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  1. Magpie

    Deganwy Man James Ivor Jones Jumped to His Death After Being Told There Was No Cure for His Tinnitus

    Fuzzy Freddy wrote: But as much as I hate reading these stories, they are invaluable towards raising awareness of this dreadful condition to GPs and other doctors and healthcare professionals, who currently are many who do not know how to talk to people like us and how to help us. I am satisfied...
  2. Magpie

    Deganwy Man James Ivor Jones Jumped to His Death After Being Told There Was No Cure for His Tinnitus

    Atlantis wrote: Nobody seems to have missed you! Go back to living in your little fantasy world. This is real life! We should all go out and scream how tinnitus kills people. Seems the only person living in a fantasy world is you. If that's your plan then good luck to you but if you think...
  3. Magpie

    Deganwy Man James Ivor Jones Jumped to His Death After Being Told There Was No Cure for His Tinnitus

    Threads like this are the reason I stopped coming here.
  4. Magpie

    I Guess I Have Tinnitus

    I consulted a doctor, he said I have developed Ménière's disease and Labyrinthitis due the stress. I have Meniere's and to my knowledge you don't get it from stress. Meniere's is caused by an excess of fluid(endolymph) in the inner ear. It is also known as endolympatic hydrops. The exact cause...
  5. Magpie

    Who Can't Habituate or Can't Be Helped By TRT?

    tinnitussufferer wrote: I read that most of us naturally habituate anyway. That is the goal of TRT and most of us do it automatically. Taking into account a course of TRT can last up to 18 months it's quite possible that habituation would have occurred regardless. If I'm totally honest about...
  6. Magpie

    Who Can't Habituate or Can't Be Helped By TRT?

    Matt wrote: 1. Aren't bothered by their tinnitus or consider their severity a 1-3 on a scale of 1-10. Because I would guess the only way to help people who are generally not bothered by tinnitus is to make it go away completely, and that's not possible with TRT. If U R not bothered by it you...
  7. Magpie

    Neuromonics

    LadyDi wrote: Anyway, I was offered two options beyond trying to do it myself with an MP3 player: Neuromonics Oasis: $5,900 (ouch). Device is not returnable. Widex Zen (even though I don't have a hearing problem): $3,200. Most of my investment can be recovered within 60 days if I am not...
  8. Magpie

    Is Habituation Possible If You're Depressed?

    Lisa123 wrote: So, is it possible to habituate while you're depressed because of T. My reaction to T seems neutral (I think). I don't really panic that much anymore when I hear it. But I am generally depressed because of T. I feel sad and I feel as if life's pleasures have been taken away from...
  9. Magpie

    LOUD Tinnitus versus MILD Tinnitus

    Only a small percentage of people who experience tinnitus actually have loud tinnitus. The problem however is that suffering isn't necessarily related to loudness and somebody with very mild tinnitus can be as traumatised as somebody with very loud tinnitus. I also believe that somebody with...
  10. Magpie

    Tinnitus Reaction/Perception

    I keep reading in people's posts that tinnitus is just a sound and that it doesn't matter how loud it is, but that how well one copes or habituates to tinnitus is tied to one's reaction to or perception of that sound. My question is: Is anyone else's tinnitus also tied to their circulatory...
  11. Magpie

    AM-101 Clinical Trial — Participants Updates and Discussion

    IMO it just validates that tinnitus is subjective and people's perception can change from day to day. My tinnitus is screaming right now. When I got up it was screaming, when I went for a bike ride it was OK because I was focused on the traffic, other riders, what was going on around me. When I...
  12. Magpie

    My Tinnitus Has Changed ...

    Christian 78 wrote: Oh yes I am trying atlas correction, anything that could help, Russian cosmonauts diagnostics medicine, and some other things, worst it tinnitus and hearing loss that started with kidney stone (i get them often in winter period). But this tinnitus is monster honestly, i...
  13. Magpie

    Health Anxiety

    Lisa wrote: Right now im so nervous with pins and needles sometimes in my legs and arms, face and lip numb sensation and crawling skin. People say its common with anxiety which i suffer with badly. I am always googling symptoms and freaking me out. Ms and brain tumour and all sorts come up :(...
  14. Magpie

    I Lost My Respect and Faith in Doctors or Modern Medicine

    http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Vertigo_benign_paroxysmal_positional_vertigo http://vestibular.org/understanding-vestibular-disorder http://www.menieres.org/talk/
  15. Magpie

