Lenire — Bimodal Stimulation Treatment by Neuromod

[Chinmoku]

@Chinmoku

I sat in the same situation. And have reflected upon it like you the same way. For myself I decided it's not worth the risk and the money. As you already say, we can somewhat cope with tinnitus now but a worsening would be devastating.

I'll follow Neuromod and Lenire with interest and hope they will make progress so that I can perhaps get a treatment in the near future.

I hope my reflection helps you.

Thank you. Unfortunately, unlike you, I am not coping really. I'm pretty desperate. I desperately need relief because to be honest I don't know how much longer I can make it. I'm fighting for my kids but I'm losing the battle. The constant worsening has reached a point where I struggle to go on. In this state any sudden worsening would kill me but if I don't do anything I'll slowly worsen anyway. I'm between a rock and a hard place.

 

[friend74]

Trying to decide what to do... I have an appointment in March, but the severe cases are dubious. Remembering the scatter plot on results in the trials posted some time ago, I seem to recall that the severe cases were the ones with the least relative improvement. We have a couple of cases here with worsening, and that is something someone with severe tinnitus can hardly afford. I am really uncertain on what to do, I don't even have the result of the Tinnitus Talk survey to help. There are only the preliminary stats run by @threefirefour that seem to say it helped 70% of people. That would be ok but it's a very small sample. I am desperate for relief, but I can't afford a worsening and I am really irritated to pay 2.5K without even a preprint detailing the methodology and the results. What to do...

I guess I will cancel the appointment. On the other hand, can it get more worse than it is now...

 

[UKBloke]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

The advent of the Internet means people are now able to access treatment programs straight away, and although this is great in one respect, it does not do our long term cause any good because it prevents that two-year window of opportunity where the condition may self-resolve from opening. I'm afraid reports of improvement from patients using Lenire within the two year period of tinnitus onset, no matter how coincidental said improvements appear to be, are specious. Sorry guys, but for me, treatment within this period of onset presents a big schism within our group and I have to come off the fence regarding it.

Below I've collated snippets of statements from those Tinnitus Talk users that suffered for at least two years prior to completing the Lenire treatment. Based on these alone I have zero interest in using this device.

Negative

@Paul Betteridge : my tinnitus is through the roof - I am now so desperate that I am on antidepressants

@thescientist : I have not noticed any improvement in my tinnitus so maybe it is not going to work for me at all.

@Mentos : Overall I rate Lenire has had no impact on me, good or bad, till now.

@Ade : It has got so bad that I have had to stop using it. I need things to settle down as it is breaking me at the moment.

@TinMan2019 : I'm throwing in the towel. I had high hopes for this bimodal treatment. But I guess it's just not working for me.

@ruud1boy : My tinnitus is largely unchanged I'm afraid

Allan1967: my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Indifferent

@jacob21 : I stopped using Lenire 2-3 weeks ago, probably because my tinnitus was generally better (good and bad days), with bad days more manageable but still bothersome. Hard to say if it was due to Lenire?

@Liz Windsor : I know this must sound terribly vague but, at the moment, that is just how it feels to me.

Good

@hans799 : Overall, I feel positive about Lenire. The device definitely does affect tinnitus. It is definitely capable of lowering its volume, as demonstrated during my first 6 weeks.

@Krolo : Lenire has done quite a wonder on me and is definitely worth it

 

[friend74]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

The advent of the Internet means people are now able to access treatment programs straight away, and although this is great in one respect, it does not do our long term cause any good because it prevents that two-year window of opportunity where the condition may self-resolve from opening. I'm afraid reports of improvement from patients using Lenire within the two year period of tinnitus onset, no matter how coincidental said improvements appear to be, are specious. Sorry guys, but for me, treatment within this period of onset presents a big schism within our group and I have to come off the fence regarding it.

Below I've collated snippets of statements from those Tinnitus Talk users that suffered for at least two years prior to completing the Lenire treatment. Based on these alone I have zero interest in using this device.

