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Gotcha sorry to hear, mines been mostly noise related/random. I’ve never personally used benzos or any meds that spiked before, but I’ve seen plenty of stories where people get a lot better over time after getting off. It’s super tough to be in the acute stages :/

Hey vilebubbles, sorry to hear that, I sympathize with you. The initial months after a worsening can be extremely challenging. Was there a specific incident that started this one? When I had my sharpest worsening a couple years ago I was a wreck for a long time, and the condition went up and...

I partially held in a sneeze on accident and it affected my right ear. Other loud incidents haven’t caused lasting worsenings, but everything has gone to a new level these past days somehow from this

Yes definitely. It can be pretty severe for a few days to week after sound incidents. If I'm able to have a good week without any harsh noises, my ears seem to settle down quite a bit, and I'll be pretty much pain free. Of course the usual T and H never goes away completely

@MindOverMatter thanks for your response! That's helpful to hear your experience. I will try to apply some of this into my routine. I'm currently in a bad spike - feels like I'm always either just starting to get out of a spike or starting up a whole new cycle. Was the counseling tinnitus...

Love you bro! I'm definitely fighting. How have you been?

@Juliane for those of us with severe, housebound levels of T & H, I would say it brings more suffering than people on the outside could possibly imagine. Even with nearly a 5+ years of mild tinnitus, I suffered, but could not have dreamt it could become like this and assumed people like me...

@MindOverMatter I recently hit a year mark since a sudden worsening. Since then my T and H have been insanely easy to worsen further and I am actually feeling about as bad as ever now. How long did it take you to start feeling better? What helped the most? thank you

I've been able to enjoy summer a bit by getting outside to the backyard and woods. However, the T still quickly goes nuclear if I have any sound slip ups, and it continues slowly worsens over weeks/months. Unfortunately, it seems I was dealt a difficult case, but I hold onto hope. How are you doing?

Hey good to hear from you! Sorry, I took a long break from this site. I feel I took the edge off the H a tiny bit by getting outside to the backyard and woods a bit this summer (still pretty much housebound), but the T is relentless and only seems capable of worsening. Have you tried anything...

I recently had noticed that my H was starting to improve, and I was feeling more habituated to the worsening T. Then two weeks ago I dropped a fork facing my left ear, and that made my left (previously better ear) worse than my right. Feel like Sisyphus man :/

@DeanD it’s insane I can have a flawless week of limiting noises while maintaining some low level exposure. But one little slip up can ramp it all up to new levels again

Love you to brother. Had an ok week last week but now feeling worse than ever again. Such a brutal trajectory, and it’s been trending to the bottom for 7 months now (technically 7 years but the pace used to be more gradual). Somehow I still keep going. I truly hope we can find our way out of...

I don’t know what we did to deserve this. All I can hope for is that medicine understands this better in the future. What a torturous condition.

Any thoughts on ssris? Any meds ok to take the edge off?

That’s Cloud Peak in the Bighorn Mountains. Amazing place. Where’s yours?

Unfortunately that’s kinda my feeling as well. I’m just feeling like I need to take drastic action somehow with how far gone it’s gotten

I’m beyond my limits with this and am intrigued by the Dr Shulman protocol of klonopin and gabapentin. Is that a mistake to even try?

So sorry to hear that yours is also worsening. If you can sleep alright without them it’s worth a shot. I actually do have mirtazapine for sleep but I try to only take it on the most brutal days (1-2 a month). Had another recent setback of course, I’ll write about it on my main thread