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Just got diagnosed with stage 3 lymes. While I am not happy about it, the positives are that st least I have a diagnosis.

Hi there- Thought I would share a personal story - it is purely my journey with no assumptions nor implications about anybody else. As someone who has T+H, a full 14 months now, I empathize with the inner challenges that you share. Oh I went deaf in my left ear too; no way to even play a...

You absolutely cannot rule that out. Thank you for sharing.

Just wanted to add, if you have the grit for it, applying capsicum cream (0.05%) to a cold sore tingle will hurt like hell, but it works 8/10.

Hi Carolyn- You have a very deep grasp of the science - far more than me. My point about the apoptosis is not about how the virus resides dormant in the nerve cells, but the effect of the cold sore out break itself around the ear. That is, I was stressed at work, lack of sleep, and so I had a...

@CsaulNol Hi. No. I had no tinnitus - ironically good, intact stereo hearing even after so many nights clubbing as a youngster, and DJing.

@vermillion Thank you for sharing. Stay strong man. Part of this process I believe is the difficult process of grieving the death of life that once was before the condition started. And one thing I have realized over these past 12 months is this - we are stronger than we could ever imagine...

I went to bed on a Friday night with a headache in my neck - on the left side. Felt like a stress headache. I woke up at 2am with the room spinning like it has never done so before - it was a weird experience and I immediately felt like I was going to be sick. From 2am Saturday till Monday...

@vermillion ! Nice to hear from you sir. I went dark, not because of struggles but because for me I found I would gravitate to the darker side of this forum which wasnt good for my psyche. I hope things are good with you sir. How are you doing?

@jay777 Hi; ha that is actually a very accurate description actually.

@Jason37 Hi. Dont feel bad. I whined too. I was just very lucky to be doing a Tony Robbins coaching program at the time I lost my hearing, and was able to get coached on how my psychology would save me. It is possible my outcome could have been very different had I not been so lucky.

No. Because I have sensor-neural hearing loss, I would need a cochlear implant, and I was advised that I would need to implant the other ear as well, since the sound is completely different. So I chose not to. The alternative was to have two hearing aids, with the aid on the left (my deaf...

This past 12 months I have read over 500 papers about HSV and sudden sensor neural hearing loss (and tinnitus). My current specialist believes 100% that HSV-1 was a probable cause of my hearing loss. I purchased 4 books on virology and microbiology to see if there was anything what I read, and...

A year this week, I went deaf and developed tinnitus and hyperacusis. I am still deaf, and I still have a very loud sound inside my head - flips between a dentist drill and the screeching of metal train wheels breaking in the Ogilvie train station here in Chicago. I also experience pain which...

I have had HSV-1 since as long as I can remember. After many many hours researching how I had "idiopathic" sensor neural hearing loss, I believe categorically that I lost it due to HSV-1, and not Menieres. It is quite easy for the virus to move down the trigeminal ganglion (where it lays...

Wishing you well Greg. My tinnitus is in my head but it has always been that way. I do get neck pain and very bad headaches at times - different feeling to a typical migraine too. Sincerely wish for you that it drops down to a more civilized level. mf

Good one. Try to do this - plan a 5-10 minute meditation every day. The sole purpose of that meditation is to totally be present for your T. Spend those minutes breathing it in, recognizing its a part of you - its not something "out there", its actually a part of your human machine that has...

Past 5 days I have developed balance and dizziness. Had vertigo twice in the middle of night. Menieres is looking likely.

I love the word Choose and everything it implies. I choose exactly the same.

Hi Viki14- I believe this video might be the same one I originally posted: Thanks too about the blog - I intend to update that shortly too. I am doing very well actually. I still have my T+H and both havent really gotten any better with respect to sound and pain, but I have a very...

Michael, I appreciate the sentiment of the sentence, or the post, was completely misunderstood. My simple point is, if in the middle of a crisis you keep telling yourself you are dieing, you are suffering, this is a f! nightmare, <whatever other emotive text you want to tell yourself>, it isnt...

I appreciate and respect the belief structure that sees that it is easier said than done. And naturally, in my comment about language, its about more than one statement, but ones whole choice of words. And my intent is not to minimize the experience of being depressed - I have been clinically...

@Paulmanlike - if you didnt have this label of an OCD suffer, what would that do to how you see your future? The experience of the screech is uncomfortable - we all have that here. But its only depressing because of what you are actively focusing on. You could stop focusing on that and focus...

Hhhm...it does look like thats been taken down. Thats a shame.

Fantastic.

Dear Paul- I stopped posting to this group due to some personal messages that werent helpful to my journey. Your powerful story has compelled me to show up today... The power to have your circumstances change is as absolute as is the natural way of life; that everything is changing and...

And then you have the obvious question - is one persons loud another persons mild? And when someone who says my T has lessened, is it because the T has backed off, or they have adapted to the point that its backed off in the mind, but the T itself endures as it did when it first started...

Chris, Glad life goes on for you, and wish you a good nights sleep. mf

This company was cited in a number of places, and looks interesting: http://www.otonomy.com/pipeline/product-candidates/ Still a while away I am sure, but progress is being made.

A little tired.

Not to spam Chris's thread, I genuinely respect your advice. I understand the "take each day as it comes", and I take that onboard fully; thank you. I have noticed each day is different, both the day itself, my experience with t and h and then the sleeping arrangements. I did release myself...

Hey @Michael Leigh, I respect your opinion and experience, and I learnt a few things too so thank you. mf.

Good on you @Chris Waller, you have this. Sometimes you will wobble, but you got this. Ending each day knowing at least one step forward was made is enough to help you feel some strength in difficult times. And yes, I see you doing a lot too, for sure. And that is profoundly encouraging -...

You might not like what I have to say here, but know it comes from someone with severe T and H and 6 weeks in I am almost habituated...and this comes from a place of empathy, compassion and wholesomeness. I want the best for you, as I do for the rest of us here. @Chris Waller, I just wanted to...

Hi @Chris Waller, I believe in Cognitive Behavioral Therapy, that would be distorted thinking about the future, such as fortune telling, catastrophizing, amongst others. What has to happen for you to feel like going back to work will actually be ok? If you lost your job, how serious would...

Hi @Bertman, I agree with all of the comments here from my own experience, and I take NAC daily. I was on Prednisone but I am unsure of its efficacy for my situation. I do believe the anxiety and angry emotions, which both result in cortisol release, will not serve your immediate...

Hey @Chris Waller, Sorry to read about your recent challenges. One of the crucial things I have realized after reading some many stories, and meeting quite a few people with tinnitus of all shapes and sizes, is that every one is different. What seems universal however is when one gets overly...

Hey @Ludvik , Sorry to hear your new T challenges. I heard the right thing window for T being considered chronic was 12 months from my ear specialist; maybe I got that wrong. May I ask, when did your gf disucuss with you openly about her worries? Was this before the past month when your T...

Hey @Topher James, I am glad my post was helpful in some small way. That question I asked is a good one; I use it on myself a lot. I honestly feel the fast track to habituation is Acceptance, capital A. I am 5 weeks in with mine, totally deaf, a dentist drill in my head thats these days...

It was not a raving success. Awake for hours, then on and off sleep till I eventually got up. Need another plan.

First night without meds; some red wine. Lets see how this goes...