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I had an interview with a consultant to see if I was suitable for this trial a few weeks ago. The upshot was I decided not to go ahead with it - the reason being my T is not that bad and at the moment doesn't cause me major distress - I had to weigh that against the possibility however remote...

Yes mine is worse at night - before bed, going to sleep, when I wake up - when I actually get up it tends to settle down very quickly. I suppose it's better than being loud all day.

Lisa's post above has it right, your views are a handholder for some with T. If it helps you then great, I'm genuinely happy for you, personally I don't need that as an emotional crutch but we are all different.

Kittyl, that seems typical of ENT specialists, for the vast majority they can't help us but what is worse is they seem unwilling or unable to direct us to someone that can. Help may not be a cure as such but there are treatments for tinnitus which many people have found useful. Is there a...

My ENT thinks my tinnitus is linked to head trauma. However my GP thinks it's linked to stress from a bereavement, and I do have high frequency hearing loss, so who knows. I did have balance issues for a few months post accident but the tinnitus started after these had resolved. Anyway...

Is there evidence that the brain learns tinnitus? Given that something must trigger the tinnitus in the first place isn't it more likely that the continued noise is due to that trigger remaining?

A small dose, say 5-6 typical UK magic mushrooms, will have no real noticeable effect when taken at all, so anyone wanting to experiment with repeated low dose use could do that without fearing a psychedelic trip. From memory you'd be looking at maybe 20 magic mushrooms before any kind of trip...

I would go with ear plugs. Katy Perry shouldn't be like watching ACDC or The Who in the 70s and with plugs would the noise be any higher than other things you'll encounter in everyday life?

Your story rings a lot of bells Justme. If I were you I'd get your doctor to prescribe something like diazepam - I had a couple of weeks on a low dose just for the first couple of weeks and like you it's not something I'd ever considered before. Look at it this way -the stress and anxiety...

I am still continuing, I've experienced a reduction in my T, it may or may not be due to HBOT and it isn't a linear improvement but it's real so far and I'm going to keep on doing what I've been doing in the hope it continues. Weighing up the evidence, anecdote and peronal experience that...

I know, I thinking of getting me one of these http://www.halloweencostumes.com/plus-size-mouse-costume.html. Then all I gotta do is break into that lab....

Tempting though it is apparently it is toxic and those links mention something about the protein that stops hair cell regrowth also being a tumour suppressant I think I may wait until we run our own Tinnitus Talk stage 2 trials!!

Beth, be good to hear whether you think the therapy works, but don't feel you have to let us know if staying away is part of the process. Hope it goes well.

Yeah I know but here's one true story. When I got it my missus was on the phone to her dad telling him and he goes yeah I've had that for 20 years. Turns out for the first few months, maybe more, he was like all of us, life was just ruined. Now he says more often than not he can't hear it (...

I think you are mixing up "too well" with " too much". Assuming the implied cause of tinnitus is correct of course. I don't see it as at all problematic to define what a fix would be - eliminate the sound tinnitus sufferers hear or reduce it to a level which no longer causes them stress...

Same here Beth, feel so lacking in energy but I don't know if it's just not sleeping properly.

Do so many sufferers reject them, or do they just reject them as being as good an outcome as a cure?

I don't see why the fact some noise may or not be normal is a problem in itself - if a cure is possible then why not cure it for anyone that finds it impacts negatively on their life? Beth - I don't see why we shouldn't try and cure it - if a high pitched tone is a normal physiological sound...

For me waking up is the worst, the momentary realisation of another day with this condition, the fact I have no chance of drifting back off to sleep even if I'm not working. Last night I woke at 2.30 am from a dream straight into high pitched ringing in my ears, took an hour to drop off to...

Well the first named author is a hospital doctor in Lodz, Poland. Googling it this or a similar treatment seems to be something they are trying for depression? I don't know but maybe you can already get this treatment if you contact them and ask - if I lived nearby I think I'd give it a shot.

http://www.ncbi.nlm.nih.gov/pubmed/18552045 I mean they've only had 7 years since this study :cry:

Indeed, but also promising. I guess for treatments to be developed there needs to be a realistic prospect of a financial return - maybe drugs companies are just more geared up for delivering drug treatments rather than something like this ? I'm just guessing though - would love to be proved...

