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Hi, I want to give you some reassurance that you will get better. I understand how frightening it is as I experienced exactly what you’re describing. There are many other people here who have also recovered to a much better place. The tinnitus will hopefully settle down over time, the distress...

Yeah, there's a layer of softer noise that's much more in my head than ears. The other sound is high pitch that moves from side to side, I experience that one more in the ears. But my tinnitus isn't stationary. It moves around and fluctuates, the sounds also changes in character at times. As...

Yeah I still do but not as much.

Treatments were Lenire (my take on it is that it 'might' be of 'some' help to 'some' people. I've talked about this before but, just to reiterate, I had 8 tinnitus sounds pre-treatment, 2 tinnitus sounds post-treatment. It also stopped my ear spasms almost immediately. I've found mindfulness...

You'll habituate because the tinnitus will hopefully subside over time. The problem is that it's very distressing in the first months and beyond (was for me). I don't necessarily subscribe to the view that stress 'causes' tinnitus but I've found chronic anxiety and fear can drive the volume and...

Magnesium and Opti-Turmeric both from the brand HealthSpan, Zinc also from time to time. Magnesium might help a little with sleep but it's a combination of things. I'd like to get into NAD, it's just expensive to maintain. There's a guy named Gregory Scott who is known in PRO AUDIO circles for...

Hi David. I used to have a cluster of sounds, high frequency, reactive, pulsatile and ear spasms. Nothing masked or helped them. I still a have a pitch sound that fluctuates and moves from side to side, but I have some days when I'm less aware of it. So I can watch TV or walk my dog and not...

Hi Travis, sounds very much like you're in tinnitus crisis, I know exactly what that feels like and how, frankly, terrifying it is. Hopefully the ringing will subside to a more tolerable level over time and you'll adjust. Your brain will start to filter the tinnitus out bit by bit but it can...

I had been taking Trazodone for a few weeks when my tinnitus started. It could have been a coincidence. The thing I find odd is that I've been regularly exposed to loud music for 35 years and never had ringing after a gig or night out and I've stood next to a wall of speakers in tiny clubs in...

I had terrible tinnitus for 2.5 years. It's not as bad now. I went back to making music in my home studio. I do use headphones but at sensible levels and take ear breaks. I figured that if multi millionaire professional musicians with tinnitus (there's loads of them) use in-ear monitoring...

I have tried that a few times yeah, not recently though. I still use Will Sedley's sound therapy every day. I've found it pretty helpful but I've listened to it for hundreds of hours.

Coffee seems to help my tinnitus at times. For some people it can cause anxiety and that could alter your perception of tinnitus temporarily.

I did it in quiet room, no background noise, lying on bed or floor and you just anchor your attention to your breathing, when your mind wanders just draw it back to your breathing. Try and focus on the sensation of air coming in through your nose and your belly going up and down. I forced...

Lenire might help a little. Before I used it, my brain was locked to my tinnitus. What happens now is that I'm drawn towards other sounds, like my own footsteps, the crunch of leaves, birds, traffic, wind, chatter. Hopefully Dr. Shore's device will be better, I will definitely try and get it...

Things are significantly better now, thanks. How are you doing?

When I first got tinnitus in 2018 and was in crisis I forced myself to meditate in silence. I had multiple tinnitus sounds and during the meditation I would often find not just the volume but number of sounds would reduce. Unfortunately, the tinnitus would ramp up again very soon afterwards. I'm...

I had TTTS and it ceased after using Lenire.

My tinnitus is somatic in as far as I can modulate it by clenching my jaw. I agree with the theory that it engages nerves of face and neck making everything noisy because at exactly the same time as my ringing started I started to hear / feel my pulse thudding especially when lying down. I've...

That's not entirely true.

I also had some improvements. I went from several sounds down to two. I have some good days now whilst pre-Lenire I didn't even have a good minute. I'm hopeful this new device from Dr. Shore will help, personally I don't give a hoot what it costs.

I have one sound that's very stubborn that Lenire didn't touch unfortunately. The other sound was kinda buried underneath everything else and what I was left with. Lenire didn't subsequently reduce it further. In my case the overall outcome was positive but, seeing as I have one sound it did...

Neuromod received investment from at least one wealthy businessman who himself is a tinnitus sufferer. I'm optimistic about Dr. Shore's device based on her commitment to basic science and the 20 years she's been working on it. The naysayers will continue to frown and shake their heads, but...

It may be of some help to some patients, that's about as much as we can hope for. For me that's better than nothing.

Hi @Mentos, with Will Sedley's therapy, I've had an overall reduction. I have fewer bad days now. Don't get me wrong, I still have tinnitus and hate it but I've been able to get some parts of my life back, making music for one. Overall I'd say I'm not 'in hell' anymore, which I was for 2+...

No, I did persevere for a long time but didn't get any further benefit than I got in the early stages. It knocked out some of my sounds in the first week. It's been over two years now and they never came back, not even temporarily. Obviously it's frustrating because what I've got left still...

Lenire improved my symptoms but wasn't the cure I'd hoped for. I had 7 or 8 sounds prior to the treatment. Now I have two. One of the two can still be bothersome at times but I'm about 50% habituated. There's a group of posters on here that routinely label Lenire a failure. Well, that wasn't my...

