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Does anyone have Trobalt? I couldn’t obtain it anymore since last summer. I assume it cannot be compounded.

Progress Report Progress Report Date: Jan 31, 2016 Current Retigabine Dosage: 300mg, 100mg/200mg, 200mg Current Side Effects: Mild sedative effect. Fainted one when I was on 200mg TID. Had not eaten much and took it on an empty stomach. Blood pressure dropped. I was up again 15-20...

Progress Report Progress Report Date: Jan 17, 2016 Current Retigabine Dosage: 200mg, 100mg/200mg, 200mg Current Side Effects: Mild sedation, better bladder control Current Tinnitus Severity: 6 out of 10 Changes in Tinnitus: Less days with really loud T. Now hissing/buzzing more...

Progress Report Progress Report Date: Jan 6, 2016 Current Retigabine Dosage: 100mg BID - TID Current Side Effects: None Current Tinnitus Severity: 9 out of 10 Changes in Tinnitus: On 12/24/15 increased dosage from 300mg. 200mg, 300mg to 400mg, 300mg ,300mg. Had an episode which was...

I thought this forum was to be informative and helpful. Some of you are not. Won't be posting here anymore but will continue to post on user experiences like most of you who are taking Trobalt should be doing :(

Had a bad reaction today. Took 400 mg before bed at 8:30 pm and took 300mg at 2:30 am (I thought it was 4:30 am). Accidentally took 300mg in the afternoon - instead of 200mg). I felt groggy all morning. Took all on an empty stomach because busy with kids. About a half hour later started...

Try www.blueskydrugs.com

If you have a written prescription you can go online and Google Canadian pharmacies. The only problem is it can take up to two weeks. Make sure you have refills. Makes it easier to reorder. It is about one third the price. Good luck:)

Progress Report Progress Report Date: Dec 21, 2015 Current Retigabine Dosage: 300mg, 200mg, 300mg Current Side Effects: Slight dizziness, tiredness at the end of the day, slight blurry vision which worsens at night, mild bloating/gas. Urine color has changed from yellow to orange. Short...

Why is that? I get my prescription from Canadian pharmacies? Is it that you can't get a Rx from a doctor?

@papu How long were you on Trobalt 200mg before you increased to 300mg TID. Sorry having a hard time focusing to read User experiences right now. I had a spike after 4 days of 0 to near silence so I increased to 300mg TID (I don't have anymore 50mg tabs and these are not meant to be split if...

Progress Report Progress Report Date: Dec 2, 2015 Current Retigabine Dosage: 300mg TID Current Side Effects: Sedation, constipation, cognitive impairment (increase loss of short term memory), increased appetite (developing quite the gut), good mood - no anxiety or depression although...

Any MD can prescribe it. If you have a general practitionert you may want to try that route first. I had to wait 2 months to see a neurologist where I live. If you decide to try, get a written prescription and look up a canadian pharmacy to get it from. Your just need to fill out some...

@nills i didn't completely answer your question. The only thing the combination does is increase the sedative effect which never happened with Trobalt alone. Otherwise no change in mood and reality as when just taking Trobalt. The neurologist assured me that this will gradually decrease. The...

@nills to answer your question while taking Trobalt I have noticed a significant decrease in anxiety and I feel much calmer. When I had to taper off the anxiety returned although much less than before. I believe that it has some mood altering effects for the better in my case. I have not...

On my sixth day of taking Trobalt with Gabpentin. I've had five days of T being in the 0-2 range. I still wake up with T being 7-8. This morning it was a little lower, not as bad. I get moderate sedation, constipation and headache but I can live with that. The headache shifts from side to side...

@papu I tapered up slowly when I first started, increasing by 50 mg every week. Most of the time I took it an empty stomach with virtually no side effects - maybe just a little more tired on some days. When I began to run low on my supply I tapered down over 1 1/2 weeks. I had been off RTG...

@papu did you ever both together? Why do you take them seperately? Did this happen with a lowe dose of gabapentin? I woke up early with really loud T. Did gabapentin ever decraease your T by itselt? I became upset and took Trobalt 300 mg, listend to music with my earplugs and my T came down to...

@papu did you ever experience a spike in your T prior to it going low? The only time it seems to work for me is when I get a spike (20-30 minutes) and profound sedation that my T goes low. With the gabapentin it was the first time in 11 months that my T was gone for the entire day. I did not...

Please do not misunderstand me. I am not advocating the use of these meds. I personally am not timid when it comes to experimenting with them which is exactly what I am doing. Of concern are kidney function and vision which I will be monitoring closely. My experience has been unlike most...

