This seems to tie in with what @preslys said about taking a combination of trobalt and Neurontin - that seems to gotten rid of his T completely which he had for over a year.....
Retigabine (Trobalt, Potiga) — General Discussion
- Thread starter Mpt
- Start date
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
Memberyou would be a zombie ... ! ... and peple talk about these drugs like they are candy... mixing these things can have serious consequences for your mental and physical health ... you shouldn`t even try this without proper knowledge about it ...
@jeannie Hi Jeannie I've been taking .25 klonopin and 900 mg gabapentin and it has had a positive effect on my T. I still struggle with T but I do have good days where I actually go out and do things. I know allot of people are against benzo's but my doctor told me if I just take it as scheduled that I shouldn't have a problem just my 2 cents
@LetyO I take 300mg Gabapentin 3 x a day and .25mg Klonopin at nite before bed the Klonopin stays in your system 18 - 24 hrs. The gabapentin made me a little tired at first but I seem to be ok now.
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
Just saw a meeurologist to see if she could give me any insight as to what is going on with me and my odd reaction to medications. She actually recommented Gabapentin and increased my dose to 600 mg TID meanwhile weaning off the Klonopin. According to her side effects were minimal and it would not be difficult to discontinue the medication if I felt it was not beneficial at this dose. She preferred I do this prior to restarting Trobalt. As expected she had no real insight as to the cause and treatment. I reluctantly beleive it is up to us to find out what works
Each case is individual so it will be trial and error. The more important that we report our results with any of these meds and their combinations.
Each case is individual so it will be trial and error. The more important that we report our results with any of these meds and their combinations.LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
Gabapentin 600mg seemed to make my T worse. Trobalt arrived yesterday afternoon. Started with 200mg right away. Combined it with Gabapentin 600mg (bad idea) then 300mg for the evening dose. This morning shortly after taking both T was not audible. About 30 min after I had a spike for about 30 minutes then no T but had that drunk feeling for 2 hours. No T for almost 12 hours. First time this has happened since I began taking Trobalt alone.
so you think this combination killed your T,
just to compare, how is when taking 300 trobalt alone ?
I didn't experience anything better with this combo. why you first say taking GP 600 is a bad idea ?
Hi there, i found an online book about Potassium Channels, i think it havent been shared before
https://books.google.es/books?id=QY...pg=PP2#v=onepage&q=retigabine colored&f=false
https://books.google.es/books?id=QY...pg=PP2#v=onepage&q=retigabine colored&f=false
hi again, it looks like im spamming today, but i got really interested on RTG as it makes my life so easier to cope. I just was worried about the long term side effects, and found this
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4308410/
where i can read that the dicoloration seems to be reversible
so i guess, taking 200mg per day before sleep may end in reduction of tinnitus in long term, and no bad side effects. Any thoughts? this is the only drug in tha market that really helps. Seems we will have to wait some years for SF0034 unless we manage to get from chinese lab
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4308410/
where i can read that the dicoloration seems to be reversible
so i guess, taking 200mg per day before sleep may end in reduction of tinnitus in long term, and no bad side effects. Any thoughts? this is the only drug in tha market that really helps. Seems we will have to wait some years for SF0034 unless we manage to get from chinese lab
undecided
Member
Too much fiber dude, you'll probably end up getting your butthole HIFU'd to stop the diarrhea...
OMG...I am getting a 4 month batch in an hour. I have spent so much energy getting this stuff and all of a sudden I am super anxious about actually taking it ...
Did anyone experience severe and lasting side effects ?OMG...I am getting a 4 month batch in an hour. I have spent so much energy getting this stuff and all of a sudden I am super anxious about actually taking it ...
- May 7, 2015
- 1,050
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
Me too. Have had 5 packs of RTG since july. Havnt started taking it yet. Guess Im waiting for my benzo wthdl symptoms to ease up first. Would be good to taper off of Effexor and Remeron first also me thinksOMG...I am getting a 4 month batch in an hour. I have spent so much energy getting this stuff and all of a sudden I am super anxious about actually taking it ...
the only dermatologic study about two patients that turned blue after years of use, one of them returned to her normal pink rose state in 4 months. The other one stayed blue because she refused to stop taking retigabine since it was doing her a lot of good for epilepsy.
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
@Juan Carlos taking 600mg of gabapentin sedated me and seemed to make my T worse. The very first time I took gabapentin 300mg in the morning my T went away for a couple of hours. When I took gabapentin 600mg of with Trobalt 200mg I was out for almost 8 hours so I don't know if it affected my T. That evening and next morning I reduced the gabapentin to 300 mg. That morning I get that weird spike in my head and that drunk feeling then the T is gone for 12-13 hours. I had been off Trobalt for about 12 days before this. It seems to have a synergistic effect but not consistent. I have loud T this morning. No spike after taking the meds this time. For me that is the key. I have not taken 300 mg yet but I'm planning on tapering up quickly. I think both meds quiet that area of the brain but it's as if it adjusts quickly and goes back to its former state. Maybe if it's hit hard enough it can be permanent as in preslys case. Maybe it's a matter of finding the right combo for each person. Just guessing here. My experience has been unlike most here. My T disappears after I get that horrible spike in my head every time. Also this only happens after the morning dose. If anyone can give me any insight I would appreciate it.
LetyO
Member
- Aug 17, 2015
- 79
- Tinnitus Since
- 12/2014
- Cause of Tinnitus
- Anxiety/depression/medications
Please do not misunderstand me. I am not advocating the use of these meds. I personally am not timid when it comes to experimenting with them which is exactly what I am doing. Of concern are kidney function and vision which I will be monitoring closely. My experience has been unlike most here. I am just trying to determine what is effective for me. In my case it may just be a matter of finding that one time high dose which does the trick. I don't know. These meds do have an effect on T although not the same for each person. It may be that a combination of meds is required to generate a positive effect or it just needs to be taken long term to see an effect. Dont't know. I am just desperate to find some relief.
SoulStation
Member
undecided
Member
@RaZaH you mentioned that small doses (like 100mg) really affect your t in a good way. So these small doses kinda shield you from the nasty long term side effects. I mean taking 300mg daily is a long way from taking 1200mg a day...
So I'd go for it, unless the drunkenness (if you get that side effect) is interfering too much with your daily activities.
So I'd go for it, unless the drunkenness (if you get that side effect) is interfering too much with your daily activities.
Yes, it is indeed simple ...I just hate being stoned, drunk etc ... Guess I need to decide between stoned or exploding head syndrome
I must agree with you, i am doing 300 three times a day of trobalt. In the past i tried 300 mg of gabapectin or neurontin between dosage and next day had the best day ever even though i might me cured, but it came back next day to usual trobalt levels (1 or 2 during day, 3 or 4 in silent places with a few spikes up to 7 (previous level before starting trobalt)very rarely. took neurontin next day and nothing happen (back to trobalt levels) so i stop taking it. Today just for experimentation purposes i took 600 mg of neurontin between dosage *trobalt at 12 pm, neurontin at 3 pm and poooof levels went to 0/1 even in silent places until 9 pm. right now 10:30 pm at 1 in my room which is very rare (usually 3/4). Will repeat tomorrow to see what happens.
jeannie
Member
- Nov 2, 2013
- 429
- Tinnitus Since
- 2013
- Cause of Tinnitus
- Noise-induced, Ear Infection, Medication... Who knows?
I took low dose of tizadine and low dose of klonipin and tinnitus went to a 1-2 for 3 days but it didn't work today..and by low dose I mean I have 0.5 klonipin and cut it in half and 2 mg of tizadine and cut it in half.
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