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Padraigh had a very rare form of tinnitus, he mentioned there were a bunch of cases in the whole world population. He had forced eyelid closure syndrome. He had an electric current running through his head. He was tortured 24/7. His irritability is more than understandable. An athlete with his...

That happened to me. It typically seals in one to three weeks, or even earlier depending on the hole size. Don't blow your nose hard, don't do Valsalva maneuvers or expose the ears to pressure changes if possible (big elevators, trains in tunnels, flights etc). While the hole is open, you may...

So many purple points above the loudness change zero axis of the scatter-plot. I remember seeing something similar from the old, smaller trial and that always bothered me. I really hope those are loudness worsening cases that are unrelated to the device, but we also need to keep in mind the...

This is so tragic, Padraigh Griffin was also father of little twins. I remember his profile picture where he was next to them. I'm so sorry for his family too. He was a fighter and very optimistic almost to the end. He was quite active also on the potassium channel drugs topics. I would...

I think you should care because a scientist making - let's be kind - hazardous philosophical claims without even being aware of it - and this happened even to Stephen Hawking - is not strengthening the materialists positions. Even worse, a materialist scientist doing wrong scientific claims in...

I think that, for our discussion, the second paragraph (the one you didn't quote) from David Albert was more relevant. Because it shows that Krauss makes a mistake even when accepting that we need to define the void in physics terms. Krauss takes a totally misleading and wrong definition of void...

Greg, your set of afflictions is heartbreaking and terrible, but you keep helping people and you have been a light for the tinnitus community for so long. I wish this world and life were a little more fair. He is welcome to try mine for a few days. It has ruined my job, my marriage, everything...

This reminds me of the finale of Siddhartha by Hermann Hesse, when Govinda kisses Siddhartha's head and he has the vision. Have you read this novel? If not, I think you would like it. Here is the vision part:

But this sort of sentient dynamic void that imagines things into existence poses many of the same problems as a creator God. It resembles some of the Mahayana Buddhist schools. Well at least there is no pretense that the universe or void is good or fatherly, but the level of speculation is still...

But even in the context of Christianity, Jesus always helped those going in the wrong direction. Look at the episode of Emmaus. The small village, in the antique tradition, was the bad place, whereas the big city was the good place. These two disciples misunderstood everything, don't believe in...

Definitely these two have been influenced by Buddhism, big time. What you are interested in in Yogacara is the theory of the storehouse-consciousness. From Wiki: And your other comment below looks like Buddha's theory of rebirth, where the skandhas (the fifth of the skandhas is...

Just to say I would need to check whether the gods doing all the bad things in the old testament were Jahvè or one of the minor deities, one of the Elohim, like the one who asked Abraham to kill his son, that looked a lot like Moloch. In that case Jahvè stops the bad demigods and says no more...

I would like to preface this long post with an apology to all people who are suffering. I'm suffering as well, I'm in this thread, I have been a long time, I'm getting worse and worse. I'm one of the catastrophic cases. My thoughts are with you, and this is what is important, what we are going...

Man, you are right by looking at this single post in isolation. However, this is connected to the nature of reality and this may have a bearing on what we may expect in the afterlife, if anything. Is there a creator God or not? Does the effectiveness of maths (this post) say anything on this? Is...

If you are not surprised by how this tool is so suited to describe the world, how discoveries made decades earlier like Ricci-Curbastro absolute calculus or Hilbert spaces turned out to describe the structure of the universe so precisely and intimately, I suggest, if you are not familiar with...

@Jerad, I used to consider the harmony of mathematics and other things you mentioned but then what about the ear disorders that keep us in this thread, and other horrid conditions affecting even children? Where is God's design in something like catastrophic tinnitus, children bone cancer...

This is not about theists. David Albert is an atheist. And Krauss, with the book title and subtitle, and with Dawkins' endorsement, read what he claims Krauss has done, is being at the very least dishonest. Because he claims to have solved the problem of problems but he hasn't. But that's not...

You are welcome. I think it's pretty much agreed that he didn't solve the philosophical/metaphysical problem. He explained how the universe could have originated by some physical configurations that have some characteristics we would vaguely associate with "nothing" but that are not really...

This is a metaphysical/philosophical problem, not a physics problem. Physics would need at the very least some laws and basic entities (particles, fields, quantum vacuum and mathematics) to formulate a theory, even a theory of something originating from nothing, but then it would not really be...