Thanks. I haven't seen much evidence of adverse affects though I take your point tinnitus sufferers are a specific population who may be at an increased risk of complications that wouldn't show up in studies. I'd certainly take any evidence about the risks on board. I admit the evidence...

Seems to me unless anyone is privy to the results we just don't know yet whether am101 will work for those who have had T a while compared to those in the acute phase. However IF it's true that effectiveness does not drop off over 3 months that would at least offer realistic hope that it...

Glad to hear you've had some improvement Roy. I've had three sessions so far, I'm planning on two a week which while not ideal is all I can make at this centre with my work (centre is open 3 days a week). Early experiences are that a few hours after the session my T is slightly worse, but...

Can anyone advise me on ear plugs. My daughter has started going to see bands, I can't stop her but she is conducive to wearing earplugs, she's always been a bit of a worrier so I think she really would wear them not just say so to appease me. I'm going to get some for myself too but I...

The only advice I can give you is while being a law student may be stressful at times, the stress of always thinking you haven't followed your dreams isn't to be underestimated either.

Ecstacy being so common there must be enough anecdotal evidence out there - though maybe it's more common amongst people who are young and tinnitus is more prevalent in a more mature (!) population so that might limit the numbers who have/tried T and mdma. I've never tried it, must admit I...

I take your point Dr. Nagler - but it does kind of imply you need to present your brain with a list of priorities to ignore the T - but what about those times you just want to relax. You sit in your house in a quiet room and you notice the little things you walk past every day - sure I can...

Hey Puddytat - I'm in Derby so you are just down the road from me. It is a more common problem than you realise - well than I realised anyway - so many have just learnt to live with it but at least that shows that most people can learn to live with it. I know that sounds awful - I don't want...

I know all the sensible stuff is right - but yeah sometimes you do just want to say why the **** can't they just hurry up and cure it .

I have my second session tomorrow in Nottingham. Nothing I can add that hasn't already been said but I'll keep you all updated how things go.

I suppose from a research point of view they would rather collate the data and publish their results based on their own interpretation rather than have things leak out via forums like this. There may even be commercial considerations to do with keeping information away from competitors as long...

Why would it not ? Genuine rather than a rhetorical question - I haven't seen anything other than some vague untested hypotheses why it wouldn't - if it works at all that is.

OK thanks. I will have a look around, it may be this place can recommend another locally as they aren't a profit making concern. Phoning them tomorrow will report back if I book some sessions.

I have found an HBO centre close to me which appears to be quite cheap - at least on their website it does they aren't open at weekends for me to enquire. As I'm still fairly on in having T I thought I might give it a go for the sake of what it costs and the fact the only advice my doctor has...

Thanks, did anyone else find it kept saying you entered the wrong code even if you didn't ?

Sorry to read you are having such a rough time Neenie. Definitely stick with your studies, I've quit a lot of things in my life I should have stuck at, the only thing worse than the tinnitus would be having the tinnitus and nothing in your life to focus on either. Christ I sound like some...

Well I woke up this morning and the high pitched ringing had completely gone, vanished.....for about 2 minutes ! Blimey what a life eh, I can see how you get used to it enough to live with it but I can't see it ever being a non issue, it's those quiet moments when you just want to relax...

OK quick update, yesterday I went down to my doctor's surgery and left im a letter asking him to put my name forwards for the clinical trial - as the guy running the trial asked. I'll go back and check if he's done it tomorrow.

Ah sorry it was the Fish's story and another guy already linked on here - though Fish's outcome looks positive doesn't it. I think I'll see if my doctor will put me forwards, I can be assessed and think about it then, if I wait I'll miss the boat and it may be too late. I may not fit the...

Ps - I promise to read this whole thread too - haven't sone so yet - just wanted some opinions and thought better to add it here.

I have a possibility of applying for an AM101 trial for acute (recent onset) tinnitus. I would welcome any opinions on whether I should ask my doctor to put me forwards for this? I know there must be some element of risk and I may end up getting a placebo - on the other hand I don't want to...

Thanks. I don't know what to say really. Today was better than yesterday, not looking forwards to going to bed though! On a positive side I did propose to my other half and she said yes - I've been meaning to for ages so not just brought on by this - we've been together 27 years anyway...

Just thought I'd introduce myself. 45 year old. Started getting a high pitched noise in my ears a little over a week ago, initially mornings on waking up but this has become pretty much continuous. It has been keeping me awake and pretty much dominating my life - according to my doctor...