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Seems like you're the one who is projecting. The IP never was about judging people for feeling suicidal or about euthanasia. You turned it into that so you could have a platform. You're the one who got irate first when someone didnt share your worldview and then disparaged them because of...

I agree but I don't think that is the motivation here. I also had both balance issues fatigue and autoimmune dismissed as depression. When the Dr finally did blood work I had positive antibody. Not even an apology - he actually seemed mad at me. But even without MI labels women esp get...

@Zenyatta Actually I did not find your posts offensive. What I did find offensive is someone basically saying "shut up old woman" and others completely dismissing someone's value because of their age. Makes me think too they wouldn't dismiss a man the same way. The second is that T is not as...

No one has called for banning anyone or censorship. Claims of that are common ploys used to defend offensive language by the way. Lex clearly stated they are not in a desperate state. Most people then are mindful - especially when brimming with empathy - to understand how potentially...

Well I guess than so do I. I found the ageist and ableist attitude on this thread disturbing. That was my immediate reaction not something I mulled on all day to see if it was offended or not. And really pro suicide arguments on a forum with vulnerable people. So funny how that works when...

My Dad was a respitory therapist and used to work in the ER a lot. He'd have a button that would say when he'd had enough radiation. He's also had a number of ct scans because he can't have MRI. It doesn't concern him much either. Any surgery is scary. Sounds like at least you know now and...

That sounds incredible the scan is able to produce so much detail. Do you know if it is more or less radiation or just better technology or both.

Don't think it sounds crazy at all but I was wondering because I was talking to it (not out loud of course). I think it helps to reframe it.

When the ent was going over my tests results initially I didn't understand the intracies of hearing and balance. Still have a lot to learn. Its great that a doctor took the time to explain things to you.

I'll add it can be a rollercoaster of emotions too trying to deal with it. When that happens the downs seem so depressing. I felt pretty good a couple of days ago - still heard the T but my anxiety was diminished. Then I hit a snag yesterday and felt a big drop in mood and those feelings just...

Best to make these desicions while you can before someone else is making them for you. If you know the train in heading off the track then stop the train. It is way better if you're heading for a breakdown to stop that than to try and bounce back from it afterwards. That can be done too but...

A Dr like that seems pretty rare. Part of the problem is the ent is from one health system and the PCP is in the other. They have some sort of patient portal but don't use it. My PCP is nice but the office is very low tech.

Please don't mention about referrals! The ent can not make some of the referrals he wants because of insurance (like neuro, clinic for the H). That gets kicked back to my PCP. I called today to make sure they contact me as soon as they get the paperwork so they can refer me to the clinic at...

I wonder if being in an enclosed machine affects that too. The one MRI they have has a wider opening and is much shorter (short bore?) but not an open one. Maybe sound can escape better.

I've tried three times the past few months and they've all been cancelled on me (2 different places). The one last week they called at 7am as I was about to leave. The excuses have been paperwork, machine down and tech unavailable. So it is rescheduled for next month but I'm not in the mood...

Back in 2010 I had ear pain and T and dizziness developed right away. Ear always looked fine and lackluster gp just said it was a virus and I couldn't get a referral to an ent. So I never had anything checked until this year when things got suddenly worse last fall and dizziness also recurred...

Thanks. You've been really helpful and I appreciate it. I don't have a computer at home or internet so research is kind of hit or miss.

Thanks Glynis for taking time out to respond. At this point I may consider it for the dizziness if it would work for that. As you know it is the icing on the cake some days. I was reading another link posted on here about Menieres. I might not fit it 100% but pretty close.

How long after the virus if you don't mind me asking. I am just puzzled because if this was caused by vestibular neuritis it would have been in 2010. Unless he thinks this is some sort of reactivation. Even so it was not offered at previous visits. He mentioned sedation which probably just...

I know this question has been asked in older threads - however - mostly it seems it's done right after an acoustic trauma. I did have a noise exposure about a month ago but not really a big deal and did NOT affect my other ear. So I'm assuming it really wouldn't have done anything other than...

