bethadtr
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  • Exactly what I've been experiencing since March 1 ,22 . Bethadt, did you receive the vaccine recently?
    So this weird electric feeling in head keeps coming and going, my Tinnitus is spiking randomly, pressure in head, fullness in ears, ???
    T
    Hey, just wanted to comment here as it looks like we might be going through something similar.
    I'm 30 and from the UK.
    About 7 weeks ago I developed a weird tinnitus in my right ear after a loud noise exposure. It's more like an electrical vibration that I can feel in my ear.
    Occasionally it sends electric shocks into my head and down my neck.
    T
    A few days ago I started getting the electric shocks down into my hands and feet and am now waking up with numbness in my hands.
    I also get the horrible electric feeling in my head that is absolutely horrendous and lasts a few hours before calming down.
    T
    A Google of the symptoms points towards MS but there is absolutely nothing online about MS being triggered by tinnitus - do you know what's going on with yours at the moment? I noticed you said you had an appointment with a neurologist.
    Kind regards,
    Tom
    Mine changes according to my emotional state, also with overexposure to noise. I cope with it trying to distract myself and convincing myself that it will not get worse, it is not easy but over time you adapt a little if the symptoms are not very strong, there are days better than others but I try to get excited about new projects even if they are little ones, how do you cope?
    From what you describe, what happens to me happens to you, that is central sensitivity, of the nervous system. Investigate a little about that, you'll see how I'm right, it cost me a lot to discover it. All the best
    bethadtr
    Oh cool, how do you deal with it? Is yours fleeting or always there? Thank you I will look into that :)
    Pressure in my face, weird tingling in nose and back of neck along with the electricity feeling… I'm starting to think this isn't T?
    Lurius
    No, that doesnt sound like T, but it could be one of the reasons why you have T. It could be something bigger, although I wouldn't panic quite yet. It sounds harmless for now, but monitor it for a few days and see if it gets any worse.
    M
    I have these symptoms for 4 years now. Brain mri is clean. They thought its my neck tension doing it. but nothing helped i went to massages,chiropractor & physical therapy. It comes and goes. any update?
    Anyone else dealt with "head tinnitus" that feels like an electric current in their head? Driving me absolutely insane
    Rockman
    Mine did a few weeks after onset. Of course I thought it was fading away when it started to leave my ears. I've read on here it could be anxiety driven
    Rockman
    It's been a year straight for me of the brain zaps
    bethadtr
    @Rockman mine has appeared randomly and it's more of a sensation than the noise, I kinda feel it in my mouth and nose too lol ??? So weird, I'm wondering if it's T related at all
    so just had some dental work done today.. just your average scale & polish check up. Anyone else had this done with no worries? :)
    Damocles
    Yeah @bethadtr.

