jimvee
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jimvee

Member, Male

Bad day. Good day to keep practicing to not have any emotional reaction to all the sounds and pain. I've become quite good at it. Sep 1, 2023

    1. jimvee
      jimvee
      Bad day. Good day to keep practicing to not have any emotional reaction to all the sounds and pain. I've become quite good at it.
      1. Juliane, 4Grace, PennyCat and 2 others like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I'm starting to, too.
        Sep 1, 2023
        4Grace, PennyCat and jimvee like this.
      3. Tryn2BHopeful
        Tryn2BHopeful
        I need to learn how to do this better. I dont have any outward reaction to people around me, but inside I am screaming...
        Sep 28, 2023
        4Grace likes this.
      4. 4Grace
        4Grace
        @jimvee - I have only had that feeling for moment. @Tryn2BHopeful - no outward reaction is half the battle. I hold it in for a few days at a time but then it comes out. It’s like a high pressure valve.
        Oct 8, 2023
    2. jimvee
      jimvee
      3 months. Proud of myself for everything I've done and how I'm coping. Will soon try to get normal life back step by step. Looking forward.
    3. jimvee
      jimvee
      Just did some neck exercises/stretching. Now 5 min later really fast and high pitched TTTS that I've never had. Any experiences/explanation?
      1. 4Grace likes this.
      2. View previous comments...
      3. jimvee
        jimvee
        Update: the rapid 'ticking' multiple times per second lasted about an hour, after which it started to break up into bigger intervals. Multiple ticks every 5 seconds, every 10 seconds, every minute, every 2 minutes, etc. Faded away completely about 12 hours later.
        Aug 31, 2023
        aab likes this.
      4. DutchGuyMike
        DutchGuyMike
        You most likely stretched muscles "badly". TTTS is often from overly stretching/tightening of upper body muscles. Most tinnitus sufferers do the "clenching" of the upper body subconsciously, Clonazepam (Klonopin in the US) is helping me IMMENSELY with reducing the volume of the tinnitus (which had gotten worse), and is now softer now (and not merely the perception of it).
        Oct 8, 2023
      5. DutchGuyMike
        DutchGuyMike
        There's some studies that directly combine the two together, but also the body's muscles constantly stopped being tight (AND sleep got way better). I know the horror stories that if you get off of it that the tinnitus/TTTS will get worse but if you taper extremely slowly (with weights and capsules) that effect should be very minor. Best is for a physiologist to help with the neck/jaw.
        Oct 8, 2023
    4. jimvee
      jimvee
      Not much improvement as far as I can tell, still unmaskable and multitonal, but the amount of time I'm actively bothered has been declining.
    5. jimvee
      jimvee
      Laying in bed while a mosquito keeps flying near and onto my ear. Like come on bro: occupied! These ears already have a tenant.
      1. ECP and BobbieJay-1954 like this.
      2. ECP
        ECP
        I'd prefer to evict the tinnitus and then welcome the mosquito with open arms. No security deposit required, and the first month's rent is free.
        Aug 25, 2023
        jimvee likes this.
    6. jimvee
      jimvee
      So grateful for the loving people in my life. Since my onset, friends, family and coworkers have been sending love, texts, cards and gifts.
      1. 4Grace, SarahMLFlemmer and Juliane like this.
      2. Juliane
        Juliane
        So happy to hear that! People with T should always receive love and gifts in abundance ❤️
        Aug 21, 2023
        jimvee likes this.
      3. 4Grace
        4Grace
        That sounds awesome.
        Aug 24, 2023
        jimvee likes this.
    7. jimvee
      jimvee
      Still spiking, still abstract. Like electric radiation with hissing, a low tone, ringing and pulsating crickets. I can feel it and it hurts.
      1. Tryn2BHopeful
        Tryn2BHopeful
        I got that low bass like tone as well, but its not constant, but it is annoying you can feel it in your ears sometimes. I got the hissing as well...Hope you feel better.
        Aug 21, 2023
        jimvee likes this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        oh and I hear... that ice on the ears and ginger tea helps with the pain.
        Aug 21, 2023
        jimvee likes this.
      3. jimvee
        jimvee
        @Tryn2BHopeful Thanks for the tips! I read your comment while laying with ice on my ear. Great minds think alike! :-)
        Aug 21, 2023
    8. jimvee
      jimvee
      Many friends go to raves weekly. Not me. I was always the buzzkill that asked to turn the music down, in car or at party. Now the one with t
      1. Juliane
        Juliane
        Life is so so unfair :-(
        Aug 20, 2023
      2. Mo8409
        Mo8409
        Oh absolutely! I remember saying that if I ever had it that I'd kill myself. I never went anywhere that damaged my ears. Now I still have healthy ears and hearing and have T. If I only knew other things could cause it other then hearing loss. Ugh.
        Aug 20, 2023
        Tryn2BHopeful and jimvee like this.
