Search results for query: *

Your opinions are very much valued by others here, Dr. Nagler. I don't feel that retreating will do you much good. I am simply saying that you would have done better in your initial statements, is all. I mean no disrespect, nor do I mean to be controversial. I am simply stating that some people...

I am not attempting to vilify you, Dr. Nagler. I am simply saying that your opening statements might mislead others into believing that everyone experience the same level of tinnitus. I am more than grateful for your contribution to the forum, but I feel obligated to say my peace when it might...

Those who have tolerable ringing in their ears that is in their ears that is not perceivable except in quiet is the utmost mild tinnitus. A lot of us here are the 10% that deal with very intrusive and disruptively loud tinnitus that affects our daily conversations, sexual life, and recreational...

anyone?

Hello again, everyone. I was just prescribed this Medicine to treat my ADHD, however I'm noticing a much more pronounced ring in my tinnitus (not that it was ever quiet anyways). I was curious if anyone knows anything about this medication and how it affects the ears. More so, whether or not it...

Vagus Nerve Stimulation. It involved implantation of a bio electrode that stimulates the Vagus Nerve, aka the wandering nerve that connects to the brain stem. The belief is just as the brain learns tinnitus through cortical reorganization, that by playing paired tones in bursts, we can train the...

I believe said person is referring to VNS

I visited the clinic but was denied for entry due to not having attempted TRT. The lead audiologist Shawna Jackson is highly intelligent however and explains things far better than anyone this far.

Welcome to the future.

This is the kind of stuff that gets people shot.

I wish you good luck and even better health, friend.

I would contact them via email. If they have a phone number, I would call and make inquiries.

I would strongly advise considering those two trials and in some cases, I believe they make some exception with regard to distance.

Will do appointment is on June 6th. I'm not a religious person, but I am praying for this one.

I've done oral b-12, Ativan, and intratympanic injections. I am soon to try a specialized form of TRT but I won't have the details until after my appointment with Dr. Shawna Jackson at UT Dallas

I refuse to believe there is no cure. In fact, science has encroached on the topic heavily in just a few years. The timeline is not what I desire, so I refuse to settle. The more effort and push into the field and anger and drive to cure it will cure it. This lackluster breath of life these...

I feel no remorse towards ENTs. They have shown me no remorse or understanding of my frustration nor do they seem inclined to care. I can feel them eager to get out of the room with me because I am not the typical patient. I won't take things lying down and I am openly emotional. I am also...

You're absolutely right. I am of the opinion that when you stop being invested in what you do and begin to think about stability, it's time to change fields. That rampant stagnation is the professional plague of ENTs.

No of course not. I live in Tulsa, Oklahoma where apart from Cancer research, there isn't much going on medically. She's nothing more than a gatekeeper between myself and the Neurotologist I see. He is supposedly some super expert, but he told me "nothing to be done. I have tinnitus and I wish I...

I watched the full video and his lack of interest in tinnitus is frustrating. If they know what causes the sign, why are they not attempting to resolve the offender?

Did you ask about medicines that have implications either positive or negative with regard to tinnitus and any treatments they personally have affiliation with? I'm scheduled to visit UT Dallas at The Callier Center to explore more options. I'm fed up with the lack of answers and am becoming...

I hate myself for the self harm I inflicted upon myself. I have no idea if it caused these current issues, but I hate myself for it. But no one had any intention of helping me not did they care.

Ev Everything I've read about CBT is all about stress reduction and acceptance. I have no intention of just accepting things as they are. If I just 'habituate' to me that's the same as giving up. Just like with this ear distortion I am experiencing. I'm not just going to take this lying down...

There are many clinical trials being talked about on this board and a quick google search should reveal some potential trials to consider

It's okay. The ENT office I routinely visit has a medical assistant who told me tinnitus is like cancer and they'll be trying to cure it for over a hundred years so I better just deal with it. Her words not mine. I told her that she was not only ill informed, but ignorant and disrespectful and a...

I'm not exactly the best person to consult with regard to trials in Europe as I am in the United States and in fact I am in one of the regions of the United States who have less than spectacular ENTs and research facilities in regard to hearing.

People tell me to just ignore it all that time and every time I want to slap them in the mouth. It's an insult and just shows the lack of sympathy. I've been told by ENTs, Neurologists, General Physicians, name it.

Well from my understanding is that as long as you understand and willingly accept the conditions of a clinical trial, there are trials in Sweden, etc. I do mot know what your budget is, but if you have the means, it would definitely be worth considering. We are on the verge of a tinnitus cure...

I would advise trying to find a clinical trial that is directed towards the acute phase. About the sad fact is that ENTs tend to know fuck all about Tinnitus even relative to their patients. It's not only wrongful, it's. disrespectful the way they often treat tinnitus patients. Often is the...

