I was hoping I would be the lucky one that doesn't have to introduce herself here, but here I am. One day in the beginning of April 2021 I started hearing noises in my right ear. It was (and still is) a weird sound, a morse code type of sound like I was receiving a message from aliens. After a while I started hearing it in my left ear as well, but the tone is a bit different.
I went to a family doctor and 3 ENTs so far. My family doctor found fluid in my ear, but none of the ENTs did. The first ENT was the worst doctor I ever met. He did a hearing test which was perfect and then he basically told me to f**k off and never come back. The second ENT did a hearing test, which was normal as well, checked inside of my nose with a long camera and a MRI for acoustic neuroma. The third one wanted to do a hearing test of course, but I refused, he checked my Eustachian tubes and said there are signs of dysfunction. I got a steroid that didn't help and then I did pneumatic inhalation sessions (AMSA). It didn't improve my tinnitus at all.
I think maybe I am looking in wrong places. I don't think the second ENT looked for anything in my MRI other than an acoustic neuroma. I found this article (link below) about Carbamazepine and neurovascular compression of the cochlear nerve.
I am also considering TMJ (I have a night guard), I have pain in my temple and jaw frequently and sometimes after eating something chewy my ear explodes with a very loud sound that goes away after several seconds. Also when I move my ear muscles (I think they are called posterior auricular muscles, maybe?) the morse code beeping turns into a continuous loud beep. So, my theory right now is that something is compressing my nerve or something like that. I want to talk about this with my second ENT since I will have a follow up with him this month.
I am tired and unhappy, but stubborn to get this solved or at least try. I know I might never find out what caused it, but I am 31 and if there is any chance that I can improve my quality of life I will take it.
If anyone has similar experiences or advice on what to try or how to talk to doctors that are trying to push the hearing loss (which I don't have) diagnosis on me please let me know.
I am based in Ontario, Canada and every doctor except the third ENT was in Canada. The third ENT was in Poland. I am open to doctors from all over the world and I can travel if needed. One doctor that I have read a lot about here is doctor Dirk De Ridder, so I am thinking of consulting with him.
Typewriter tinnitus revisited: The typical symptoms and the initial response to carbamazepine are the most reliable diagnostic clues
I went to a family doctor and 3 ENTs so far. My family doctor found fluid in my ear, but none of the ENTs did. The first ENT was the worst doctor I ever met. He did a hearing test which was perfect and then he basically told me to f**k off and never come back. The second ENT did a hearing test, which was normal as well, checked inside of my nose with a long camera and a MRI for acoustic neuroma. The third one wanted to do a hearing test of course, but I refused, he checked my Eustachian tubes and said there are signs of dysfunction. I got a steroid that didn't help and then I did pneumatic inhalation sessions (AMSA). It didn't improve my tinnitus at all.
I think maybe I am looking in wrong places. I don't think the second ENT looked for anything in my MRI other than an acoustic neuroma. I found this article (link below) about Carbamazepine and neurovascular compression of the cochlear nerve.
I am also considering TMJ (I have a night guard), I have pain in my temple and jaw frequently and sometimes after eating something chewy my ear explodes with a very loud sound that goes away after several seconds. Also when I move my ear muscles (I think they are called posterior auricular muscles, maybe?) the morse code beeping turns into a continuous loud beep. So, my theory right now is that something is compressing my nerve or something like that. I want to talk about this with my second ENT since I will have a follow up with him this month.
I am tired and unhappy, but stubborn to get this solved or at least try. I know I might never find out what caused it, but I am 31 and if there is any chance that I can improve my quality of life I will take it.
If anyone has similar experiences or advice on what to try or how to talk to doctors that are trying to push the hearing loss (which I don't have) diagnosis on me please let me know.
I am based in Ontario, Canada and every doctor except the third ENT was in Canada. The third ENT was in Poland. I am open to doctors from all over the world and I can travel if needed. One doctor that I have read a lot about here is doctor Dirk De Ridder, so I am thinking of consulting with him.
Typewriter tinnitus revisited: The typical symptoms and the initial response to carbamazepine are the most reliable diagnostic clues