Search results for query: *

Hello Pals, Goodness gracious, I can’t believe it’s been two years already! Figured I’d pop back here to update you all on my case. When they say it can take years for your ears to fully recover from a noise exposure They really mean it. Over the past year I’ve continued to slowly and steadily...

I am past two weeks from my second dose of Pfizer. I had soreness at the injection site and took Magnesium for the first couple days in anticipation of muscle stiffness. Other than that I had no side effects or impact on my ears, I’m relieved to be through this process.

The COVID-19 vaccine was actually created using a technology that took decades of research to develop and had already been in clinical trial for vaccination against cancer for years.

@Steph1710, I’m so sorry to hear you’re stuck at such an uncomfortable impasse in your relationship. I only have experience with short term relationships (more trash fire than true love lol), but I still feel for you. Unfortunately there isn’t a super graceful way to end things when a...

I think people like to live in this pretend world where the mind and body are separate and in fact the condition of the body has no impact on the mind (but, at the same time, a bad mindset is why you are so sick you negative Nancy/Nathan). I am habituated, and I’d love to say it was from my...

If your issue is TMJD you need to actually treat your joint problem to improve your symptoms. TMJ issues can often be managed successfully with simple daily stretches. Your orthodontist should be able to refer you for this sort of care. Good luck!

Where it seems we stand: Phase 2a was a flop because instead of the Phase 1b successful patient subtype (moderate to severe loss on audiogram, poor word scores) and dose regime (single dose), they went for a new patient subtype (minimal loss on audiogram, poor word score) and a new dose regime...

I had a friend who would snack on Flintstone's vitamins when his parents weren't around! I always wanted to, but I wouldn't dare lol.

My Dad told me that back in his day they used to pour Tang powder into a bottle of vodka to drink at university parties lol.

2 Week Update: All soreness/stiffness/intense thirst has passed. Tinnitus seems to be as it was, I think I was checking for it more after vaccination which made it seem more intrusive. Weirdly my bad ear has felt less sensitive since my first dose, who knows what’s up with that. I will...

Tuscany is so beautiful! I did a semester in Italy and it was so fantastic, I had such a blast learning about Italian art and drawing from it. It was in my pre-hyperacusis life, so I got to enjoy a couple of loud nights of clubbing :p. I hope I can go back some day!

Are you a spike, because I can no longer imagine my life without u <3

Habituation is what I feel when I’m with u <3

The TMJ joint can actually have a HUGE impact on tinnitus and even hyperacusis. I think that surgery is a reasonable last ditch effort. I wish you luck :huganimation:

@roy1159, what are your jaw problems? What surgery are you pursuing?

One hypothesis of tinnitus is asymmetrical hearing damage that the brain tries to balance out unsuccessfully. Treating both ears could address this potential mechanism of action.

I’ve heard that your 30s are your new 20s because everyone is spending their prime years stuck inside for the pandemic. By that logic you can shave a decade off yourself! If the trend keeps up maybe everyone will be young forever...

Yeah, this is definitely not a DIY treatment to try at home.

My hair is in a similar state! I had grown my hair out super long (down just past the armpit) at the end of 2019 and had decided I was going to start keeping it short again but the pandemic is bringing me back since my last cut :LOL:

@serendipity1996 how has your hyperacusis been lately? I know we used to be in a similar place so I’m curious if we still are!

I would counter with the fact that, while the original intent of the drug was to elevate audiogram and completely reverse hearing loss, increasing word scores is a big deal and can make a huge difference in quality of life for hearing loss patients. I don't expect this drug to save me but I do...

I think it’s too bad mRNA vaccines had to be deployed like this. Bad actors went and have polluted the internet with inaccurate info, and the public has apprehension about a technology that seemingly came from nowhere. If mRNA technology had first been deployed en mass as cancer vaccines and CAR...

I am still MUCH to shy to be posting my face here, but after lurking this thread for a while I wanted to share something. These are some art toys I’ve painted over the last month. I got a bunch of blank guys for Christmas in 2012 and am finally painting them up in 2021! Their names are Lemon and...

I had my first dose of Pfizer on Friday (currently 4 days out). That night I woke up very stiff and with higher tinnitus (somatic reasons I suspect), but it passed by the time morning rolled around. Unfortunately, the next day a passing car honked it's horn while right beside my bad ear so I'm...

Things I’ve learned learned from this thread lately: - there is still reason to be hopeful - being hopeful is a sin and you’re a bad person - the Phase 1b results are unprecedented, this drug could be life changing and usher in a new era of medicine - the Phase 1b results aren’t as good as one...

