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  1. Helheim

    Tinnitus Masking: In-Ear Maskers

    I used them for about a year and a half. Yes, the masking noise is more pleasant - unfortunately my tinnitus frequency is high and it kind of just shrieks over it anyway. My hyperacusis got much better but my tinnitus got much worse. After an ear infection, I found that the noisers just agitated...
  2. Helheim

    Tinnitus Retraining Therapy

    I feel ya on the elevation of baseline. Unfortunately my TRT provider said to just push through it because it'll get better. Well... it didn't.
  3. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Ha, I know that feeling. Mine is from an infection - infected wisdom tooth + head cold combo that went straight to my ear - and I still blame myself for not getting said wisdom tooth out earlier, even though I saw x-rays of my mouth and I knew I'd have to have it removed eventually, but I put it...
  4. Helheim

    Tinnitus Retraining Therapy

    Lol this is a great post. But obviously TRT didn't work out for me because I "didn't believe in it". Right!
  5. Helheim

    Tinnitus Retraining Therapy

    Man, my CBT therapist refunded me halfway during the course because he felt he couldn't help me and didn't want to keep taking my money because all I did was cry through the sessions (which, by the way, were in the quietest room you can imagine, making it even harder with screaming T). Good...
  6. Helheim

    Tinnitus Retraining Therapy

    It's all good. Just gonna put Michael on my ignore list and be blissfully unaware of his constant victim-blaming from now on. Putting those damn sound generators on is one of my biggest regrets and I wonder where I'd be today if I hadn't constantly irritated my hyperacusis and T with white...
  7. Helheim

    Tinnitus Retraining Therapy

    Lol I leave this place for a short time and the thread explodes... 1: Yes, it was proper TRT. I actually spent quite a bit of money to fly to the UK where I could work with someone who specialises in it. 2: Yes, I believed in it. I believed in it for years. I believed in it for years, even...
  8. Helheim

    Tinnitus Retraining Therapy

    Lol Michael is like... the poster child for TRT brainwashing. Don't expect him to consider any perspective that is not his own, and I say this as someone who's done TRT (and got nothing out of it, because, you know, it's a scam).
  9. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Eh, tbh the costs of a Neuromod trip just to get a MML measurement aren't really worth it IMO - if it works, I'll know, if it doesn't, there's no sense in measuring some arbitrary values. I've had this thing long enough to tell in various environments if it's being masked better or not and I...
  10. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Honestly, from what I've seen in the User Experiences thread, if I decide to go for Lenire (still waiting, although the new sound that popped up in my formerly good ear three weeks ago isn't helping with patience), if the first settings help, I might make up an excuse to avoid changing to the...
  11. Helheim

    Tinnitus Retraining Therapy

    Why are any of you engaging with Mr. Leigh here? He's clearly a good little TRT padawan! jUsT haBItuAte lol
  12. Helheim

    Clonazepam (Klonopin, Rivotril)

    Fair enough, thank you. I'm on a bigger dose (1 mg in the morning, 1 in the evening combined with some other meds) but it seems to be helping a lot. Benzos allow me to function. Right now I feel like I'm choosing the smaller of two evils, you know?
  13. Helheim

    Clonazepam (Klonopin, Rivotril)

    7 years? I'm nearing 1 year of taking it. How has it been treating you? Have you needed to raise the dosage much?
  14. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    So all I see are replies from people who registered at the Dublin clinic - has anyone tried the Hannover one yet?
  15. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Honestly, I don't think I'll ever be honest with them. I'm not about to disclose information (meds I'm taking, suicidality) that will make them likely to turn me away. No effin' way.
  16. Helheim

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    Good luck with that. No one should have to take medicine that is clearly not working for them.
  17. Helheim

    TinnitusPlay — Mix, Modulate & Notch Sounds Tailored to Your Tinnitus

    Interesting! Can't wait for the Android version!
  18. Helheim

    Clonazepam (Klonopin, Rivotril)

