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  • Users: Tonny
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  1. Tonny

    FPV Flying, the Perfect Hobby for Tinnitus?

    Awesome! I live in Lier and thinking about doing the same...
  2. Tonny

    When A Hobby of Fixing Old Computers Meant to Calm You Down Bites Back on Your Tinnitus

    Hello! We spoke some months ago. It was a good session. I have been trying to live as normal as possible, and I have a hobby fixing old computers (I am an engineer of electronics). However two weeks ago, one capacitor blew on one of my projects while sitting close to it. It was a small 1000uF...
  3. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Status now, a lot happening actually . I am in the Philippines on visit to my dear wife and daughter. Have been since 18. December, going back 18 January. I work remotely each workday, and I am so thankful for a very understanding employer. I have had some very constructive days feeling I...
  4. Tonny

    Tinnitus Is Back Again, with a Vengeance

    It goes up and down. In bed today, have slept 13,5 hours (!). My Tinnitus is so unstable. The beeping sounds comes depending on external sounds, my movement or my mood. If I get raged thinking about what the Norwegian state has done to my family the high frequent beeping is usually spiking...
  5. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Well, had a good game of Destiny on my PS4 tonight, talking with my friends. Did almost not notice my T - but it was there when i checked. Its the small victory's I need to cling on to.
  6. Tonny

    Ready to Give Up... Reactive Tinnitus Killing Me

    See my initial post today. I got T from an exploding tire and might be combine with my band playing + extreme stress at work. It started off like a hum, and I got highfrequent noice after some days. It got worse for about a year and stayed like that for another year before it suddenly got better...
  7. Tonny

    Ready to Give Up... Reactive Tinnitus Killing Me

    Hello Michellejean. You tried to chat with me, but cannot reply on that for some reason. I had Reactive Tinnitus for two years last time. It eventually whent down replacing it with an uncomfortable Hyperacusis. Fortunatly i got treatment that worked for that. Sadly, I am back with some...
  8. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Biting my teeths together. Its a bit creepy talking to other people, because I get high pitched sounds (high frequent "swosh") listening in the phone or talking to others. Wonder how to get used to that :-\ I really have to put myself together not to get panic. But, I do really hope my brain...
  9. Tonny

    Frequency Therapeutics — Hearing Loss Regeneration

    I think restoring hearing might help a lot of us, but not everybody. Tinnitus is a complex beast, but for me I think it will help. Restoring the dead cells to send signals again adjusting the threshold. However, if it's just to grow new cells is a good question since I hear that they should...
  10. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Totally off topic, but: Maybe i should play Destiny 2 this evening. New DLC has come. Just to try to enjoy myself with some friends online.
  11. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Well, I really do love my wife ;-)
  12. Tonny

    Tinnitus Is Back Again, with a Vengeance

    I will try to work a bit now for the rest of the day, focusing on other things. I need my work or I will loose my family.
  13. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Yeah, its more like the 9000 hz. And I can hear it against most sounds, maybee exept when I shower (mostly, but some beeping sometimes punch through). But my T is extremely unstable. I also not that the first minute after waking up, its almoust gone for some strange reason. Sleeping and waking...
  14. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Well, I do understand that. But I do think the doctors also agrees. But they are trying to find a cure - I dont think they stop because some people just cope. I just try to tell myself I should be glad not having cancer, ALS, Cluster headakes or similar - trying to put my mind to focus on life...
  15. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Also, my doctor is an interresting case. He got a loud "Bzzzzz" quite sudden during his studies. He was tied to bed for a year before he was able to use CBT to get on his feet. He still has it quite loud - but is working (with me).
  16. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Well its quite loud. Just like the train passing by home, which I do not notice anymore. Even if the train uses the horn we do not notice it. Its so weird to think about.
  17. Tonny

    Tinnitus Is Back Again, with a Vengeance

    First time I had Tinnitus, the humming sound was quite loud and made me suicidal. I just realize that even though other sounds freaks me out now I still have the humming, but that sound does not bother me at all anymore even though its just like before. Its funny thing. I guess that must be some...
  18. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Well, I do not know, but I have spoken to several persons with jetplane level sounds in the ears that seems to cope fairly OK. Even the leader of the local National Hearing (HLF in Norway) was on a visit to me. He cant hear over 4000 Hz, and has constant hissing/roaring at an intense level. I...
  19. Tonny

    Tinnitus Is Back Again, with a Vengeance

    That did not help me much
  20. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Just requoting myself. Its a thought bothering me so much.
  21. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Yeah, I do follow up on news on FX-322. Gives me a bit of hope at least.
  22. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Also, right now I am scared I might not be able to visit my wife and my daughter for Xmas. The flight, noisy streets, my daughters loud voice. I have read too much on the net about all sorts of problems: People getting worse ears just by beeing in 90 db for a short while. How can I even get out...
  23. Tonny

    Tinnitus Is Back Again, with a Vengeance

    I am so scared here now, thinking this is the end of my life.
  24. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Yeah, thats what my doctor is trying to make med do. I guess I am simply to far down now to take a grip on it properly. Specially when he asks me if I can accept my T getting louder I get serously problems. But I get the point, its not my ears that should be most important in my life no matter...
  25. Tonny

    Tinnitus Is Back Again, with a Vengeance

    I vagely remember I had to sit and listen to some white noise and an increasing human voice until I could figure out what was been spoken. Dont remember the outcome, but think it was ok (or I would have remembered that). That was before I got some earplugs with white noice (TRT?).
  26. Tonny

    Tinnitus Is Back Again, with a Vengeance

    One thing that keeps me down. Are there any others that really is having a fairly happy life with Tinnitus like mine? Its quite loud, and so many noises. I just cant help feeling that people coping is the ones with constant sounds or lesser volume.
  27. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Thanks. This gives me a bit of hope https://www.cbtfortinnitus.com/dr-hubbards-story/. He seems to have a very similar condition like me. And if he has done it, why should I not.
  28. Tonny

    Tinnitus Is Back Again, with a Vengeance

    Hello! I am 46 years old living in Norway. I got tinnitus in 2010 probably due to playing in rock band + an accident with an exploding tire. I had big problems for two years, when suddenly I noticed the tinnitus was going down - but got bad hyperacusis instead. I got treatment for that, and...