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  1. Aklara319

    Poll: TMJD-like Facial Pain After Acoustic Trauma

    Thanks for the well wishes, @eagerUser. I'm finding magnesium and cyclobenzaprine (10mg) at night to be helpful. Great to see a few answers to the poll. It's helpful to know that I'm not the only one experiencing weird noise-induced symptoms.
  2. Aklara319

    Poll: TMJD-like Facial Pain After Acoustic Trauma

    Hi all, I am suffering from fullness, spasms, and TMJD-like pain in my jaw and neck after a night out at a nightclub. It has been a year now with some (limited) improvement. I was wondering how many of you have had a similar experience after a noise trauma? Feel free to leave comments if...
  3. Aklara319

    When I Open My Mouth or Smile, My Eardrum Vibrates and Feel Some Pain — Is It a TMJ Issue?

    Bumping this--I have the exact same issue. Never had TMD or jaw pain before. Then an ear infection on plane led to flutters. A few weeks later, I went to a nightclub and walked out with tinnitus, worse spasms, and the next day developed classic TMD symptoms. Jaw/ear muscles hurt when I talk...
  4. Aklara319

    Has anyone developed serious TMJ symptoms after an acoustic trauma? No H, but pain when when...

    Has anyone developed serious TMJ symptoms after an acoustic trauma? No H, but pain when when talking and chewing+flutters. TMJ MRI/CT normal
  5. Aklara319

    TTTS Symptoms

    Hi all, I'd be very grateful for your thoughts. It's been nearly a year since I went to the club that gave me a barrage of ear problems. Before I went to the club, I'd already developed fluttering (when I yawned or belched) after flying while sick. But the loud music caused high-pitched...
  6. Aklara319

    Update: 7 Weeks In — Pitch Gone Up, Ear Fluttering in Response to Percussive Sounds

    It’s ok. I’m mostly pain free but get bad episodes that last days with tightness if I belch with mouth closed. Still tugging sensation in ear if I raise eyebrows. Tinnitus is the same. Just under 8 months now.
  7. Aklara319

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Relentless negativity is also a coping mechanism. You get the benefit if it works and do not suffer the same disappointment if it doesn’t! Anyways, this thread really hasn’t/won’t change until something new comes out.
  8. Aklara319

    Lyrica (prescribed for infection/noise-induced TTTS) takes my tinnitus down to a 1.

    Lyrica (prescribed for infection/noise-induced TTTS) takes my tinnitus down to a 1.
  9. Aklara319

    MuteButton

    Realistically, what will make or break Neuromod is insurance company/public health care approval! The big money’s with the VA—they’re even following a bunch of Veterans’ providers on Twitter. This site’s helpful for individual end users though!
  10. Aklara319

    I know I've asked this on the "Support" page, but if anyone has dealt with something similar or...

    I know I've asked this on the "Support" page, but if anyone has dealt with something similar or has any ideas, I'm all ears (or at least if they aren't hurting). Dentist wants me to get an MRI of my TMJ, but I just find it such a stretch. I've had a slightly deviated mandible for years, but it...
  11. Aklara319

    I'd be fine with just the tinnitus. But how can noise cause TMJ symptoms? Never had jaw pain, go...

    I'd be fine with just the tinnitus. But how can noise cause TMJ symptoms? Never had jaw pain, go to club, pain with talking, chewing, no H.
  12. Aklara319

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    It doesn't work for mechanical issues like ETD.
  13. Aklara319

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    Presumably, the only type of tinnitus that it will not have a chance of helping is objective (muscular or vascular) tinnitus.
  14. Aklara319

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    Just thinking over the numbers: if Dr. O'Neill said that around 66% received a clinically significant improvement, doesn't that mean that they improved by at least 13 points on the TFI scale? That's the marker of clinical significance. If that's the case, it's a pretty strong result and in line...
  15. Aklara319

    Help with Symptoms — Ear Ache, Fluttering, Almost TMJ-Like Symptoms

    Thanks for the resources, @Greg Sacramento
  16. Aklara319

    Help with Symptoms — Ear Ache, Fluttering, Almost TMJ-Like Symptoms

    Thanks @Contrast . The dental hypothesis seems dumb. My only sticking point is that the spasming predates my acoustic trauma. It began about a week after I had a bad ear pressure issue on a flight. That may have compromised my ears ahead of the acoustic trauma? Just odd (and I guess fortunate)...
  17. Aklara319

    Help with Symptoms — Ear Ache, Fluttering, Almost TMJ-Like Symptoms

    I need some advice: I have constant tinnitus since a night-club about six months ago. I had some weird ear fluttering, without any other symptoms, for a month before the acoustic trauma (after a virus). I never had ear pain or jaw pain prior. But my symptoms are strange and don't fit any...
  18. Aklara319

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    The best we can do is wait for the study to come out, rely on users' experiences with the device, and clinicians' advice with respect to our unique symptoms. Speculation doesn't move the needle at all. Without going off-topic, I had the opportunity to meet with the Canadian branch of the...
  19. Aklara319

