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Do you mind telling us the clinic that has been doing your prolotherapy? Any improvement with the SBG? Would you recommend them?

If you get relief from them then it might be ok to continue but just be cautious. There are videos and exercises that tell you to blow your nose very hard for example. Do not do this. Anything gentle should be ok but I generally say stay away from them for a while.

Some people still have adverse effects to CBD. For the most part, it’s very hard to find CBD that 100% clear of THC anyway so it could be that the extremely small amount of THC is causing a spike.

Unfortunately, not. If anything it has gotten worse and I have hyperacusis as well. Protect your ears from loud noises and medications.

This sounds like you cracked your TMJ, similar to cracking your knuckles. The crackling/crunching sound should go away by the next day.

I think it’s certainly possible. The other thing to consider is oxygen reperfusion injury which can happen after a state of ischemia or hypoxia.

@Aaron91, this publication is very interesting. Seems to suggest that the receptors that regulate middle ear pressure can be altered by a bout of hypoxia.

Sorry to hear your troubles. You’re in the same boat as most of us. My symptoms are almost the same. It’s too bad that fountain didn’t cut him in half back then. We would’ve all been spared this hell.

Guess it didn’t work.

Some people seem to have had good results.

It’s good to try things. I think the steam will help but not so much the nasal spray. I don’t think 10-12 days will fix that much, it’ll likely take weeks to start to see any results. So far the my opinion is that the tinnitus is likely permanent but with good lifestyle changes and constant...

Unfortunately, there isn’t much you can do right now. Reducing stress and avoiding loud noise is probably the best you can do for yourself at this time. I would not do ETD exercises and you’ll likely find that within a few months the pressure will get better but the ETD symptoms will likely...

All I can say is F**k Wim Hof.

I don’t know about Betaserc lowering pressure. It’s definitely something to try as it has a pretty good safety profile.

I would if it was a little easier to travel internationally.

Not more than what’s in the thread. I have read multiple reports that rTNS can work for hyperacusis. I have seen about 5 success stories with it. My only interest in this kind of treatment outside of rTNS or Shore device is that people reported their tinnitus “cured” after using RST Sanexas...

Were they regular grommets or the heavy metal ones?

I have never heard of intratympanic LDN. Would like to know more. Also, to be clear, I believe @Samantha R also took (takes?) a diuretic.

I started this thread and yet I feel like this might be someone with something to benefit just based on the post history. I am hopeful but still skeptical of the (any) treatment. It doesn’t mean it can’t work though.

Some people have reached out to the clinic and received that info.

Apparently they don’t offer these anymore due to being ineffective.

Have you tried a low-histamine diet? I would attribute a large part of @Marin's success to her diet. It seems to be yielding good results for others.

I understand that everyone is desperate and would do almost anything for relief but I do not condone these emails to the researchers. You are literally wasting Shore’s time, replying to emails to answer questions that have already been posted in her research which is all readily available...

I am on the same page as you. I believe LDN can help a subset of sufferers, as we’ve already seen. In terms of surprising TNF-a, I think psychedelics could also be promising. There are several that are TNF-a inhibitors, psilocybin is one for starters. Psychedelics also work to inhibit other...

No, it means their drug is safe (enough to go to Phase 2). It does not mean it works.

Anything with breath holds or powerful breathing can cause damage to your ears. About Nortriptyline; if you feel that you are getting better while on it, it’s worth a consideration to stay on it. Ear injuries take a very long time to heal and if the medication is helping you break the cycle of...

Please be careful with the breathing exercises. Have a look at the Wim Hof thread. That piece of crap has ruined many people’s lives. Just be very careful with yoga-type breathing. How did the Nortriptyline help? Did it reduce symptoms or just make you feel better about the situation? How was...

Sorry to hear that, I’m sure it’s not the news you wanted to hear. On the bright side, you can now work towards a treatment and hopefully that resolved some of your other issues. Sjogren‘s is usually connected to other autoimmune issue like RA or lupus or Chron’s. I know some people that have...

Ya bud I know the feeling. I’m dealing with hyperacusis, noxacusis (painful version) and now a host of other issues like TMJ and trigeminal neuralgia type symptoms. Debilitating is an understatement. You likely have hyperacusis, though only a mild form, so protect yourself around loud noises...

If there is a family history and you have multiple clinical symptoms I would definitely investigate. It’s possible to have hyperthyroidism at those numbers but it will depend on other factors like your T3 and T4 as well as other markers and general symptoms (weight loss, agitation, hair loss...