I have been using a CPAP for one year and I have not had issues with my tinnitus. I will choose to sleep with my bad ear into the pillow if it is feeling irritated. High quality sleep will make dealing with your tinnitus much easier, I recommend using a CPAP if you have OSA.

This is a SUPER common thing to see in the chronic disease patient forum world. Chronic disease is not at all relatable but people THINK they understand from hearing about other people's experience and wind up making sweeping claims. For example "I'd rather have CANCER!" comes up all the...

Oh good to know! When reading up of this I'd always find vague figures, like saying the nerves degrade "over months or possibly years" so I assumed there would be a smaller window to intervene.

Thanks! I think my case is pretty similar to these rat studies (one major, short, trauma with temporary but pretty intense threshold shift) so they're helpful in trying to understand my situation. Hopefully my SGNs stay in good order while I wait for treatment to roll around some day, but I...

I would be really interested in seeing links to papers! I had a wicked threshold shift that left my hearing distorted for months.

IMO even if this drug is only useful in severe cases of hearing loss it will be a success. Once there is a product on the market there will be incentive for better testing tech to be developed and the cash flow can be put into refining this drug and developing other candidates (assuming that...

This forum has been a hotspot of speculation every day for the past year. I think Frequency Therapeutics may have given like 3 solid press releases in that time? Of course now that Frequency Therapeutics has announced results from Phase 2a and their plan for moving forward this thread is going...

That's good to hear. I had been wondering how Hough Ear Institute was doing with their pill. I have a number of non-tinnitus symptoms that I think will require multiple different approaches to resolve, so FX-322 will remain on my radar until either a) it works or b) they figure out why it doesn't.

Guys, it's really important to separate stock and legal talk from actual scientific data. I still have my eye on this drug even though it likely won't be saving me any time soon.

There has been soooooooo much going on here the past week and despite my best efforts I feel a bit out of the loop. Can someone please confirm that I'm up to date? As far as I can tell: -Phase 2a was a big flop, but there is still faith in the drug. The study design was very flawed but it can...

I think the biggest takeaway for me is that we need a better was of measuring auditory signal. Audiogram is flawed... word recognition is flawed... We need a better way to design these studies. IMHO there is so much high quality science behind FX-322 that even if it’s not the answer we were...

I think tinnitus and hyperacusis are experiences that lie outside of normal human empathic ability. When I had my hyperacusis at its worse I was feeling unbearable pain in nerves deep in my ear where I had never felt ANYTHING before. I think it is impossible for normal persons to actually...

All I WNT is for my tinnitus and hyperacusis experience to be nothing but a notch in the belt that is my life ;)

I hope you can return to rhythm gaming too some day! Being in control of the volume makes playing feel much safer. Be warned it gets harder at a low volume when you can't feel the bass as much, so there is an adjustment period lol In the meantime, you might enjoy looking into other quirky games...

I COMPLETELY relate! I didn't play DDR or Project Diva for the better part of a year after my acoustic trauma. I can play again now, but at half the volume as before. I play in my basement, not sure if I could do arcades anymore... they can get pretty loud.

Yeah, I got my trauma mostly in the left ear from a car radio that was insanely loud (more so than any concert I've been to) and I really doubt that ear will ever return to normal. The potential damage is too chaotic at that loudness. Reducing tinnitus and potentially middle ear muscle twitching...

If you look at how sick industrialized life makes people (too much noise, bad air, sedentary lifestyle, crowding) I think we’ve pretty much all been bad from that point of view.

No, the type 2 nerves and the TN irritation were being looked at by two separate researchers.

I missed it! I had been looking forward to it too, oops.

I think that, when it comes to regen, very specific populations have cause to be optimistic and everyone else needs to wait and see. If your issue is hair cell death leading to hearing loss leading to tinnitus (And maybe loudness hyperacusis, not up to date in that area) FX-322 seems to have you...

Hi Michael, I think it is unfair to categorize reading research as a negative activity. While I do agree that making baseless extrapolations of your own doom from mouse studies (which I assume is the sort of behaviour you’re referring to) does happen, most of the research people here engross...

@FGG I have always wanted to know, why “FGG”?

You’re not alone. Around 4/10 hyperacusis patients have asymmetrical symptoms. Generally this is due to the noise from the initial injury being louder on one side than the other.

Hello Pals, It has been a year since my very bad noisy music experience so I wanted to update you all on how it's turned out so far. I have been very lucky that I've been able to work remotely during the pandemic and strictly limit the types of noise I'm exposed to. I would say I'm "habituated"...

I agree with @FGG, this person was irresponsible and put their own frustrations over the importance of this study. The best way to think about the patients in the study is as puzzle pieces. Some will not improve, some will improve a bit, and some will improve tremendously. These pieces will all...