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    Agreed. In other threads, these same people complain that researchers and clinicians don't take tinnitus seriously. When academics like Shore, Sedley, Roberts, O'Neill etc. dedicate their careers to mapping out a model for tinnitus (which is under-appreciated) and focusing on treatment-based...
  20. Aklara319

    New University of Michigan Tinnitus Discovery — Signal Timing

    That Reddit user didn't meet with Susan Shore. He/she met with Dr. Larry Roberts at McMaster University.
  21. Aklara319

    New University of Michigan Tinnitus Discovery — Signal Timing

    I met with Larry Roberts. It's not a separate project. He's working with Susan Shore and the Michigan device. I was assessed, spoke with him for an hour, and am on standby for a future trial (my tinnitus is too new). Flies under the radar, but he basically founded this line of research. Also...
  22. Aklara319

    6 months, no change. Guess this is "chronic" now. Great to be 23

    6 months, no change. Guess this is "chronic" now. Great to be 23
  23. Aklara319

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    I mean if they used 10 cases like Clare and the lady in the video whose tinnitus went away, that'd misrepresent what this is. Then you'd buy it, be disappointed, and write negative reviews on forums. This isn't a cure and was never suggested to be one. But it may help a lot of people.
  24. Aklara319

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    I’m confused. Isn’t it a good thing that they’re not overpromising? There are cases with better results (one who posted on this forum) that Neuromod didn’t use for promotion. Why would you want them to misrepresent the range of outcomes by only choosing the best? I'll take reality over a few...
  25. Aklara319

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    This isn't the Salk Vaccine or Maxalt. I swear, people on here get angry over promises that were never made. There's a reason they didn't just pick the 10 best outcomes and market those. This isn't a cure.
  26. Aklara319

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  27. Aklara319

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    On another note, not sure why people are doubting this tech. Will it be a panacea? Probably not at first. But the fact that four labs are independently working on the same modality means something. TENT-A2 did have positive results. As they wrote in their presentation overview:
  28. Aklara319

    TTTS Symptoms

    Just to add: my left side has pretty much all of the symptoms. My right ear might have tinnitus as well, but it's so low it's impossible to tell. I rarely get fluttering/jaw pain on that side.
  29. Aklara319

    TTTS Symptoms

    Hi everyone, I have posted elsewhere on the forum, but am looking for advice regarding the ear pain I have been experiencing for five months. A brief overview of my story: at the end of August, I flew home and suffered ear pressure equalization issues while landing. I had difficulty hearing for...
  30. Aklara319

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    Their primary outcome measures were THI & TFI and they also measured MML (an exploratory measure). Dr. Ross O'Neill said in the Q&A that they saw clinically significant improvements in all outcome measures.
  31. Aklara319

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    What can be taken from this: (1) An 84% compliance rate suggests ease of use and (perhaps) at least some degree of efficacy, considering that the device must be used daily over 12 weeks. (2) The greatest therapeutic effects were observed within the first 6 weeks. (3) Most importantly, the...
  32. Aklara319

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    Podium description from Neuromod's next presentation. Accidentally "published" and postdated to March 3.
  33. Aklara319

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    Law student here. You can absolutely sell your IP without a trademark. Trademarks apply to the mark’s distinctiveness (ie. for branding) and not to a competitor’s ability to copy the product. As long as they have a patent, their IP is protected. If they don’t have a trademark, they can still...
  34. Aklara319

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    As I wrote elsewhere, in the Q&A, Dr. O'Neill says that they're looking at an initial release in Ireland and "thereafter, [they're] looking at a number of European countries." This seems to suggest a preliminary Ireland release. If anything, it's good news that their European release is in...
  35. Aklara319

    In the Q+A, Dr. O'Neill says that they're looking at an initial release in Ireland and...

    In the Q+A, Dr. O'Neill says that they're looking at an initial release in Ireland and "thereafter, we're looking at a number of European countries." This seems to suggest a preliminary Ireland release. If anything, it's good news that their European release is in September. They'd likely want...
  36. Aklara319

    Does this also apply to the Ireland release? Thought that was supposed to be first quarter?

    Does this also apply to the Ireland release? Thought that was supposed to be first quarter?
  37. Aklara319

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    I'm assuming the dotted line is baseline--the slide is titled "Sustained Therapeutic Effects: Baseline-12 months)" and the bottom line ("Arm 1," which clinically outperforms "Arm 3") might say "synchronous"? (i.e. auditory and tongue-tip stimulation?). Arm 3 is likely either a placebo or a...
  38. Aklara319

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    Don't usually post here, but I stumbled on this results slide from a Neuromod presentation. It's pretty low res. If someone can decipher/enhance it, might be something! And the ENT who tweeted this seems to have been impressed...
  39. Aklara319

    My Story Started 2 Months Ago

    Yeah, get that checked out. In my case, I was assessed for a TMJ issue, which I found to be unlikely. Never had a jaw problem and then I suddenly develop one now after ear-related incidents? Unlikely, but worth investigating! Just try to be patient and optimistic. If it’s nerve pain or muscle...
  40. Aklara319