    But the last time I went, I explained to my hygienist that I had tinnitus; so she used the AIR FLOW for the majority of the cleaning, which, with earplugs in, made the whole thing pain-free and easy.
    Damocles
    I've had cleaning done without earplugs in once before though, with just the regular tools for "scale and polish" (as you put it), and it didn't make things any worse.
    Robster
    Since getting tinnitus I get my dentist to do a manual cleaning(no electrical tools used)
    going through a T & VS flare up, merry Christmas everyone <3
    Wrfortiscue
    <3
    Shoon
    That's weird cause I'm going though this right now! Im starting to get bothered by headlights now too when I haven't been. Hope you can enjoy the holidays!
    Finally got reffered to see a Neurologist after a year of begging. Hope I can maybe get some answers!
    Steph1710
    Really hope you get some answers Beth! Everything crossed for you. X
    G
    Good luck. Weird how we sometimes hope to find something wrong with us. We want to know at least a cause to point at.
    Hey @bethadtr , I just found your profile and wanted to provide some support If I can. It is such a pity that young and beautiful people have to suffer from this condition. I really hope you fell better soon and think only about living your life at its fullest, without worrying over health issues. You deserve to be happy and loved.
    bethadtr
    Hi @Freerunner, thank you for the lovely message - sorry for the delayed reply I've been going through a bad time recently but I'm hoping to feel better soon. Thank you for your kind words, the same goes for you! I really appreciate it <3
    Updates: (not Tinnitus related) I've developed a tremor with tingling, numbness and feeling off balance - T remains fine. Worried :(
    Just had the scariest experience. The back of my head/neck started to vibrate and the sound filled my head and it was all I could hear ;(
    To clarify from my last post: I've been having days of feeling tingling, numbness, dizziness, hence why I think it's MS ;(
    Steph1710
    Hi @bethadtr, if it helps, I often have numbness and tingling in my face and body. Also I suffer with feeling dizzy, and I have done for years and years.
    Very convinced I have MS, or all the symptoms of Visual Snow Syndrome. I try not to worry but it's so hard not to :(
    Vassili
    My Visual Snow comes and goes in flashes.
    Tau
    Visual snow is a common in people suffering from tinnitus. It's most likely not MS.
    Lurius
    Is your vision clouded/blurry from time to time? My icelandic friend with MS says thats how it started for him.
    went out clubbing for the first time since T the other week (with plugs of course), all fine & no change in tone. Nice to feel normal :)
    Nadia231
    That's great! I tried (silly me) socialising for the first time in 13 months and couldn't stay in the pub longer than 1h. The place was not even loud.. But the people talking at my table was too much.. Went home in tears
    bethadtr
    @Ben Winders i have some basic 15db plugs on Amazon at the moment, but looking to get some moulded ones!
    bethadtr
    @Nadia231 oh I'm so sorry to hear that :( I've had similar experiences trust me! It'll get better x
    woke up to a change in tone, really not a fan. Went from a SHHHH to a BEEEEP. Cba tinnitus leave me alone :(
    Steph1710
    @bethadtr sorry to hear that. I have also recently developed a new sound. So I can sympathise. *hugs*
    Visual snow has spiked for some reason, however I am feeling quite run down so that might be why. Tinnitus is stable :)
    Farida
    I'm actually jelaous of people who actually have only Tinnitus as it's supposed to be :(
    Went for my first party the other night since T, wore my plugs and was absolutely fine. Reassuring!
    Steph1710
    Nice one @bethadtr :) I have a meal out in London next Saturday. It will be my first time in London since getting T. I am little nervous. I am glad you had fun at the party. X
    Damocles
    Invite me to the next one @bethadtr! Need to test out my new acoustic filters.
    Working full time again in a setting that I can't really use plugs, my ears have spiked slightly but nothing too bad. Just an update :)
    Damocles
    Good to hear from you @bethadtr; glad you're coping well. Everything okay with that right ear in the end?

    Keep us updated on how your job is going!
    bethadtr
    @Damocles all was okay in the end! Thank you for asking :) and yes the job is going well thank u
    Someone in my household has tested positive for Covid, worried that it might make my T worse. Has anyone had any effects due to Covid?
    LilSass
    No effect on t, just a five day migraine! :p
    Feel like I might just be anxious but my right ear (the one that's felt full and aching) feels muffled. Is it because it's blocked? Worried
    Damocles
    Yeah, like @Ilias T said, it could be wax build up in the ear: hence why it feels "muffled".

    However, the fact that you say it's muffled AND aching leads me to suspect an ear infection (likely "outer").

    Whenever I get outer ear infections I get these same two symptoms as a result of the ear canal swelling up.
    Damocles
    Like I said before: make an appointment to see your GP (ASAP), so they can determine which of these is the probable cause.

    If it IS an ear infection, they'll simply prescribe you antibiotic ear drops.

    Let us know what happens.
    bethadtr
    @Damocles thanks so much for this - i will keep you posted :)
    So the last few days my ears have been feeling blocked up and almost aching at times. They just feel full - Should I be worried or normal?
    aot
    Should probably get checked at an ENT (Don't let them do a Tymp) in case it's an infection. And make sure to wear plugs whenever unexpected/uncontrollable loudness can occur.
    Damocles
    See a doctor just to rule out Ear Infection.

    Assuming everything is fine, do some steam inhalation with Olbas Oil (in through the nose, out through the mouth). Should sort this out.
    Ilias T
    Happens to me too, but usually one ear because earwax changed position.
    Shoutout to all my English T sufferers today going to watch the euros final! Earplugs at the ready! It's coming home ⚽
    Happy one year anniversary to me & Tinnitus <3
    Damocles
    They all said it would never last when me and my T got together, but look at us now! 12 years together and the love only grows stronger each day...
    Steph1710
    bethadtr
    @Steph1710 i'm doing okay thank you! Living life as normal as I can! Getting on with it all! How're you honey? Hope you're well :) x
    Living my life as normal going out to bars, shopping, cinemas and restaurants - no spikes. Please do remember you only have one life!
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