Negative

@Paul Betteridge : my tinnitus is through the roof - I am now so desperate that I am on antidepressants

@thescientist : I have not noticed any improvement in my tinnitus so maybe it is not going to work for me at all.

@Mentos : Overall I rate Lenire has had no impact on me, good or bad, till now.

@Ade : It has got so bad that I have had to stop using it. I need things to settle down as it is breaking me at the moment.

@TinMan2019 : I'm throwing in the towel. I had high hopes for this bimodal treatment. But I guess it's just not working for me.

@ruud1boy : My tinnitus is largely unchanged I'm afraid

Allan1967: my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Indifferent

@jacob21 : I stopped using Lenire 2-3 weeks ago, probably because my tinnitus was generally better (good and bad days), with bad days more manageable but still bothersome. Hard to say if it was due to Lenire?

@Liz Windsor : I know this must sound terribly vague but, at the moment, that is just how it feels to me.

Good

@hans799 : Overall, I feel positive about Lenire. The device definitely does affect tinnitus. It is definitely capable of lowering its volume, as demonstrated during my first 6 weeks.

@Krolo : Lenire has done quite a wonder on me and is definitely worth it

Thanks for your work. I think @alanisnotadj also had some improvement but isn't done with the whole treatment yet.

 

[UKBloke]

Thanks for your work. I think @alanisnotadj also had some improvement but isn't done with the whole treatment yet.

The last report from @alanisnotadj that I read in the User Experiences thread he'd been using the treatment for 24 days.

I've read some of your posts here and sympathise. I'm going through a rough patch myself at the moment and would not risk aggravating my own tinnitus further with something like Lenire.

 

[Chinmoku]

@UKBloke, that's a sobering review. Combined with the fact that the benefit for severe cases seems limited in the scatterplot, this is not encouraging at all.

 

[BBakkers]

Thank you. Unfortunately, unlike you, I am not coping really. I'm pretty desperate. I desperately need relief because to be honest I don't know how much longer I can make it. I'm fighting for my kids but I'm losing the battle. The constant worsening has reached a point where I struggle to go on. In this state any sudden worsening would kill me but if I don't do anything I'll slowly worsen anyway. I'm between a rock and a hard place.

That's shitty to hear! I hope you can find the strength within yourself with perhaps help of friends and family to fight this beast. I'm very positive that in the near future there will be something that can help reduce the symptoms, but in this moment of time it's just too early. Hang on buddy!

 

[Sironketchup]

I've been using Lenire for 5 days. It has not (yet) increased my tinnitus. My tinnitus is severe.
I think this is a risk you have to take, financially and in terms of a worsening.
No risk no gain.

 

[UKBloke]

@UKBloke, that's a sobering review. Combined with the fact that the benefit for severe cases seems limited in the scatterplot, this is not encouraging at all.

It isn't encouraging, no. But in some respects I do feel those of us who were rather on the fence about whether or not to travel to Ireland can now make a slightly more informed decision, which in itself must be a positive thing. I really hope you find some relief.

 

[Martin69]

I guess I will cancel the appointment. On the other hand, can it get more worse than it is now...

There is a huge difference between my 6/10 and 10/10 days. Luckily, 10/10 days became less frequent (maybe 2-3 times week compared to 5-6 in the past). It is still a tough ride. 10/10 means for me some loud high-pitched (even > 15 kHz) tones.

What I want to say: If Lenire would bring me back more 10/10 days or maybe even worse, this would be a drastic setback. I do not want to risk this.

Anyway, I also think a lot about making an appointment in Hannover giving it a try.

 

[AfroSnowman]

Thank you. Unfortunately, unlike you, I am not coping really. I'm pretty desperate. I desperately need relief because to be honest I don't know how much longer I can make it. I'm fighting for my kids but I'm losing the battle. The constant worsening has reached a point where I struggle to go on. In this state any sudden worsening would kill me but if I don't do anything I'll slowly worsen anyway. I'm between a rock and a hard place.

