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I do wonder if extracochlear electrode stimulation might be helpful in the future (if one was prepared to have surgery to have a device fitted).

Hi @Jupiterman. Sorry for the delay. I'm doing well, thanks. My tinnitus has very slowly worsened over the years but it bothers me less and less. I don't notice it at work at all anymore as I'm distracted. It only really bothers me now and again when I'm not occupied with anything else. I'm...

Almost 7 years in for me! Pffffffff.

This is a very interesting thread. Lots of great contributions and things to think about. Thanks. Best wishes to all.

@GDK, thanks for posting this. I developed EXACTLY what you and @Ben Winders describe in my good ear about 2 years ago and I have been wondering if there is anything I could try to do about it so I may give your suggestions a try. In my case this low sound came on in my good ear about 3 years...

It seems perfectly reasonable to me to still want to have silence. I guess it’s only a problem if that desire keeps you stuck in a state of unhappiness.

@Bluemoon, one of the biggest breakthroughs I had was when I stopped measuring my success by how much I was aware of my tinnitus. It allowed me to stop blaming myself for still focusing on it and I found it easier to just let it be there, without judgement or analysis. Not sure if that makes...

@Bluemoon, I am able to go many hours without noticing it and even slight distraction makes me unaware of it but I still have plenty of time when I am fully aware of it but it doesn't really bother me that much now. There are still some bad times though. In my experience it is probably a mistake...

Hi @Ed209, glad to hear you are doing well. Great stuff. Thanks for all your support over the years. Best wishes mate.

@Oreilles, thank you for your positive post. It is getting towards 5 years for me now and I am following a similar trajectory. I haven't achieved a huge amount as far as awareness of my tinnitus but almost all the time it means very little to me now. A couple of times a day it gives me a little...

Hi @billie48. Did they not offer you an intratympanic steroid injection? I’d be happy to discuss with you if you want to PM me? BW

@Gb3 I am in a far better place than I was but it's not quite the bed of roses I imagined this far down the line. I'd still walk across hot coals for a cure....

@Gb3 No I just have a low rumbling vibratory hum in my good ear. Been there for a year now. I seem to get a new tone every year unfortunately but luckily so far none of them come close to the badboy in my left ear which I’m still struggling with after 4 and a half years!

:popcorndrink:

@Thuan I’m optimistic but no more optimistic than I am about current hearing restoration methods that don’t reliably improve tinnitus.

@CAgirl . I see you are very early in this process. Lot’s of people see a reduction in the first year or even later. Even if you don’t it’ll be ok.... you’ll just have to take up extreme sports like me to take your mind off it! Seriously though I wish you well. Stay calm, breathe, better days...

@GregCA You too! It’s pretty crap isn’t it but what can you do? I just try to have fun every day, even when I can’t face it. How you getting on? I have developed an obsession with downhill mountain biking! Lots of falls and injuries. Hard to focus on tinnitus when you’re flying through the air...

@CAgirl sorry for the delay. Been pretty busy! I’m doing reasonably well these days. Not great but way better than the first couple of years when I was debilitated. For me it’s just been extremely slow progress with a lot of ups and downs. The downs have gradually got further apart. I can go...

@Candy Sorry for the delay. Mine is also brutal at the moment and I'm not doing well (again!). Only just making it into work each day. I do find some things helpful at the moment 1. Regular vigorous exercise 2. Very long walks (at least an hour, ideally several) 3. Not drinking too much alcohol...

Hi @monkey124. That doesn’t really sound like a noise induced history to me and the olive oil will not be relevant so don’t worry. Did you have tympanograms done to check for any Eustachian tube dysfunction?

@monkey124 No problem, message me!

I'm pretty sure I know what Zack would say to that...

It's hard to say how much I have loved Rage Against The Machine through my life but never got to see them. I REALLY love them. I have horrendous tinnitus.................. and tickets to see them......... Now that is a dilemma.

What do you do about multiple sounds in your head that you can hear with a power shower on your head? It's not fair really, but I'm carrying on with this miserable situation.

I agree with that passionately. I find it very irritating reading endless 'papers' written about psychological approaches. Helps some, but we need to move on, quickly.

I would have thought that one of the cornerstones of CBT is not to focus on the characteristics of your tinnitus (volume/pitch etc). You don't want a psychologist to hear your story and say 'Christ that sounds intolerable'. One thing I found helpful with CBT was to leave me with the lingering...

