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Wow, wow, wow! It’s a pleasure to read articles like this. It gives us a bit of hope when we’re really at rock bottom. Thanks for sharing. I hope we learn more about these findings soon.

Anyway, @Markku previously mentioned that the timelines discussed here on Tinnitus Talk for the potential launch of Susan Shore’s device are unrealistic. I don’t think the device will be available on the market before 2030, and it likely won’t be accessible outside the United States before...

I wasn’t aware of Ashwagandha. Thanks for the recommendation! I’ll ask my psychiatrist if there are any interactions with Mirtazapine. Many tinnitus sufferers on Tinnitus Talk have also recommended Trazodone for sleep. Unfortunately, it has not been sold in France since 1996.

I don’t want to alarm anyone, but I was curious about Lidocaine as a potential treatment, so I read this study on transdermal Lidocaine for chronic subjective tinnitus. I’ll admit I didn’t read it thoroughly, but according to the study, lidocaine administration might actually worsen tinnitus...

Given that we recently learned that Dr. Shore's device won't be on the market for years, the new hype seems to be focused on this subject. Seriously, guys, are you really ready to have a device implanted in your ears to alleviate tinnitus? Honestly, it would freak me out. I'm more interested...

With all respect, personally, and even though your opinion might be rational, I think we should stop spreading negativity on Tinnitus Talk. Even the sponsor of this drug (if I understood it correctly) said that it might help noise-induced tinnitus. So maybe it will work for chronic...

I was reading through some of my old posts on Tinnitus Talk and suddenly remembered about this thread. There have been no updates in this thread for almost a year?

This is, unfortunately, not surprising...

I heard about Quviviq a long time ago. It is finally available in France. I was thinking about giving it a try. I'm sorry it did not work as expected for you. I'm kind of reluctant to try it, though. As it is a very new treatment, we don't know what side effects could occur in long-term use...

Hi Wassim, I can't believe how similar our situations are! I also have severe tinnitus (and hyperacusis) after experiencing a noise trauma at a music festival in 2019, despite wearing custom-made hearing protection. Like you, I've suffered a lot for years - lack of sleep, no social life...

Hi folks! I come with (bad) news, unfortunately. Some years ago, in this thread, I talked about virtual reality as a treatment for tinnitus, as proposed by the Georges Pompidou Hospital in Paris. It turns out that Dr. Londero didn't offer me to take part in the test protocol. However, I came...

Is this device really promising? Why are there only four pages of discussion since 2022, as opposed to Susan Shore's device thread, which has over 200? Is it because this device doesn't really reduce the intensity of tinnitus, but rather the symptoms associated with it? In any case, it's good...

Hi folks! I used to read this thread several times a day for years. A few months ago, we learned of the very encouraging results of Phase II of Dr. Shore's device. Last I heard, we were waiting for Dr. Shore to submit her device to the FDA, if I remember correctly. What about today? I looked...

As we say in French, "hope is life". We have a damn incurable disease. So every potential treatment gives us hope, even if we're not sure it will work. It's always better than hearing the perpetual "there's nothing you can do, get used to it" from doctors. Whenever I'm not feeling well, like...

I asked the same question previously, this is indeed very strange. There is not a single article on the Internet about the positive results of the device. Maybe this is because the information we have is not official? Maybe we will see some articles about it once the results of the Phase II are...

It's such a shame not to have a caring professional hierarchy. My former manager (who is also the director of my company) was compassionate when I told her about my tinnitus. I never miss work either because I stay strong despite the lack of sleep (in 4 years I only had to ask twice to stay at...

I don't remember my tinnitus being somatic until I took Naproxen in 2020 that greatly and permanently worsened my tinnitus and made one of the sounds somatic. In fact this sound only increases if I open my mouth wide (so when I yawn or when I eat for example). This wasn't the case before. So...

Hi @El BUZZ, do you really have disabling tinnitus? If so, how on earth do you manage to box? Personally I am so weak from lack of sleep due to tinnitus that I constantly feel extremely weak and wobbly. I feel that if someone brushes up against me in the street I could fall to the ground...

I don't really know much about FDA, but maybe (and hopefully) it will not take as much time to authorise the marketing of Susan Shore's device, as it is an American device? :dunno:

There is one sentence that is particularly interesting in her email, she says "We are dedicated to bringing this novel therapy to the millions of global sufferers of this terrible affliction". It's already positive just to read that she hopes to help "millions" of people :)

Epidiolex seems to be available in France but it is prescribed for people with epileptic seizures associated with Dravet syndrome. According to what I read, it has no major side effetcs. Do you really think it can help tinnitus? I will talk about it to my psychiatrist next week.

Many questions remain unanswered for the moment. We only have a small glimpse of the device's potential. We will have to wait for the publication of the full Phase II results to know everything. I hope it will be soon. It's a bit like waiting for the 25th of December for a kid :rolleyes:

It also starts to worry me, but I'll try my best to stay positive: what if these cases of worsening aren't really due to the device? I have a personal experience regarding this: I visited a French tinnitus specialist recently who's been taking care of me. One of the things I told him about was...

Honestly I was kind of surprised to learn that tinnitus helps prevent cognitive decline! I mean, when you're so severely affected by tinnitus, to the point of only sleeping 2 or 3 hours a night, how the hell can lack of sleep contribute to preventing cognitive decline? When you sleep so...