First of all hang in there brother. We are with you. We understand. I know what this does to your soul. Stay here for your kids.

As to Lenire if you are going to give it a go believe the numbers you are seeing reported and adjust your expectations accordingly. If you are on the edge the last thing you need are shattered hopes. For me right now at 3 weeks roughly to the day it hasn't been game changing but maybe is helping take the edge off, or maybe not. It hasn't made it worse though.

It is kind of hard to imagine worse though. I figure I have pretty severe tinnitus and with all due respect to those who have been having a hard time with this, the odd new noise for me has been no more disturbing than all my old high pitch noises that I had. So far I think it has taken everything down one notch, but not so much as I'd swear to it.

Personally as long as there was a not insignificant chance for it to make my life a little more bearable I wanted to give it a go. In the end you have to do a gut check on whether it is worth doing a treatment where the 70ish% success rate is a modest improvement.

 

[FGG]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

Is there any reason you chose two years over one? Is there any data on this?

 

[Chinmoku]

I've been using Lenire for 5 days. It has not (yet) increased my tinnitus. My tinnitus is severe.
I think this is a risk you have to take, financially and in terms of a worsening.
No risk no gain.

Thank you for this, we need something positive my goodness.
Can I ask you how severe you tinnitus is? Feel free to ignore my request if you'd rather not tell.

Can you hear it in a loud restaurant?
Can you hear it in traffic?
Can you hear it in a flight?
Can you hear it in a strong shower?

For me it's yes everywhere except the last one, but I'm getting there.
My other doubt is that I believe this drug I am tapering, Pregabalin, has played/is playing a role in the worsening by messing up my GABA system. No doubt my tinnitus started with a cold, but then it got louder and louder. Now classical sound therapies and most tinnitus treatments often fail with tinnitus linked to GABA deregulation. People tapering from benzos or Pregabalin may get a quite specific type of unmaskable, reactive tinnitus that is particularly horrid. This is one further element that makes me hesitate in approaching Lenire. However I am at such a level of desperation that I will probably risk it.

EDIT: On the encouraging side, Lenire claims people with reactive tinnitus are good responders...

 

[Manny]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

The advent of the Internet means people are now able to access treatment programs straight away, and although this is great in one respect, it does not do our long term cause any good because it prevents that two-year window of opportunity where the condition may self-resolve from opening. I'm afraid reports of improvement from patients using Lenire within the two year period of tinnitus onset, no matter how coincidental said improvements appear to be, are specious. Sorry guys, but for me, treatment within this period of onset presents a big schism within our group and I have to come off the fence regarding it.

Below I've collated snippets of statements from those Tinnitus Talk users that suffered for at least two years prior to completing the Lenire treatment. Based on these alone I have zero interest in using this device.

Negative

@Paul Betteridge : my tinnitus is through the roof - I am now so desperate that I am on antidepressants

@thescientist : I have not noticed any improvement in my tinnitus so maybe it is not going to work for me at all.

@Mentos : Overall I rate Lenire has had no impact on me, good or bad, till now.

@Ade : It has got so bad that I have had to stop using it. I need things to settle down as it is breaking me at the moment.

@TinMan2019 : I'm throwing in the towel. I had high hopes for this bimodal treatment. But I guess it's just not working for me.

@ruud1boy : My tinnitus is largely unchanged I'm afraid

Allan1967: my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Indifferent

@jacob21 : I stopped using Lenire 2-3 weeks ago, probably because my tinnitus was generally better (good and bad days), with bad days more manageable but still bothersome. Hard to say if it was due to Lenire?

@Liz Windsor : I know this must sound terribly vague but, at the moment, that is just how it feels to me.

Good

@hans799 : Overall, I feel positive about Lenire. The device definitely does affect tinnitus. It is definitely capable of lowering its volume, as demonstrated during my first 6 weeks.

