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  1. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, @Lane Thanks for the recommendation about DMSO. For now, I'm only using meds that my physicians approve, but I hope you have good results with it. Keep us updated on your progress. Others may want to try it. Warm regards, Donna (SillyMama)
  2. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Just a check-in. Still 100% sure that my tinnitus is somatic and originates in a muscle instead of somewhere in my brain. Still gets worse during stress. I'm convinced that my habit of clenching my teeth, and the MANY associated muscles are the cause. However, magnesium supplements and...
  3. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    @Marianne F @KWC Hi, Marianne & Ken, Ken, thanks for the report on cold laser; I'm sorry it didn't help. I haven't tried it yet. My audiologist says I do have hearing loss (actually in both ears) but it hasn't annoyed my family to the point that they've asked me to get the recommended...
  4. SillyMama

    My Turn for Your Support — Woke Up with Sudden Hearing Loss and Severe Vertigo

    Hi, @billie48 I am so sorry you're going through this! I read through the replies from other members and it sounds like they have great advice. This may not address your circumstances at all, but I felt compelled to add that when I first got tinnitus, I *thought* I had vertigo because I had...
  5. SillyMama

    Do You Hear Chirping Birds?

    Yes, although I described it as "soprano crickets on steroids." It waxes and wanes. At this point I'm convinced mine is somatic tinnitus and is related to carrying stress in my neck and jaw. I have not yet, however, been able to unlearn that habit...
  6. SillyMama

    Poll: Is One of Your Tinnitus Sounds "Cicadas", "Chirping Birds"?

    When mine started, I described it as "soprano crickets on steroids." I'm sorry I couldn't click more of the buttons on the poll. Some days it' has been constant, but once it went away for the better part of a year...
  7. SillyMama

    Chirping, Zapping Tinnitus

    Hi, @WildMan and @Rafaa I am so sorry you're going through this. There is a small group of us who describe our tinnitus as chirping... and usually intermittent, which seems different from the other types of tinnitus. I have become convinced that mine is somatic, and related to tension in my...
  8. SillyMama

    I’m Losing It: Hearing a High-Pitched Chirping Noise — Is This Tinnitus or My Neighbor Making Noise?

    Hi, Zach, There is a small group of us here who commonly describe our tinnitus as chirping. When mine started, I described it as "soprano crickets on steroids." But it was intermittent, worse at some times, better at others. After 3 years of this, I'm convinced that mine is somatic and related...
  9. SillyMama

    Rapidly Fluctuating Unsteady Tinnitus Tone: Impossible Get Habituated!

    Hi, @dudeguywithstuff I'm sorry I never saw your post until now. There IS a group of us here with this intermittent chirping tinnitus. My tinnitus once disappeared for nearly a year, and it still comes and goes in a rather erratic fashion. After 3 years of this, I'm convinced that mine is...
  10. SillyMama

    Did My Tinnitus Come from Outer Ear Infection, Impacted Wisdom Tooth, or Something Else?

    Hi, @Jaskaran I'm so sorry you're getting different answers from different doctors. Most of us here have had that experience. Nobody really knows what causes tinnitus for sure and most docs don't know very much about it. I can't answer your question about the drops, but I think health care may...
  11. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    @KWC, Hi, Ken, Thank you for posting! I haven't tried cold laser *yet* but I told my TMJ doc that I didn't want to take it off the table as a possiblity. I am eager to hear of your results. I'm learning to manipulate my sound, too. I know that mine (like most of us with this kind of tinnitus)...
  12. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Marianne and DoggoneT, Thanks for posting your progress. I’m realizing that I have an unconscious habit of tending muscles in my face and jaw. That seems to initiate episodes of tinnitus. Figuring out how to *not* do that (unconsciously) is not easy. But it helps me intervene to keep...
  13. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Marianne, I'm actually moving away from thinking mine is an upper cervical issue... I've recently discovered that it can help if I carefully massage my left TMJ region. (My tinnitus is in my left ear.) Sometimes I can reduce it or stop it that way. I'm also getting better at intentionally...
  14. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, I read the whole article, which was pretty much entirely about a fibromyalgia treatment. That poor woman. I'm so glad that the chiropractor could help her. But her circumstances, and the signs and symptoms of painful fibromyalgia don't seem relevant to me. That husband's lengthy testimonial...
  15. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Marianne, Yes, I'm *trying* to keep using the Alexander Technique. It's difficult to stay mindful of posture, but it does help me. I especially try to use it at my computer and while driving. I also just finished about 3 months trying chiropractic, which made no difference at all for me...
  16. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Greg, Thanks for posting the reference. Because of a previous career, reading them was actually "in my lane." It's mostly a list of normal anatomical/nerve associations, and already known syndromes or conditions. None of these describe me. I continue my quest... Warm best wishes.
  17. SillyMama

