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I have been subscribed to the Tinnitus Treatment Report mailing list for several years and find it quite informative. They had never promoted any specific treatment or therapy until recently. I decided to give it a try and paid around £150 (from memory), which covered a three-month supply of the...

She wasn't part of the trial - she bought the device as a commercial patient. I feel pretty peed off that I've spunked the thick end of £3k on Lenire to no effect, but I'm thankful to say the least that I didn't experience any 'disimprovements'.

Why can you not get Neuromod to send you a new tongue tip in the United States? Customs? If need be, I'd be happy to receive one for you and send it on. Whether Neuromod will play ball with this remains to be seen though.

Laughably shite scam. My dad, bless him, sent me the link - no doubt thinking he's doing me a favour - so I felt duty bound to watch the whole thing through, despite knowing from the start that it would be a crock of shite. The whole thing is so blindingly obvious as a scam. I was actually...

Update - see my post in the Minnesota thread.

After I added my post yesterday, I e-mailed Dr. Lim via his UMinn address. To my great surprise, he replied within 20 minutes - he's either really efficient or he doesn't have much work on ;). His reply was pretty much exactly the same as your thoughts. I don't think I'm being unfair or...

I think I love you. FWIW, Lim is still listed on the UMinn website as the director of the SONIC research lab. Hope springs eternal! That said, he's also listed as a paid schill of Neuromod.

I've asked them about this a couple of times over the last month or so - will they be refining the treatment protocols in light of the feedback they've received from their first wave of patients. I've never got a straight answer out of them - I think they're as in the dark about why it does or...

This is possibly the best description of 'problem', 'intrusive' tinnitus I've ever read. I find myself constantly asking - myself, since no-one else gives a shit - how can this be allowed? How is it possible that I can be tortured like this, day after day, month after month, year after year...

I was on their default settings throughout. IIRC it was PS2 to start with, then PS4 for the next stage, then back to PS2 - the names might be wrong & I've no idea what they mean, but they changed the settings at my first review (3rd visit to the clinic) and then changed them back again, as per...

I'm approaching the 12-month mark with Lenire, having long since concluded that if it was going to do anything, it would have done by now. I had a call with one of their audiologists today and she eventually conceded that she's in agreement. Having said that, I am considering carrying on with...

Bit harsh. It's plain stupidity looking back now, but when I started going to gigs aged 16, I'd never heard of tinnitus. My ears used to ring for a day or two after gigs abut I never realised or considered that it might be doing some damage. It always went away, so no problem, right? Wrong...

I guess it's just 'cos there's not much to report. I'm still doing my twice daily Lenire sessions and it's not really affecting my tinnitus much - but - and I've said this before - I don't get anywhere near as distressed by my whistling friend as I did before. I think this is just habituation...

I'd just like to echo the praise for @PeterPan - it's clear there's an enormous amount of work gone into this and it is greatly appreciated. I get the impression he loves stats tho' ;-) I have one completely unimportant question - one of the responders in the survey dropped out at 6 weeks...

I have a hearing impairment, no hyperacusis, have been using Lenire for 10 months now and it's done jack all for me. The positives I'm taking from this are that at least I do know it doesn't work for me in it's current form and I was fortunate enough to avoid the 1 in 5 chance of worsening...

Never heard of that and I've just read up on it on the NHS website - good lord, that sounds bad. Maybe there is something worse than tinnitus... :(

You can't really pull them on that in all fairness - they explicitly stated from day one that they didn't want people travelling from overseas. So they're updating settings by just sending the device back to Ireland now?

I started in early August and I've been reasonably compliant in terms of using it twice a day, but I can't say it's done anything for my tinnitus. I am coping with it a lot better than when I started the treatment, but I think that's just down to the habituation process - my tinnitus went...

You're guessing. Not helpful. Some people will take this at face value and I think we can all agree that there are people on this site in precarious situations. There are also some that aren't on the site anymore - a little more care required my friend.