No, also practical physics, meaning dark matter and dark energy are postulated to explain discrepancies in measurements. It's not just a theoretical issue. Everything we know is made of particles and fields, if science doesn't understand those - and it doesn't very well yet when gravity is taken...

Interesting musings, physics and metaphysics. String theory, is that science or pure mathematics? Is mathematics science? Does pi (as an irrational transcendent number) exist? In which sense it exists? In which plane of existence? Platonia (Penrose). You can never write it down exactly although...

How is Telis doing? He had made some very good posts on fasting. I haven't seen him for ages. He has been extremely strong keeping up the fight with his level of severity. I hope he is better now. Some of his old posts (and Bam's :() always resonated with me and this catastrophe in my ears and head.

Many of us have spouses or relatives who don't understand, so you are definitely not alone in this. On the other hand, unless one experiences this horror in person, especially at severe/catastrophic levels, they will not even begin to imagine what we are feeling. You have had this four months...

There is some truth in what you say Michael, and I don't disagree entirely. The private sector often tries to sell you useless and non-actionable or even harmful things (discredited autoimmune blood test and grommets in my case) but you want to be at peace that you tried everything and steroids...

I have some hyperacusis but minor. I have progressive hearing loss. But what is killing me is the tinnitus, it's unlivable. I think the NHS is ok except in the acute phase. I also have another bad diagnosis now and the NHS has been exemplary, but for acute hearing problems it is wait and see...

So what the private ENT will do are things the NHS don't do, and also provide treatment in a timely fashion that sometimes help. All the NHS will do is tell you to wait a few weeks to see if it goes away. The private ENT otologist I consulted tested me immediately with hearing test, OAE...

Almost three years without symptoms now. My experience is that the Harley Street clinics organized more tests than the NHS, were more thorough, and much more quickly, but these tests are not actionable, and essentially the type of intervention was the same, physiotherapy oriented to balance...

Never came back. The tinnitus, on the other hand, is murdering me.

@Travis Henry, we know cases of medical doctors who pushed treatments that ruined people, neglecting to mention important information, we had some dramatic examples in this forum with both medications and TMS. There is maybe a lesson for next time, not to trust medical doctors blindly, although...

There were several red flags. I had noticed them myself in the early discussion in this thread, possible cultural differences, possible biases in the study, poor testimonials in the Korean forums, etc. I balanced this with the positive reviews of Sedley and Schaette, who accepted the article...

I think Clonazepam affects both GABA-A and GABA-B receptors whereas Diazepam affects only GABA-A. This is why at times switching from Clonazepam to Diazepam doesn't work. Also, there are studies showing Clonazepam effectiveness for tinnitus but not Diazepam. Diazepam is definitely safer and...

Hi Tom, the worsening never reverted, sadly. I'm struggling a lot these days, to put it mildly. I am sorry it didn't work for you but at least it hasn't made you worse. Overall, with all the feedback we have, I would conclude the study has some kind of bias and results in real life are not as...

I'm sorry, my friend. I always hope in some sort of turnaround for us here but it's tough. I have been trying to taper the benzo very slowly but it's an endless grueling torture and I'm not even sure it's that, although I suspect it's making things worse. I don't think I can get through the...

I don't think so. GABA supplements are much less specific and potent than benzos or gabapentinoids (although the molecules of gabapentinoids look very similar to those of GABA). Also, as you said the general supplement won't cross the blood brain barrier (BBB) unless you have a leaky one. Some...

I agree, George. Greg is an institution here. Greg, like George, I love you. I'm sorry for all you are going through and I'm so impressed with all the help you keep providing to single people with detailed advice and specific suggestions. This is particularly important for the...

@roy1159, like @tpj said, I often thought about you during these months, I was hoping you had improvements, I'm so sad to hear you are still in hell, like many of us. Damn, this thread looks like a black hole or the coffin state of a Markov chain, it must be possible to escape it. I'm so sorry...

User @birdy didn't have that experience, she raised the dosage a few times, for example once she went and stabilized on 4 mg, and she was fine every time after the increase, for a long time, so I don't think it's always true. However, everyone is different. For example, I became tolerant to 1 mg...

I can't argue with this conclusion. Once I would have. Even in our private tinnitus hell, look at what happens. Funding is ridiculous. We had a promising, customized treatment from University of Minnesota that could potentially save many of us and it's getting dust on some abandoned shelves. The...

