I have mentioned many times in this forum, there is nothing wrong in a person expressing how they feel about tinnitus when they find it stressful, debilitating or otherwise.
I agree. Everyone agrees -- woo hoo!
You talk about newcomers avoiding my trap. How about the trap they are likely to find themselves in, when they read posts from you and others, ridiculing and berating someone that's written they are having success with TRT. When that isn't enough pasting reports in the forum from websites to refute their claims. Resulting in the member making a swift exit perhaps never returning again for I sensed she was quite upset.
I've said this in the past, but I'll reiterate it. The more debilitating someone's condition is, the more desperate they become. All the smack talk that I give about TRT, and yet I still tried it and I
still use some of the principles like sound exposure, improving emotional responses, etc.
Trust me, if someone is truly in a bad way, they will try things. There's a reason why I got in touch with a TRT specialist. I would eat poop every day and have my whole community point and laugh at me if it meant improving my hyperacusis. I certainly am not going to reject trying something because lord commander
@Contrast dislikes it.
It's honestly pretty infantilizing to think that someone going through hell and back wouldn't even try something because of a few forum members. No offense to TinnitusTalk, but I don't care if every member is ripping a treatment; I'm going to assess it for myself and likely try it. Maybe this is harsh, but it's really hard for me to believe someone has a severe case, and yet they are unwilling to try anything (assuming they have the financial means, etc.).
I take a plethora of supplements every day. I've seen some improvements. These include curcumin, CBD, Ginkgo Biloba, fish oil, and ginger tea. And yet, I have seen people shoot these down. I have read many posts (and even studies) about Ginkgo Biloba being ineffective. I saw the poll that the majority of people were unchanged by curcumin. Yet I still take it. Why? Because the entire point of this whole thread -- made by everyone -- is to stop slamming treatments down peoples' throats when they don't work. Instead, one should treat themselves as the rare biological specimen that they are.
One of the reasons why I don't understand the fear that the new user will not try stuff is that the severe cases are very, very rare. Like 1 in 500,000 kind of rare. The reason why I don't care when I read a study that shows Ginkbo Biloba doesn't help is because there are probably only hundreds of people in the whole US with a similar medical problem to me. I feel confident that not all of us were a part of the study. There are no contradictions here.
By the way, to not be a hypocrite, I see nothing wrong with TRT people feeling the same way.
You are allowed to believe in TRT. However, it's all about messaging. Notice that in my analysis above, never at any point did it cross my mind that the people who weren't helped by curcumin "weren't taking it right." Why? Because it's not a real, verified treatment for tinnitus. It may be helping me because of the rarity of my condition.
To conclude this point, I very much wish TRT people would view the treatment from the same level of humility. Maybe you were one of the rare people who was helpd by it
independent of the passage of time. I think these people exist, but I don't think they are common. Just like I think there are people helped by curcumin, but it's usually just a placebo or the passage of time.
If I can be self-aware about my own "shot in the dark", why can't you?
My remarks on negativity and tinnitus, are directed at those that denounce all forms of treatment for the condition because they deem them as ineffective because they are not cures. This is quite different from one expressing the need for finding a cure or asking the question why hasn't one been found yet?
Respectfully, this is just not true. What do you think Lenire's or Shore is? They certainly aren't cures. The attitudes in those threads are infinitely better than in the TRT thread. Why? Because there are videos of Jastreboff blaming people for not habituating, while there aren't the same videos of Shore. You are cherry picking one treatment and using that for your claim. I take curcumin, which is a treatment, not a cure.
I regularly meet x Tinnitus Talk members at other forums and I am always asked, is it still full of negative people. They are not talking about people expressing the way tinnitus makes them feel.
I'm sorry, this quote is the one I just can't respect in any capacity. History is
filled with examples of people seeing progress because they refused to be positive. Here's an incredibly insightful MLK quote.
"First, I must confess that over the past few years I have been gravely disappointed with the white moderate. I have almost reached the regrettable conclusion that the Negro's great stumbling block in his stride toward freedom is not the White Citizen's Counciler or the Ku Klux Klanner, but the white moderate, who is more devoted to "order" than to justice; who prefers a negative peace which is the absence of tension to a positive peace which is the presence of justice; who constantly says: "I agree with you in the goal you seek, but I cannot agree with your methods of direct action"; who paternalistically believes he can set the timetable for another man's freedom; who lives by a mythical concept of time and who constantly advises the Negro to wait for a "more convenient season." Shallow understanding from people of good will is more frustrating than absolute misunderstanding from people of ill will. Lukewarm acceptance is much more bewildering than outright rejection."
Does that sound positive or dismayed? The answer is dismayed, as MLK rightfully should have felt because he was right.
You
cannot make people positive without giving them a reason to be. If everyone with severe cases was just positive, why would anyone have an interest in pursuing a treatment or cure?
Here's a promise
@Michael Leigh: Anyone who bashes people with severe tinnitus who are negative falls into one of the following buckets:
1) Never had severe tinnitus. Sorry, you were scared with mild tinnitus. You don't understand what this disability actually is, while thinking you did out of pure narcissism.
2) Had severe tinnitus, but really, really bad at scientific thinking. Can't objectively separate themselves as a unique biological experiment from mainstream advice.
3) Had severe tinnitus, but feels guilty about being lucky enough to climb out. Pushes their treatment onto others as a form of cognitive dissonance, being unable to process that they could simultaneously be so lucky and unlucky.
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