And what about @BigNick, another improver IIRC? This is the problem with people doing their own summaries - it's easy to just mis-state or mispresent things, unintentionally I'm sure. @UKBloke had me pegged in the wrong category in his summary and there were a couple of other posters who might...

You need to take me out of your 'negative' group. I've never reported any negative reaction and I've been largely 'indifferent' since starting the treatment - over the last month or so however would say I'm now hovering on the border between 'indifferent' (maybe 90%) and 'good' (the other 10%).

Just playing devil's advocate, Neuromod have told me that the 12 week period was only relevant in the clinical trials. They are saying this is not relevant to paying customers. You've come to the end of the consultations you've paid for and any further appointments will incur further fees, but...

No. Just no. RIP Allan. I corresponded with him via this forum as we started using Lenire around the same time. Devastating that it's turned out this way. How can this condition be so underplayed / unrecognised by the wider world?

I have put my money down - and am about to splash yet more cash on replacing the tonguetip - and as you'll have seen from my other posts, I'm firmly in the 'no improvement / placebo at best' group. It feels like my tinnitus is armour-plated against this treatment.

Gotta love the Deadman's Inn! I've whiled away a few hours in there each time I've visited Neuromod.

They did an MML test on each of the 4 occasions I was over in Dublin and it came out around the same every time - c.50 dB white noise, which they reckoned equates to about 70-75 dB real world noise. My tinnitus tone / sound hasn't changed at all while I've been using Lenire - in fact my tinnitus...

I'm 5 months into my Lenire treatment now and I've been 95% compliant with the treatment protocol - 30 minutes, twice a day, around the same time every day. My tinnitus is largely unchanged I'm afraid - but... I don't get anywhere near as upset as I used to do by it. On 'good' days, I can...

That never occurred to me TBH. Let's be realistic, it's far more likely that my own version of tinnitus was immune to their witchcraft - their own studies indicated there would be lots of 'non-responders'.

The only reason they ask you to complete the THI questionnaire is so they have a gauge of whether the treatment is having any positive impact on you. They won't reject anyone based on their THI score. I'm not going to dispute Big Nick's response to your post, but my experience of Neuromod is...

Bullshit. Whatever medication you might be talking wouldn't be the reason they reject you in this situation, but what do you think the outcome will be if you say to them 'if you reject me, I'm going to kill myself'? By extension, what will you do if they accept you and then the treatment does...

I'm another 6 weeks further down the line - so that's 18 weeks in all I think. Still nothing - bah!! I have had one day since I last posted when my tinnitus was better than pre-Neuromod, so all told I think that's maybe 4 days out of the last 4 months where my tinnitus was better than it had...

Hi Acute, Neuromod are the only people that give you a straight answer on this, but based on my experiences with them, I would guess that they would want to wait until you were off the benzos before agreeing to take you on as a patient. I haven't seen anything in any of the literature /...

The controller give the user the option to increase or decrease both the volume of the headphones and the intensity of the electrical stimulation through the tonguetip. They reckon it doesn't make any difference to the efficacy of the treatment, but that it's best to leave both in the default...

FFS, change your profile photo. How can anyone take anything you post seriously with that. It looks like my Dad getting ready to be ****** by my ++++ w/ a &&&& - battery powered.

I wouldn't get your hopes up on that score - the hearing test I had at Neuromod was pretty basic. Done and dusted in about a minute. If I've understood what they told me correctly, they don't use MML as any sort of eligibility criteria. They keep track of this as a precaution to track whether...

But if your THI is in the teens... Why are you here? Based on that, your tinnitus has very little effect on you, so why bother?

I can vouch for Ade - he's a regular BTA member and only came on here to post about his experience 'cos I twisted his arm, metaphorically.

A really minor ray of hope - I had a really good day yesterday. Better than my 'usual' pre-Neuromod good days. I'd been at work for 2 hours and I suddenly realised I hadn't noticed / heard / thought about my tinnitus for that 2 hours. As soon as I thought that, I could hear it, but it continued...