@Krolo : Lenire has done quite a wonder on me and is definitely worth it

UKBloke, thanks for this.

Something doesn't seem to add up as I believe threefirefour claims (to use neutral language) that there's about a 70% success rate based on the internet reports.

@threefirefour could you perhaps comment on this?

Thanks!

 

[Tomas80]

Two fundamental questions. Is Lenire more effective than placebo? What is the likelihood of permanent worsening?

 

[mrbrightside614]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

The advent of the Internet means people are now able to access treatment programs straight away, and although this is great in one respect, it does not do our long term cause any good because it prevents that two-year window of opportunity where the condition may self-resolve from opening. I'm afraid reports of improvement from patients using Lenire within the two year period of tinnitus onset, no matter how coincidental said improvements appear to be, are specious. Sorry guys, but for me, treatment within this period of onset presents a big schism within our group and I have to come off the fence regarding it.

Below I've collated snippets of statements from those Tinnitus Talk users that suffered for at least two years prior to completing the Lenire treatment. Based on these alone I have zero interest in using this device.

Negative

@Paul Betteridge : my tinnitus is through the roof - I am now so desperate that I am on antidepressants

@thescientist : I have not noticed any improvement in my tinnitus so maybe it is not going to work for me at all.

@Mentos : Overall I rate Lenire has had no impact on me, good or bad, till now.

@Ade : It has got so bad that I have had to stop using it. I need things to settle down as it is breaking me at the moment.

@TinMan2019 : I'm throwing in the towel. I had high hopes for this bimodal treatment. But I guess it's just not working for me.

@ruud1boy : My tinnitus is largely unchanged I'm afraid

Allan1967: my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Indifferent

@jacob21 : I stopped using Lenire 2-3 weeks ago, probably because my tinnitus was generally better (good and bad days), with bad days more manageable but still bothersome. Hard to say if it was due to Lenire?

@Liz Windsor : I know this must sound terribly vague but, at the moment, that is just how it feels to me.

Good

@hans799 : Overall, I feel positive about Lenire. The device definitely does affect tinnitus. It is definitely capable of lowering its volume, as demonstrated during my first 6 weeks.

@Krolo : Lenire has done quite a wonder on me and is definitely worth it

You forgot to mention that it basically cured @Redknight.

With that said, the outcomes are way too variable to take such a financial and physical gamble on this. My heart goes out to @Paul Betteridge and @Ade

RIP Allan.

Hopefully Lim takes the reigns from here and just models Lenire 2.0 to be the University of Minnesota device.

 

[ThomasC]

I think so. I tend not to hear it when there's running water or a shower or when cooking (frying) or when there's crickets. But I hear it in the car, over TV, conversation, outdoors.
Because of that I'm trying to rely more on distraction than actual masking.

Here's the thing. The audiologist used the same sound for masking as for loudness matching. She stopped at 25dB SL because I indicated that I had hyperacusis and I found the high frequency audiometry earlier unpleasant.

She simply noted MML >25dB SL. I kinda sorta could hear my tinnitus at that level, but it didn't stick out and I had to tune in and ask her to remove the masking sound and restart it. I feel that I could probably still have heard it when the masking level went up because my tinnitus is higher pitched than the masking sound, so I wonder if there even exists a level at which it would be masked?

Needless to say I was bummed with such a high number, but a number is just a number and I still need to move forward as well as I can.

The only thing to remember for this is that it's no cold hard science when Neuromod does these tests. Do you have big fluctuations? 5 and then 15 dB loudness is all over the place? And can you mask it?

It's hard to mask it, my tinnitus is very high pitched, when I have a conversation with someone else, my tinnitus is 70 % masked.

I don't know why there is such a big fluctuation. I must admit that those measurements are pretty old because it makes 5 years I have not done an hearing test. I also have to say that I have had tinnitus for 7 years but I was able to habituate during 3 years to the point of not paying attention to it, even in quiet rooms.

