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  1. Kam75

    To be honest I was king of scared to take it, as I don't want my body to get used to another...

    To be honest I was king of scared to take it, as I don't want my body to get used to another drug and then have to take a stronger one. It is really safe? I only took it once. I didn't see any difference, but maybe I'll consider take it more often Thanks for the advice!
  2. Kam75

    I did manage to lower Mirtazapine to 15mg, but after some months, my sleep was catastrophic...

    I did manage to lower Mirtazapine to 15mg, but after some months, my sleep was catastrophic again so my psychiatrist prescribed 45mg again. He did prescribed me Quetiapine as well last time I saw him. He told me that it is stronger than Alimemazine.
  3. Kam75

    New Sound Therapy? Enriched Acoustic Environment (A Sequence of Gammatones)

    Salut Frédéric, thanks for sharing. It seems to be another therapy that only reduces tinnitus distress, rather than the actual volume of the tinnitus.
  4. Kam75

    My Somewhat Success Story: What Helped Keep My Tinnitus Away for 3 Years

    Happy for you. Unfortunately, noise-induced tinnitus never completely goes away. Enjoy your life as much as you can, especially now that you are able to.
  5. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Honestly, and sadly, no one seems to care about tinnitus. There are illnesses that receive much more attention and interest, such as AIDS, cancer, and others. Finding cures for those conditions is seen as highly rewarding. But tinnitus? Most people simply do not care. Many are not even aware...
  6. Kam75

    Unfortunately, I can't give you any advice as any of the medications I mentioned no longer help...

    Unfortunately, I can't give you any advice as any of the medications I mentioned no longer help. I'm not even sure whether it's the tinnitus that's getting worse or whether the body is getting used to the treatments, making them ineffective. I think it's a combination of both.
  7. Kam75

    Hello Marcello. Sadly my sleep is only getting worse. All the treatments prescribed by my...

    Hello Marcello. Sadly my sleep is only getting worse. All the treatments prescribed by my psychiatrist are no longer working (45 mg Mirtazapine, melatonin, Alimemazine). I'm totally desperate. I've been suffering from noise trauma for 6 years now, and it's only getting worse. Fortunately I'm...
  8. Kam75

    Neosensory — Bimodal Stimulation Device for Tinnitus: Any Reviews? A Scam or Not?

    On their homepage, it reads "All products are currently out of stock".
  9. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hi @slc, I’m so sorry I missed your message. I’ve been away from Tinnitus Talk for almost two months—the longest break I’ve ever taken from the site. I just logged in today. I hope everything is okay with you.
  10. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    All joking aside, I’ve always wondered what would happen to Susan Shore’s device if she were to pass away before it could be brought to market.
  11. Kam75

    Cilcare's CIL001 Targets Cochlear Synaptopathy — An American/French Collaboration

    I'm glad I can hear a video on TInnitus Talk in my mother tongue! :)
  12. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hi @delta784, I’m so sorry to hear what you’re going through. My tinnitus also worsened because of an anti-inflammatory medication (Naproxen) that a doctor prescribed for foot pain. It’s true that some types of anti-inflammatory drugs are ototoxic, and this has been proven. Stay strong. I...
  13. Kam75

    Are There Tinnitus Sufferers in Paris, France?

    Hello, I am reaching out, like throwing a message in a bottle into the sea. I will not go into too much detail about my story, as it would take pages, but essentially, I am someone enduring extreme suffering because of tinnitus. I have been living with severe, disabling tinnitus for six years...
  14. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Unfortunately, I agree. This aligns with what I said earlier: if 2026 is unrealistic, I don’t think the device will be available in the U.S. before 2030, and likely not before 2035 in other countries. :( I really hope I’m wrong because my tinnitus keeps getting worse, and I’m only 33 years old...
  15. Kam75

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    Wow! Thanks for sharing! Is this good news or excellent news for us tinnitus sufferers?
  16. Kam75

    Seeking Insights on Psychedelic-Assisted Therapy for Tinnitus: Ketamine, Psilocybin, or Ibogaine?