    Tinnitus for Three Weeks — Looking for Support

    Hi, @Adrianfox , Just wanted to share that I have intermittent tinnitus that I first described as the sound of "soprano crickets on steroids." I'm certain mine is somatic, and I asked the dentist/specialist that treats my TMJ issues if he had heard of this. He said he certainly had, and he...
  18. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Greg, Thanks for your kind responses. I started my journey with my personal physician, then an ENT specialist, then my TMJ dentist/specialist. So I'm not hiding in a self-diagnosing denial. My TMJ doc prescribed the Magnesium, and it *does* help. My blood labs are recent, my BP is managed...
  19. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Doggone T; No eye surgery in my history... so that's not an obvious link for us.
  20. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Hi, Greg, it's unclear if you have the somatic tinnitus with visual disturbances that we're posting about. Can you elaborate, specifically, what you meant for "extension therapy?" I'm willing to try anything specific, especially since many of the things I've tried so far *do* help somewhat.
  21. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    The supplement I've been using is a powder that dissolves in a cup of water. Its name is "Natural Calm" and is made by the "Natural Vitality" company. I've been told by a local health food store that the "Bluebonnet" company also makes a similar product which is less expensive.
  22. SillyMama

    Another (New) Tinnitus Sufferer — What I Have Learned So Far

    @winnitus The "vertigo/disorientation" that I experience is always synced with my tinnitus sound. I am now 100% convinced it's from upper cervical muscles. I think that the magnesium supplement my TMJ doc suggested *is* helping. My symptoms are currently minimal.
  23. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Reporting back on my experiences. I'm certain now that my tinnitus and the shaky vision that syncs with it are caused by one or some of the head/neck muscles. So my tinnitus can be called somatic, or external. In addition to using all of the above therapies, I also use a night guard (bite...
  24. SillyMama

    My Story Started 2 Months Ago

    I hope your TMJ specialist can give you some relief from the pain. Years ago, I went to my regular doctor because I thought I had an earache... But it wasn't my ear. It was my jaw, which rarely hurts now after teaming up with a TMJ doctor for treatment. Best wishes.
  25. SillyMama

    New Here, New to Tinnitus

    Hi, Morgan, I also have intermittent tinnitus that chirps like crickets, (and lately more like Morse code - I like that description). The louder the tinnitus the higher the pitch. Mine disappeared for 10 months, but both onsets were associated with an intense season at work. I'm still dealing...
  26. SillyMama

    Another (New) Tinnitus Sufferer — What I Have Learned So Far

    Thanks for posting the suggestions. I have intermittent tinnitus that I think is muscle-related, and relaxation exercises are helping some. My ENT was completely disinterested, but my TMJ doc cares. He recently suggested a magnesium supplement to help calm over-tense muscles. I'm becoming...
  27. SillyMama

    Do I Have Objective Tinnitus?

    Thank you VERY much, Greg! I'm off on the trail to research cervical spondylosis now. :-) I appreciate the suggestion. That sounds like it could be a very likely contributor to my sumptoms.
  28. SillyMama

    Do I Have Objective Tinnitus?

