Sointu

Sointu

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  • Sointu
    During my latest spike I have had a feeling like I don't hear my own voice normally and I have lost hearing and I have ear fullness.
    Sointu
    "oh i am sorry you have tinnitus, one person I know started drinking so much alcohol to cope with tinnitus and lost his health because ofit"
    Sointu
    I know benzos and benzo tapering played a large part why I got tinnitus even though I got my tinnitus because of loud noise.
    Sointu
    I have tried to live my life and go to loud places too with ear protection and it has been a bad idea. My hearing issues just gets worse
    View previous comments…
    Sointu
    @Wrfortiscue Yep. I would like to live my life as normally as possible and have fun but I know I always need to pay the price if I go to loud places
    Sointu
    @Jupiterman In some ways I have felt happier after doing stuff more again, I have avoided going to some places for 2 years after getting T. But I have to seriously think is it worth it still.
    4Grace
    @Sointu I feel like we are alike to some degree. Any positive changes over the two years? My ears just seem to be getting worse.
    Sointu
    I want tinnitus that is easy to mask, stays the same, that can be forgotten. Not this constantly changing T, sound distortion, reactive T BS
    SarahMLFlemmer
    :(
    S
    The distorted gmhearing just reminds me that I've fucked my hearing up! If that's wasn't there things would sound "normal" . :(
    Sointu
    Yep. The distortions just make my hearing feel so messed up and I am afraid the distortions get even worse :(
    Sointu
    I feel like I can't deal with this anymore. Tinnitus steals all joy from my life.
    TheCapybara
    I know it sucks Sointu, distortions are the worst. Hang in there okay?
    Sointu
    Distorted hearing sucks. I cannot escape it even if I mask my T. I cannot forget it, I don't habituate to it. In the long run I feel like it has got worse. @TheCapybara I try to hang on, it is just so hard at the moment.
    TheCapybara
    @Sointu I know, trust me. I've had it for a year now, and it takes a very long time to settle or heal and that's without setbacks. It reacts to less things now than it did before so I have some hope these high frequency distortions will go away for us one day.
    Sointu
    I wonder what part benzo tapering plays in my weird symptoms such as metallic sound distortions and reactivity :(
    Sointu
    I feel like metallic sound distortions and reactive tinnitus have come to stay. The distortions used to fluctuate.
    Sointu
    I got tinnitus spike because of dentist appointment. My tinnitus feels so loud and I hear metallic reactive zing sounds.
    Sointu
    Dentist drilled my tooth for a long time today and it did not help my reactive tinnitus or distortions. Today has been a bad day:(
    TheCapybara
    I'm sorry Sointu :( I have a dentist appointment soon too and I am not looking forward to the noise. I hope you didnt get any worsenings from this.
    Sointu
    I am sorry. Hopefully your dentist appointment goes well. I have managed to avoid any dental drilling after my T started but unfortunately my luck did not continue. I am experiencing some sort of spike in my symptoms after that. I hope my T spike will calm down soon
    Sointu
    Tinnitus masking doesn't help as much anymore because I hear these weird reactive annoying metallic zing sounds on top of the masking sound
    Sointu
    Today is a good day. Tinnitus is tolerable and music sounds good.
    ZFire
    'Music sounds good'. I resonate with this statement a lot. Some days my distorted hearing and reactivity will make music difficult to comprehend. Glad to hear (no pun intended) ur having a good day.
    Sointu
    My hyperacusis/tinnitus spike lasted a month and it has showed signs of calming down finally. I believe I have TTTS.
    Sointu
    Don´t experience acoustic trauma during benzo taper. The combination sucks so badly.
    stacey
    Wow, hang in there! Hoping you heal quickly
    Sointu
    My ear symptoms started 1,5 years ago when I got acoustic trauma during benzo taper. After it I have not tapered benzos a lot because I fear it would make tinnitus even worse. I would have already tapered off the medication without this tinnitus/hyperacusis part.
    Sointu
    Today is not good day at all. The ear that is my better ear has this really nasty ear piercing reactive "eeeee" sound.
    TheCapybara
    Hope your distortions and other symptoms are easing up a bit after the setback.
    Sointu
    Thanks @TheCapybara My setback had lasted for almost 3 weeks but I hope my symptoms don't continue like this.
    Sointu
    I heard this loud popping sound in my ear before my latest setback started. I have no idea what it was.
    Sointu
    Metallic sound distortions and ear burning sensation. Increased sensitivity to sound. Nice.
    Sointu
    I pushed my limits too much and now going through a hyperacusis spike. Positive thing is I had some time in between when things were stable
    SaraK18
    Hey did you ever end up getting another dog?
    View previous comments…
    Sointu
    I have a bordercollie, my previous one also was bc. Active breed, needs a lot of mental stimulation. Some people say they do bark and are vocal but my dogs are quiet ones. My friend has also quiet dog that is a whippet. But many dogs do bark and some of them has barking sound that hurts my ears.
    SaraK18
    I'm really happy for you, it's great that you got a non-barker. I did some research and found that Japanese chins are supposed to be more cat-like and quiet so I'm looking into that breed. Thanks for the info!
    Sointu
    I hope you find a dog that is right one for you. :)
    Sointu
    Every time I feel like yay I am making progress my symptoms suddenly get worse and I get spike. Habituation feels impossible.
    Sointu
    I feel like I can't take anymore tinnitus/hyperacusis spikes. It has been a spike after spike after spike for months.Really hard emotionally
    View previous comments…
    GG_Ear
    @Sointu It's really encouraging to know that you have improved in time. No doubt it has been a difficult and challenging journey for you.
    Sointu
    @GG_Ear I am sorry that you are going through all of that. The things how you describe your hyperacusis sound really familiar. How things seem louder, how certain sounds are horrible, whistle sounds over certain sounds, ear fatigue and aching sensations.. But hyperacusis can improve significantly. There can be setbacks but slowly hyperacusis can settle down over time.
    GG_Ear
    @Sointu Thanks for your reply. The hope of things improving is all that is keeping me sane right now. It has all been such a shock to my system. I had no idea that hyperacusis existed until now. My doctor thought I had an ear infection.... then my ENT told me it might be hyperacusis but that I will be fine, just go live a normal life.... there is so little knowledge and understanding. Glad I found TinnitusTalk.
    Sointu
    I got COVID after concussion. What next. My tinnitus is really weird at the moment and COVID has definitely made me more sensitive to sound
    Sointu
    Today I have experienced some ear pain, also COVID has triggered vertigo. I lost my sense of taste and smell almost completely two days ago and I just hope they return soon :(
    Sointu
    Just when my last spike was showing some kind of signs of calming down(it took weeks) I get another one. Life with tinnitus....
    Sointu
    Reactive tinnitus is worse and my ears are making weird seashell sounds and whistling sounds again.
    Sointu
    I had made so much progress before it I thought I could just try to live my life. But Nope. Thankfully my hyperacusis did not get worse
    Sointu
    Now I have a sensation of clogged ear, I also have had muffled hearing after it and tinnitus spike that has lasted for weeks.
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