The MML depends on the frequency of your tinnitus. If it is low pitched, it will be quite easy to mask it. If it is high pitched, it will be very hard to mask your tinnitus.

 

[Bartoli]

You forgot to mention that it basically cured @Redknight.

With that said, the outcomes are way too variable to take such a financial and physical gamble on this. My heart goes out to @Paul Betteridge and @Ade

RIP Allan.

Hopefully Lim takes the reigns from here and just models Lenire 2.0 to be the University of Minnesota device.

After these disappointing results he's better off starting a new company. The Lenire name doesn't exactly instill value.

 

[Chinmoku]

First of all hang in there brother. We are with you. We understand. I know what this does to your soul. Stay here for your kids.

As to Lenire if you are going to give it a go believe the numbers you are seeing reported and adjust your expectations accordingly. If you are on the edge the last thing you need are shattered hopes. For me right now at 3 weeks roughly to the day it hasn't been game changing but maybe is helping take the edge off, or maybe not. It hasn't made it worse though.

It is kind of hard to imagine worse though. I figure I have pretty severe tinnitus and with all due respect to those who have been having a hard time with this, the odd new noise for me has been no more disturbing than all my old high pitch noises that I had. So far I think it has taken everything down one notch, but not so much as I'd swear to it.

Personally as long as there was a not insignificant chance for it to make my life a little more bearable I wanted to give it a go. In the end you have to do a gut check on whether it is worth doing a treatment where the 70ish% success rate is a modest improvement.

Thank you for this and your kind words. I would be ok with 70% success of moderate proportion. What scares me are the worsening cases. I can't afford to worsen.

 

[AfroSnowman]

Thank you for this and your kind words. I would be ok with 70% success of moderate proportion. What scares me are the worsening cases. I can't afford to worsen.

I know. Me too.

 

[threefirefour]

UKBloke, thanks for this.

Something doesn't seem to add up as I believe threefirefour claims (to use neutral language) that there's about a 70% success rate based on the internet reports.

@threefirefour could you perhaps comment on this?

Thanks!

Well not just internet reports. I also use anecdotes from people on the internet alongside first hand reports. Ignoring anecdotes and non-Tinnitus Talk sources, the success rate drops to 55%. Adjusting non-Tinnitus Talk sources to Tinnitus Talk numbers, the success rate drops to 65%.

What's interesting is Tinnitus Talk reports seem to be particularly bad on average compared to everyone else, even after adjustment. I have a few guesses why:

-Lenire doesn't work as well on severe tinnitus. It seems to work the best with regular sufferers with less tinnitus (and therefore less tinnitus activity). Tinnitus Talk users tend to be on the severe side because people with bad tinnitus are more likely to be bugged by it and linger on tinnitus forums.

Tthe Yelp effect. If you look at reviews for a restaurant, many will be bad. But if you stood near the doorway of that restaurant and asked patrons how they liked it, the real life reviews will be way more positive on average. That's because people who had a bad experience are more likely to go on the internet and leave a bad review. There's a few people on the user experience thread who made accounts to leave complaints about it, so this suggests the Yelp effect.

 

[HootOwl]

I think the debate about whether or not Lenire being worth the risk/money is an offshoot of the more important question: what does a "success" actually constitute?

I've been following this thread since June when it was first announced they would launch and there was a lot of promise and hype around what I believe was a ~65-80% improvement figure with a small portion of those being hyper responders who had near complete alleviation of their tinnitus, and then the remaining 20% of non responders.

At the time it seemed like what they deemed to be a "improvement" was tinnitus reduction of about 8 decibels which would in effect halve the volume of your tinnitus.

It seemed like we all thought that when the device released and the user reports would roll in we would see something along those same lines - 20% no response, 50-70% with tinnitus at half volume or so, and 5-10% with complete or near alleviation.