My gosh, all this good news is really coming at the right time! It is coming at a time when my tinnitus is terribly intense and makes me sleep very little. I'm not normally one to try a brand new treatment. I am a very suspicious person and a bit of a hypochondriac. But honestly if this device...

As a very severe tinnitus sufferer (I have 4 sounds in my head including an ultra high-pitched sound, a dental drill sound and an electric sound), I also literally shed a few tears when I heard the good results of Susan Shore's device. I want to be optimistic like most of you, this disease is...

The results sound interesting. As a very severe tinnitus sufferer, I think I would give Neosensory a try, if only it was available in France. It it not as expensive as Lenire. I emailed Neosensory last year and they told me "Currently we are only shipping within the United States. If you sign...

Thank you very much for your hopeful comment, it is to see this type of comment that I consult Tinnitus Talk several times a day. I am in dire need of hope, I don't know why my condition is only getting worse. Even the French tinnitus specialist doesn't understand why antidepressants don't...

That is precisely what I am scared of :( If Dr. Susan Shore's device doesn't help us, or if it doesn't help us enough to enjoy life a little bit as before, there will probably be nothing for us in our lifetime. It's terrible to live with the idea that we will probably have to deal with this...

Dr. Susan Shore's device is also the only hope I have to hold on to. I really hope we won't be disappointed this time. Tinnitus has literally ruined my life for almost 4 years now. I'm 31, I lost the only girlfriend I had in my life 6 months ago, and now I'm having a terrible time finding a...

Hi @Óscar PP, oh yeah, I've already read some articles recently about the Quviviq! It is a new sleep medication that had just started to be commercialized (in June 2022 if I'm correct). I was planning to talk about it to my psychiatrist soon, but I'm sure he will prefer me to stay on the...

Of course not! I had to try each of them for about 2-3 weeks each time, then switch to another if it didn't work. It is important to mention, if you happen to try this protocol, that I had to take these drugs at a very low dose (not at epileptic sufferer dose).

- Gabapentin - Carbamazepine - Depakine - Lamotrigine - Pregabaline I tried all of them, to no avail.

It is more than depressing, it is TERRIFYING to realize that Dr. Susan Shore's device seems to be our last hope to alleviate our tinnitus. Indeed, almost all other treatments have failed or been abandoned. If her device doesn't make all tinnitus sufferers better, we will probably have to...

Sorry for the late answer. No, it is not him. But I consulted Dr. G. Fain first. His strategy to try to reduce his patient's tinnitus consists of prescribing 5 different types of anti-epilectics. Of course none of them worked, at least for me. You are very lucky! I read other articles on VR to...

The reason why the media is not talking about it yet is because it is a brand new -potential- treatment that is still being studied. Also, in general, I have the impression that the media doesn't care about tinnitus. I read the news absolutely every day and I never see any articles about...

"A multilevel mixed-effects linear regression model accounting for confounding variables revealed that the mean tinnitus loudness and TFI scores reduced significantly (p=0.015 and p=0.043, respectively) after the experimental intervention compared to the control intervention. The MML differences...

There will NEVER be a "real medical treatment" for tinnitus. Even a French tinnitus specialist said that this would be a "miracle". When a doctor talks about miracles, that says a lot... VR treatment could at least in best cases suppress symptoms linked to tinnitus such as insomnia.

This is not yet a proper treatment. They are still doing studies to determine how best to use virtual reality to help tinnitus sufferers. My ENT specialist said that I could be part of the protocol when it starts, provided my psychological state allows it. The protocol will take place in...

Hi guys! I read another study entitled "Clinical efficacy of a patient-customized virtual reality auditory and visual system for the alleviation of tinnitus: a clinical trial in patients with chronic subjective tinnitus." In that study I also read positive results about VR. Here is an...

Yes it happened 2 days after the festival. But please don't talk me about that terrible event, it reminds me of very bad memories :( With regards to work, before starting the antidepressant, I sometimes had to skip work (it was impossible to go to work with just 1 hour of sleep). Thanks to...

Is Mirtazapine really a dangerous drug? All the psychiatrists I saw told me that antidepressants are not dangerous and that some people take them all their lives. As far as I'm concerned, I cannot sleep at all without Mirtazapine. I tried everything before starting it, to no avail (or at least...

According to Google, Trazodone is an anti-depressant more commonly used to treat sleep disorders (insomnia). It seems interesting. I guess my psychiatrist didn't suggest me trying it as it might not be the best anti-depressant to help with my deep depression. But I will talk about Trazodone...

Hi everyone! Well, I'm not going to tell you my whole tinnitus story because I could write a novel about it, but to sum it up: I've been suffering from very disabling tinnitus for over 3 years following a music festival. This already debilitating tinnitus was made permanently worse by taking...

Hi! Here's a study on the use of Virtual Reality for managing chronic tinnitus. According to this study, "A multilevel mixed-effects linear regression model accounting for confounding variables revealed that the mean tinnitus loudness and TFI scores reduced significantly (p=0.015 and p=0.043...

40-50 sessions omg! If I had to do so many sessions it would cost me €3,500 :eek: