 out of 10, I'm being suicidal atm. Did you get better?
    Ylva
    Hey, unfortunately for me it only got worse. I have my new base level for a year now. I hope yours did get better!
    Ylva
    Today, I am officially 2 months into my 'spike/new baseline'. No improvement, just more different sounds. Mentally I'm coping better tho.
    Ylva
    Thinking of that one time I went indoor skydiving back when I had my T under control. Zero fear, no effect on it. What a life that was lol!
    Ylva
    Migraines, sinistus, visual snow, my jaw hurts. My spike is spiking. I'm giving myself a year, if it does not get better I'm ending it.
    View previous comments…
    Matchbox
    Give betahistine a go. Super safe. Best thing for cochlear bloodflow. You sound like you've got either something autoimmune or vascular going on.
    Ylva
    @Matchbox yes thank you! I definitely feel like there's something off there and doctors keep ignoring it. A psychiatrist said it could be trigeminal neuralgia and prescribed tegretol. Looking into that now..
    Ylva
    It's just hard to feel like there is something medically wrong (in the end we know our bodies the best) and not being taken seriously. For me, I'm not giving up the search yet. And in the meantime I'm trying to accept the sounds.
    Ylva
    Just had 3 episodes in my left ear where I couldn't hear for some time and ear feels full. Can't tell if it's back to normal, is this SSHL?
    Ylva
    So theoretically, if your tinnitus cannot be masked in any way and you're forced to listen to it all day. Will that 'speed up' habituation?
    Steph1710
    I don't know. But my T is pretty unmaskable because I have so many different tones and pitches. I have habituated 90% within 10 months. I very rarely try to mask.
    arcanesystem
    From past experience, my T can become aggravated and pretty much gets 'louder' with anything that I try to mask it with. I do end up habituating despite this but my concentration is always hell until my brain decides to fade the sound into the background.
    Ylva
    Went to the beach today, for a nice walk. Even though the sounds are not masked by the waves, it was nice to feel the sun on my face
    Ylva
    Why does it become worse? I have no idea. Please stop it, I'm doing my absolute best :(
    View previous comments…
    Ylva
    I'm in a 'spike' that is getting constistanly worse. When I say this it's not about what I experience in a short time such as a day/couple days. I've had it 20+ years.
    Tatsopa
    Yeah, same here. I had tinnitus for more than 15 years. It has worsened almost a year ago for unknown reason. It was really, really bad at first. I've been off work for five months Since then I had numerous ups and downs, speaking of volume and mood. Most recent spike, the worst I had, settled down two days ago, has lasted for more than a week and almost knocked me out.
    Guywithapug
    So sorry to hear this, hopefully it will settle down after a while.
    Ylva
    Spoke with the audiologist today. She told me my ENT referred to them before, in 2017, bc of a long spike. I personally forgot about that?
    Ylva
    Pulsatile T on top of everything. Whooshing heartbeat in my right ear. Can hear it 'thump' with every step I take. Just keeping track here.
    View previous comments…
    Ylva
    Yes, it changes pitch and times with my heartbeat. I can feel it as well. Gets worse when I exercise, which is the worst because that's one of the few things that distract me :( Where should I press my neck? Also everything keeps getting worse. It's really hard to try and stay positive here. The fact that it's unexplainable makes me go crazy sometimes, because I'm a person who likes to get to the bottom of things.
    Steph1710
    Do you hear it in both ears or just one? I have left sided PT, and If I gently pressed on the left side of my neck, where the jugular is, then the sound stops, because I'm stopping the blood flow.
    Steph1710
    Oh I understand the frustration! I lived for exercise and being outdoors - PT completely destroyed that for me. If I even go for a walk, the beating is through the roof!
    Ylva
    Having my bottom left wisdom tooth removed in 2 days, it's impacted. Read contradictory stories: go or cancel?
    View previous comments…
    kingsfan
    Is it causing you problems? I don't think it would need to be removed unless it's causing pain, pushing other teeth out of alignment, or is at risk of causing any sort of tooth/gum decay. Your dentist would know best.
    Lurius
    Interestingly enough, I'm also going to the dentist in 2 days. It's just to complete the crown I'm halfway done with. I also saw my dentist loads last year. I was really worried about the drilling noise, but that turned out to be fine. My T doesn't react to other sounds at all for some reason.
    Ylva
    I was wrong, my appointment is the day after tomorrow lol (ADD brain). I will call and see if they can first examine if it is truly necessary. Thank you all!
    Ylva
    This new year's eve I had to run outside for a bit and really loud fireworks went off near me. I just read damage is cumulative. :/
    Ilias T
    It's true that hearing is getting damaged over time, from noise and aging, but that one time event is not supposed to cause cumulative damage.
    Steph1710
    You should be fine. Remember, try not to stress. X
    Ylva
    Intense ear pain. Gut feeling T is gonna be permanent, but I am not losing hope. Had a good night's sleep and started taking magnesium.
    Steph1710
    I don't reckon it will stay the same. My spike lasted five months! But it's now back to the original volume. Just try to relax (super hard, I know!) and tell yourself it will be fine. Honestly, the only way to conquer this, is with determination and positive thinking.... God, that sounds lame haha.
    Ylva
    I don't feel like I get any response here. Reading other posts is helpful, though.
    View previous comments…
    Steph1710
    Hey @Ylva sorry no one is responding. I usually try and speak to people - but I've been super busy with work lately. I can't see what ajc has said to you, because I blocked him. Don't ever listen to him. He can be a right pain. Is there anything you particularly wish to talk about? Or questions that you need answered? Steph x
    Ylva
    Hello @Steph1710! Thank you so much but no need to apologize :)
    kingsfan
    Sometimes you'll get responses right away. Sometimes it takes a little time, but my experience is someone usually chimes in and helps.
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