17 Years of Tinnitus. Hoping to Find New Hope.

Rich0082

Member
Author
Jan 16, 2017
3
Tinnitus Since
04/2000
Cause of Tinnitus
Loud noise
Hi everyone,


This is the first time I have posted on any forum about T.

I have been looking at the site since about October 2016 when I went into a dark place with T. After four months I thought I had found the light again and returned to living my life as usual for the last 4-5 weeks until this week.


I had written a very different story and was about to post it as a success story and an introduction some weeks back, so as I am slipping down again I can't claim success just yet and instead come looking for help.


My story started 17 years ago when I was 17, I'm 34 now.


It was April 2000 when I first encountered permanent T. I was doing much the same thing that everyone else was doing at that age, parties, drinking, music, nightclubs. Like everyone else I had the warning signs after a night out, ringing ears when I went to bed - but by the morning it had gone. I didn't get too concerned as by the morning the ringing had gone and everyone was doing it; there was no warning poster in clubs or gigs telling you of the dangers, no public information from the government or health service I was aware of. That is what hurts, that nobody was concerned for my welfare and I was too juvenile to see the bigger picture, if ear plugs were available and a warning sign have been present then I would have taken notice - that's the sort of person I am.


I first had a big scare some years before when I was 15. I went with some friends to a gig, (I wasn't a gig person and never have been - but at that age, hey why not). I think the gig was Slip Knot or something, it was terrible anyway but the music was so loud like nothing I had ever known before, louder than at any club. The following morning the T was still there; and so it was for the next four days! I was seriously scared and confided in my parents, eventually the T did go after 4 days or so. I should have learnt my lesson from this but didn't.


I started going to nightclubs just before my 16th birthday, I used to love it, it was such a buzz. For around another year I would frequently go until one day I noticed that things were not at all the same on leaving a venue. Like others report, I would have to really concentrate in a quiet room to hear it and it was alarming at the time. My life literally fell apart on that day. I stopped seeing my friends, stopped going out and became very depressed at the thought of letting this happen to myself. I was ashamed.


I eventually picked my life up although it did take some years and I am proud to say it didn't stop me. It made me very determined in life to succeed, I went back to College and then University from previously leaving school at 16 not choosing to stay on into 6th form. I now have a family and two beautiful kids, a business in IT which is doing well, property investments, a great circle of friends and the best family. I have coped very well through the years and just accepted it as part of me, I even started going out again to bars in my late 20's, and the occasional nightclub (only with ear plugs of cause!).


That brings me to September 30th last year when I was out with friends for a joint birthday and celebration of my second child's birth just two weeks prior to that. We went out for a meal, went to a non music bar and then to a bar that did have music playing. I made the worst mistake of my life because I was drunk; I went in there without ear plugs. I always have a pair in my pocket and have been so careful for all these years and this night I was so drunk I didn't have any in my pocket and just didn't even think going in regardless.


The following morning I saw the devastation - my hearing was so dull and the ringing so loud from being previously mild. It was like falling off a cliff and loosing it all in an instant. I fell into the worst depression of my life. The hearing did come back so that I can't tell too much difference but the T, although it did reduce in volume, it was much louder than before and is something I have had to get used to. I thought that for sure my life was over because I couldn't go on with this ringing, from only hearing it at night; I now hear it all the time if I listen for it. I started looking online to see if anything had changed since I last looked for help all those years ago and became very desperate, very low and with constant suicidal thoughts, bad dreams all around death and dying. I thought for sure that that was it - my interest in everything had gone overnight. I quit drinking all together and haven't touched a drop since that night, it's not worth it and I love my family more that pint, it's not just that though I quit because it doesn't agree with my mental health anymore.


For several months I have struggled until a few weeks ago when I finally managed to habituate for the second time, there was several ups and downs in that time. I reached out for help this time, I talked to people, involved my family, did CBT sessions which really helped unlock feelings and events of the past I have been ashamed of help me to deal with them, the mindfulness part of CBT is really helping. I learned that what the issue was more than anything was the depression from my emotional response to the noise and my actions of that night and that 17 year old boy. I had to get AD's from the GP and stayed on them for several months until tapering off them, but the end result is that I have separated the depression from the T. The T may not be treatable but the depression is, and to my astonishment I have got back to where I was previously in life.