I should add my T changed tone but no additional hearing loss which is what I was concerned about. I had really high pitched ringing which I assumed went with my HF hearing loss. I also have H and referred to some sort of clinic for that.

Severe ear pain started this whole mess initially. I went to urgent care because I thought I had an ear infection but the doctor there said ear was fine and to follow up with reg Dr (which I didn't have). By the time I got in I was having terrible dizziness too. Dr dismissed it as a virus and...

Sorry to hear about your mom. Take care.

Thanks GregCA and ErikN for your input too along with GregSacremento. I do appreciate it.

Thanks Greg. I just got back from the ENT and will just put the MRI on hold. My appt is in July so I'll think about it and try to find out about the machine in case. I'm depressed right now it was such a letdown. The Dr is nice but I guess I must keep hoping on some level that they can make...

I have loud T in the morning. I've said sometimes I think it wakes me up. I didn't vote though because I don't know if I would consider it the loudest then at all times.

I've read your posts and it is a fear with both T and H. Sometimes I wonder if drs take that into consideration or consider it acceptable collateral damage (for them not us). I'm in a rural area so another fear about how "new" the new machine is.

Wow - has there been any relief for it or is it just the way it is now. My nerve issue was found on another test and now just trying to find the cause.

Not prohibited but I've had 3 cancelled on me by 2 different places all at the last minute. One while I was signing in, the other the day before and the last one they called at 7am right before I left the house. Its been rescheduled for July now so the rollar coaster of stress is unpleasant...

Its being used as a rule out for AN too and to see if anything is happening to the nerve to cause it to not function properly. I wouldn't consider it wasted though regardless - just wasn't sure if the exposure is worth it for the pictures they get. I wouldn't want it done if they couldn't get...

. Thanks for the info. Dr is looking for an AN or some thing pressing on the nerve. He mentioned a scan when I first balked at MRI. I know MRI has its uses but I don't trust them implicitly either. Dr said its safe - I have a different definition of safe. I at least wanted to rule out the...

I am afraid of the MRI because of the magnet and loud noise has such a physical reaction for me. I feel it strongly not just that it bothers my ears. Loud noise, small space :( Do you think rad exposure in cat scan is worth it. Just your opinion. Thanks for the link - I appreciate it.

Dr is looking for something pressing on the nerve so technically not for the T. Possibly a blood vessel can do that. Don't know if that's good or bad. Thanks.

Glad you found someone sympathetic. However be mindful that their experience is not yours and professionally they should be able to draw that boundary. Some can't however and it turns into they think they know your experience better than you do and don't offer objective advice.

I'm going back to the ENT and will have another audiogram. MRI is rescheduled yet again and he had previously mentioned a CAT scan which I'm not thrilled about either. I was wondering about any other testing like an EEG with sound to check for vestibular hyperacusis. I've seen other...

Sometimes I'm starting to think it acts like its having a tantrum if I'm not paying attention to it.

I don't have anything technical or scientific to add to the thread however I avoid these meds now as much as possible. I had horrible discontinuation syndrome from Zoloft. I find it interesting you mentioned 3days in a post on here because I could go 3 days without taking it and then have to...

Glad your b12 was checked. Mines was extremely low a couple of years ago and I didn't have exposure to nitrous but read about how dangerous it can be. Just wanted you to be safe!

Sorry about how your feeling. Has the Dr addressed your headaches. I've had migraines and I don't notice the T really affecting that. Are you making sure your blood pressure is OK. I think sometimes we attribute everything to the T but it might not always be the case. I don't go crazy...

Have you had your B12 levels checked. Nitrous oxide can deplete what the body stores. Once levels get too low a regular vitamin dose might not be enough. B12 has been associated with T and if you are using nitrous recreationally please stop immediately. Recreational use can cause even young...

I also have T with an unknown cause and dizziness. Make sure to see the ent to rule out physical issues. I have a weak balance nerve on one side. My balance issues were ignored by regular Drs for a long time. The ent took it seriously. Also it is hard for others to understand and many...

According to the article they are enforcing so bars and nightclubs are mad. Tourists need to have some respect for the people who live there apparently.