    I hear this as well. It's taken me 16 months to figure out that my chirping sounds *may* be objective tinnitus. Mine is intermittent, and gets better/or worse with different head/neck positions. I've been reading lately about Palatal Myoclonus and Middle Ear Myoclonus. Still hopeful I'll find...
  29. SillyMama

    Help — My Husband Was Diagnosed with Cortical Hearing Loss, Vertigo, Severe Tinnitus

    Thanks Billie, I actually first went to see an ENT doc with my "self-diagnosed" BPPV, and he told me flatly that BPPV doesn't present with tinnitus. He couldn't have seemed less interested, but he was willing to schedule me with the rotating chair sets of tests to try to replicate it... then we...
  30. SillyMama

    Help — My Husband Was Diagnosed with Cortical Hearing Loss, Vertigo, Severe Tinnitus

    When my intermittent tinnitus started, I called it vertigo with tinnitus. Later I realized that when my tinnitus pulses, it somehow causes my eyes to jerk. Because what we see helps tell us where we are in space, this feels similar to vertigo. There are a few of us here that report this...
  31. SillyMama

    New Member — Advice on Habituating to Intermittent Tinnitus?

    Hi, Annie, There seems to be a small subset of us with intermittent tinnitus. Several of us describe our tinnitus as "high-pitched cricket" sounds. I think I've identified about 5 of us with this so far. Since you said yours was intermittent, I wondered if this (cricket sounds) description...
  32. SillyMama

    Thoughts on Causes, Request to See If Other People Have Similar Symptoms, Seeking Help-Support

    It may be "Exploding Head Syndrome." No joke. It's a thing, and it's happened to me a couple of times in my life. Here's a quote off the Internet: "Exploding head syndrome is a type of parasomnia. Parasomnias are a category of sleep disorders that occur during the transitions between sleep and...
  33. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    And... while reading in the forum for "Alternative Treatments and Research," rtwombly posted a video link on massage of musculoskeletal trigger points: I will be trying this, too.
  34. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Okay, my first lesson in Alexander Technique is scheduled for January 2... In the meantime, I also found that I can stop a new tinnitus/shaky eye episode using a series of accupressure taps. In desperation, I've poked nearly every inch of my neck and cranium, and got nowhere. However, I found...
  35. SillyMama

    New Here — Tinnitus with Shaky Vision

    Hi, DoggoneT. I started a new post with a similar header, hoping to find more of us with these shaky vision symptoms when our tinnitus pulses. So far, it looks like I've found 4 of us. If we four found our way here, there are probably hundreds out there with this weird mix. I'm trying some...
  36. SillyMama

    I Need Some Advice or Guidance — Possible TMJ? Upper Cervical Chiropractor Experiences?

    Thanks jmasterj. Are you having any eye movement with pulses of tinnitus? When mine started, I called it vertigo, but it's really just my eyes jerking with the tinnitus noise. That makes me feel off-balance, but I'm not truly dizzy.
  37. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    Thank you ganga66, for posting. Now there are 4 of us. I will report back on my progress.
  38. SillyMama

    I Need Some Advice or Guidance — Possible TMJ? Upper Cervical Chiropractor Experiences?

    Hi, jmasterj, I'm dealing with intermittent tinnitus that changes with my head/neck position. Sometimes it's louder or quieter, and sometimes I can even get it to stop, but I can't figure out how to maintain a position that keeps it stopped. For example, in commuter driving, starting and...
  39. SillyMama

    Tinnitus with Shaky, Jerky Vision (and Possible Improvement with Alexander Technique)

    My tinnitus began in August 2017. I hear high pitched crickets, which pulse intermittently (but not in a rhythmic way), and which come and go rather randomly. When the crickets chirp, my eyes jerk. The louder the sound, the bigger the jerk. Initially I called it vertigo with tinnitus, because...