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Well the party is over. My tinnitus is back. I even doubled my dosage and no improvement. I may have caused more damage at a recent concert so it is possible my positive results would have continued but now I am back on everything. My psychiatrist is raising my dosage of the Pramipexole to 3 mg...

How many lives will be destroyed before Susan Shore gets this on the market. I honestly think there is something going on we don’t know about. 2 years? C’mon man. Something is not right.

I have weened down to 0.5mg Clonazepam and 600 mg Gabapentin since starting the Pramipexole. Mine was noise induced. I was singer for a thrash metal band and my left ear got blown out being too close to an amp over 3 years ago. It has been a journey for sure. I wear Widex Zen’s 24 hours a day...

I am on 0.125 mg twice a day and have had wonderful results. My tinnitus is much more in the background and I forget about it for hours every day. Even when I do hear it, I have little reaction to it. Getting my life back. I have been on it for about a month now.

How can you be tested for occipital neuralgia?

What dosage were you on?

Besides @linearb, was anyone else on Tinnitus Talk part of the Auricle trial?

These results do not look good. Very little real change unless I am reading it incorrectly.

So if my tinnitus gets louder when I clench my teeth or extend out my jaw, does that mean it is somatic? I have noise-induced tinnitus in one ear. I seem to have difficulty getting an answer on what exactly IS somatic tinnitus.

It did not have any effect. I was up to 30 mg a day. I discontinued.

I thought you habituated using TRT? Why are you still using devices and struggling?

Yes, still on 1.5 mg Clonazepam/day.

So the relief you received using the device made a big enough difference that when you stopped, you began to struggle again? If that is so, there may be hope. Thank you for sharing.

I just started Cyclobenzaprine yesterday. 10 mg a night. After a few days, I am going to increase it. My psych said I need to cut back 25 mg of Amitriptyline per 10 mg dose of Cyclobenzaprine. I will post back if I have any improvement.

I have set an appointment with Joyous. Not sure if I will proceed but please keep us updated on your experience and results after you have been doing the therapy a little longer.

What is the mail-to-home service you use? I am curious about Ketamine. I tripped a ton of times in college so I think I could handle it if I gave it a go.

After reading through all these pages, I still am not clear if Dr. Shore's device will help those with noise-induced tinnitus. Can any experts chime in?

What meds are you interested in trying?

What was this member's experience? Was it helpful?

I would like a link too. How do we sign up?

So have you finished the Prednisone cycle?

Apparently you need to be deaf. There is no mention of tinnitus. Might as well just shut this thread down.

I was doing well for about 2 months but I am now dealing with a setback for the last 2 months. I am scheduled to get another lumbar puncture. Hopefully it will relieve more pressure and get me back on track to improving.

Nope. I stopped the Gabapentin but I remain on 1.5 mg of Klonopin daily along with 40 mg Prozac, 50 mg Naltrexone, 50 mg Elavil, and various supplements. I am getting better. Honestly I think time is the biggest factor. I am over 2 years in and much better than a year ago. It's still there but I...

You are probably right. I am over 2 years in. The thing is, I have been through 4 cycles of oral steroids for other issues like sciatica and root canal infection and my tinnitus disappears when I am on it, but then becomes unbearable during the taper. I still think inflammation is making my...

Damn, I am in Ohio and they do not have any locations near here. Not sure they would book me an appointment even if I could make the trip and pay out of pocket. They would probably want an audiogram first but also question why I am travelling from Ohio. It is frustrating that we cannot get...

John are you still taking the 4mg of Clonazapam?

How are you getting these injections? What doctor and where?

Do you still take this dosage every day and, if so, for how long have you been taking it?

An update to the above. I finally went to a neurologist because my tinnitus seems to ramp up when I feel pressure on my head, behind my left eye (my tinnitus side) and I have dull headaches. My tinnitus is not pulsating. It is constant tea kettle. Whenever I took Prednisone in the past, my...

FYI. Do you regularly take 4 mg of Klonopin daily?

Yes but I do get my liver checked every few months. No side effects that I have experienced.

I do not have hyperacusis thank God. My tinnitus is high pitch tea kettle sounding and in constant not pulsated. Ever since I got it from being to close to a guitar amp I have had days and even weeks where it would go away and then come back very intense. I feel now that I am stabilized and can...

I take 50 mg of Naltrexone a day and also 4.5 mg of LDN that I dissolve myself in water. I would say my tinnitus, although noise-induced, worsens with inflammation. When I am on Prednisone it completely goes away. Since starting Naltrexone I am having many more good days. I also may have...

Keep posting results. I am looking to start this as soon as I find a mushroom source.

That’s what I figured. A dim outlook. I know of many people who got better and did not get worse with age.

@Mikey Cliff, @ttired, may I ask your doctors' names and locations?

Please share the data on this.

So 5 mg am and 5 mg pm?

I actually started taking it as a low dose, taking a 50 mg tablet and dissolving it in 50 mg of water and then use a syringe to draw up 1.5 to 4.5 mg amounts. It seemed to take some of the head pressure away but did not help with the tinnitus. As of yesterday I have switched to taking a full...

Do you take the full 2 mg and Gabapentin at one time or space throughout the day?

How much do you take?

Ear level sound enrichment with open ear white noise generators or other neutral sounds through something other than closed ear sound buds is the only real critical aspect that has helped me. The counseling is more or less just pep talk and positive reinforcement. TRT is a 18 month program. If...

Please keep us posted on the LDN. I started but then had a spike, so I stopped but found out that I had COVID-19 so that may have caused the spike. Considering trying the LDN again.

I have seen a few threads mentioning this but would like to know what others who already have tinnitus and got the coronavirus. I had both Moderna shots and the booster a few weeks ago. My tinnitus ramped up bad on Tuesday and not it is Friday and it is still spiking. I tested positive for...

What was your dosage?

Already taking it, along with Serrapeptase. I don’t think it helps. My psych doctor is going to start me on Naltrexone in hopes it may reduce systematic inflammation. There are some studies it may help. If not, it is about the last thing to try outside of going on a full go anti inflammatory...

Prednisone eliminates my tinnitus until I get to the end of the taper. So where do I start trying to find a solution? My tinnitus is noise induced but I cannot believe there is no other med that can be taken long term to reduce inflammation that causes tinnitus. I have no idea where to start. I...

How long did it take before your tinnitus was no longer a problem?

I have used mine for 4 days. Twice a day for 10 minutes. The high tones drove me to a spike that has me in a bad way. I emailed them and was told some people get spikes when they start but it goes back down, and others who reported spikes “did not finish the study.” Millions of people with...

Exactly. And 14 million to develop. Somebody must have kept a little of that pocket change.

I volunteered a few weeks ago. I got a reply confirmation but no other communication since. I am 18 months into my tinnitus and it seems like not a damn thing has changed in the progression of the device. The Shore device is dragging ass, and I feel bad for everyone who is going to flush their...

Did the Klonopin help you habituate?

I am taking a cycle of Prednisone for sciatica and just started to taper. The first 2 days it eliminated my tinnitus, but now it is back when I began to taper. I can’t believe there is no option for those of us whose tinnitus is eliminated when taking Prednisone.

I am same Gabapentin dosage but 1.5 mg a day Klonopin.

I may have asked you before but how much do you take of each of Gabapentin and Klonopin?

It has not helped.

Combo.

Just got some. Will report back if I get any relief.