Headphones do not cause tinnitus / hearing damage prolonged exposure to excessive volume does.

Hopefully you'll recover. In the meantime, be cautious around any loud noise. When you feel ready, headphones at sensible listening levels are a wonderfully therapeutic tool for tinnitus.

I've been through the study and have had positive results. My tinnitus is still there but there are periods when I'm not hearing it. That didn't happen before.

I had some improvement from Lenire, I used to have several tinnitus sounds which reduced to two sounds. One of my sounds was catastrophic and that was eliminated very quickly. The two sounds I have left still suck though! I also had a bit of improvement from Will Sedley's sound therapy in that...

Michael's opinions on headphones at low volume and tinnitus are unsubstantiated twaddle I'm afraid. You won't find a solitary credible person who concurs with him. Classic case of confirmation bias.

It's not plausible that using headphones at a sensible level will cause hearing loss/damage that can lead to tinnitus. You won't find a single tinnitus researcher that subscribes to that view. I was involved in a trial with the Tinnitus Research Initiative (TRI) that encouraged their use...

I agree headphones can be incredibly helpful and therapeutic at sensible listening levels.

I agree completely, I have returned to using headphones at a sensible level and find them very helpful / therapeutic.

It was very slow and gradual. I'm 2.5 years into tinnitus now, and I've had the most improvement in the last few weeks. This includes both tinnitus and reactivity. I'd recommend the Will Sedley sound therapy. See the thread in the Research News section.

I did get vaccinated a few weeks ago, no impact on tinnitus.

A new drug could help improve age-related hearing loss. Preliminary studies have shown that it may also ease tinnitus and Meniere’s disease, a neurological condition. New pill that may help improve age-related hearing loss by protecting delicate hair cells in the inner ear

No, I've only just enquired. There's another pulsatile tinnitus specialist called Professor Higgins from apparently the same trust. If you search YouTube for Jodie Poole, she talks about him.

Hi @Steph1710. Did you meet Mr Axon? I'm hoping to see him privately via Nuffield.

Sending love to everyone X

Yes please.

Hearing loss due to years of loud headphone use but I had a virus when it started, was also taking Trazodone for a few months prior. The day it started I accidentally set off my burglar alarm. Lenire reduced the number of sounds (I think).

I had several sounds in the first few months along with reactivity. Two years on I have two sounds. Isobel Anderson's video on YouTube might provide some encouragement.

Submitted.

Me too. Love those multi baggers.

Hi Ed Have you got any AIM companies?

Aren't adverse effects common place with a lot of medical treatments, be them tech based like Lenire or drugs? I've taken four different antidepressants one of which gave me severe diarrhea and left me barely able to open my eyes, doesn't mean it's not helpful to others. I also think the...

I was one of the earlier users (July 2018). I used to have 8 sounds, now I have 2. There were two forum members who reported elimination of tinnitus via Lenire. Andrew and Clare (don't recall usernames?). And @kelpiemsp who was in Hubert Lim's trial. In my case I had 7 or 8 tinnitus sounds...

His girlfriend has tinnitus, that's what makes me cautiously optimistic.

That's a brilliant post! My tinnitus is odd in that in certain company / environments it drifts out of my awareness where as others it ramps up, does it over and over again. For example, I never hear it when I have my hair cut, or when I'm chatting to other dog walkers. But I always hear...

Hi Ed, do you make music nowadays? I've always made music as a hobby, had a home studio for years. I haven't used it since the day my tinnitus turned on 2 years ago. Miss it so much.

I listened to Elon Musk on Joe Rogan. He says Neuralink will fix hearing. He didn't mention tinnitus but said any brain related condition. Tinnitus seems like small potatoes in the grand scheme of things he's aiming to fix. He said it would restore vision even if the optic nerve is damaged.

I've had my Lenire since July 2019. I agree it's good to take a break from it. I don't use it every day and only do one session when I do. I'm hoping they update the treatment next year with new parameters. I was pretty pissed off when I wrote my last update but the fact remains the worst...

Do you sleep with sound therapy on? I came across a guy called Rupert Brown, if you Google him you can read his story. He has a really nice library of sound therapy that he's created, you can get as an iPhone app or stream via Spotify. It might help you out, it's benefited me a fair bit. I...

That it's horrific and devastating. The ENT said 'everyone has tinnitus'. Which is bullshit. I had to wait three months for an appointment that lasted two minutes. Totally dismissive.

Thanks for sharing mate.

I find it peculiar that they could help anyone with tinnitus because they do filter high frequencies, but isn't that why we get tinnitus in the first place due to reduced input? I had them in one day walking my dog and my tinnitus was worse because I didn't have external natural sounds to help...

It can go away, it did for my Aunt and a girl I work with after 2 years. There's also people who get a significant improvement, Google Rupert Brown (drummer). I had a FaceTime chat with Rupert, lovely guy. Isabel Anderson, she shared her story on YouTube. And Adrian (ADE tinnitus support...

Thanks so much guys.

I have these, they do nothing for my tinnitus.