    Czesc Krzysztof, this reminds me of a Tinnitus Talk member who claimed that psilocybin "basically cured" his tinnitus. You can find his testimony here.
  17. Kam75

    Sea Pharmaceuticals — Oral Neurotherapeutics for Tinnitus, Epilepsy, and ALS

    Wow, wow, wow! It’s a pleasure to read articles like this. It gives us a bit of hope when we’re really at rock bottom. Thanks for sharing. I hope we learn more about these findings soon.
  18. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Anyway, @Markku previously mentioned that the timelines discussed here on Tinnitus Talk for the potential launch of Susan Shore’s device are unrealistic. I don’t think the device will be available on the market before 2030, and it likely won’t be accessible outside the United States before...
  19. Kam75

    45 mg of Mirtazapine Doesn't Help Me Sleep — Need Advice for My Disabling Tinnitus

    I wasn’t aware of Ashwagandha. Thanks for the recommendation! I’ll ask my psychiatrist if there are any interactions with Mirtazapine. Many tinnitus sufferers on Tinnitus Talk have also recommended Trazodone for sleep. Unfortunately, it has not been sold in France since 1996.
  20. Kam75

    Commercial Lidocaine Patch as a Treatment for Ear-ringing

    I don’t want to alarm anyone, but I was curious about Lidocaine as a potential treatment, so I read this study on transdermal Lidocaine for chronic subjective tinnitus. I’ll admit I didn’t read it thoroughly, but according to the study, lidocaine administration might actually worsen tinnitus...
  21. Kam75

    Electrical Stimulation of the Cochlea for Treatment of Chronic Disabling Tinnitus

    Given that we recently learned that Dr. Shore's device won't be on the market for years, the new hype seems to be focused on this subject. Seriously, guys, are you really ready to have a device implanted in your ears to alleviate tinnitus? Honestly, it would freak me out. I'm more interested...
  22. Kam75

    Sound Pharmaceuticals (SPI-5557 & SPI-1005)

    With all respect, personally, and even though your opinion might be rational, I think we should stop spreading negativity on Tinnitus Talk. Even the sponsor of this drug (if I understood it correctly) said that it might help noise-induced tinnitus. So maybe it will work for chronic...
  23. Kam75

    Hough Ear Institute's Hair Cell Regeneration Project

    I was reading through some of my old posts on Tinnitus Talk and suddenly remembered about this thread. There have been no updates in this thread for almost a year?
  24. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    This is, unfortunately, not surprising...
  25. Kam75

    Unbearable Tinnitus Spike: I Feel My Mental Health Is Deteriorating

    I heard about Quviviq a long time ago. It is finally available in France. I was thinking about giving it a try. I'm sorry it did not work as expected for you. I'm kind of reluctant to try it, though. As it is a very new treatment, we don't know what side effects could occur in long-term use...
  26. Kam75

    Unbearable Tinnitus Spike: I Feel My Mental Health Is Deteriorating

    Hi Wassim, I can't believe how similar our situations are! I also have severe tinnitus (and hyperacusis) after experiencing a noise trauma at a music festival in 2019, despite wearing custom-made hearing protection. Like you, I've suffered a lot for years - lack of sleep, no social life...
  27. Kam75

    NeuroVR Device: Neurofeedback to Treat Tinnitus

    Hi folks! I come with (bad) news, unfortunately. Some years ago, in this thread, I talked about virtual reality as a treatment for tinnitus, as proposed by the Georges Pompidou Hospital in Paris. It turns out that Dr. Londero didn't offer me to take part in the test protocol. However, I came...
  28. Kam75

    Auditory Mirror Therapy for Treatment of Tinnitus

    Is this device really promising? Why are there only four pages of discussion since 2022, as opposed to Susan Shore's device thread, which has over 200? Is it because this device doesn't really reduce the intensity of tinnitus, but rather the symptoms associated with it? In any case, it's good...
  29. Kam75

    Hi @Yosemite ! Thank you for your message. I reduced the Mirtazapine at the beginning of...

    Hi @Yosemite ! Thank you for your message. I reduced the Mirtazapine at the beginning of January 2024 (I went from 22.5 mg to 15 mg). My condition was "stable" until early March. I think that if Mirtazapine was involved in the deterioration of my sleep, I would have felt the effects after about...
  30. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Hi folks! I used to read this thread several times a day for years. A few months ago, we learned of the very encouraging results of Phase II of Dr. Shore's device. Last I heard, we were waiting for Dr. Shore to submit her device to the FDA, if I remember correctly. What about today? I looked...
  31. Kam75

    My condition has improved over the last few months, I sleep better, my tinnitus is less...