Honestly it seems that the bar for what is being deemed a "success" is a lot lower than what I initially thought we were working with. Quite a few of the improvement stories mention that the tinnitus is slightly improved or somewhat less intrusive but nothing close to the 50% reduction we were all gunning for...

I don't think most people went into Lenire thinking it would silence their tinnitus but if you look back at the threads in early summer most people we're hoping for a 30-50% reduction as long as they weren't in the 20% non-responder group, at least based off Lenire's own data.

For me that is where the disappointment stems from...

 

[threefirefour]

I think the debate about whether or not Lenire being worth the risk/money is an offshoot of the more important question: what does a "success" actually constitute?

I've been following this thread since June when it was first announced they would launch and there was a lot of promise and hype around what I believe was a ~65-80% improvement figure with a small portion of those being hyper responders who had near complete alleviation of their tinnitus, and then the remaining 20% of non responders.

At the time it seemed like what they deemed to be a "improvement" was tinnitus reduction of about 8 decibels which would in effect halve the volume of your tinnitus.

It seemed like we all thought that when the device released and the user reports would roll in we would see something along those same lines - 20% no response, 50-70% with tinnitus at half volume or so, and 5-10% with complete or near alleviation.

Honestly it seems that the bar for what is being deemed a "success" is a lot lower than what I initially thought we were working with. Quite a few of the improvement stories mention that the tinnitus is slightly improved or somewhat less intrusive but nothing close to the 50% reduction we were all gunning for...

I don't think most people went into Lenire thinking it would silence their tinnitus but if you look back at the threads in early summer most people we're hoping for a 30-50% reduction as long as they weren't in the 20% non-responder group, at least based off Lenire's own data.

For me that is where the disappointment stems from...

Interestingly 8 dB isn't as much as we thought it was in terms of reduction. The standard candles I'm using to rate improvement say it's a mild reduction.

 

[Bartoli]

The MML depends on the frequency of your tinnitus. If it is low pitched, it will be quite easy to mask it. If it is high pitched, it will be very hard to mask your tinnitus.

I'd like to add that for the sake of masking and MML, a specific frequency band-noise should be used that centers around your tinnitus, so I don't know if higher pitch automatically relates to a higher MML number, if done right. What high pitched tinnitus does is stand out like a sore thumb in most everyday situations because there's little to cover it up in terms of natural sounds. So yeah, that's frustrating.

 

[ruud1boy]

The only user reports that have interested me so far are those from people who've suffered with tinnitus for greater than two years. I take their reviews very seriously because I believe from my own experience that two years is the point where tinnitus can truly be said to be chronic.

The advent of the Internet means people are now able to access treatment programs straight away, and although this is great in one respect, it does not do our long term cause any good because it prevents that two-year window of opportunity where the condition may self-resolve from opening. I'm afraid reports of improvement from patients using Lenire within the two year period of tinnitus onset, no matter how coincidental said improvements appear to be, are specious. Sorry guys, but for me, treatment within this period of onset presents a big schism within our group and I have to come off the fence regarding it.

Below I've collated snippets of statements from those Tinnitus Talk users that suffered for at least two years prior to completing the Lenire treatment. Based on these alone I have zero interest in using this device.

Negative

@Paul Betteridge : my tinnitus is through the roof - I am now so desperate that I am on antidepressants

@thescientist : I have not noticed any improvement in my tinnitus so maybe it is not going to work for me at all.

@Mentos : Overall I rate Lenire has had no impact on me, good or bad, till now.

@Ade : It has got so bad that I have had to stop using it. I need things to settle down as it is breaking me at the moment.

@TinMan2019 : I'm throwing in the towel. I had high hopes for this bimodal treatment. But I guess it's just not working for me.