It’s possible. We kind of discussed those concepts earlier on but never seemed to really get anywhere with it. I guess if it was adrenal fatigue then wouldn’t we have additional symptoms? I do have adrenal fatigue symptoms but it doesn’t seem like the vast majority do. Another thing I find...

Hey Petit. Your best bet is to learn to relax and take it in stride. Don’t do anything that could further aggravate it. I highly doubt it is caused by the cold showers, it certainly caused exclusively by the breathing. Wim is a piece of crap and deserves all the karma coming his way for the...

The lower the number the more your thyroid is working. You would need supplementation if your TSH was high. 1.00 is right around the number most endos try and get to when supplementing with levothyroxine. You are pretty much perfect in TSH. If your TSH was well less than 1.00 with no...

This is definitely related to stress. I believe that fight or flight has a lot to do with it.

Sorry to hear of your troubles. Un/fortunately, everything you are experiencing is a normal result of acoustic shock. The problem is we don’t really understand what acoustic shock is. The most definitive model is this paper. I suggest you give it a good read. Once you’ve read it, read it again...

LDN can be a miracle drug for some people with CFS but it’s only a small percentage that it works really well for. I would say a large portion respond to it but don’t get full remission.

Did you get the COVID-19 or the vaccine around the time it spiked?

That’s amazing. Congrats! Could you elaborate a little more on the psychedelics?

According to the patent filings it can help hyperacusis. Some of the DIY people who have created similar devices have reported a drop in hyperacusis along with tinnitus.

Hey @Tom Cnyc, I'm in agreement with you. Did you ever have pain hyperacusis (noxacusis) or was it loudness hyperacusis only? What worked best for you to overcome the hyperacusis?

Hi @Surej, Nothing much we can tell you except cease all WHM immediately and I would protect your ears from any loud noise. You have caused damage to your ears, in some form, and while we don’t quite understand how, we know that it has happened. Yoga and Ayurvedic medicine has been around for...

If by some miracle this works, please keep everyone here posted. Good luck.

Hmmm. It’s very possible. I have taken Resveratrol in regular doses without much effect. I would look into LDN. I’m not sure how it would work in Th1/Th2, something to definitely investigate. Unfortunately, these inner/middle ear conditions really do mimic and involve so many other similar...

Did you have hyperacusis at all?

You are asking the million dollar question. No one really knows what is happening when acoustic shock creates these additional symptoms. There is an acoustic shock paper that explains many of issues you have, in theory. It is the most comprehensive model to date but still doesn’t fully answer...

This isn’t true. It’s well known that many foods and supplements can have an impact on tinnitus and hyperacusis. There is also emerging evidence that a low histamine diet could dramatically improve tinnitus and hyperacusis. It has already helped several people with noise induced...

Hyperacusis is basically sensitivity to sound. Thank you for clarifying. What dosage of Dexamethasone did you use?

@Renka, did you have hyperacusis at all? Also, how long would you leave the wick in and administer Dexa?

I did not.

I’m sorry to say but I don’t read anywhere in his comment that Tinnitus Mix knocked out his hyperacusis. What I read is that his hyperacusis has gotten better over time but he still has ups and downs. I can also see that this person has Meniere’s and that on its own is a very different pathology...

I think AVs is your best bet right now. Have you ever considered the John of Ohio protocol? It seems like it has helped a few people with Meniere's.

This could be the case but isn’t necessarily true. There's a bunch of other possibilities. I wouldn’t jump to conclusions until the data is out. Unfortunately, taking such a long time to release data could mean they are posturing and getting ready for windfall from the bad news.

Unfortunately, it ruined my life. I can't shout loud enough to warn every single person to stay away.

Yes and Renka just posted a few hours ago with an update. Seems that after 3 years the method is still effective.

Hi Renka, Thanks for coming back and explaining. I think some people still have some questions and if you could hang around just a little bit longer it could literally save people’s lives. Is the placement of the wick difficult? Wouldn’t it move throughout the day and while walking/moving...

Fingers crossed.

Hey @Tau, when are you scheduled for your liposuction?

I disagree. We must be aware that using these drugs medically is at its inception. We still don’t even understand how some of them actually work in the brain and other parts of the body. This also means that dosing plays a big part and can be the difference between having no effect and basically...

Would additional injections increase the outcome?

This is interesting. Strange that intraperitoneal has any effect at all but it’s clear that RWI is much more potent. I wonder if IT would be just as good or at least better than IP. It seems though that this study mostly refers to oto-protection and repair and cannot regenerate dead hair...