    Anger >;@

    So like I'm just wondering if anyone else here gets random bouts of anger in regards to their T? I know all of us aren't too happy about it but I'm talking serious rage!! I don't know whether it's the depression or what but I feel so damned angry & I even welcome it due to being an actual...
  16. Magpie

    Vertigo! Emergency

    Larry OT wrote: No ears plugged. I tired a maneuver like that and got real bad. IT maybe from that I stopped taking a med Abilify. Not sure. Ant head movement makes me dizzy. FUCK ! I'm supposed to go on vacation w my family tomorrow. Check the side effects of this drug and I suspect that like...
  17. Magpie

    Nothing Changes My Tinnitus

    Martin wrote: Question: Is there anything else where you see a loudness change of your T? In the past I could cope little bit better since I had the one or other milder day or sometimes a milder hour. But now it is really difficult. I have very loud T and nothing has ever changed the volume or...
  18. Magpie

    If You Had a Million Bucks...

    If you suddenly came into a wad of money, a huge bankroll, say, over 100 million dollars (pounds), how would you spend it? Would you be altruistic, philanthropic, (giving), or conceal it from others? I would give half to the RSPCA and Lost Dogs Home. I would give 25% to my daughter. I would...
  19. Magpie

    Tinnitus — Anxiety Relief Techniques® (ART)

    I had no idea about ART but I found this and it's only $97: The Amazing Formula That I Found Is Called: TINNITUS–ANXIETY RELIEF TECHNIQUES® (ART) Anxiety Relief Techniques® has been effective in more than 90% of the thousands of cases where it has been applied. This self-help method is unlike...
  20. Magpie

    Dr. Charlie — ENT Specialist With Tinnitus

    Cost: TRT trainers typically recommend that a professional sound-generating device similar to a hearing aid be worn 24/7. These devices are quite expensive, often costing upwards of $2000. My personal experience is that patients can enrich their own environments with pleasing sound just as...
  21. Magpie

    I've Had Enough...

    Maybe you need a different med because some of them do spike tinnitus. What did they give you?
  22. Magpie

    First Clinical Practice Guidelines for Treatment of Tinnitus

    It has nothing to do with the BTA, ATA or any other organisation. It is recommended clinical practice guidelines which can either be ignored, modified or accepted in full by individual clinicians. The emphasis if I am correct is on sound therapy and counselling. But even TRT comes in for some...
  23. Magpie

    First Clinical Practice Guidelines for Treatment of Tinnitus

    Well that went down well :confused:
  24. Magpie

    Poll of Everyone's Tinnitus Levels

    Greg Clarke wrote @@Magpie How does it affect you emotionally? Would you say you have habituated? If you have dealt with it at 80db's there's hope for everyone. I'm habituated Greg but habituation is a different experience for everybody. I've read these boards for a long time and I've read...
  25. Magpie

    Poll of Everyone's Tinnitus Levels

    I can hear mine loud and clear over my lawnmower which is rated at 80db's. I can hear mine loud and clear while driving on the highway at 110kph with the side window all the way down. It doesn't matter how loud it is what matters is how it affects you emotionally.
  26. Magpie

    When Will My Ear Pain Go Away?

    I have no idea bee but it would be interesting if they studied the hair cells of people who had severe tinnitus who had passed away. When I kick the bucket they can check mine out or use them for research.
  27. Magpie

    When Will My Ear Pain Go Away?

    My guess is that you may have done some damage to your auditory system and maybe the tiny hair cells have taken a hit. See the pic here: A micrograph demonstrating the damaging effect of noise to cochlear sensory cells. The inner hair cells (IHC) are seen forming one row with well preserved...
  28. Magpie

    Do You Hear Tinnitus Clearly Over the TV?

    Telis wrote: Just curious about this....I watch TV med volume and my T blasts over it making it hard to concentrate. Anyone else have this issue? Always been like that in fact I have to turn the volume up to hear the tv. It was impossible for a long time and so frustrating that I often gave...
  29. Magpie

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    locoyeti wrote: Could you elaborate on these three opinions with reference to any scientific studies or data? Of course not I said it was only my opinion and people can agree or disagree but I see the latter is what almost everybody here thinks. I base my opinion on reading studies from the...
  30. Magpie

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Disagree. What I said and quite accurate in your case: Some people are hanging their hopes on this drug being the cure and while they are doing this they are probably not doing what they need to do in terms of healing themselves.
  31. Magpie

