_Shoto_

_Shoto_

Member
Messages
1
Reactions
894
Points
153
Joined
Last seen

Profile posts Latest activity Postings About

  • _Shoto_
    I woke up at 2 am and my tinnitus is raging. I have no energy left to cry or fantasize about me waking up without tinnitus one day. Awful.
    View previous comments…
    _Shoto_
    At the very least I hope that strong anti-anxiety meds will help me for at least a few hours. I will not use them every day or even every week but god I just need one, ONE, silent day. I'm not religious but I pray it will help. At least 20% noise reduction IS a win to me!
    Tryn2BHopeful
    I felt the same way. Sometimes I wonder how this is even real.
    RunningMan
    20% reduction would be terrible, maybe not even noticeable, particularly with variable tinnitus. 50% reduction is 6 dB, which is noticeable but not that high, either. So hopefully Auricle will provide more than that over time for those it helps.
    _Shoto_
    My temporary hissing sound in my left ear is gone.I had it for like 3 days. Now my tinnitus is again just super loud high-pitched ringing
    _Shoto_
    3 months anniversary is very very close. I feel worse than in the beginning of this journey... It's so loud...man, I'm so defeated
    _Shoto_
    Physical therapist made my T and H worse while doing massage to make my T and H better... Unbelievable. I was shocked so I didn't left room
    _Shoto_
    I am literally praying rn before going to bed that everything is going to be okay and I won't woke up with a spike in H and T. I'm so scared. I am also only trying to get meds for panic attacks. I won't survive a flare up :c
    _Shoto_
    My physical therapist is so good at fixing my jaw. Literally 10/10 BUT she made my Hyperacusis much worse due to loud talking :c
    _Shoto_
    My allergies test was alright. I'm allergic only to mold and dust. No plants or food. But I'm worried about my hyperacusis so much. I think I'll refuse to see my physical therapist until my hyperacusis is totally gone. Or perhaps I'll use earplugs all session long. Can't stand loud speaking next to my ears
    _Shoto_
    Tomorrow I have an allergy test on my skin. I'll find out what I'm allergic to. ENT thinks it may cause tinnitus. It's 100% not but I agreed
    _Shoto_
    Also, I was able to get a referral to a psychiatrist who prescribes anything you ask him for. Well, at least judging by his prescription records from 2019. I am so close to get real meds for my panic attacks... finally no "take hydroxyzine or amitriptyline" BS!
    _Shoto_
    I was able to obtain not ototoxic migraine medication for my daily headaches, now I'm finally about to get not ototoxic panic attack meds. I'm finally ditching ibuprofen and antidepressants. Life is slightly getting better, even if only by 0.01%.
    _Shoto_
    I will not miss antidepressants, but ibuprofen is so so good in managing even above average moderate pain. It's such a shame I can't use it anymore safely. It helps with headaches and toothache 100% of the time. It was such a life-savior. Same with paracetamol and NightQuill syrups. That's unfair that all of them are extremely ototoxic! :c
    _Shoto_
    Tinnitus is deafening today + crazy headache. I did use THC but not sure if it's all related. I feel so bad, so so bad. Almost in agony lol
    _Shoto_
    Okay. I don't like the new hissing tone in my left ear, but at the very least now all my ears are bad. I think this is fair :c No good ears.
    Jammer
    I'd say most tinnitus progresses to a dual ear problem over time.
    _Shoto_
    1 am. February 11th. I got a new tinnitus tone in my left (good) ear. I have no words. But I know it's forever with me. Just like the others
    _Shoto_
    8 am. It still there. Well, I guess I did something wrong or this is just my fate to suffer. I was protecting my ears like crazy. Grocery store is only with earbuds. Walking near the road only with earbuds. Listening to music only without headphones (until 2 days ago) and even when I started using headphones again the volume was set to 6 out of 100. They couldn't cause this, I just don't believe it...
    _Shoto_
    I think I'll start over-protect my left ear today...I honestly don't know what to do. A new sound after 2.5 months of tinnitus is crazy how scary. I just had a great day yesterday and here we are, back to square one. I love my life lmao
    _Shoto_
    Tomorrow is first appointment with physical therapist to discuss my TMJ. Zero expectations I just hope won't be any worsening of my symptoms
    _Shoto_
    Well, I do have severe TMJD. My PT is a nice woman and she said my TMJ absolutely can cause tinnitus and my ENT is wrong about everything. Typical stuff for us, all doctors say different things. Next week I have Allergies test, and an hour later TMJ massage. We will see how it goes...
    Forgot to add: TMJ massage is uncomfortable and very painful. I hope it worth it ._.
    _Shoto_
    Loud popping/clicking sounds in my ears are gone if I swallow a food but if it's just an air they are immediately back ._. The mystery...
    _Shoto_
    Got prescribed meds for my tinnitus induced daily headaches. 10 pills cost 1177 dollars. I miss days when I could just take ibuprofen man
    4Grace
    What pills are those?
    _Shoto_
    @4Grace, they are called Ubrelvy. My PCP said these are the only meds in the USA that don't cause tinnitus or problems with jaw (I have TMJ as well)
    _Shoto_
    Getting tinnitus changed my views on problems. I never had any before November 24th 2023. Just minor inconveniences at max. I was an idiot..
    gameover
    Preach, brother.
    Tryn2BHopeful
    I feel this.
    4Grace
    100 percent. I feel like my family and friends are reaping the rewards. They feel so much better about the problems they believed they had. Now they say … well at least they are not like me.
    _Shoto_
    Crying every day when my mom isn't at home. It's so lonely and silent. No one to talk to. My tinnitus is so high-pitched... It's painful...
    Tryn2BHopeful
    I feel this to. My T is pretty high its like a laser beam going through my head. Sorry we have to experience this.
    _Shoto_
    Listening to masking videos is painful. They help for the duration of the video but then when it ends the pain hits your head with all force
    4Grace
    Your T and H sounds like mine. So sorry.
    _Shoto_
    Currently having a panic attack with no meds for this. I am not able to accept...I am not. I just can't. I'm only 21. This is the end
    _Shoto_
    Yesterday I did something with my jaw and my popping in the ears stopped for 5 mins. It felt so good. I really may have TMJD after all
    _Shoto_
    68 days since tinnitus and ~55(?) days since hyperacusis. I finally starting to get used to the ringing and my Hyperacusis also seems better
    Heal82
    Hi shoto, may I how severe was your Hyperacusis and what did you do make it better ? I got my Hyperacusis when ear irrigation was used to remove ear wax.
    _Shoto_
    Hi @Heal82, my hyperacusis also possibly started after ear irrigation. My Family doc did it 1 week after my tinnitus started because he thought earwax may be the problem. The first 2 days many sounds were distorted, especially the plastic bag and paper, but all that went away after a week. However, my hyperacusis still remains. It was, 5/10, now 3/10. I still can't tolerate normal speech, but slowly it gets better
    _Shoto_
    Awaiting the miracle. I still hope for the full recovery even though it seems extremely unlikely. Am I too pessimistic? We will find out! :D
  • Loading…
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu