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  1. R

    Thanks @MaxRabbit! Yes, the injections helped very much and the results have stuck around. The...

    Thanks @MaxRabbit! Yes, the injections helped very much and the results have stuck around. The lozenges work great too! Were you the one that suggested GABA calm? That also works well. The shots were definitely worth it. They helped my hearing which made the tinnitus better. Hope you are doing...
  2. R

    Intratympanic Dexamethasone Injections Greatly Helped My Tinnitus

    @Travis Henry, I had my shots 2.5 months after onset. Oral steroids did nothing for me, so I didn't think injections would either. But after the 3rd one it got much better.
  3. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    @MaxRabbit, find a different ENT. I go to a chain called "ENT and ALLERGY." They're all over the country. They offer appointments within 48 hours and if you're willing to do injections, they'll do them as soon as you want them. But you have to have a measurable hearing loss on the hearing test.
  4. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    @Travis Henry, yes, I think it would be 100% worth it to get the injections. Did you wind up getting them?
  5. R

    Long Term People, Anything You Wish You Had Been Told...

    I'd tell myself not to overuse medication - that's what caused mine. But once it started and I realized it was permanent, I'd just tell myself it really does get better. The sound doesn't, but it won't bother you nearly as much after about 6 months with it. I've only had it 6 months, but the...
  6. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    @DimLeb, your negativity isn't needed here. I eat normally and am very healthy and this supplement made a difference for me. Take your inability to have hope and go someplace else.
  7. R

    My Tinnitus Is OK Now After Dexamethasone

    @Renka, where did you have the wick inserted? I would like to try to find an ENT to perform this procedure. Where did you get the Dexamethasone? Thanks.
  8. R

    Yes, it definitely seems to have provided some improvement. It's just a B vitamin, so I don't...

    Yes, it definitely seems to have provided some improvement. It's just a B vitamin, so I don't think it would have any adverse affects.
  9. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    @Jerad, how did taking the vitamin go? Any improvement?
  10. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    @John Joseph, for me, it took 3 shots to get the benefit. It's pretty instant once it works though, 24 hours after the shot. The improvement happens all at once by the time you wake up the following morning.
  11. R

    I'm Travis, My Tinnitus Is 10/10 — Please Send Good Vibes and Advice

    @Travis Henry, I've been to the psych ward too - they're awful places. I don't see how they help anyone. I'm sorry you had to go through that.
  12. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    @David S, it improved, but it's still difficult to totally mask. I just feel it's slightly less intrusive and bothersome than it was.
  13. R

    Daniel Thor: A Place for My Weird Theories on Life

    Doesn't CFS usually eventually improve, even if after a few years' time? There's still hope for you @danielthor.
  14. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    @David S, I'm taking this: Source Naturals Coenzymated B-1 25mg Fast Acting Thiamin Cocarboxylase Quick-Dissolve - 60 Lozenges I have unilateral tinnitus in my left ear caused by ototoxic hearing loss. It's stable but highly intrusive. I hear it over the highway, over normal TV, and it's...
  15. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    I've been taking this supplement about 9 days now and my tinnitus is 100% significantly less intrusive. I have to say this stuff works. I didn't think it did at first because he reported results after just 2 days, but in my case it took over a week. I should add though, that by no means is my...
  16. R

    45 mg of Mirtazapine Doesn't Help Me Sleep — Need Advice for My Disabling Tinnitus

    You're right - I had a serious insomnia problem due to bipolar mania - I was only getting 2 hours of sleep per night. That's why my dose was so high.
  17. R

    No, just ototoxic damage. Sound damage has a better chance of recovery I think.

    No, just ototoxic damage. Sound damage has a better chance of recovery I think.
  18. R

    My Experience and Tips — Tinnitus from Loud Music (Primarily Concerts and Headphones)

    I look forward to hearing if Neosensory works for you. If it does, please post a review.
  19. R

    Acoustic Trauma Resulting in Tinnitus and Hearing Loss — Advice on Intratympanic Steroid Injections?

    @John Joseph, I only got the injections in my left ear. My right ear has normal hearing and no tinnitus. But my left ear has severe tinnitus so I'll take as many shots as they're willing to give to me.
  20. R

    45 mg of Mirtazapine Doesn't Help Me Sleep — Need Advice for My Disabling Tinnitus

    I shouldn't have said "non-addicting." What I meant is "not a controlled substance" like Ambien. And if Seroquel didn't make you sleepy you may not have been on a high enough dose. I was on 800 mg. It knocked me out. But then again different medications affect everyone differently.
  21. R

    45 mg of Mirtazapine Doesn't Help Me Sleep — Need Advice for My Disabling Tinnitus

    Trazodone is a good alternative to Mirtazapine. I was on both for a while and got off of Mirtazapine because it loses its ability to make you sleepy after a few months, as you are experiencing. 200 mg Trazodone is enough for me to sleep. Seroquel (aka Quetiapine fumarate) is another very...
  22. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    I've only had it done in one ear, but I imagine they would do one ear and then do the other immediately after. I don't see why they'd make you come back another day for a different appointment.
  23. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    I've taken it for 3 days. Things seem very slightly better, but I could be imagining it. I wouldn't say this supplement makes a huge difference.
  24. R

    Thiamine Pyrophosphate (TPP) Stopped My Tinnitus!