Just wanted to warn users that there are messages going around, especially in central Europe, about a supplement called Ottomax that is touted as regenerating hearing and eliminating tinnitus. If you google it, some of the posts claim this is scientifically proven and have pictures of brain...

So sorry to hear this about Tom. After all the anecdotal cases we went through, I wonder what is left of the claimed success of the original study. I had a bad experience myself but was really hoping for the best for everyone else. Damn.

@Jerad, your descriptions of these horrors and of the flaws of our society in addressing them are very poignant. I agree. I don't know how to go on myself, and there's so much impossible pain in this thread. Let's take consolation in impermanence: nothing stays the same forever. This pain will...

No, I got Lidocaine based nerve blocks in Seoul but I reacted badly. I didn't try IV Lidocaine in the UK. I don't think it would do much. Also, avoid it while taking benzos as they may interact.

Thank you, Daniel. I'm too sick to write much right now, the pain is extreme. I hope you are relatively ok, old friend, you and your family. Thank you for remembering me. I love you. Also I think @Uklawyer was asking if I made it safely back to the UK, yeah I made it back to the UK my dear...

Final update on the Seoul odyssey: I just landed in London after a 13-hour flight. I alternated Peltors and noise-cancelling headphones a dear friend suggested that I bought in Seoul, but my ears are still pretty fried. I'll try to rest. I have been up 20 hours. The bus the clinic had...

Just an update on the patient who is not on the forum. The Lidocaine kept lowering his tinnitus, typically from 10 to 8 after the (I believe) second treatment but it is still temporary. He authorized me to mention this. Today I met Tom as I said goodbye to the clinic, I won't say anything and...

I have been taking the Sulodexide and Magnesium. No visible effect. Today is particularly torturous. I'll crawl in the aircraft if I have to. The OTO-313 news are not helping either.

Thank you, I did try Ketamine but not in this regimen. I'll talk to the clinic.

As @DebInAustralia said, I'm reducing online presence to rest my eyes. Excessive screen time could worsen tinnitus due to both eyes and ears being connected with the olivary organ. It's far fetched but who knows. I'm desperate. Other than that none of the medications we tried helped and will...

I have been taking 2000 mg a day for one week, so far no significant effect.

Tom, I wish you and your travel companion much better luck than I had. Just a warning: if the first treatments worsen you and the tinnitus doesn't oscillate temporarily down with the Lidocaine or does not go down the day after, be very careful in deciding to continue. In term of finances, all...

Thank you for your concern. I will give another update, more informal. Treatment: as far as I am concerned, the treatment failed spectacularly on me, and not only failed, made me much worse, to a very dangerous point. Whether it was the Lidocaine-Clonazepam interaction, whether the Lidocaine...

Someone should point him to this thread. I had expressed several doubts myself if you re-read the topic, but as I was desperate and there were some positive elements too I decided to try it anyway. The money you need is much less than 40k, you probably need 10k. This guy is so close to Ghent...

Thank you for digging this out. I really couldn't do it now.

It looks like he made several claims, I seem to recall him saying he was helped at some point, but you may be right, he might have rectified it later. I don't have the strength to go and re-read the whole topic, or to do much else for that matter. I'm still in full survival mode.

Someone whose email name is "holy mary" doesn't sound encouraging. It's not "Hail Mary" but still, sounds like say your prayers. Just kidding. The problems with PRP are others and have been discussed elsewhere. I hope it works for all who are trying. John Adams had good results with it, which...

I did it as a warning to people who don't have many funds left and might be looking at last choices. I looked into this rather carefully, read the Indian study several times and corresponded with experts. I think it's of service to people here to have a balanced view of the real chances of this...

I don't want to sound negative and I really wish @scotty03874 success with the treatment. Perhaps there is some undiscovered mechanism of action of PRP on ears. However, for people thinking about Shim's treatment, a few warnings. This may have been discussed in other threads too. First, there...

Hi Jerad, I have several symptoms of depression but I'm not technically depressed, it's just the reaction to the extreme pain and to a life completely destroyed. Who wouldn't have some reactive depression then, but it's not MDD. Maybe they might find I have it after all, but there is no way I...

Thank you for writing this, @Damocles. Even in the middle of this hell I always appreciate your writing. I'm in a silent flat so I'm trying to recover here but in 1 month my visa waiver will expire so will have to fly back one way or another. I hope to make it back.

We talked about this earlier in the thread. That is one of the things I suspected. But talking to a Korean friend, he told me it's more a old generation thing.