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Hi. It has been too long since I visited here. No need to anymore, my T is gone! I dont remember how the mvc shows on MRI. A vein or artery is too close to the nerve, overlapping or surrounding it, if I am not mistaken. Do not even care any more. If you want my advice regarding mvc, stop...

Ginkgo 6000 extract from LAMBERTS. This is what I take for about a year and a half now non stop. Do that and be patient. It takes a lot of time.

Take Ginkgo Biloba, 6000 extract and vitamin e for about 1 to 2 years. Then come back here and tell us how you feel. 2 years you have to be patient. There are many who got rid off this, they just don't bother to check here. Only the ones in suffering do. Check my own posts and frequency...

Doctors will probably not find or deal with your problem. The reason is obvious: There is little they can do. Personaly, I had contact with many people about this, nobody got cured by doctors, especially those that had mvd surgery. So, my advice is to stop looking for a solution by doctors...

On the possitive side, many claim that fluctuating tinnitus is more likely to decreese over time.

T is most likelly different for every person. It does get better for some, it may fade away for others. It gets worst for the unfortunate ones. But, combined with H, it is UNBERABLE. And it is almost impossible to get used to. That much is certain. But time CAN change that... In my opinion...

They actually don't! No way to tell in a living organism.

I think this is what part of scientists believe, perhaps the bigger part. But there is a difference of opinion in the community, targeting re-connection of these synapses by boosting NT3 (Neurotrophin-3) is G.Korfas' work and they are not dealing with regenerating hair cells. They claim it is a...

I don't understand you people still taking example of Aut0063 that failed trials...

Well, it can't be all that bad... I mean if the problem in the nerve is fixed and all. As @tomytl said, deterioration is only temporary when you overcome the specific hearing problem (infection, inflammation etc) and T gets down to its basic level. It is only logical that T will become even...

About Genvec: Yes it it was skeptically rated by others, they are the first to try so it is natural that there is negative criticism on them by others. Don't be surprised if we have good results, if not hearing restoration, something useful will come out of it. I do not think that they...

In my opinion, revolutionary progress in the area will occur and we are not talking treating acute case but restoring the entire auditory system. The direction will change, the timetable these companies set is just to slow. Preventing further damage is something useful but it is not a cure. And...

Funny thing: Let's say AM-101 goes into the market being a med for acute T. Let's say AM-102 does well and goes into the market along with AM-101. Let's say the first is used upto 6 months and the later for later. What can a person with T for about 5.9 months take? AM-101 or AM-102? Perhaps...

If they can cure the entire nervous system by fixing a genetic defect like MS, it is only logical to assume it is easier to fix a single area that was (possibly) functioning properly before getting damaged by, lets say, sound exposure. It doesn't have to be the exact same therapy, what good...

I've read this relief in 50% patients somewhere else, now where was it... Was it HIFU? Yeah.. The prices a are as high as the heavens. Not that promising I would say.

Well, not revealing the reason for the pause is not a good sign... At least they didn't call it off altogether. First Autifony, now this. Things don't look good right now, however, there are a lot of players on the table. Let's hope for the best!

A very good question! It is what I would also like to know for myself. Apart from this morse code T that is not that bothersome, I do have a fluctuating whistle, that is the most annoying of all other sounds. This one does fluctuate from 10 to 1, so I can not positively say it is from acoustic...

It has been known as a typical type of tinnitus caused by vascular problems like microvascular compression of the auditory nerve. There seems to be a significant releif for such cases, however, speaking for myself, although I do have microvascular compression according to my MRI and possible...

On the other hand, having 60 years of T, the latest 9 if I am not mistaken being really bad, he must have considered and discarded that option that existed for all those years... let alone manage to have patience! But let the man speak for himself.

The other option of course is to wait for a concrete treatment before destroying any chance of being healthy again, ever!

You know, this is ridiculous. Who would go to do such a procedure being in a "happy hyperacusis" mode? Totally unacceptable decision not to proceed with you because you have bad quality of life. This is what you try to fix anyway. "Depression/Anxiety scores have to reach optimal level of...

