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Hi, I’m sorry to hear that you’re dealing with tinnitus. From what I’ve learned, tinnitus caused by acoustic trauma often resolves on its own, especially since you’re still very young. Although this is a difficult time for you, try to find ways to distract yourself. When my tinnitus is really...

It depended on the level of tinnitus on that day. I would say that Trobalt reduced my tinnitus to a lower level. My tinnitus varies between 10 (level of driving me crazy and being fully handicapped) and sometimes down to 5 (only one tone on the left side and more of a hissing). I had very few...

I was one of those who took Retigabine (Trobalt). I still have it available, but it is long expired. I took it in "Aspirin Mode" when I was in really bad shape and had to function, meaning I had very loud tinnitus and an important appointment or something else. Trobalt reduced the tinnitus to a...

Your tinnitus sounds similar to mine. Very difficult to handle every day. I took Trobalt some years ago and it helped for a few hours after each dose. I stopped because of the side effects. I have not taken Keppra since I don't have hyperacusis. What helped me to some extent, was Escitalopram...

I have read a story about getting rid of panic attacks, anxiety and depression with CBD oil. The story can be found on https://www.meinwegausderangst.de/mga01/. But it is in German. I hope that also tinnitus can be reduced by using CBD oil or it least makes me calmer. I have ordered the CBD...

Is that "Windows 95" in the background? :D :banghead:

I guess it comes with an "Apple" logo now. ;)

I am not here that often these days. What is the roadmap (trials, release dates etc.)? When can we expect to have final trial results and "real world" experiences? Thanks in advance.

Sounds promising. What program change do you mean exactly?

If I can borrow the device in my area in Germany, I will give it a try. But I won't spend money on it. But the problem is that my tinnitus fluctuates. It can be better some days, even weeks and then catastrophic again. So I won't even know after 6 weeks if Lenire had any effect. Still waiting...

Better to spend your money on BioNTech stocks than on Lenire. Lenire is useless. I can remember ONLY one person on the forums that had an improvement. If you can get your money back, do it. Best regards (aus Essen), Martin

Sorry being a downer here, but I have not much hope that Dr. Shore's device will be available soon. Neuromod published a product in much less time. OK, it is not really working. ;) But what is so difficult about getting Dr. Shore's device finished? They have been doing tests and trials...

The webinar just finished. There was not much new for most of us. They presented the Lenire results from the Neuromod studies. Q&A was about costs, treatment length, treatment locations etc. They also presented some slides about what tinnitus is, where it manifests in the brain, that it is a...

Got an eMail from Lenire® <info@lenire.com>: For the Germans (I guess the presentation will be in German language), there is a Webinar planned by two tinnitus experts in Germany. They are talking about Lenire. They do some presentations about "promising results" with Lenire. They explain how...

Dave, I am sorry for you loss. Wish you all possible strength in this difficult time. Stay strong.

@Chinmoku Seven years here with unbearable tinnitus (3-4 ultra high-pitched sounds in ears and head). First two years with huge anxiety (a feeling that I could jump out of my skin non-stop). With Lexapro, anxiety became better. I am also 100% home worker (computer support) luckily. Otherwise, I...

Just received this from Neuromod: [News] Lenire's TENT A1 trial results published by STM Hi, In 2016 we set out on the largest and longest followed-up clinical trial of a medical device for tinnitus sufferers. It's been quite a journey. Over 3 years our TENT A1 trial investigated if...

Unbelievable.

@pinklights98 @EDDTEKK @jmasterj I am sorry that it did not help one bit. But thanks for the reports. It makes no sense to me starting this treatment in Hannover, Germany. I see Lenire similar to MuteButton - trial & error. Let's hope that Susan Shore has something better for us.

Very quiet here. Coronavirus stopped everything? No new experiences from Lenire users?

https://www.lenire.com/ "can provide" - if you are within the lucky 5%. ;) Nevertheless, no sarcasm. I hope they will continue to improve the device. There is not much more we have. Best would be a device with remote programming.

They charge for each session. 350, 250 and 250.

Same here. Got a call, but rejected for now. They offered that I can call later to get another appointment. Costs will be approx. 1900€ for the device and additional 850€ for 3 sessions. Altogether 2750€. Good to know it is available in Germany now.

Done

Same here. But I do not plan to attend atm. Of course I want to get rid of this sh... or lower it. But the success rates are currently too small. Also they could not give me any exact numbers about costs. Therefore, I don't know yet what I will do.

Same here. Nothing.

There is a huge difference between my 6/10 and 10/10 days. Luckily, 10/10 days became less frequent (maybe 2-3 times week compared to 5-6 in the past). It is still a tough ride. 10/10 means for me some loud high-pitched (even > 15 kHz) tones. What I want to say: If Lenire would bring me back...

Donated.

No.

It would be important that Neuromod publishes new data from real patients. And also about experiences and learning if they could further improve the device (timing, frequency etc). I am sure the device is more or less still in experimental phase and there is much room for optimizing it.

R.I.P. Heartbreaking. I hope you have silence now. Really bad news. Guys, stay strong. All of us.