I may be wrong but I have noticed that there aren't huge numbers of people on this site with a DEFINITE diagnosis for their symptoms (very few acoustic neuromas/cholesteatomas/Meniere's/post chemo etc). I wonder if it is the unexplained aspects to our conditions that drive us to a place like...

Hi @Backpacker. I am now pretty sure the cause of my SSNHL was a virus as I have not had ongoing symptoms in keeping with hydrops. I've never had any balance problems. I also have no idea why I have now developed a low hum/vibration in my good ear but certainly finding it disconcerting. It is a...

I hope this confuses more than it helps. Got to go cos my youngest just threw up. Nothing stops you thinking about tinnitus more than clearing up someone's sick.

@JohnAdams I think you fail to understand how someone with severe tinnitus might be panicked over the idea of a potential treatment making things worse. I wish you good day and you are now blocked (I don't know how to do that but you are)

LOL, my wife says only my mum finds me really funny. At least there are 2 people now (my wife is lovely I should say - in case she ever reads this - which she won't)

@Michael Leigh I'm with you on that - I wouldn't rock the boat either. Im too worried it might get worse

I know something about having brutal tinnitus, that might be about it though

I see a big shark looking at me

No I just have a constant low hum in my good ear for no good reason. Luckily nothing compared to the shitstorm in my other ear

Man this could end badly.....

You're like a high school cafeteria. That's what people would have said in my high school cafeteria.

Dark

Is it anything like the first rule of fight club?

that's another example of why I feel uncertain here - don't understand, help me!

I think I do, but maybe you could spell it out for me so I don't get it wrong (not being sarcastic honestly)

Because when I thought of Wayne's World I thought I should try to upload the scene itself to my post, and then realised I had no idea how to do that.

@Agrajag364 Sorry, no better. New tone recently - lovely low hum in my good ear I'm ok though, good in fact.

It's a bit scary being on MPP. I feel like Wayne saying 'we're not worthy'

@Michael Leigh . I sincerely mean it when I say that I have no doubt that you have helped many people immensely. I'm not so sure that you know when to reign in your views when they are misguided or do not apply to others. No one can project all their experiences onto other people. I think that...

@Michael Leigh You seem like a smart guy so you must see that your comments could be looked on in a bad light. Happy to chat as long as you promise not to get me into a relapse x

Oh god I just got a three year anniversary award. Feels like 30

@Michael Leigh . I honestly don't really know where you stand. You have previously laid into me for trying to put a positive spin on this miserable condition, for reasons that are still unclear to me. It feels as though you encourage people to be positive and emphasise the mental aspects of...

Well I managed to get off the SSRI. It wasn't easy as expected. It went something like this from the last dose I took: Week 1 - No problem. Felt smug Weeks 2-6. Awful. Constant feelings of dizziness/light headed. Nauseated. Buzzing sensations through my head. Mood okay though! Week 6-12. No...

Dear @Candy . So sorry to hear you are suffering so much. I know you've been through hell with this before and got to a better place. I'm thinking of you and hope you get back on track soon. Best wishes

Still here, more or less.

@GlennAz. Of course you must do what you think is best for you and definitely wait and see what outcome you get from the PRP treatment. I would suggest that you don't dismiss a CI completely. With short modern electrodes and 'soft' surgical techniques as they are known, you could have a CI and...

Honestly I think it is difficult to know. He may well be an amazing pioneer but something about it doesn't sit well with me. It's not like South Korea is some place off the medical map where he would have no hope of undertaking proper trials and producing decent data. The South Korean healthcare...

@GlennAz. Have you ever considered a Cochlear Implant?

Sorry not to be responding at the moment. I am in the throws of antidepressant withdrawal and it's not pretty..... Not sure when I will be back on the forum. Best wishes to all.

So it was done after a recent intratympanic injection? I have to say that doesn't sound sensible.

My understanding is that hydrogen peroxide is ototoxic.

@Drone Draper. Intratympanic injection is pretty safe. I usually do a separate high 'relieving' perforation to reduce the risk of a huge increase in middle ear pressure. Not sure it makes any difference but it makes me feel more at ease! I have heard of a case of blowing out the round window...

Good luck @JohnAdams. Very brave of you. What degree of hearing loss do you have if you don't mind me asking? Hope you get some relief.

@Bazan . Sorry to hear this. I didn't start to feel better until about 18 months to be honest. I'm not sure if this applies to you but one problem I had for a long time was only measuring my success by whether I was aware of my T or not. This led to constant disappointment and anxiety. I began...