I don't like the timetable, not at all! After 10 years we can start talking about making new therapies for the public? What is this, 15-20 years? On the other hand, it is a big deal if there is hearing improvement! It is a GREAT breakthrough! We want more about this though, and from more people...

Why shouldn't it? And who exactly is cured? After 1 year? 2 years? Did they take any treatment? The specifics are important...

Why not? I would be interested to know exactly what helped you. But I don't know if you can pinpoint that, I mean is Trobalt alone enough?

An interesting amateur interview, I guess we all know our dear friend ;) If posted before sorry, I just came up with it.

Hypothetically speaking, it could help deliver proper (hypothetical again) drugs to cure tinnitus or hearing loss. The targets could be the cochlea of course, the auditory nerve or even other parts of the nerve or brain that have problems. But tinnitus wise, they will first have to find the...

Possibly as a first step they may manage to prevent further damage. This will mean that there will be no more hair cell inflammation which may be the reason why we have spikes and bad days. Thus, preserving more damage, may lead to Tinnitus reduction. Having only good days is quite a welcome...

But they seem to find in detail the mechanisms involved. This can only lead (if ever) in a precise treatment for deafness and tinnitus as well. Current experimental procedures such as Genvec's gene therapy are more like a shot in the dark...

Yes, suffice it to say that neither Keppra nor Trobalt cures Tinnitus, Danny did take a lot of those... I am talking about cure, not temporary effects. My experience with Keppra ended up inconclusive: I do have a really flaxuating T, from 2 to 9 depending on days and God knows what else, so I...

This is the most reachable and the next step, technologically, to medical advancement. Only in the field we are interested in, they could penetrate, investigate, and finally correct any problems in the inner ear without a drop of blood! Fascinating...

No argue there. But there is nothing else to be done since no T drugs exist, and if there is any possibilit it may help, it should be done immediately. This is the general idea, I do not beleive in this either since I have tried both but corticosteroids I took 6 days after possible acoustic...

The only 2 things your are supposed to do are: Immediately take corticosteroids and do HBO therapy. These two things are supposed to help if done as soon as the problem begins. Actually corticosteroids are supposed to help if taken at the first 48 hours, so now it is perhaps a bit late. After...

If I could I would already have. I cannot get my doc to right a prescription and I would have to buy from abroad. But I really doubt it would do anything since I have tried everything. I mean it would really surprise me, you know...

58 subjects, 28 days. Should be more days and more people. Anyway, it is only logical to assume that clarity will continue only until it is also found ineffective... After all, it is the same drug, why work for the elders? Perhaps potassium channels may not be the way to go. Stem cells or hair...

The most important is that, assuming it works, it will not only fix hair cells, but the entire auditory nerve, even restoring connections to the brain. A full restoration of the hearing system! I assume this covers all tinnitus and hearing loss cases, from acoustic trauma to microvascular...

After visiting/consulting with many doctors about this, -two of them being world specialists-, I reached a dead end considering mvc. It still troubles me, but the fact is that there was the case of acoustic trauma involved. It could be both. Currently only one of them may be treated but it is...

They are not the only one who walk this path. Hair cell regeneration is the way many researchers and organizations follow. Many scientists say it is a matter of when it will happen, not if. It is logical to ask for money if government support is cut down, it is also logical for us to be...

A really hopeful video. The parts that are most interesting are: 1) They managed to decrease the protein that stops hair cell regeneration. That means that hair cells regeneration in humans is possible, and obtainable since they found a way to do just that! Quite a statement that is. 2)...

According to what it is made for, it is used for epilepsy. But theoretically it could work for tinnitus. Noone can tell until we try. The hypothesis however that it only works for hyperacusis and not for tinnitus is totally unjustified. The logical thing to assume is it will either work for all...

Thank you for informing us. May I say that I did not experience these symptoms at my start but keep watching your libido. And good luck.