      3. Marina Moon
        Marina Moon
        Before my T started, the sink in the kitchen had a running faucet that made a constant hissing sound. It drove me nuts! I was so relieved when it was fixed, and then months later, boom i got tinnitus T_T
        Aug 22, 2023
        jimvee likes this.
    9. jimvee
      jimvee
      For years one of my biggest fears was tinnitus. I couldn't even stand the thought. Never went anywhere loud without earplugs. Yet here I am.
      1. 2049v, PlasticAH, PennyCat and 2 others like this.
      2. Juliane
        Juliane
        Same here. That and losing my hearing, which I did when I was in my early thirties - on my left ear. I wonder why that is. Seems so evil. So many other ailments I'd gladly take over anything hearing related.
        Aug 20, 2023
        jimvee likes this.
      3. 4Grace
        4Grace
        @jimvee that hits hard. I had no idea this existed. I don’t think I would have protected because I would never think that I would get it. Never know how bad it is. Only when you get it, then you know. It sucks for sure.
        Aug 24, 2023
        jimvee likes this.
      4. 4Grace
        4Grace
        @jimvee for me it’s not so much the noise. Well, it is the noise but impact on what I can and can’t do is much worse. Worry that it’s getting worse is hard too.
        Aug 24, 2023
        jimvee likes this.
    10. jimvee
      jimvee
      And that's a wrap! Had my final injections today and then the long journey home. Time to get some rest at last. Then we'll see what's next.
      1. Jupiterman and SarahMLFlemmer like this.
    11. jimvee
      jimvee
      Final injections on Friday. Then, after treatment since onset, it will be out of my hands. Kinda scary, but let's see what the future holds.
      1. Juliane and SarahMLFlemmer like this.
    12. jimvee
      jimvee
      Debating what's worse: that NAC capsule flavor or a little dexamethasone leaking into your mouth while not being allowed to swallow.
    13. jimvee
      jimvee
      Back home after 12 intratymp. injections in the past week, after a month of HBOT. Treatment's been a fulltime job. Have a good weekend all!
      1. Juliane and Jupiterman like this.
      2. Jupiterman
        Jupiterman
        Keep us all posted of any improvements.
        Aug 12, 2023
        Juliane and jimvee like this.
    14. jimvee
      jimvee
      Had the most beautiful, spontaneous sunset hike, enjoying nature and life. Now back at the hotel with a hike-spike. Ups and downs.
      1. Mo8409
        Mo8409
        Take the wins we're ya can though. A sunset hike sounds amazing.
        Aug 10, 2023
        jimvee and SarahMLFlemmer like this.
      2. jimvee
        jimvee
        @Mo8409 Absolutely! It was worth it. The lake, the fields, the forest, made me realize I (can) still love life!
        Aug 10, 2023
        Juliane likes this.
    15. jimvee
      jimvee
      So I'm out of the country, got some food and pulled over at a random lake. First time in ages I hear crickets, like in my masking video. Joy
      1. jimvee
        jimvee
        Maybe 50% of what I was hearing were my head crickets, but the other 50% were real and close to me! Unfortunately afterwards I also took them back with me, but I guess this was a good learning experience.
        Aug 9, 2023
        SarahMLFlemmer and ECP like this.
      2. SarahMLFlemmer
        Aug 10, 2023
        jimvee likes this.
      3. DutchGuyMike
        DutchGuyMike
        Don't forget to PROTECT your hearing, if you have tinnitus from hearing damage is it imperative to protect the worse ear - the best tip I can give is to use a soft (sleeping ear plug) in one ear constantly, like I do. Which protects the ear but doesn't increase sound sensitivity due to the other ear picking up sounds normally.
        Oct 8, 2023
    16. jimvee
      jimvee
      Typing this as I'm laying on my side with dexamethasone in my right ear. I have to say each injection has gotten easier and less painful!
      1. tpj likes this.
      2. DutchGuyMike
        DutchGuyMike
        Did it help, however?
        Oct 8, 2023
    17. jimvee
      jimvee
      I have no affiliation but the Spectroid app really helps me verify if sounds are real or in my head! Sometimes good news, sometimes bad.
      1. Christiaan and Tryn2BHopeful like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        There is a thought... I just keep asking my wife...
        Aug 8, 2023
        ECP, Christiaan and jimvee like this.
      3. Christiaan
        Christiaan
        Yeah, sometimes it's hard to pinpoint what's real or not, especially if your tinnitus is multi tonal or just changes character.
        Aug 8, 2023
        jimvee likes this.
    18. jimvee
      jimvee
      Past weeks I've been strong, positive, laughing. Now unexpectedly letting all tears out. Will be okay but what a rollercoaster this has been
      1. DutchGuyMike, ECP, Juliane and 3 others like this.
      2. SarahMLFlemmer
        SarahMLFlemmer
        I get it!
        Aug 8, 2023
        jimvee likes this.
      3. Tryn2BHopeful
        Tryn2BHopeful
        It's hard! We all have those days!
        Aug 9, 2023
        jimvee likes this.
