vilebubbles

vilebubbles

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Viewing thread Desperate for Help: My Son’s Severe Tinnitus Flare After Concert Exposure

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  • vilebubbles
    Been talking to chat gpt. Apparently rapid paced tones that don't change and are in your brain rather than ears is a symptom of severe auditory hyperactivity and likely permanent. I'm fucked. If some of these tones don't go away I'm out.
    vilebubbles
    If I've had a new tone for a week, it's probably permanent right? Sounds like rapid fire piano keys banging.
    View previous comments…
    vilebubbles
    Thanks but I had tinnitus, hyperacusis, and nox before benzos. Nox is why I went on them :/. T just got much worse when I began tapering. But it was already getting bad.
    S
    How long had you been suffering when you went on the benzo's?

    Unless you were years in already, given some extra time after the benzo's to settle, things might gradually improve after and you could get a good bit of your life back...

    You said yourself you've noticed an improvement in the nox and that's while withdrawing.

    My T/H/N all got a lot worse before they started getting better.
    vilebubbles
    I'd had T and nox about 4 months before benzos. I'm just scared bc the tones are getting louder and more
    Aggressive and none are eeeee or hiss. They're like rapid tones all over
    My head
    vilebubbles
    I wish I didn't know what was happening to me. I used to hope it'd stabilize. Now I see it's just going to progress.
    DamagedJoe
    What was your first noise trauma?
    vilebubbles
    Loud music in a really strong speaker system in a car. Blasting music on headphones. MRI.
    DamagedJoe
    I feel your pain. Today ist a bad day for me. This condition will kill me someday.
    vilebubbles
    Everytime I think it can't get worse, I'm proven wrong with a new tone, that is often worse. Just trying to do basic things like taking a bath or eating or taking ear plugs out for a few hours at night. At this point I don't know if the new tones are sound exposure or from meds and my brain is just too beyond messed up. My vss is also progressing. Nox seems controlled still with quiet.
    in_the_shadows
    Hey, how are you doing? our tinnitus profiles seem surprisingly similar. Most people mention a couple of tones, but I get several dozen in each ear, and none of them are constant too--they're all rhythmic and melodic ("alien" as you described), like my brain is looping random bits of sound it picked up at some point in life and just keeps playing them back.
    View previous comments…
    in_the_shadows
    I took SSRIs 10 years ago, which led to tremors and some neurological issues. But only a year ago after a concert, antibiotics and some bad luck I developed severe tinnitus. Needing rescue doses of Diazepam once a week hasn't helped long term either.
    vilebubbles
    I cold turkeyed an SSRI. I see a lot of SSRI people have the crazy tones.
    in_the_shadows
    Same. I had brain zaps and other brutal stuff after going cold turkey. Now even one antihistamine messes me up for weeks. Only benzos and alcohol make me feel normal.
    vilebubbles
    No longer able to sleep over 3 hours even on benzos. T is too intrusive and h causes every noise to jolt me awake. Nox is off and on I guess.
    Accidentally messed up my benzo cross taper and was taking way too little. Went up to almost the correct dose but it isn't working.
    vilebubbles
    Ears are so sensitive. Every car that drives by causes a squeak or a reaction in tinnitus. Can't get away from the cars. Some pain around ear.
    vilebubbles
    Yesterday wasn't too bad. We will see what today holds. Left ear feeling very sensitive and popping along with unstable tinnitus and H in both ears still. Nox seems…controlled? (Fingers crossed).
    Joshua Macleod
    My fingers are crossed for you, mate. Taking it day by day feels so difficult but you're doing great.
    vilebubbles
    thank you. Today was weird. I took a nap and as I was falling asleep my ears began just screaming with a new tone. It left but it was terrifying…for now I'm back to baseline auditory nightmare lol.
    vilebubbles
    I don't think I can do this :(
    S
    You can, I know you're scared but you'll make it through... it feels horrible and intrusive but it's not an actual threat even if your entire being is trying to tell you otherwise, it will get better.

    Try and do something to distract (I bought a block of modelling clay and took up sculpting) & to de-stress, even if it's just for 30 seconds with a breathing exercise, we've all got to start somewhere!
    vilebubbles
    My update; Ear burning getting worse. T fluctuates from pure hell to severe based on Ativan dose.
    H
    Hey, I am in klonopin withdrawal, 15 months along. My tinnitus is pretty bad the past few days. I have about 8 tones altogether, but some days are a lot better and I it seems more like 3/4 tones. Hang in there… I have an 8 year old and an 8 month old. You seem really scared.
    vilebubbles
    I am very scared. Thank you for your encouragement.
    vilebubbles
    Another day in my room in plugs. So scared this Ativan taper will kill me. I'm not nearly as strong as Padraigh or Brian and look what it did to them. They have kids too. Benzos are evil.
    vilebubbles
    Holding on for my son, Kai. Kai buddy I love you more than anything in this world and mommy is trying to get better for you.
    vilebubbles
    Staying on my taper of Ativan at 1/4 of a 0.5 pill 3x a day. My tinnitus is insane. 10 different sounds in head and ears. I'm also having ear pain and extreme hyperacusis. I'm very scared. It seems all the suicide stories here got bad multitonal tinnitus from benzos like me. Trying to stay strong but worried I'll just be a memorial post in a few months. One tone vibrates my entire head.
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