How do you tell the difference between H and TTTS? Because from my understanding H doesn't always have pain and both distort sound.

I'm starting to believe I've developed TTTS in my right ear and am currently trying broadband noise (namely rain sounds) for hours a day to try and get my ear to not be concerned and protective. On day three today and minimal result, if any.

I live in Tulsa, Oklahoma in the United States. I don't believe in things such as CBT. I see them as accepting a fate rather than finding an answer. Maybe that is not the case but it appears as if one is just giving up and paying someone to tell them to see the limelight. Earlier in the post I...

All I want is to love a normal life. And it in spite of all the things I've overcome, this shit is literally siphoning the fervor right out of me

This was my understanding as well but opinion seems to be so varied, I can't discern fact from ideology anymore

Il I'll look into this thank you. Have you had any luck with treating yourself or considered invasive procedure etc? Having tinnitus is one thing, but I think this is honestly more disturbing and frustrating. Naturally, they are both nightmares.

I don't get anything of that nature. I have musculoskeletal issues that contribute to but I don't believe are the source of the problem. My ear didn't originally do this it developed after I stupidly panicked and hit my ear out of response I a tinnitus spike that was so loud I couldn't hear...

Do you ever get the distortion or metallic noise when you swallow? Or rub your ear with it covered? I thought hyperacusis and TTTS were temporary events that subside over time? My right ear tends to sound jumbled and wobbly when in the shower or watching tv. It seems to be specific to the noise...

I'm trying to figure out what's going on with me. I have no idea what it is. If I chew hard candy, the pops internally will sometimes make my ringing increase and change. I want this to go away and can't find any answers. Maybe it's hyperacuity, I just don't know...all I know is it ruins my day...

That's not very uplifting :(

Does this alter the sounds you're perceiving? Like when I take a shower my right ear sounds all wobbly like the water is intense bass rather than just free flowing drops of water. I talk about it in my post in the support forum. I'm trying to figure out what is going on with me. I've heard of...

Can you describe the sensation you get whether physical or audio logical?

Kevin does your ear sound metallic if you rub your index finger in your ear? Also does bass sound distorted to you? Like the teacher from Peanuts (Charlie Brown)?

As will be my luck this will likely be permanent and yet another reason to just lie down

If you can take part, you should.

All I know is that I find this far more disturbing than the actual Tinnitus I'm experiencing and it's much more alarming to me. I spoke with Shawna Jackson at UT Dallas, an audiologist I am going to visit with regard to my issues and she told me to try the app mynoise which I am currently...

So it's never gotten better for you?

I've tried Ativan early on and it didn't seem to help at all. All it did was make me sleep. Sleep is about all I do anymore. What leads you to believe the central nervous system is to blame with regard to these conditions? All I know is I'm not eligible for most clinical trials because I'm in...

None of the doctors I have seen have done anything for the disorder. Either they've shoved me along or they've said just live with it. I had one doctor try steroidal injections. That required tubes in my ears and when the right ear tube fell out, my tinnitus skyrocketed and I got the bright...

Have you had any tests done to confirm or lead information into what you and I are apparently experiencing? I've never been examined for hyperacusis so I have no idea if that is a cause of what I am dealing with. Do you have anything that improves it for your or that made it go away? I got told...

No medication specifically related to tinnitus. If I lightly slap tap on my ear my ear rings responsively. If I whistle, my ear rings responsively. The sounds of bass are distorted. Sounds such as air conditioners or heaters running through a house are distorted. Voices have a distorted echo to...

:(

I think I've discovered something worse than my actual tinnitus. Lately, my cochlea seems hypersensitive enough to where I can tap on my ear and make my ear ringing morph and change. Since this has been happening certain noises sound muffled and distorted like my ear doesn't know what to do with...

I have this going on but it happens with music as well

People also discount the fact that businesses have to become more efficient in their production of specialized products in order to sell them for less cost. It's called an economy of scale. Some people are just greedy don't get me wrong, but the larger the production, the more efficient you need...

I'm in Tulsa, Oklahoma so around 300-400

I get feedback, as in my ear rings when something's pitch is too loud. It's like my ringing rises to match whatever it feels is too prominent of a sound. My right ear sounds distorted. It's almost as if I hear noises as they are, but I get a doubled over distortion. Almost as if the ear is...

I'm scheduled for June 6th, myself.

The institution is also heading the Microtransponder VNS trial, so they are a research institution with very high standards and protocol that they follow. There is nothing run of the mill about this place. They specialize in many fields, most notably, Tinnitus and audiological research.

Whistling? In particular, if I whistle, my ear rings in response. If that's what you mean. UT Dallas if you set up an appointment with the head audiologist, Shawn Jackson, you'll actually get a good evaluation. I can't speak from experience yet, but she has already assured me that the level of...

It sounds to me like your experiencing the same reactive ringing bullshit