You can be surprised to what diagnosis you get sometimes by those that are considered specialists... It will make you laugh. And more can be said about their attitude! I will leave it to that. Perhaps there are REAL doctors out there that try to help. I surely haven't visited any of them till...

And how can a doctor find out positively that the sound exposure is responsible and not other abnormalities like for example microvascular compression? And what happens if you have both? Shouldn't one try to fix what can be fixed? A good doctor is a doctor that does what can be done to cure your...

Do you have personal experience? How can somebody now that one is a real doctor and not an imitation? How many doctors do you have to pay until you find one that really wants to help and is able to?

The real problem is, there are no such doctors. Nobody will deal with Tinnitus in such way. There is no doctor in my country (and I imagine many more) that will treat such a condition. They may know it exists, but they will just do what they always do: Suggest there is nothing to be done, give a...

That can be easily explained: Damaged hair cells hypothetically allow less sound frequencies to come from outside. Inside sounds do not come through hair cells, so with less external stimuli, they become more prominent. Internal sounds may be the result of vascular compression on the auditory...

Same here. A "car accident" stretched spine. It is responsible for many problems, why not Tinnitus among them?

I 've been having this for a year, since I had my T incident (possible acoustic trauma). I try to find what is responsible. I also have neck pain that goes up to the face at the right side (the side of the T ear). I also have found that there is microvascular compression in that ear. Now...

I wouldn't discard the finding so easily. After all, it is progress in the tinnitus field. We don't get that every day. In fact, we don't get that at all! Unless you people think the cure is already found but for some reason remains hidden, this is quite some news! We don't get success stories...

Not exactly true. At the beginning of my keppra trial, I had similar days with lowered T. But it did not last, bad days always came back with vengeance, so, the final result remains inconclusive.

I suggest you wait before you reach a positive conclusion. 5 days are really really small amount of time and it is very possibly your H had just a good day. When I was trying keppra I had similar observations, I also had T reduction and reactive T reduction in the first days. But they came back...

Ι am always curious about these cases. Do we have positive facts or just rumors? Any links available? It is just hard to believe it can suddenly go away on its own. My T does exactly the same. And this happens to most T sufferers. Good and bad days. One theory I've heard is that this depends...

In theory, there can be several opinions. This does not mean however they are correct in their reasoning. What is chronic anyway? How can they easily define it when they cannot yet solve the T problem? A cure is not found yet, and they claim that there are thresholds: 6 months, 1 year, etc...

Welcome to the forum. So, hoping to correct T with neck surgery is risky, it may cause more T... That is why they (ENTs) choose to say there is an ongoing research for it but no results yet. Of course, they may have just read it in Wikipedia...

Thanks for the input. I already did OEMS but I do not think it was any special kind (distortion product?). The doc said it is cochlea damage. ABR said was good. But another doc said ABR may suggest mvc... We need to have real doctors that aim to treat us, not just take our money. And for...

To simply put it, no it is not the only one, not for what we talk about here.

Ok here is my situation: -My T is a high pitch, unilatera sound. -When I open my mouth wide, the T increases VERY much, really noticeable only from the one side, naturally. -Also, when I walk down the stairs, (or walking) there is a zip like sound that comes out possibly of neck...

Oh it's VERY important. Now there may be a way around it, my doc suggested something but as I wasn't sure that keppra helped my H and T I decided to quit... If I had discovered positively that keppra really helps I would go for it all the way and take some other medicine to counter the...

I hope that is not true. It would be a shame to use up all your supporting cells and when (if ever) an new improved therapy comes out which brings total cure you a re out of supporting cells... Do we know when Genvec will post any results yet? They have already tried the therapy in many people.

I find particularly interesting the fact that supporting cells, after turning into new hair cells are also fully replaced! Which means that hair cell regeneration happens indefinitely and the fish never runs out of supporting cells no matter how many times it looses functioning hair cells. Quite...

Well, I took it for almost 3 months. It should show definite improvement. It proved to be not an innosent drug in the end, sideffects wise... I would only trust such drugs if they showed real healing properties.