    My condition has improved over the last few months, I sleep better, my tinnitus is less intrusive and thanks to that I've even resumed a social life little by little.
  32. Kam75

    I take 22.5 mg of mirtazapine every night to help me sleep. Up until 1 year ago I was taking the...

    I take 22.5 mg of mirtazapine every night to help me sleep. Up until 1 year ago I was taking the maximum dose (45 mg). Tinnitus can really improve, but it can take a long time (it took me almost 5 years). Stay strong, I'm sure it will get better one day. And don't hang around this forum too...
  33. Kam75

    No, food doesn't affect my tinnitus. As for hearing protection, I wear them every night to sleep...

    No, food doesn't affect my tinnitus. As for hearing protection, I wear them every night to sleep because I'm a sensitive sleeper, and it doesn't cause me any more problems. I also wear them during noisy events to avoid any worsening of the tinnitus.
  34. Kam75

    Hi @4Grace, I'm really sorry for my late reply. I've been going less and less on TinnitusTalk...

    Hi @4Grace, I'm really sorry for my late reply. I've been going less and less on TinnitusTalk recently because I'm doing better regarding tinnitus.
  35. Kam75

    Xenon Pharmaceuticals' XEN1101 — Kv7 Potassium Channel Modulator

    As we say in French, "hope is life". We have a damn incurable disease. So every potential treatment gives us hope, even if we're not sure it will work. It's always better than hearing the perpetual "there's nothing you can do, get used to it" from doctors. Whenever I'm not feeling well, like...
  36. Kam75

    I am very hopeful that Shore's device will help us. It is currently the most promising...

    I am very hopeful that Shore's device will help us. It is currently the most promising treatment. From what I read on Tinnitus Talk it is probably the only option for us in the near future. There is the Ebselen molecule too, but years of testing still need to be done.
  37. Kam75

    It's exactly the same for me, I blamed myself to death for having taken this medication, I cried...

    It's exactly the same for me, I blamed myself to death for having taken this medication, I cried every night. But there is a time when you are resigned and no longer hopeful that it will get better... Fortunately I don't have the feeling that it made my hyperacusis worse.
  38. Kam75

    Like you, I could not imagine that it would make my tinnitus worse, especially since I could...

    Like you, I could not imagine that it would make my tinnitus worse, especially since I could have done without the damn drug. My advice is really to stay away from any potentially ototoxic medication. I really hope you'll get better though.
  39. Kam75

    Hi @yeezysqueezy, my intention is not to scare you at all, I hate making people panic, but...

    Hi @yeezysqueezy, my intention is not to scare you at all, I hate making people panic, but honesty forces me to tell you that the worsening of the tinnitus caused by Naproxen in 2020 has unfortunately never improved. My sleep is still affected by this.
  40. Kam75

    I am currently on Mirtazapine, an antidepressant that helps me sleep a little, but not...

    I am currently on Mirtazapine, an antidepressant that helps me sleep a little, but not completely. If your tinnitus is recent, it may very well get better or even disappear. Don't give up hope! Shore's device should be on the market in the next year or two and that might help.
  41. Kam75

    Hi @Biaxca! To be very honest with you, there is unfortunately no medication on the market today...

    Hi @Biaxca! To be very honest with you, there is unfortunately no medication on the market today that can even alleviate tinnitus. At the time there was Tobalt, but it was withdrawn from the market because of its serious side effects.
  42. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I asked the same question previously, this is indeed very strange. There is not a single article on the Internet about the positive results of the device. Maybe this is because the information we have is not official? Maybe we will see some articles about it once the results of the Phase II are...
  43. Kam75

    Condescending Boss Making Light of My Tinnitus

    It's such a shame not to have a caring professional hierarchy. My former manager (who is also the director of my company) was compassionate when I told her about my tinnitus. I never miss work either because I stay strong despite the lack of sleep (in 4 years I only had to ask twice to stay at...
  44. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I don't remember my tinnitus being somatic until I took Naproxen in 2020 that greatly and permanently worsened my tinnitus and made one of the sounds somatic. In fact this sound only increases if I open my mouth wide (so when I yawn or when I eat for example). This wasn't the case before. So...
  45. Kam75