    I ordered some last week, took my first lozenge yesterday and I notice today my tinnitus seems ever so slightly better. Not sure if it's a coincidence, but I'll keep taking it and post again on Monday.
  25. R

    I just saw this posting. There's virtually no risk. Only a miniscule risk of the hole not...

    I just saw this posting. There's virtually no risk. Only a miniscule risk of the hole not closing, which can be repaired anyway if that happens. You should absolutely do whatever you can to get a few injections. I've had it help as far as 3 months since onset so it's definitely worth getting it...
  26. R

    Intratympanic Dexamethasone Injections Greatly Helped My Tinnitus

    That's terrible. I hate having to lie on the audiogram to get injections. It's so stupid because it always helps the tinnitus greatly. But ENTs don't seem to care about tinnitus, they only care about hearing loss. Try another ENT and lie on the hearing test, specifically the bone conduction...
  27. R

    Intratympanic Dexamethasone Injections Greatly Helped My Tinnitus

    @Travis Henry, how did the injections go?
  28. R

    Acoustic Trauma Resulting in Tinnitus and Hearing Loss — Advice on Intratympanic Steroid Injections?

    Find a new ENT. I was only at -35 dB at 6 kHz and they did 3 intratympanic injections. They tried oral steroids first, but it didn't do anything. The first two injections didn't do much either, but after the third my hearing went to 20 dB. It's still not 10 dB like my right ear, but I'll take...
  29. R

    Stimulants (Adderall, Ritalin, and Vyvanse)

    Large doses of Vyvanse make my tinnitus and hearing permanently worse. By large dose I mean 120 to 180 mg in a 24-hour period. My normal dose is 60 mg and it doesn't seem to make things any worse. After taking a large dose my hearing and tinnitus got so bad I had to get intratympanic steroid...
  30. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    @scotty03874, they'll do it for mild/moderate hearing loss. It increased my audiogram reading quite a bit and greatly helped my tinnitus. They do the audiogram / hearing test in the office first. Then the doctors analyze the results and if they see hearing loss they will do the injections if...
  31. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    I'm getting them in NJ, USA at a franchise ENT clinic called "ENT and ALLERGY". They have 44 locations in NJ alone. I see Dr. Denny Varugheese and Dr. Sujana S. Chandrasekhar in Wayne, NJ. Note: You have to have hearing loss to accompany the tinnitus. Their goal is to treat the hearing loss...
  32. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    Take the medicine. I'm surprised 20 mg is all he's giving you. Usually it's 60 mg for 2 weeks. You don't need to taper 20 mg after 5 days.
  33. R

    Steroids: Prednisone / Dexamethasone / Others (Oral and Intratympanic Injections)

    I'm in the US and have had 7 intratympanic injections. They work wonders when combined with NAC. When I get them while taking NAC, it makes a huge difference. When I get them without NAC I don't see much difference. I had screaming tinnitus at a 8 or 9 and now it's a 3 or 4 because of...
  34. R

    Suicidal

    I went to an ENT and got a Dexamethasone IT injection yesterday. It lowered the volume so much. I'm so happy and relieved. I can live again! I feel like I've been cured (even though I still have it in quiet). Only hearing it in quiet is basically the same as not having tinnitus at all, compared...
  35. R

    Daniel Thor: A Place for My Weird Theories on Life

    Glad to see you are still with us @danielthor.
  36. R

    Suicidal

    My tinnitus keeps getting worse. I can't take it. I'm constantly filled with suicidal thoughts. It sounds like loud feedback from an amplifier. I can barely mask. I need help.
  37. R

    I'm Travis, My Tinnitus Is 10/10 — Please Send Good Vibes and Advice

    I'm so sorry Travis. Hoping and praying it gets better for you. My mom would always say "it will get better, don't worry." And I would get so upset because everything seemed to only make it worse and it had only gotten worse. "It only gets worse!" I would yell beck. But in time, it did...
  38. R

    Suicidal

    @danielthor, I hate to know you are suffering to this point. Please explain your condition and what brought you to this conclusion.
  39. R

    Suicidal

    @Jerad, how do you fall asleep if you're constantly getting zapped? Does it subside when you are trying to go to bed? Or are you just able to fall asleep and not get woken up by the zaps?
  40. R

    Clonazepam (Klonopin, Rivotril)

    How do I get prescribed Klonopin for my tinnitus? Do I ask my ENT? My GP? What should I tell them to get it prescribed?
  41. R

    Deep Brain Stimulation (DBS) for Tinnitus

    There is another one taking place in France that will be recruiting soon. The sign up link is below. Give them your name and email. It says "Even though the study is not yet recruiting, we will reach out to the sponsors on your behalf." https://www.clarahealth.com/studies/NCT04296097
  42. R

