Kleiner

Kleiner

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  • BB23
    I forgot to ask.
    Is your tinnitus reactive and do you have hyperacusis?
    If yes Does retigabine help with those aspects?
    Kleiner
    not really reactive (only on very specific conditions, so it happen like 3-4 times per years), so i can't say
    J
    I imagine what you got in 2020 was expired but still had effect
    Kleiner
    Nope, it's "fresh" retigabine since it was well stored (in freezer)
    ajc
    lol you ate placebo. medications should NOT be stored in a freezer. geez.
    Kleiner
    Thanks for your useless opinion ajc.
    It confort me in my choice to not listen people who speak without knowing anything
    BB23
    You said "Retigabine is also not effective against all types of tinnitus, my non-somatic tinnitus reacts only slightly". But we had people with tinnitus in their head disappear completely while on RTG. Why do you think that RTG wasn't effective for your case, how was your case different compared to all the others with head T?
    Kleiner
    My somatic T generally responds well to RTG, can reach 90% at hight dose.

    My non-somatic T reacts only slightly (20% placebo range), but I think there is still an impact.

    This is my personal theory, I think that my non-somatic T is located in a structure superior to DCN, which responds less to KV7 (i.e. because it responds a little to retigabine, or because it is linked to somatic T)
    BB23
    @Kleiner KV7 channels are present in Inferior C. as well and can be modulated based on a paper I posted. It is really weird it had little impact on your non-somatic t. Many others with head t.(should be non somatic) had it completely eliminated. Maybe yours lie even above the IC. Mine is due to antidepressants and fluoroquinolones, people reported success with similar t to mine. How loud is your t? what caused it?
    Kleiner
    I think it's related to CI in my case, bc this T can reach other side, at least not in brain.
    Idk at all, RTG is so random, i took time to make it work for somatic one, and non-somatic one seems to respond a little, so i still have hope.
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