It was at this point I was going to claim success from the way I was handling the T (sound apps and trying to not be in a quiet room with it) and the happiness that re-entered my life.


Since the middle of January I have started returning to the things I love for enjoyment, snooker and the gym. I had an ENT appointment booked for 6th Feb which I went to but apart from having an 8khz hearing test and a talk I was fine in myself so didn't take up too much of their time.


This week I may have some something silly again, it's either that or a cold that I have had. I went on Monday 13th to a lunch time gym class, 15 minute abs. The class was quite loud and I should have walked out or used ear plugs. I've been to this class loads of times in 2016 and never noticed any problem with no plugs. The following day I got a cold and my nose was literally pouring all day. Since either one of these events my hearing has dulled in my left ear and the T more noticeable still. I have had this sort of thing before and I am hoping that it comes back because I feel that I am slipping back in progress.


Thanks for reading. Special mention to @billie48, @glynis and @Michael Leigh for helpful posts, reading them over the months has helped me.
 
@Rich0082
Hi Rich,
I am sorry to hear of the circumstances that you are now in. Hopefully the tinnitus will calm down again like before. Since you have been reading posts in this forum, then you know it's advisable not to listen to audio through headphones even at low volume? I suggest using a sound machine at night. If you haven't read my article: Tinnitus, A Personal View, then I suggest that you do as you might find it helpful. The same goes for my post: Hyperacusis, As I see it.
Please click on the links below.

Keep in touch and let us know how things are going
All the best
Michael
https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/
 
@Rich0082
Welcome to the forum. I am glad to hear that our posts have helped you. It seems that you are having a spike, possibly caused by the cold and congestion. Once the cold and congestion are over, then it is very likely you will see T dropped back to baseline again. Since anxiety and stress add to the severity of T, it is best to avoid negative thinking and emotion.. If you need it, try masking so you won't get too nervous. Take care, God bless.
 
Dude I did the same exact thing to worsen my T! Dang peer pressure, but hey, everyone else is doing it.

Things always get better, after all, it's just ringing, your not getting stabbed in the kidney. You got a good life, just go play with your kids and you forget all about it.
 
@Rich0082
Hi Rich, I got my T through very similar circumstances to you - have a look at my first post and you'll see what I mean! A mixture of clubbing nights and consecutive noise exposures thereafter (that were extremely difficult to avoid) landed me in the position I'm in now.

Thankfully though, I'm managing to cope by masking the T with noise in a quiet room.

If you don't already, I'd advise carrying a set of earplugs with you wherever you go. Then you can just pop them in if you feel anything is getting too loud. I actually carry 2 sets of plugs around with me 24/7 - one pair that has a reduction of 12Db, and the other 33Db, and I put in whichever one seems necessary.

I'm sure your your T will reduce in volume and the dullness will go. I've had countless setbacks, and my ears have got better with time and caution when it comes to loud noise. Just be extra careful with loud sounds, especially in the next few weeks so your ears have a chance to heal. Stay strong :)
 
Thanks for the reply everyone. In answer to your questions @Michael Leigh I don't use headphones or ear plugs, I don't listen music on my phone or mp3 player.

@billie48. I am cracking up I swear. I've had 4-5 really good weeks where I habituated to the increase and began living again.
I just can't believe that that a 15 minute gym session or my cold last week which was short lived could have derailed me so badly again. Both ears were similar in terms of T but now my left ear screams 4x louder than before these two events. It's just unreal. My left ear is so dull in terms of hearing when I literally had a hearing test on the 6th Feb and it showed good.

I'm in despare again.

I'm just hoping that this will pass. I had a similar thing in 2014 when out of nowhere my hearing dulled. I went private to a recommended ent, Dr Raydip in Sheffield. He found nothing, tapped a few tuning forks on the desk and charged me 220 quid plus another 70 quid for a 5 minute hearing test which showed normal. I totally lost the will during this time, it stretched on for weeks, I kept going in to work and tried to just put it to the back of my mind (I work in IT as a database developer). I'd almost lost hope and then one day after about 6 weeks it just came back. Perfect hearing again, really crisp and sharp.

I can't deal with this roller coaster ride, I just get over a mistake and start to get on then several weeks later it all changes again.
 

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