    I'm currently taking 2 mg per day, combined with some other psych meds, have been for almost a year now - it's the only thing that gives me a very real, measurable reduction in T volume. For now, I'm sticking with it and when/if consequences arise, I'll deal with them. I don't seem to be...
  19. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I actually really admire you for sticking around even though you're no longer directly affected. We need more people like you.
  20. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Huh. How come you're still here? Most people would just move on if something like that happened to them.
  21. Helheim

    Mindfulness for Tinnitus Relief

    Lol all these threads and my mindfulness therapist basically ended things in the middle of the course because things just weren't working out...
  22. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Interesting news. Germany is somewhat closer to me than Ireland, although I'd still have to fly as it's a 11 hour car/train trip...
  23. Helheim

    Tinnitus Retraining Therapy

    Seriously. Julian Cowan Hill need to go the hell away with his habituation bullshit.
  24. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Well, if the podcast is going to be audio only I won't be able to listen to it (I can't really focus on audio alone anymore due to tinnitus, there has to be video) but I figure you guys deserve a little support, even though I'm broke as hell. Let's do this. Will there be a transcript? I...
  25. Helheim

    Clonazepam (Klonopin, Rivotril)

    And here I'm just taking my little cocktail (that includes clonazepam, an antipsychotic and an anti-Parkinson medicine) and trying to not think of the possibility it'll one day stop working or if I have to come off it, lol. Honestly, it's the only thing that's keeping me alive and working and if...
  26. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    This is making me a little worried. I'm on a shitload of meds that make my tinnitus go from catastrophic to moderate/severe on bad days - if I'm excluded based on that, well. Actually now considering lying at the first appointment.
  27. Helheim

    Magnesium

    Is that the Ototoxic Meds book? Are there meds that aren't in there? Lol
  28. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Holy shit a German clinic would make such a huge difference for us continental Europeans. Can't wait! I also hope they'll speak English as my German is a bit rusty...
  29. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Having to see them so many times is a big oof. I was planning to travel to Ireland, but I'm not sure this is gonna be possible now... Shit.
  30. Helheim

    Melatonin Might Be Beneficial, Especially in Preventing Hearing Loss?

    Wasn't the case for me. If anything, it helps me sleep and that makes the T a little better sometimes.
  31. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Germany, nice! Seems like I might not have to fly after all! If only they had it in Austria, it's right next door...
  32. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I think the whole "turn 360" thing is a meme from the good old Xbox days. Anyway. Sooner or later this shit will have to come out. C'mon, Neuromod.
  33. Helheim

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I'd guess hearing loss that's so severe that you can't hear the audio component of the treatment would do the trick.
  34. Helheim

    Stepped-Care CBT Treatment from the University of Maastricht

    Yeah that's my main issue with this approach as well. I can tell the difference between when I'm focusing on it and it sounds louder vs. when it's actually louder - does the sound of the fridge cover it up? Cool, I'm having a quiet morning. It doesn't? Great, I'm having a loud morning and it's...
  35. Helheim

    Stepped-Care CBT Treatment from the University of Maastricht

    Lol how easy it is to counter that with "but it is louder, I used to only hear it at night in a quiet room and now I hear it everywhere" though? Bless these CBT types.
  36. Helheim

    Stepped-Care CBT Treatment from the University of Maastricht

    I love how they ignore the fact that tinnitus does get worse for a lot of people. How dare they base a "treatment" plan on that smh.
  37. Helheim

    MuteButton

    Yeah I think we've just realised that there isn't much else to say until they finally release. RIP.
  38. Helheim

    MuteButton

    Yeah seriously. That podcast about the brain "not focusing on the tinnitus anymore" is very worrying. Seems like this will be a habituation device after all... What a bummer.
  39. Helheim

    MuteButton

    Yeah, your average audiologist's opinion means nothing when it comes to Neuromod. Some of them don't even know what hyperacusis or TRT is, why would we expect them to be up to date with the modern stuff?
  40. Helheim