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    mag pie I'd love for you to walk in my shoes. I recently gave up a band /musical entertainment company which I had to do because it was making my t and anxiety seriously worse. I did CBT with Dr Hubbard in NYC and regardless I found my concerns were not "unrealistic" thinking . I just couldn't...
  32. Magpie

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    so u guys are saying Aut00063 is not gonna work with everyone? so most of the people who are waiting for aut00063 is gonna be disapointed if it does not work its gonan suck if this pilld oes not work for me cause then we gotta wait another 1 or 2 years for the next drug and that prob wont work...
  33. Magpie

    BTA Refuses to Fund Drug and Stem Cell Research

    I just forget about the BTA and focus on Autifony at the moment...I'd rather donate money to them. Why? A. The QUIET-1 study is a clinical study to determine whether or not a new test drug, AUT00063, can reduce symptoms of tinnitus in comparison to a placebo (dummy drug) after 4 weeks of...
  34. Magpie

    Do You Ever Habituate to Complete Silence (Silent Room)?

    I feel like as long as i can keep a fan running, some white noise, city noise etc i can handle this stuff. But when i am in complete silence it's nearly unbearable. I'm fairly new to this game, so my question for you vets is, do you ever get to the point that you can be (or possibly even sleep)...
  35. Magpie

    Is Habituation Just Getting Used to the Noise and Not Having It Bother You?

    Kathi wrote: I've learned a lot about habituation here and in reading the success stories here and a couple of blogs, I see that people go days and weeks without noticing their T. Then I'll read that they mask at night or still hear their T in the morning. I'm confused, to be honest. Is...
  36. Magpie

    Tinnitus from concussion after bicycle accident Aug 30, 2014.

    I've been a regular rider for the past 7-8 years or so and I've been involved in a number of accidents. I've been hospitalised 3 times and I have 3 old helmets now that were destroyed. I also had a crash at about 25k's when something blew into my front wheel and jammed in the forks and I went...
  37. Magpie

    Meniere's Disease

    A link to a wonderful organisation who helped me enormously in the beginning and when I needed it most: http://www.menieres.org.au/
  38. Magpie

    In Loving Memory of David Craig Muller

    Threads about suicide are always difficult for admins of boards and regardless of what they do or their policy they will always be criticised. It has been said many times in the past that suicide rates are no different among those with tinnitus or those in the general community. There are...
  39. Magpie

    Oldies sometimes make us newbies feel worse!

    carol kane wrote: Why do i read time and time again, Tinnitus since ... 1990, 2001, 2002, etc, etc, this just makes my heart sink, as all i ever hear is you will habituate, you'll start forgetting about it, your brain will get bored of hearing it, and i think halleluya!! time will help me so...
  40. Magpie

    Homeopathy: Products for Tinnitus (Nonsense, or not?)

    In New Delhi we have got some very experienced doctors who practice homeopathy and almost every homeopath i have contacted have cured 80-90% cases of tinnitus completely , the remaining 10% have had improvements upto 60-70% because there problem is chronic Interesting and I'm amazed that with...
  41. Magpie

    Meniere's Disease

    I was dx with Meniere's about 15 years ago. The symptoms came on suddenly one day: vertigo, nystagimus, hyperacusis, tinnitus, fullness and dizzy drop attacks several times a day, I thought I was going mad or having a nervous breakdown. My doctor sent me for an MRI almost immediately as I had...
  42. Magpie

    Tinnitus and exhaustion/sports

    Depending on how much I push myself it can have no effect or some effect on my T. But even when my head feels fuzzy and my T is worse it has always been temporary. I would say it boils down to blood pressure so when you have been working up a sweat it's possible or probable that your T will be...
  43. Magpie

    Making Tinnitus Your Best Friend

    RaZaH wrote: I wonder what kind of insane amount of self control and discipline would be needed to decide to love T? Could it be done ? Without taking LSD or having a lobotomy ? After all , this life is just a ride , why so serious ? I imagine you would be a seriously strong person after...
  44. Magpie

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Shenandoah wrote: Maybe I read too quickly, I didn't catch anything that lead me to believe it has been successful in relieving sufferers of T, am I mistaken? Have to agree with you, many years ago I read of a significant breakthrough, in fact I can't remember the correct term but it was...
  45. Magpie

    Different Types of Tinnitus and Duration?

    I'm in the camp that also believes Tinnitus is provoked by a cause, and therefore different causes might provide different time lengths of recovery. I'm of the belief that the longer the duration of tinnitus the less likely it is to disappear and that might be regardless of the cause. Over...
  46. Magpie

    Peace ...