@ruud1boy : My tinnitus is largely unchanged I'm afraid

Allan1967: my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Indifferent

@jacob21 : I stopped using Lenire 2-3 weeks ago, probably because my tinnitus was generally better (good and bad days), with bad days more manageable but still bothersome. Hard to say if it was due to Lenire?

@Liz Windsor : I know this must sound terribly vague but, at the moment, that is just how it feels to me.

Good

@hans799 : Overall, I feel positive about Lenire. The device definitely does affect tinnitus. It is definitely capable of lowering its volume, as demonstrated during my first 6 weeks.

@Krolo : Lenire has done quite a wonder on me and is definitely worth it

You need to take me out of your 'negative' group. I've never reported any negative reaction and I've been largely 'indifferent' since starting the treatment - over the last month or so however would say I'm now hovering on the border between 'indifferent' (maybe 90%) and 'good' (the other 10%).

 

[ruud1boy]

You forgot to mention that it basically cured @Redknight.

With that said, the outcomes are way too variable to take such a financial and physical gamble on this. My heart goes out to @Paul Betteridge and @Ade

RIP Allan.

Hopefully Lim takes the reigns from here and just models Lenire 2.0 to be the University of Minnesota device.

And what about @BigNick, another improver IIRC?
This is the problem with people doing their own summaries - it's easy to just mis-state or mispresent things, unintentionally I'm sure. @UKBloke had me pegged in the wrong category in his summary and there were a couple of other posters who might also disagree with his categorisation of their current situation. But over the last page or 2, his summary has taken root and is now apparently gospel.

 

[all to gain]

Thank you. Unfortunately, unlike you, I am not coping really. I'm pretty desperate. I desperately need relief because to be honest I don't know how much longer I can make it. I'm fighting for my kids but I'm losing the battle. The constant worsening has reached a point where I struggle to go on. In this state any sudden worsening would kill me but if I don't do anything I'll slowly worsen anyway. I'm between a rock and a hard place.

It's a tough one, for sure. I'm in a very similar situation.

Personally, I would wait until you get off the drug; see where that takes you first. But I really wouldn't blame you for giving Lenire a try. As for me, I'm leaving it for now.

 

[UKBloke]

Is there any reason you chose two years over one? Is there any data on this?

2 years was basically my own experience of onset. The first 18 months or so, tinnitus would come and go. There were times during this period when I thought it had gone altogether but around the 2 year mark the noise became constant and has been with me for the last 30 or so years. As I stated in the original post, 2 years for me is my own benchmark.

 

[pinklights98]

Hey everyone I just wanted chime in here on this thread real quick.

Thank God, Lenire is no longer creating a new high pitched tone for me anymore. If you read my two week review, this was very distressing for me as it was unmaskable as it reacted severely to other sounds. I also already have many tones, so the device created a new tone almost caused me to stop the treatment.

I'm a big believer in jinxing (lol) because every time I feel like I've said something positive about my tinnitus the exact opposite happens and it worsens. Regardless, I wanted to post this as I thought it was crucial for potential users to know that the tone wasn't permanent for me. It sometimes emerges after treatment, but quickly dies down.

I also pushed my six week review back by two weeks due to my troubles with the device early on.

 

[UKBloke]

And what about @BigNick, another improver IIRC?
This is the problem with people doing their own summaries - it's easy to just mis-state or mispresent things, unintentionally I'm sure. @UKBloke had me pegged in the wrong category in his summary and there were a couple of other posters who might also disagree with his categorisation of their current situation. But over the last page or 2, his summary has taken root and is now apparently gospel.

I stated quite clearly in the original post that I was interested in the anecdotal statements of those users who'd suffered with tinnitus at least 2 years prior to treatment. @BigNick reports tinnitus onset from November 2018 and therefore isn't in the 2 year category.

You're evidently in this category and sure, if you feel that I've pegged you wrong in my summary, fair play. You've updated the situation so evidently things are different to how they were being reported at the time I made the original post.

@mrbrightside614, @Redknight isn't in the 2 year category.