    MuteButton

    Good luck, keep us updated!
  41. Helheim

    MuteButton

    I mean... if that's the only way I could afford it, I wouldn't mind much lol
  42. Helheim

    Clonazepam (Klonopin, Rivotril)

    It's video game slang for "Non-Player Character". It's also used as a derogatory term/meme.
  43. Helheim

    MuteButton

    Doesn't really matter (maybe they're waiting to finish their presentations, peer reviews etc), we just have to wait. Should be definitely out this year though!
  44. Helheim

    Clonazepam (Klonopin, Rivotril)

    Uh, okay? I never said I was taking this combo for depression lol. Not sure what you're trying to say.
  45. Helheim

    Clonazepam (Klonopin, Rivotril)

    I'd rather be an NPC than a tinnitus wreck to be honest... then again, they don't seem to have this effect with me, even combined with the antipsychotics, they just lower/soften the volume so I can actually function on most days. Which is a nice change.
  46. Helheim

    Stepped-Care CBT Treatment from the University of Maastricht

    Ah yes, the good old "get used to it" method.
  47. Helheim

    MuteButton

    Yeah well, screw you, buddy. What was even the point of this post besides telling me off?
  48. Helheim

    MuteButton

    Oh nice. How'd we not see this one before?!
  49. Helheim

    Does Anyone Feel Like They Are Frozen in Time?

    This is such a good way to put it. It's been two years and I can't tell what I've been doing - I had to stop going out, I had to quit most of my hobbies besides video games (and even that has suffered a lot as my focus is terrible and and I can't play anything that doesn't have non-stop action...
  50. Helheim

    Loud Bang Sound Waking Me Up — Exploding Head Syndrome?

    Oh this happens to me sometimes. It's usually when I'm extremely stressed, like to the point of not being able to function at work levels of stressed. It really sucks, especially since sleep can already be hard with T.
  51. Helheim

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    Some people have had luck with nortriptyline or amitriptyline. For me personally, ami added a new tone so be careful with what you put in your body.
  52. Helheim

    Clonazepam (Klonopin, Rivotril)

    Sounds good. Thanks!
  53. Helheim

    Clonazepam (Klonopin, Rivotril)

    Hi, did you manage to maintain the dose for 6 years? Or have you had to increase?
  54. Helheim

    Clonazepam (Klonopin, Rivotril)

    I'll check it out, thanks.
  55. Helheim

    Clonazepam (Klonopin, Rivotril)

    Gotcha. Thanks for the detailed reply. Fwiw my plans are somewhat similar - keep taking whatever meds help until Neuromod is out or something better comes along. I also have some TMJ issues, just got an NTI-tss dental guard like two weeks ago to see if it helps as I grind my teeth - I'm hoping...
  56. Helheim

    Clonazepam (Klonopin, Rivotril)

    You're right, people who have no issues usually don't post on forums about it. Funny thing is, for me it's not even about anxiety, it's about literal volume reduction. I have no other mental issues when I'm not aware of my T and my cocktail can lower the volume to where it can easily get lost in...
  57. Helheim

    Clonazepam (Klonopin, Rivotril)

    How are you doing with the long-term benzo stuff? Any plans? My sulpiride/hydro/benzo combo seems to stop working if I drop the clonazepam to 0.5 and I'm kind of thinking about just sticking with 1 mg/night as I seemed to be stable on that. I was very intent on tapering and eventually dropping...
  58. Helheim

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    Probably not, but with the prices of medical devices it's still a pretty big gamble.
  59. Helheim

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    I really do wonder how many of us will travel to Ireland when it finally launches though.
  60. Helheim

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    Interesting. So if Neuromod is gonna be available officially in Belgium in September... I wonder what other expansion plans they have in place that we don't know about? It would be much easier for me to travel to, say, Austria than Ireland...