    Martin wrote: And I don't know why. I am sitting here with my boys playing computer games. I have a lovely wife, I have a good social network, friends, football as my hobby, no financial problems. I really try to find out if it is really T and once I have overcome this, things are shining again...
  47. Magpie

    Is Listening to Your Tinnitus as a Sound Therapy Good?

    I have a tool that can generate tones in intervals and after I turn it off the tinnitus seems to be better for a few seconds but then it returns. So is it good to do this on a regular basis? IMO it's not good and I'm not aware of anybody who said their tinnitus was reduced or stopped(cured) by...
  48. Magpie

    Peace ...

    Martin69 wrote: Hi all, I gave myself a week time staying away from the board. I just wanted to concentrate on other things. I only read success stories on the yuku board to stay optimistic. As Billie said, time will heal - hopefully. But trust me. My head is buzzing like crazy. It makes sounds...
  49. Magpie

    Tinnitus Therapy

    Further to my post #22 I seem to recall the ATA study was in the order of $100,000 and Richard Tyler may have been the recipient of the grant. It created a bit of discussion at the time on the Ezboard tinnitus board. Now I'm a bit hazy on this and I'm not sure if the ATA archives go back 10 or...
  50. Magpie

    Define Severe Tinnitus?

    Tenna wrote: I came to think about how severe tinnitus is defined. It seems as if there's a general consensus of severe t as being loud. Correct me if I'm wrong, that's the general impression I've gotten from everywhere. However one with an incredibly high vol t can practically not care and one...
  51. Magpie

    Tinnitus Therapy

    Sure, it is for a new product development course. I am exploring the opportunities. The research is more on the Tinnitus Retraining Therapy (TRT) and using music in place of sound. The devices I was referring to was the sound maskers and how that is helping compared to sound habituation. From...
  52. Magpie

    Is It Possible to Have a Healthy Marriage with Tinnitus?

    In time your partner won't even think of your tinnitus and you won't regard it as a major problem but an occasional annoyance so worrying if you can have a normal relationship is putting the cart before the horse. Be independent and don't rely on your partner or somebody else for strength. Sure...
  53. Magpie

    MuteButton

    Dear Brian We are due to publish results this year, so for that reason we cannot disclose results but I can tell you that we saw an overall 40-50% reduction in tinnitus over a 10 week period and our results were statistically significant. I cannot see any reason why you couldn't purchase...
  54. Magpie

    Benign Paroxysmal Positional Vertigo and Tinnitus

    I have Meniere's which is now under control but the early years were devastating. IMO it is far worse than tinnitus because you are effectively disabled. The early treatment also consisted of anti-emetics and vasodilators which were basically useless. When I heard about reducing salt content I...
  55. Magpie

    CBT and Tinnitus — I Don't Understand

    King Raonoke wrote: Thanks for the responses. I was having a bad night. I have calmed down. I woke up and my brain took a little time to find the tinnitus, but before that time I felt no pain. That does seem like it's probably my reaction - even after all these years, I must still have this bad...
  56. Magpie

    Do I Even Have Hyperacusis?

    "...the more you use earplugs, the more you will start to appreciate them." That's contrary to mainstream medical opinion that overusing earplugs is unwise and may inhibit recovery from hyperacusis.
  57. Magpie

    A Sound Incident While in Setback Has Me in Tears with Pain :(

    Well i started to listen to music daily and slowly exposed myself more to offending sounds. My ldls seem to climb at a rapid rate and i almost felt normal. Things shifted when i started going outside daily, biking and walking.. I also got my hair done and was exposed to loud noise there..i think...
  58. Magpie

    A Sound Incident While in Setback Has Me in Tears with Pain :(

    You shouldn't feel obligated to carry on like normal people(whatever that means), you should be yourself. I don't know why your ears are in "horrific burning pain" but I have experienced pain in my ears and it isn't pleasant but the pain is almost always temporary so you get through it. If you...
  59. Magpie

    Do I Even Have Hyperacusis?

    My experience with hyperacusis was that certain sounds caused pain in my ears. It wasn't anxiety or anything psychological it was quite painfull. Even today after many years have passed certain sounds still cause pain. I would say you don't have hyperacusis but you are anxious about the volume...
  60. Magpie

    How to Reduce Your Tinnitus

    Zimichael wrote: Matt...that is really super that you had zero volume on your tinnitus. If you were actively listening for it and it was not there, then indeed I call that 'zero volume'. I would say tinnitus is non existent and call it cured or whatever it's time to move on with your life away...