ASilverLight

ASilverLight

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  • ASilverLight
    My jaw dislocated today - thankfully it popped back in. Third time that's happened this month. Jaw has been giving me issues for years tho.
    ASilverLight
    It seems that my baseline keeps getting lower very slowly, but it still fluctuates hourly for no apparent reason. Ugh
    P
    That's good. You're still very early into your tinnitus journey. Tinnitus can take 18-24 months to stabilize. As @Bill Bauer says, its about the global lows. What matters is not the day to day, hour to hour fluctuation, but the fact that you think that the baseline is getting lower.
    ASilverLight
    I don't know what makes it go louder/quieter at all. It's frustrating. Wish it would just stay at its lowest.
    ASilverLight
    When my T was silent/hardly noticeable, the crackling when I swallow was gone too. I know we can't anyway, but I can't make sense of my T.
    ASilverLight
    Woken up to silence two days in a row. Thought I'd experience and stayed in silence all day, one day. By the evening, T as bad as usual.
    G
    I'd take any silence
    ASilverLight
    silence lasted only a few minutes, right after waking up. by 'staying in silence' i meant i'd thought and try to be in a really quiet environment all day and see the effects. it got as bad as it would with noise around me all day.

    still i find it odd that my tinnitus fluctuates so wildly every single day.
    ASilverLight
    + experience was meant to be experiment. whoops
    ASilverLight
    Accepting the fact this is probably with me forever.
    Bill Bauer
    Is it the case that you haven't experienced any fading compared to how it was back in February? Have you tried protecting your ears from the moderate noises (e.g., vacuum cleaner)?
    ASilverLight
    @Bill Bauer I have been. Only louder noise I'm exposed to is the shower few times a week. I haven't really noticed any fading, but it fluctuates too much to get a good idea of it. My lowest moments however are at times so low it's practically gone. I hope it settles to that eventually. Still no clue what caused my T either.
    ASilverLight
    And just like that I go from horrible days to a relatively quiet one - along with less severe symptoms I've had for months. Coincidence?
    ASilverLight
    Getting lots of blood testing done tomorrow, hope they find something to experience my non-T related symptoms...
    Steph1710
    Fingers crossed! Let us know how it goes. X
    ASilverLight
    totally meant explain, not experience lol. Anyway, results wednesday... really hope they find something because something's gotta be off, too many health issues for there not to be
    ASilverLight
    genuinely, how does one with limited noise exposure and no recent trauma go from zero tinnitus ever to multi-tonal intrusive hell.
    ASilverLight
    My biggest issues are fluctuations and intrusiveness. It's absolute hell.
    View previous comments…
    ASilverLight
    my fluctuations are pretty much hourly almost. It's never a louder day / quiet day, it's a louder moment vs a quieter moment etc, a 7 tones vs 3 tones moment. Really frustrating. I wouldn't be bothered if I had one mild tone but this is just exhausting. Hope your day is a quiet one today
    H
    I see. That's another beast entirely. Mine only changes from day to day
    ASilverLight
    yeah. wish i knew how or why. i don't have hyperacusis as far as i know and i don't think noise is even my main culprit. but i went from no tinnitus, not even any fleeting ever, to loud multi-tonal fluctuating tinnitus that's not improving at all. it's hell honestly
    ASilverLight
    Sometimes I get pretty pissed knowing I protected my ears as much as possible and ended up here for different reasons. Cruel joke, universe.
    Steph1710
    Snap! :( I've always been so careful with my ear - it was stupid antibiotics that got me
    ASilverLight
    For me I'm not entirely sure but it's likely just real bad luck. I'm not saying that's not the case for everyone, I just didn't know you could get T from anything BUT noise so I did my best to avoid that. Guess this is my body's way of thanking me huh
    ASilverLight
    It's so hard to remain hopeful, especially when my main way of coping was always music and that's tainted now.
    Ed209
    I'm a musician and I was completely miserable and suicidal for a long time, but I found my way back. I believe you will too, and you'll enjoy music just as much as you did before, if not more.
    ASilverLight
    It's mostly the fact one of my tones is so internal that, even though it's not necessarily loud, it's still audible pretty much all of the time, which really makes enjoying music hard for me. But I hope you're right. I was never much of a musician but still a great lover.
    ASilverLight
    Nearing the 4 month mark with very little improvement. Hurray.
    Bill Bauer
    Have you tried staying away from the moderate noises like that of a vacuum cleaner?
    ASilverLight
    I have actually, I'm pretty sure mine isn't noise induced though - not for the most part.
    ASilverLight
    I finally saw my physical therapist in person... neck/shoulders still messed up. Hoping that improves along w my T...
    ASilverLight
    I still have one mystery tone that comes and goes. No clue what triggers it at all. But it's by far the worst.
    R
    Same. Mine is a low end warble sound. Usually mainly apparent inside somewhere, not when I'm outdoors
    ASilverLight
    I do still have my regular tones. But one comes and goes at random, it's loud and I can only explain it as the feeling of a sharp pain as a noise.
    ASilverLight
    And with my fingers burned I start anew And now I've come back down, I'm older I look for something else to hold on to
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