@Juan Carlos taking 600mg of gabapentin sedated me and seemed to make my T worse. The very first time I took gabapentin 300mg in the morning my T went away for a couple of hours. When I took gabapentin 600mg of with Trobalt 200mg I was out for almost 8 hours so I don't know if it affected my T...

Gabapentin 600mg seemed to make my T worse. Trobalt arrived yesterday afternoon. Started with 200mg right away. Combined it with Gabapentin 600mg (bad idea) then 300mg for the evening dose. This morning shortly after taking both T was not audible. About 30 min after I had a spike for about 30...

Just saw a meeurologist to see if she could give me any insight as to what is going on with me and my odd reaction to medications. She actually recommented Gabapentin and increased my dose to 600 mg TID meanwhile weaning off the Klonopin. According to her side effects were minimal and it would...

@Carlos1 do you just take that dose once a day? Do the effects last all day? dOes it make you really drowsy?

@amandine I will monitor my WBC count when I resume taking Trobalt. I am having a hard time believing that this is the case. Steroids can do this as part of a stress reponse. I don't know too many meds that will raise WBC's Phenobarbital can sometime cause bone marrow failure.

@amandine raising WBC counts does not lead to cancer. It just means your body is responding to stress or infetcion. It also can be a response to cancer. Anythng can cause cancer. Just takes one cell to bypass the body's defences in correction. Antioxidants helpt to prevent cancer.

I have been off Trobalt for one week. Still waiting for my fefill. Yesterday took Gabapentin 300 mg and Clonopin 0.5 mg. Helped me sleep although upon waking T was as loud as ever. Took another Gabapentin 300 mg and clonopin 0.25 mg and my T was virtually gone for a couple of house. Each one...

Progress Report Progress Report Date: Nov 19, 2015 Current Retigabine Dosage: 0 - waiting for refill Current Side Effects: None. Urgency to urinate returning as well as diarrhea. Able to sleep better with the Trazadone. Last couple of nights fell asleep without anything although did not...

@Juan Carlos. I had the same effect when I started taking a lower dose of Trobalt. I rarely had any side effects at 100mg and never felt any change in my T after being on this dose. After I had to decrease to 100 mg BID there was a noticable decrease in my T for a short while as well as a mild...

Keep in mind that even "harmless" medications can generate an idiopathic adverse reaction. We are all adults and we assume the risks. Most doctors will not undertake such a trail due to liability and ignorance of what they are dealing with. No one is the bad guy here. We are all dealing with...

I am really interested to find out if the results are consistent with this combination. Cinnarizine increases cerebral blood flow which may increase Trobalt availabity to the CNS. I will look into this more - it may also have to do with blood pH, decrease in protein binding, etc. It's not...

Progress Report Progress Report Date: Nov 11, 2015 Current Retigabine Dosage: 100 mg BID Current Side Effects: Slight drowsiness, increased appetite Current Tinnitus Severity: 8 out of 10 Changes in Tinnitus: When I was taking 300mg, 250mg, 300 mg respectively I had 2 days where my T...

I am looking into it. I will be speaking to a pharmacist regarding this (they have a better understanding of the pharmokinetics) and I have an appointment with a neurologist in a few weeks. Cimetidine is reported to reduce renal clearance of some medications but it can have some bad side...

Correction: Trobalt and its metabolites are actively secreted in the urine. Decreasing renal clearance may increase blood levels.

What is curious in my case is that I have not consistently experienced the drunk effect (only twice with or without food) and it happened several days apart. I can't explain why this occurs. I agree that it might be affected by what we eat. Maybe a change in the blood pH or possibly sugars...

@Christian78, if you find Trobalt has made your T worse please discontinue taking. I don't know what other medications you are taking but maybe they are causing some kind of adverse reaction. I think of you often and you are in my prayers.

Unfortuately I metabolize this medication very rapidly which my necessitate increasing the dose or dose frequency in my case. I took 350 mg back to back for the first time last night. No side effects but I did experience a near elimination of my T for about an hour. I am looking at ways to...

@RaZaH You can purchase a 50 mg tab through a canadian pharmacy with a prescription for about $150 US. You can try dividing the tablet in half but I would ask the pharmacist first (I have a friend who is a pharmacist and I can ask for you). If the medication is evenly distributed in the...

@RaZaH I had minimal side effects until I started 300mg. It varies from person to person. Titrate slowly, increasing every 50mg. Whatever side effects I experienced they went away after several days. I have only experienced the "drugged" effect after taking 300mg twice and on different days...