For the Germans: Vielen Dank für Ihr Interesse an unserer Dienstleistung. Leider können wir Ihre Anfrage zum jetzigen Zeitpunkt noch nicht beantworten, da unser Büro erst ab dem 01.02.2020 eröffnet wird. Wir werden uns dann umgehend bei Ihnen melden! Ihr HörSys-Team Thank you very much for...

Same here. No reply.

@Winter Hello Winter, The current time is a roller coaster ride for you and your family. Most of us have been there where you are. And you try each and everything to get relief (vitamins, therapies, massage, acupuncture, TRT, mindfulness, yoga, whatever else). And every time nothing helps...

I wrote an eMail to info@hoersys.de yesterday asking for details, costs, dates etc. No reply yet.

Yes. Looks like it. And if they charge for the other appointments, too, one could end up with much more than 2900€. Probably better to fly to Dublin directly to Neuromod. At least you can be sure they know exactly what they should do with you and how to set up the device. But flying 4 times is...

@Jan64 They said that the Lenire device will be 1900 €, which has to be paid directly to Lenire via credit card. But they will do a complete diagnostic test before they start the treatment and they said that this will cost approx. 1000€. This is for the first visit. (n) I can only say: This...

From the clinic. I cannot give more details at the moment. It is all "under construction" and no concrete plans (starting date for example) are known. Once I know more, I will share. BTW, people here wrote already that someone from Germany is shadowing the assessments. So I guess, Germany will...

Usually I am a very skeptical person. And I do not expect miracles from Lenire. But we need to consider it is a new treatment for tinnitus. I am sure that Neuromod and others are learning from current patients and could (and hopefully will) improve the device. If the device is changing...

Wow. Excellent interview covering all questions. Really good. I guess it is time to spend another 25$ to Tinnitus Talk (already done in this minute). Keep up the good work. :thankyousign: @Markku @Hazel

-> This shows continuous learning. Sounds promising. And interesting for us Germans:

T up and down. Sometimes ok, sometimes catastrophic. It is what it is.

Agreed. Just reading the latest Experiences. Doesn't look really promising. :( So now waiting another 1-2 years for the device from Dr. Susan Shore? Or hoping that some other patients using Lenire report success. But they seem to be not on Tinnitus Talk...

Once it comes to tinnitus, clinics in Germany have no clue. The only thing they do is TRT and earn a fortune with it. (n)

My hopes about Lenire are not that high currently. Two have worse tinnitus, even though I think this is related to tinnitus reacting to noise (in particular to white noise) - which is different to my tinnitus. Some report tinnitus improvement, but this could also be placebo or could have...

The rumors I have heared point to Prof. Lenarz.

It won't be Tinnituszentrum in Regensburg - AFAIK. But it is just rumours. I know someone who is planned for a Lenire treatment in October in Germany. Since it is all very vague yet, I don't want to give more information. But as far as I know more, I will let you know. Please don't ask via PM. I...

@Allan1967 @valeri I could imagine that Neuromod can modulate the sounds to something your tinnitus does not react on. My tinnitus was also highly reactive first months after tinnitus onset. Luckily this settled down and white noise or ACRN beep sounds mask my tinnitus, but not increase it...

For the Germans here... Today I contacted the tinnitus clinic in Regensburg via eMail. As far as I thought, this is the clinic that would make Lenire available in Germany. At least I remember that the clinic was also working with Neuromod, but I can be wrong. Whatever, there are no plans...

@Allan1967, I really hope it gets better for you. Stay strong and confident. As far as I remember, EVERY participant's tinnitus in the clinical trial at least went back to baseline, even if it got louder in the beginning. It is worth to keep on going. Maybe they can remove the white noise from...

Where are you? Which clinic? German clinics have no clue about tinnitus!

Thanks for information. But really strange. Sounds a little bit like a lottery to me - if you can hear the sounds or not. At least I will not plan to travel from Germany to Dublin being rejected. And don’t give up please. I am sure, sooner or later, everyone will get the opportunity to get the...

@Nanny chocolate I have good hearing up to 8 kHz. Then it goes down. Can hardly hear high-pitched external sounds. Cricket sounds for masking have to be louder than usual. I would assume that many people at my age (50) or older have that hearing drop - but don‘t know since most hearing tests...

Guys. Be patient. I can imagine that people do want to get familiar with the device, do it correctly etc. I doubt they have time and nerves right now to answer all the questions. I am sure feedback will be supplied soon enough. We have to wait anyway 8 to 12 weeks before anyone can say...

Anyone here who is taking part in the current trial for Susan Shore's device? https://www.tinnitustalk.com/posts/449937/

Do we know if anyone from Tinnitus Talk is taking part in the trial? @Markku

My tinnitus fluctuates. Currently, I have luckily a lower period (some days). I would rate it a 4/10 (which I have very seldom). Normally it is between 8/10 and 10/10. Hence I am wondering how they adjust to this when doing the initial assessment.

Nothing known yet for Germany.

Great work. Thank you.