      4. DutchGuyMike
        DutchGuyMike
        Clonazepam in combination with Tramadol (for my lower back pain) does WONDERS for calming me down, improving sleep, reducing anxiety greatly AND softening the tinnitus (there's several studies that indicate that Clonazepam is quite effective against tinnitus, and that tapering off should be done VERY slowly, with NAC & R-ALA.
        Oct 8, 2023
    19. jimvee
      jimvee
      Had my second round of dexamethasone injections today. Not as bad as the first! Will be getting them daily from now on.
    20. jimvee
      jimvee
      I'm in the car outside the clinic where I just had my first two intratympanic dexamethasone injections. Happy, but it was nightmarish!
      1. Joe Cuber and JeffToob like this.
      2. just1morething
        just1morething
        @jimve, they don’t do them much anymore but I had those done in 2010 and 2011. Puncturing the eardrum sure hurts if they don’t numb it enough. Laser for holes is less painful.
        Aug 5, 2023
        jimvee likes this.
      3. jimvee
        jimvee
        @just1morething Sure did! It was a lot better my second time today, one ear at a time and longer time for the anesthesia. Did the injections do anything for you?
        Aug 7, 2023
    21. jimvee
      jimvee
      1000mg taurine pills just arrived. May contain: eggs, milk, nuts, crustaceans, soy, wheat and fish. This will be a complete dinner!
      1. Tryn2BHopeful
        Tryn2BHopeful
        Good Luck! Let us know how you make out!
        Aug 3, 2023
        jimvee likes this.
    22. jimvee
      jimvee
      After two weeks of searching, emailing and calling doctors/hospitals for intratympanic injections, it looks like it will pay off very soon
      1. ECP, Joshua Macleod and Wolfka like this.
    23. jimvee
      jimvee
      Anyone else ever struggle with pinpointing their T? Mine is loud but often indescribable and not a clear sound. It's the craziest experience
      1. Ondine, Ngo13 and tpj like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        Mine was like that for a while... it was a wavering breaking up static mess. Now its more of just static that breaks up here and there.
        Aug 3, 2023
        jimvee likes this.
      3. Ondine
        Ondine
        Back when I had multiple and constant sounds, I found it so hard to describe it. Pure tones mixed with computer / modem sounds, wavering vibrations, wine glass... Madness.
        Aug 4, 2023
        jimvee likes this.
    24. jimvee
      jimvee
      Sounds like quickly walking up my creaky stairs is one of the rare things that masks. Looks like I'm gonna be burning some serious calories
      1. Joshua Macleod likes this.
      2. Mo8409
        Mo8409
        Record it and make it into a loop video for masking sound lol
        Aug 1, 2023
        SarahMLFlemmer and jimvee like this.
    25. jimvee
      jimvee
      That moment when you're having the best morning of the week ('am I habituating?') but then sneeze and it becomes the worst
      1. Mo8409
        Mo8409
        You're still early with this condition, it's gonna change a lot and not make sense for awhile. It will eventually calm down.
        Jul 26, 2023
      2. kingsfan
        kingsfan
        I always cover my ears when I sneeze at home. In public I usually have earplugs in so I can actually cover my mouth without worrying about my ears.
        Jul 26, 2023
        jimvee likes this.
    26. jimvee
      jimvee
      5.5 weeks in: prednisone, jaw PT, vitamins, melatonin, ginkgo, NAC, magnesium, curcumin, now 2nd week of HBOT. Anything I *haven't* tried?
      1. Wrfortiscue likes this.
      2. View previous comments...
      3. Jammer
        Jammer
        Barium enemas take my mind off my tinnitus momentary. Don't recommend unless you're truly desperate.
        Jul 6, 2023
        Wrfortiscue and jimvee like this.
      4. jimvee
        jimvee
        @Joe Cuber Thanks! I'm completely baffled that even though I have pretty unmaskable, multitonal, oscillating and 6-8/10 tinnitus, I have been averaging about 7,5 hours of sleep except for the first two hellish weeks (with 3mg melatonin!). I even napped like 3 times last month. Triggers: I seem to have slight reactivity and hyperacusis, but I consider the TV even at low volume and the PC fan to be the worst.
        Jul 6, 2023
        SilverFox, Joe Cuber and Wrfortiscue like this.
      5. jimvee
        jimvee
        @Wrfortiscue Thanks! Have tried as much silence (no *loud* noises) as possible. Sick leave since week 0.5 and only left house for medical appts, with earplugs. Dilemma as I don't want to become oversensitive to sound and plugs make T 2x louder, but I'd rather be too careful and give my hair cells some rest. ENT wants me to take em out more, but I'm not risking it, especially now it might undo any possible HBOT effect
        Jul 6, 2023
        Joe Cuber and Wrfortiscue like this.
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  • About

    Gender:
    Male
    Tinnitus Since:
    05/2023
    Cause of Tinnitus:
    Motorcycle ride with earplugs?