    Photo Album of Tinnitus Talk Members

    Hi @El BUZZ, do you really have disabling tinnitus? If so, how on earth do you manage to box? Personally I am so weak from lack of sleep due to tinnitus that I constantly feel extremely weak and wobbly. I feel that if someone brushes up against me in the street I could fall to the ground...
  46. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    I don't really know much about FDA, but maybe (and hopefully) it will not take as much time to authorise the marketing of Susan Shore's device, as it is an American device? :dunno:
  47. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    There is one sentence that is particularly interesting in her email, she says "We are dedicated to bringing this novel therapy to the millions of global sufferers of this terrible affliction". It's already positive just to read that she hopes to help "millions" of people :)
  48. Kam75

    Cannabidiol (CBD) — Epidiolex

    Epidiolex seems to be available in France but it is prescribed for people with epileptic seizures associated with Dravet syndrome. According to what I read, it has no major side effetcs. Do you really think it can help tinnitus? I will talk about it to my psychiatrist next week.
  49. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Many questions remain unanswered for the moment. We only have a small glimpse of the device's potential. We will have to wait for the publication of the full Phase II results to know everything. I hope it will be soon. It's a bit like waiting for the 25th of December for a kid :rolleyes:
  50. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    It also starts to worry me, but I'll try my best to stay positive: what if these cases of worsening aren't really due to the device? I have a personal experience regarding this: I visited a French tinnitus specialist recently who's been taking care of me. One of the things I told him about was...
  51. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Honestly I was kind of surprised to learn that tinnitus helps prevent cognitive decline! I mean, when you're so severely affected by tinnitus, to the point of only sleeping 2 or 3 hours a night, how the hell can lack of sleep contribute to preventing cognitive decline? When you sleep so...
  52. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    My gosh, all this good news is really coming at the right time! It is coming at a time when my tinnitus is terribly intense and makes me sleep very little. I'm not normally one to try a brand new treatment. I am a very suspicious person and a bit of a hypochondriac. But honestly if this device...
  53. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    As a very severe tinnitus sufferer (I have 4 sounds in my head including an ultra high-pitched sound, a dental drill sound and an electric sound), I also literally shed a few tears when I heard the good results of Susan Shore's device. I want to be optimistic like most of you, this disease is...
  54. Kam75

    Neosensory — Bimodal Stimulation Device for Tinnitus: Any Reviews? A Scam or Not?

    The results sound interesting. As a very severe tinnitus sufferer, I think I would give Neosensory a try, if only it was available in France. It it not as expensive as Lenire. I emailed Neosensory last year and they told me "Currently we are only shipping within the United States. If you sign...
  55. Kam75

    I can't help but feel very pessimistic when I see that all potential treatments for tinnitus...

    I can't help but feel very pessimistic when I see that all potential treatments for tinnitus have failed. And even if something does work, if it does, we'll probably be too old to enjoy life. Best regards, and thanks again for your message. It is always good to be able to talk to someone that...
  56. Kam75

    I have also developed hyperacusis. I also feel, like you, that I have wasted my best years...

    I have also developed hyperacusis. I also feel, like you, that I have wasted my best years. I've been single for 6 months and don't know how to find a woman because all the places to meet are noisy. On top of that I can't sleep, even with 45 mg of Mirtazapine + melatonin... These damn sounds...
  57. Kam75

    Hi @KoolKat, thanks for your message. When I had my first tinnitus in 2014, it was so mild...

    Hi @KoolKat, thanks for your message. When I had my first tinnitus in 2014, it was so mild that I was able to live completely normally. It was the sound trauma I had 2019 (so at the age of 28) that propelled me into the Abyss of hell. Since this trauma I have at least 3 more sounds in my head...
  58. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Thank you very much for your hopeful comment, it is to see this type of comment that I consult Tinnitus Talk several times a day. I am in dire need of hope, I don't know why my condition is only getting worse. Even the French tinnitus specialist doesn't understand why antidepressants don't...
  59. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    That is precisely what I am scared of :( If Dr. Susan Shore's device doesn't help us, or if it doesn't help us enough to enjoy life a little bit as before, there will probably be nothing for us in our lifetime. It's terrible to live with the idea that we will probably have to deal with this...
  60. Kam75

    New University of Michigan Tinnitus Discovery — Signal Timing

    Dr. Susan Shore's device is also the only hope I have to hold on to. I really hope we won't be disappointed this time. Tinnitus has literally ruined my life for almost 4 years now. I'm 31, I lost the only girlfriend I had in my life 6 months ago, and now I'm having a terrible time finding a...