Just curious, has anyone taking Trobalt taken more than 400mg consistently or just as an "aspirin" approach and had significant improvement? Also has anyone perceived significant change when adding Gabapentin other than preslys?

@monacco. Thanks for you advice but ADs never helped me. I had insomnia before Trobalt so that is why I take Trazadone. I am going to try a more natural approach for my insomnia once my Trobalt trial is over. On another note I had a weird experience today. I took 300 mg last night. No side...

@amandine I only take trazadone to sleep. I actually decreased my dose from 150 to 50 mg on my own. Ultimately my goal is to be off all medications. ADs don't work and I personally think that unless you have no other alternatives then maybe they may help. I firmly believe that all these meds...

Just to give you all an update. I took 300 mg at 8 pm and 4 am with no appreciable side effects. T did not get worse nor did I feel sedated/disoriented. Just could not sleep. Got up every hour. I will continue. Thanks for your support.

Forgot to mentio in user experiences that I tend to take it on an empty stomach since it had not made a difference befor this episode. I will definitely eat befor taking it again!

@Onnie It subsided to baseline within 5-10 minutes. I have noticed in the past that after having a really loud T day the following day tends to be much lower (5/10). I have not used this in an aspirin approach. I have tapered up to the 300mg dose over 3 weeks. I can't recall the exact date...

Progress Report Progress Report Date: Nov 4, 2015 Current Retigabine Dosage: 300mg, 200mg/250mg, 300mg Current Side Effects: Increase in Tinnitus for 5-10 minutes after taking 300mg back to back - one at 8 pm and then at 4 am). It was a very loud hissing/buzzing sound, almost pulsating...

I took 300mg of Trobalt last night within 10 minutes I had a horrible loud, hissing/buzzing sound in my head (20/10) It was almost pulsating. It went away after 5-10 min. into a more tonal sound but Im not really sure becacause I could not get out of bed. I could not even lift my arm (I have...

@locoyeti how quickly would you recommend tapering up?

Progress Report Progress Report Date: Oct 28, 2015 Current Retigabine Dosage: 200 mg TID Current Side Effects: General tiredness after my afternoon dose. I take it at 5 am, 1 pm and 9 pm. Progresses throughout the day. A little more fforgetful. I also excercise and keep myself very busy...

Does anyone have the hissing in their head (central T)? I have never had it in my ears. When it started 10 months ago it was a loud tonal sound and predominently on the right side. Now it is bilateral. When I have the hissing it is very loud and not easily masked. I actually prefer the...

For sleep try CBD oil with some THC if you are able to acquire it. I was able to sleep without Trazadone while I was on it. Natural and virtually no side effects. Good luck:)

@Christian CBD oil really seemed to help with my anxiety although I did not get a reduction in my T. Everyone is different and virtually no side effects. Give it a try if you can. Maybe get it with a little THC for more relaxation. Has anyone who has taken Trobalt found an inconsistency in the...

I want to apologize for my remark of how foolish it would be to take multiple medications while on Trobalt. We are all doing what we can to coexist with this terrible affliction. If any thing I applaud and admire all of you for taking the risk. By helping yourselves you may help others...

Progress Report Progress Report Date: Oct 19, 2015 Current Retigabine Dosage: 150 mg TID Current Side Effects: Very mild transient sedation after the afternoon dose. GI signs have resolved. Current Tinnitus Severity: 8 out of 10 Changes in Tinnitus: None thus far. I continue to have...

I have not seen anymore posts from the two other women trying this on User Experiences.

I am currently taking 150 mg TID. Only side effect now is a very mild sedation after 30-60 minutes which seems to resolve after 2-3 days after increasing the dose. No difference on an empty stomach or after a meal. Everyone is different and the results will vary considerably. I metabolize...

@monacco. Can you post in User Experiences. Thank you and good luck.

Please do not give in. I was suicidal just 2 weeks ago. I am also taking Trobalt and thus far no change. My tinnitus is still loud and at times annoying but I find that I am starting to habituate. There are times when I do not even hear it. I am actually starting to enjoy my life again. If...

Are you still taking neurotonin with trobalt? Did you notice any significant improvement? Will you be posting on user experiences? Thank you!

Actually I have had a mild headache for 2 days but this has happened before I started taking the Potiga. No reason. I have them for 2-3 days then they usually go away on their own. My appetite has improved since I started though which may explain some of the GI issues.