    My Story Started 2 Months Ago

    Hi OP, Don’t usually comment, but I saw this and noticed that you might be going through something similar as me. With the spasming not synchronized with your heart, fullness, and tickling feeling, as well as pain and numbness in your ear and face, it could very well be an issue with the...
  41. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Nah, did speech in noise with no issues and I don’t have noticeable hyperacusis. If I have hidden hearing loss, it’s not something I can detect. I mean I obviously have some degree of hearing loss—to the extent that everyone over the age of two days does. My oral surgeon thinks that the pain...
  42. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Been doing some weekly physical therapy and massage. But I think that my pain is ear muscle related, and not from the TMJ.
  43. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Stabilization splint for nighttime wear. I don't think it helped much though, to be honest. I'll keep wearing it anyways. Can't hurt!
  44. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    UPDATE: The volume seems to be getting consistently lower, even when I plug my ears. More often a hiss with a light tone than "ringing"--even when I plug my ears. Is this habituation? Jaw and ears still feel "tight."
  45. Aklara319

    Anyone have tips for TTTS with ear/jaw pain?

    Anyone have tips for TTTS with ear/jaw pain?
  46. Aklara319

    Sitting in silence and the tinnitus seems more distant. Softer. Like light chimes. Might just be...

    Sitting in silence and the tinnitus seems more distant. Softer. Like light chimes. Might just be habituation, but I much prefer this.
  47. Aklara319

    No progress in terms of loudness (12 weeks since club), but it’s not bothering me as much...

    No progress in terms of loudness (12 weeks since club), but it’s not bothering me as much. Obviously would rather it fade—giving it time!
  48. Aklara319

    About 11 weeks @New Guy! Noise induced from a club. Hope things keep improving.

    About 11 weeks @New Guy! Noise induced from a club. Hope things keep improving.
  49. Aklara319

    @New Guy Yeah man. Hopefully those lulls become the norm. I start the day with a low hiss and it...

    @New Guy Yeah man. Hopefully those lulls become the norm. I start the day with a low hiss and it progresses to a tone by the evening. Definitely wasn’t like that the first month.
  50. Aklara319

    Is it a good sign for T to be quieter in the morning? Goes from barely audible to a distinct...

    Is it a good sign for T to be quieter in the morning? Goes from barely audible to a distinct ring a few hours later. Wasn’t always the case.
  51. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Hi @Contrast. It's more of an ache. It can feel like a sharp pain at times. I haven't noticed that noise causes pain and things do not seem abnormally loud. I've obviously become a lot more "aware" of noise, but the ear/jaw pain can come at seemingly random times (ie. mornings). The side with...
  52. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    If anyone has any ideas, please let me know. The pain is bad. My ENT can't explain it and I don't know where to look.
  53. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    I've actually been wearing a stabilization splint at night for two weeks, but am still getting the pain. Can loud noise really lead to TMJ? I walked out of the club and my ears were ringing immediately after. But the tinnitus is louder on the side with the higher level of pain, fluttering, and...
  54. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Fair @dpdx. I do not intend on having the MRI. That's why I'm wondering whether the good folk of this site can help me get to the bottom of this pain. The tinnitus is manageable right now, and any fading over time would be as good as a cure (since the baseline is low). My issue is the jaw, neck...
  55. Aklara319

    Introduction — Tinnitus After a Night at a Club — Also Diagnosed with TMJD

    Hi everyone. Thought I'd do a 12 week update: Tinnitus: I got my tinnitus after a nightclub. It is mild, bilateral, tonal and can only be heard in quiet rooms. It is even quieter in the mornings, but usually returns to baseline by nighttime. I have had a few days with lower baselines (ie...
  56. Aklara319

    Can TMJ Issues Predispose You to Noise-Induced Tinnitus?

    The title says it all. I've had TMJ pain ever since a club-related acoustic trauma two months ago. I'm thinking that it could be related to the middle ear muscles. Is it worth pursuing TMJ-related treatments and diagnostic testing?
  57. Aklara319

    Hyperbaric Oxygen Therapy

    I’m not going to continue on with the treatment. The studies I read suggested to do 10 sessions and to evaluate your progress at that point. I noticed spikes, but they only lasted a few hours. By the next morning, all was normal. I took a B complex before tinnitus and will continue to do so. I...
  58. Aklara319

    Hyperbaric Oxygen Therapy

    I completed 10 sessions. I didn't notice a difference, but the effects may manifest in the short-medium term. I don't regret it, since I was well within the range of reported effectiveness. My tinnitus is minor, and if it fades in the next few months and I don't know exactly what caused it to do...
  59. Aklara319

    Acoustic Trauma: 2 Months Later

    I never had detectable hearing loss. I've done 3 audiograms and all came back normal (can hear up to around 16k and do not have speech-in-noise issues).
  60. Aklara319

    Acoustic Trauma: 2 Months Later

    Hi everyone, Today's my two month anniversary of noise-induced tinnitus! Unfortunately, I haven't really noticed any changes. I can still only hear it in quiet rooms, which is a blessing. But the fact that it hasn't improved has me a down because I'm worrying that this could be forever and that...