Is something in your diet contributing to this too - poor eating habits abound when your anxious or depressed. Also how long on the meds. That could be a withdrawal symptom if it happens when you stop. Not sure about that particular med but Xanax can get you physically addicted in as little...

Welcome. My T is not noise induced but it sounds like you got help right away with the steroids. Protect your ears from any loud noises when they are healing as others on here can offer more input on that. As far as the ent he may be able to offer some more suggestions so it might be...

Thanks Rosemerry. The T likes the bedroom especially and honestly I think it wakes me up sometimes. I was surprised I was able to laugh and just not lay there like I do listening to it. Sorry about you cat. Ours died last year. She was 15 but as active and playful as ever.

I was debating about posting this because I don't know how positive it is (I set the bar kind of low) but anyway: I woke up in the middle of the night/very early morning as I often do. I got up and with my balance being kind of off banged my hand trying to flip the light switch. Well I'm...

Actually you may have helped in a different way without realizing it. I've not been able to pin down why I am feeling unsettled beyond the T. So its almost as if I've been sending a message to myself mentioning in posts about it. T started right before the first Christmas after he died...

I pray and try to stay focused on the hear and now. My husband passed away suddenly in 2010. I worked with a therapist in grief counseling which at times included accommodating the ocd rather than fighting it. Then my mom got sick and I was her caregiver. I've been able to avoid meds or...

I was naive when I started the med and discontinuation problems were just becoming apparent with the SSRI s ( so this was awhile ago). I should have had a clue because the drug made me sick when I started it - like morning sickness for 6 weeks. And we kept trying to up the dosage slowly but it...

Hi Natalie. Ive battled OCD since childhood along with depression. I took Zoloft at a much lower dose and had an awful time trying to taper off of it. Months of trying to stop completely and then just had to tough it out which took about 6 months. I won't touch ADs because of it. We are...

Thanks this is interesting. I've had problems with hypervigilance before too) I didn't feel well and not just T related after the hearing test. Was completely not expecting to have any issues with it. I am curious about vestibular H too since my balance issues are not following a pattern...

I mentioned to Bill that I had a spike and didn't feel well right after my audiogram. Even mentioned it to the ent at the time it was that quick. Just curious if you have anymore info on that. I have HF hearing loss and nerve damage behind the cochlea. I have another audiogram Wed. Thanks.

Sorry you had a difficult time esp with family. I've had plenty of issues with people acting like I am just being oversensitive. In school I was bullied because I often couldn't understand what people were saying or I'd get lost in the middle of a conversation or couldnt respond fast enough...

I'm not pro or con - just pointing out how lab results are not necessarily the be all or end all. CFS has alot of vague symptoms too which is why I wasn't impressed with that label and basically had it hoisted on me when I was looking for answers. Doesn't mean that it is fake or not accurate...

It could be that electricity fuels the triggers - audio or visual for instance- and not an actual allergy to electric field itself. So maybe they are focusing on the wrong thing. Also it could be the stressor that is the tipping point but on its own not enough to cause symptoms.

Yes I think white or pink noise can be harmful done haphazardly. However lots of people don't know about that possibility or have no other options but to wing it themselves. In the US I don't think most ins would even begin to cover some of these things. I have found what works incidently...

I was not clear in that I was referring to those with extreme sensitivity to sound - and generally we know who we are. So what could be "just set it lower" might not work for a brain that doesn't filter sound information properly in the first place. You could aggravate things by adding to the...

I was labeled with CFS before. Some people fight for that label but I consider it a cheap and easy diagnosis. I noticed it mentioned how many people with CFS/FM would say they feel better when the power would go out. It does seem like I can hear the electricity going through the walls at times.

Do you have sensory issues also. When I was very young I used to have what were considered debilitating panic attacks. It wasn't until my 20s when a Dr (psychiatrist) diagnosed sensory overloads instead. He said every brain has a filter and mine was not working properly. So I would get...

I think that is a huge misconception when it comes to malpractice. My husband was the poster boy for heart attack I found out later. Not one but 3 doctors contributed to not picking this up. He was having red flags that any intern probably should have ordered an EKG. Everyone said we should...