    I Hate What Tinnitus Has Done to My Thought Process

    Does anybody dream about their tinnitus? On days when it's bad, I have dreams about trying to make the noise stop. It's depressing, as even during sleep I get no relief. Which makes my thought process about tinnitus the next day even worse...
  43. R

    I Hate What Tinnitus Has Done to My Thought Process

    No, I mean as in tinnitus. Hopefully he'll go easier on the judgement because we have tinnitus lol.
  44. R

    I Hate What Tinnitus Has Done to My Thought Process

    God isn't going to save us from tinnitus. I'm pretty sure God invented tinnitus.
  45. R

    Lidocaine and Dexamethasone Perfusion

    I'm waiting to hear back from them about the cost after insurance. Assuming it's reasonable, I'll be going the week of May 16th. If I go, I'll let you all know how it goes. Update: Bad news, my insurance won't cover anything out of state. So if I went through with it, it would cost me something...
  46. R

    Prednisone Made My Previously Barely Noticeable Tinnitus Much Worse!

    What's strange is that corticosteroids are prescribed for tinnitus onset and hearing loss. It's rare that it makes tinnitus worse, although it's clearly possible. Anyone else have any insight?
  47. R

    Dry Fasting

    I had a bad spike starting on Sunday. I decided to give fasting a try. I fasted for 7 days. No food, only water, medication, and vitamins. The spike went down by Friday. It's Sunday again. I'm waiting for dinner time to roll around before I eat again. Fasting is not fun. It made the week...
  48. R

    I Hate What Tinnitus Has Done to My Thought Process

    I hate what tinnitus has done to my thought process too. I spend all my time constantly checking it, thinking about "is it louder, is it softer, is it getting worse, is it getting better". I wonder what my thoughts used to be like before I had tinnitus. I miss what it was like to be so carefree...
  49. R

    Poll: Do You Wear Earplugs at Restaurants?

    I love loud restaurants. It's one of the few places my tinnitus is masked.
  50. R

    Suicidal

    If you're already suicidal and have reached the end, trying a treatment couldn't hurt since you're already at your limit. If you haven't reached that point yet, I understand the fear in trying benzos or other medications since a detrimental effect could push you to that limit.
  51. R

    Lidocaine and Dexamethasone Perfusion

    I didn't ask. But since they still do it I'd imagine they have some success with lessening the severity of the tinnitus. I read online average score before and after as 75 and 48, so a significant reduction in volume. I think I am going to fly out there in a few weeks and have the procedure...
  52. R

    I Hate What Tinnitus Has Done to My Thought Process

    @Jerad, do you use masking? What about at night? What procedures have you tried for your tinnitus?
  53. R

    Lidocaine and Dexamethasone Perfusion

    I called Shea Clinic and they still do this procedure. Has anyone had this done recently? Who has had any results from this procedure?
  54. R

    Lidocaine and Dexamethasone Perfusion

    Does anyone know where in the US I can have a Dexamethasone and Lidocaine profusion? Does Shea Clinic still do them?
  55. R

    VAD Approved (Date Not Fixed Yet) — Lost Any Hope After Almost 20 Years of Suffering with Tinnitus

    I'm doing okay @Bhop. I just had a round of 3 intratympanic injections of Dexamethasone for my hearing loss. It lowered the volume of the tinnitus for a day or two, but I'm not sure if the results will remain. How are you doing? Still hoping you find some relief from this awful condition...
  56. R

    VAD Approved (Date Not Fixed Yet) — Lost Any Hope After Almost 20 Years of Suffering with Tinnitus

    I want you to know that I’m thinking about you @Bhop. I’ve thought about you everyday since I read your post. If you’re ever in New Jersey, USA, let me buy you dinner. I pray you find some relief. I’m struggling with my own tinnitus currently. It’s maskable with loud music, but if I couldn’t...
  57. R

    Tinnitus Gets Worse with NO2 Supplements

    I took a nitric oxide supplement called Berkeley Life Professional Nitric Oxide Support which caused recurrent SNHL. My tinnitus and hearing loss was caused by PDE5 inhibitors so it's not surprising Nitric Oxide made it worse. I wish I didn't take it...
  58. R

    VAD Approved (Date Not Fixed Yet) — Lost Any Hope After Almost 20 Years of Suffering with Tinnitus

    Have you thought about deep brain stimulation? There is a clinical trial you may be able to get into: Deep Brain Stimulation for Tinnitus It has completely diminished the perception of tinnitus in some Parkinson's patients. It is at least worth a shot, considering the other option on the table.
  59. R

    Olanzapine (Zyprexa) Treatment of Tinnitus, Which Is a Symptom of Schizoaffective Disorder?

    I have also taken Zyprexa. No effect on my tinnitus. I currently take Mirtazapine and Trazodone though. Zyprexa caused me to have sleep apnea so I stopped taking it.