Hey everyone, I've never written on any forum before, and i really hope this gets read, as i'm really needing some support.
So my story in short (or...as short as I can get it). I'm 17 years old, and I got my tinnitus (and hypercausis) early this year, January 2016. The start of the new year went down in such a huge crash for me. Both ear problems were caused by my ear phones, i would play music pretty loud and for quite some long periods of time, and i had been doing this for months. My ears were kinda giving me warning signs, being 'buzzy' after use and then would die away. But in january it stayed. I am currently under a audiologist at the hospital.
I've not been working/in college since it started, i couldn't do it physically (ears) and emotionally It's been such a tough year. Things have been very difficult and a lot of things have changed - as you can imagine. At first, i kinda let the tinnitus consume me and take control, i changed so much. But i am determined to not let it stop me, i have my whole life ahead of me still and i have so much to be grateful for. I've been trying to keep myself as busy as possible, trying to distract myself from it. I've been very careful too though, with noise, and am always trying to protect them from further damage. I wear ear plugs a lot. I'm using sound therapy alot too (i always have some sort of white noise on when i sleep, every night - tinnitus is louder in the quiet).
Now this is where i'm needing some support. I decided to get a part time job, because i've wanted some money and also because i'm young and haven't done nothing in almost a year - i feel like i'm wasting so much time and oppitunities. Its only in a cafe, but its a huge cafe (like a restaurant) at a garden centre. Very busy and always full. I'm mainly in the kitchen, which can sometimes get quite loud with pots clanging all day and this machine going which steam washes the pots. There is also music that is always playing too in the cafe seating area. I always wear the ear plugs though (this isn't just for protection from further damage from noise, but also they are very sensitive to most noise because of the hypercausis - normal sounds and louder sounds).
Whats worrying me is whether or not i may cause any more damage, making the hypercausis worse or the tinnitus louder. It seems to me, and my audiologist, that with the hypercausis causing me to be sensitive to alot of sounds, its getting to me physiologically. Like i'm worried around most sounds, worried that more damage could be done. I can't always tell what sounds are actually upsetting my ears, are too loud for my ears and if its just my head, saying 'it doesn't sound quiet, it's noise, it's gonna make things worse'.
I can't tell if my ears don't like/are sensitive to certain sounds, or if its just me thinking/assuming it is. I have read that some times you can almost develop like 'sound phobia' amongst all this. Does anyone understand what i mean? I hope this is making sense :/
I'm just kinda at a loss at the minute. I want to go out into the world and do things so bad, but then i feel so
restricted by my ears. I'm trying to look past it and get on with normal things. But then i always stop and think 'is this too much for me and my ears? 'Am i trying to do too much too fast?' Then i think about stopping it all and going back into my bubble and locking away my ears. It's just constantly a fight and i don't know if i'm doing the right thing.
I just need some advice from someone, anyone. Have you been able to work with tinnitus okay? How do you cope with it? Are you constantly worried?
I really hope all this made sense, I'm sorry it was so long. If your at this point thanks so much for reading.
I'm glad i have found this forum.
So my story in short (or...as short as I can get it). I'm 17 years old, and I got my tinnitus (and hypercausis) early this year, January 2016. The start of the new year went down in such a huge crash for me. Both ear problems were caused by my ear phones, i would play music pretty loud and for quite some long periods of time, and i had been doing this for months. My ears were kinda giving me warning signs, being 'buzzy' after use and then would die away. But in january it stayed. I am currently under a audiologist at the hospital.
I've not been working/in college since it started, i couldn't do it physically (ears) and emotionally It's been such a tough year. Things have been very difficult and a lot of things have changed - as you can imagine. At first, i kinda let the tinnitus consume me and take control, i changed so much. But i am determined to not let it stop me, i have my whole life ahead of me still and i have so much to be grateful for. I've been trying to keep myself as busy as possible, trying to distract myself from it. I've been very careful too though, with noise, and am always trying to protect them from further damage. I wear ear plugs a lot. I'm using sound therapy alot too (i always have some sort of white noise on when i sleep, every night - tinnitus is louder in the quiet).
Now this is where i'm needing some support. I decided to get a part time job, because i've wanted some money and also because i'm young and haven't done nothing in almost a year - i feel like i'm wasting so much time and oppitunities. Its only in a cafe, but its a huge cafe (like a restaurant) at a garden centre. Very busy and always full. I'm mainly in the kitchen, which can sometimes get quite loud with pots clanging all day and this machine going which steam washes the pots. There is also music that is always playing too in the cafe seating area. I always wear the ear plugs though (this isn't just for protection from further damage from noise, but also they are very sensitive to most noise because of the hypercausis - normal sounds and louder sounds).
Whats worrying me is whether or not i may cause any more damage, making the hypercausis worse or the tinnitus louder. It seems to me, and my audiologist, that with the hypercausis causing me to be sensitive to alot of sounds, its getting to me physiologically. Like i'm worried around most sounds, worried that more damage could be done. I can't always tell what sounds are actually upsetting my ears, are too loud for my ears and if its just my head, saying 'it doesn't sound quiet, it's noise, it's gonna make things worse'.
I can't tell if my ears don't like/are sensitive to certain sounds, or if its just me thinking/assuming it is. I have read that some times you can almost develop like 'sound phobia' amongst all this. Does anyone understand what i mean? I hope this is making sense :/
I'm just kinda at a loss at the minute. I want to go out into the world and do things so bad, but then i feel so
restricted by my ears. I'm trying to look past it and get on with normal things. But then i always stop and think 'is this too much for me and my ears? 'Am i trying to do too much too fast?' Then i think about stopping it all and going back into my bubble and locking away my ears. It's just constantly a fight and i don't know if i'm doing the right thing.
I just need some advice from someone, anyone. Have you been able to work with tinnitus okay? How do you cope with it? Are you constantly worried?
I really hope all this made sense, I'm sorry it was so long. If your at this point thanks so much for reading.
I'm glad i have found this forum.