In the interests of balance, there is also a BTA member who's also experienced a severe 'disimprovement' after using the device. His tinnitus has got worse and his hyperacusis has gone through the roof apparently.

To be honest, it didn't concern me at all. They made it plain that the initial 'package' fee comprised 4 visits - assessment, fit, review #1 & review #2. The merits of the 'fit' appointment are debatable, but that's what you get when you stump up your cash initially. It isn't realistic to expect...

My 12 week report - no improvement as yet. My THI & MML scores were much the same at every stage throughout the process. They've now put me back onto the same program as I was on initially - so I started on PS1, then went on to PS4 and now I'm back on PS1 again. No, I don't know what that means...

To an extent, Neuromod are into uncharted territory now - with patients using the device long-term. They don't know what effect this will have.

Has Lenire made my tinnitus better? - No... not yet anyway. Would I recommend it? - Yes. You might have a greater response to the treatment than I've had.

Yep, noise induced. Moderate high frequency hearing impairment. Tonal tinnitus at c. 6 kHz and c. 50 dB white noise MML (75-80 dB real world).

I do have comprehension issues - I genuinely couldn't discern what point you were trying to make, other than the thinly veiled accusation that I was somehow trying to con people as a Neuromod stooge.

WTF are you talking about boy? You seem to have been listening to far too many Donald Trump press conferences and have adopted his idiolect. Your comments veer off into blind alleys and make next to no sense.

I'm coming to the end of my 12 weeks - I'm back in Dublin next Tuesday - and unfortunately, I haven't seen any real change in my tinnitus. I had one very good day a few weeks ago - my tinnitus PB - but other than that it's been good days / bad days, just like normal. I'm still sticking to the...

Forgive me for being dumb, but I'm struggling to follow the thrust of your argument here. Are you saying that those of us on here that have been reporting our experiences with this treatment are actually fraudsters? Selling a fake dream to desperate people? I can tell you straight, the only...

I'm in as well. I don't really have much to offer in the way of skills - unless anyone needs consumer debt counselling / advice ;) - so I'll offer hard cash instead.

Surely the question should be 'does it work?'

Week 10 now. Twice a day, without fail. Attachment below. FWIW, I've had another good day today. I caught myself thinking 'can I hear it?'. I found it soon enough, but then rapidly backed away from searching for it - not a good idea. My whistling friend hasn't been as quiet today as he was...

This is probably a coincidence, but I've had the best day for quite a while today. I had more beers than I was planning to yesterday, which usually guarantees a pretty bad next day w/ Mr. T and I woke up this morning feeling extremely apprehensive. By mid-morning, I was literally jumping around...

No hyperacusis. My tinnitus and hearing impairment are noise induced. Too many gigs & clubs when I was younger.

6 weeks in - I was there on Tuesday and they've tweaked the settings. I'm now on 'PS4', whatever that means. There's no discernible difference between the previous settings and the updated ones - they said it was to do with the timing of the tongue stimulation and it probably wouldn't be...

Just for the sake of clarity; - Neuromod are based in the tech district in the city centre somewhere. - Neuromod Medical, who we're all going to see and and are actually dishing out the devices, are based in a small suite of rooms in a hospital about 10 miles west of the city. - The 'Airport...

Yep, I've used the Hopper on my 2 visits to Neuromod so far. It's a 10 minute walk from the footbridge. Or you could go one stop further, to the Liffey Valley, Clayton Hotel and it's a 10 minute walk from there as well. The bus basically goes past the entrance to the medical centre and the stops...

Week 4 update from me. Nothing to report unfortunately, either positive or negative. I haven't experienced any worsening on my tinnitus symptoms, but equally I haven't seen any improvements yet. I've done my sessions twice a day without fail, albeit I haven't managed to stick to set times...

Someone has to jump first...

They haven't said that to me. They advised you should do as little as possible - 'zone out' was the phrase used - but they certainly didn't say anything about focusing on the sounds being presented. I asked if reading a book would be OK and they said that was fine. I tend to read the news or...