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  1. Z

    First Post — 16 Years of Tinnitus and Now Middle Ear Myoclonus — Also Some Words of Advice

    Shashta I went through similar terror with my MEM. Please dont dispair and it doesnt help to fixate on it. Try to live ur life as normal as possible. I have done massive amounts of research on the subject of MEM and read hust about every paper. In most cases it gets better on its own, but...
  2. Z

    First Post — 16 Years of Tinnitus and Now Middle Ear Myoclonus — Also Some Words of Advice

    Shasta don't despair. I know it's awful and plenty of us on this forum have been through the same thing. When my MEM was very active I was also getting random spasms all over especially my upper eyelids. This disorder seems to be related to some other kinds of essential tremor. Avoid...
  3. Z

    First Post — 16 Years of Tinnitus and Now Middle Ear Myoclonus — Also Some Words of Advice

    The only muscle capable of vibrating that quickly in the ear is the tiny stapedius muscle. The tensor tympani cannot move that fast and my middle ear myoclonus is just a slow thump on and off. I have had the stapedius go off before and create a higher frequency rumble like you are describing...
  4. Z

    In a Loud Bar for 10 Minutes — Tinnitus Now Spiked — Is This Permanent?

    I think some of the "permanent" medication induced tinnitus cases are often simply the temporary increase in tinnitus caused by the medication bringing the background T level high enough to become consciously aware of it and then when it subsides people still hear it because now they "tuned"...
  5. Z

    In a Loud Bar for 10 Minutes — Tinnitus Now Spiked — Is This Permanent?

    I've had tinnitus for nearly 20 years. I suffered permanent damage in my youth after attending a loud rave and standing in front of the loud speakers for many hours. We're talking over 120db+ SPL. This was something incredibly dumb to do and I wish there was more awareness for this among...
  6. Z

    SMART METERS DON'T LIKE ME!

    I have chimed in before on the topic of tinnitus related to EM exposure. The bottom line is there is simply no compelling research to support the correlation of Tinnitus to RF exposure within the typical everyday low energy EM fields that we all experience. There is a thing called Microwave...
  7. Z

    For Those with Middle Ear Myoclonus...

    Aimee I was doing intermittent fasting. I would not eat until 5pm. I never tried acupuncture or chiro.
  8. Z

    For Those with Middle Ear Myoclonus...

    Aimee you are still really early into this. Give it some time. I know it totally sucks right now but it seems time does help. For many people it seems to settle down within 2-6 months. Sometimes longer. From my research the medications don't seem to help MEM much for many people. Don't...
  9. Z

    For Those with Middle Ear Myoclonus...

    Aimee how long has it been going on for?
  10. Z

    For Those with Middle Ear Myoclonus...

    Rfisher no I never have but looking at the symptoms I don't seem to have any other than just the vertigo.
  11. Z

    For Those with Middle Ear Myoclonus...

    Rfisher we have many similar symptoms. I first started having brain fog and headaches in early 2016. Headaches were all the time and worse with with exertion. A few months after those started I started having bad episodes of vertigo. My worst one I laid in bed and the room was spinning as...
  12. Z

    For Those with Middle Ear Myoclonus...

    For sure this is some kind of neurological issue. Especially since we all seem to have twitching in other body parts on a completely different nerve path. I don't think it's anything wrong with the actual muscles. In my particular case I'm also getting clicking and popping behind my nose and...
  13. Z

    For Those with Middle Ear Myoclonus...

    Seems like everyone who has this condition seems to have a history of generalized anxiety disorder prior to it (myself included). I wonder what the relation perhaps some kind of neurotransmitter issue. Sorry to hear it affected some of you at such a young age. My first epidode was at 37 so...
  14. Z

    For Those with Middle Ear Myoclonus...

    Hey guys. Wanted to post on here with an update. So far I have not had thumping episodes *knock on wood* since just before New Years. HOWEVER, this disease has continued to progress in other ways unfortunately. Likes others have mentioned MEM seems to coincide with twitches in other parts...
  15. Z

    Habituation Isn't a Myth, It Is an Impossibility

    I'm sorry but you missed the point of my last posting. This isn't a contest about who suffers more or who has it easier. It's also strange to make a statement like an amputee has "a better prognosis than most tinnitus suffers." Not sure what you mean by that. The best prosthetics can't hold...
  16. Z

    Habituation Isn't a Myth, It Is an Impossibility

    Why would you set such a ridiculous and currently impossible to achieve (with current medical technology) requirement in order to find happiness? That's setting yourself up for failure. Should an amputee chose to "never truly be happy" until medical science finds a way to regrow their limb...
  17. Z

    Habituation Isn't a Myth, It Is an Impossibility

    Gl0wout again you are changing what we mean by "habituation." Words lose their value and meaning when you apply some completely proprietary meaning to them. When we talk about habituation in the context of tinnitus we are talking exactly about becoming less reactive to and learning to ignore...
  18. Z

    Habituation Isn't a Myth, It Is an Impossibility

    It depends on how you are defining habituation. 16 years in my tinnitus is not any quieter than it was due to the above mentioned mechanisms. My brain has not learned to "ignore it" in such a way that I can no longer consciously perceive it and that article you posted details the reasons why...
  19. Z

    Pulsing Sound When I Yawn or Burp

    JayG what you are describing is middle ear Myoclonus. Some of us on this forum have it. It's rare and difficult to treat. Please see this thread https://www.tinnitustalk.com/threads/for-those-with-middle-ear-myoclonus.16222/#post-300227 I actually don't think it's the middle ear muscles. I...
  20. Z

    Talking to Gun Owners with Tinnitus

    I would not recommend shooting in doors and would probably avoid shooting pistols period if you suffer from tinnitus. The inverse square law makes a big difference here because the end of the barrel (the business end) is so much closer to your head. Keep in mind a high powered pistol can...
  21. Z

    When Can I Use Earbuds?

    If you do use headphones I would set the volume level just below your T. If you can't hear your T over the headphones it may be too loud to be safe and it might also disrupt your brains natural retraining/acclimation.
  22. Z

    Computers & Tinnitus Part 2

    I want to double up on linearb's post. This tinnitus EMF correlation is IMHO nothing but a psychosomatic red herring. All the medical peer review points to this. The EMF coming off your monitor is the greatest source of EMF when using a computer because it is one of the closest devices near...
  23. Z

    For Those with Middle Ear Myoclonus...

    Hey Razzy, your symptoms sound exactly like mine. I got middle ear Myoclonus out of the blue in early November. I also tied a major trigger to burping and the sensation of air pressure moving through the Eustachian tubes. Oddly though yawns don't trigger me at all (although it seems to...
  24. Z

    Another Symptom — A Burping Sensation Followed by a Spasm and a Thump Sound — Appears

    Please see this thread: This is middle ear myoclonus and I experience the exact same symptoms after burping. Although it sounds like you just get a thump and it doesn't turn into a series of thumps every few seconds the way some of us do...
  25. Z

    Tinnitus Since 1991

    Sinus/Cold ear stuffiness (which blocks out ambient sounds which help mask some of the T) along with cold medication (which is a stimulant capable of temporarily increasing the volume of the T) can both disrupt your prior habituation by temporarily raising the perceived level of T. You then...
  26. Z

    Hello, I Got Tinnitus on New Year's Eve, Two Days Ago. I Can't Imagine a Shittier Start to 2018

    Doesn't sound like any kind of acute exposure but more like cumulative trauma. You need to realize for many people new T that they actually had some varying degree of T for a long time but were simply unaware and/or ignoring it. We live in a noisy society (you mentioned headphone use which...
  27. Z

    Mild Tinnitus with Crippling Fear of It Getting Worse

    I've had Tinnitus for 16 years and it has not gotten any worse. Certain medications and supplements can make it go up and down a bit but the baseline has always been the same for me. Protect your ears in loud environments to minimize future hearing damage and live your life as said above...
  28. Z

    Mild Tinnitus with Crippling Fear of It Getting Worse

    I've had Tinnitus for 16 years and it has not gotten any worse. Certain medications and supplements can make it go up and down a bit but the baseline has always been the same for me. Protect your ears in loud environments to minimize future hearing damage and live your life as said above...
  29. Z

    First Post — 16 Years of Tinnitus and Now Middle Ear Myoclonus — Also Some Words of Advice

    Hello everyone! This is my first post and I wanted to introduce myself as well as tell my story. Perhaps it can benefit some of the people here who recently came down with tinnitus. As a dumb teenage kid growing up in the 90's I listened to lots of loud music and definitely did my fair share...