A Sentiment on Here That Annoys Me ("You Shouldn't Monitor Your Tinnitus")

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Fair play fishbone. Out of curiosity have you read about my experiences 6 years ago? I'd be very interested in your thoughts...

Also, why the name 'fishbone'? Isn't that something which gets stuck down peoples throat?

If you have no clue what fishbone is, don't bother asking...... :)
 

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I think everyone has had a silly Saturday tonight and bet a drink in hand.

Im sure the authour will be happy to go back to the thread now....
Love glynis x
 
You guys are all amazing ,funny,opinionated and all have tinnitus...( best bunch of friends too!)

Now pleeeeeeease stop hogging up the authours thread..... love glynis x
 
You guys are all amazing ,funny,opinionated and all have tinnitus...( best bunch of friends too!)

Now pleeeeeeease stop hogging up the authours thread..... love glynis x

What is your definition of 'having tinnitus' Glynis?

Tinnitus is only part of my life again now because I chose to come back on here after 4 years and try to help people. Even when I do hear it, and am reminded of the 'bad' days, I have 100% confidence it will disappear from my consciousness once I carry on with 'normal' life.

Regarding this thread, how are we blocking it?
 
What is your definition of 'having tinnitus' Glynis?

Tinnitus is only part of my life again now because I chose to come back on here after 4 years and try to help people. Even when I do hear it, and am reminded of the 'bad' days, I have 100% confidence it will disappear from my consciousness once I carry on with 'normal' life.

Regarding this thread, how are we blocking it?
It means having a phantom noise present by your perception that nobody else can hear when there's no masking agent. Please don't go around making it a game of semantics.
 
It means having a phantom noise present by your perception that nobody else can hear when there's no masking agent. Please don't go around making it a game of semantics.

No semantics here or I doubt from the majority of those who hear 'phantom noises' (possibly everyone when placed in a sound proofed room) .

The fact is most people do move on because they don't allow T to rule their lives. More to the point, they don't allow it to become an excuse to control others.
 
Just in case anyone is in any doubt, my tinnitus was very intrusive and still could be 6 years later if I chose to let it back in and unwind all the good work my brain (like millions of others) have done at rewiring. Mike probably remembers my early posts.

With respect, I've never understood why people use the volume of T to iterate the suffering. I remember times where it was very loud but not a problem because my mood was good. Conversely it was sometimes difficult because my mood was low even though the volume was low.

The point I'm trying to make is that if we surround ourselves with tinnitus thoughts, we'll never move on.

That's why I'll only pop in occasionally because I've moved on and don't want to be reminded of bad times. I mean, why would anyone?

You make some interesting points Bassplayer, but some people cannot accept tinnitus and move on for the reasons I've stated.
 
@Bassplayer
I know my tinnitus is down to Menieres and you would need to read up on that and what it leaves you with and the damadge it has done to my ears... lost my balance function,concentration,hearing loss and raging tinnitus ,
Lost the sense to locate sound around me as hear it with aids but know idea of direction and more...
I don't have emotional reaction as they blast away badly and I carn't do a dam thing about it only put in my hearing aids as comunication is hard...
Worst than having a nagging inlaw in your ears 24/7 .... hard going.
The thread is not being blocked just taken over...
Not nice for the authour.
Love glynis x
 
No semantics here or I doubt from the majority of those who hear 'phantom noises' (possibly everyone when placed in a sound proofed room) .

The fact is most people do move on because they don't allow T to rule their lives. More to the point, they don't allow it to become an excuse to control others.
You tried to redefine having tinnitus as letting it have an impact on you. That's not what it is.

And I don't see how your second point is relevent.
 
You tried to redefine having tinnitus as letting it have an impact on you. That's not what it is.

And I don't see how your second point is relevent.

You are the one who seems to redefine what people say.

Actually suffering is the worst part of tinnitus. Lots of money is made out of suffering! Just saying...

The problem with this forum is that most of the key people giving advice haven't moved on. To be fair, any normal person who has moved on wouldn't come back to a forum which reminds them of the bad days.

I came back because I found a way to move on and wanted to pass it on. If it doesn't work for you then I wish you well but why take away hope for others?
 
You are the one who seems to redefine what people say.

Actually suffering is the worst part of tinnitus. Lots of money is made out of suffering! Just saying...

The problem with this forum is that most of the key people giving advice haven't moved on. To be fair, any normal person who has moved on wouldn't come back to a forum which reminds them of the bad days.

I came back because I found a way to move on and wanted to pass it on. If it doesn't work for you then I wish you well but why take away hope for others?
So how did I redefine anything? And even though suffering is the wort part,it's still not the essence of what defines tinnitus. Try again.
 
Seems like you don't understand that habituation can look differently for other people. Some can ignore their tinnitus and rarely notice it, others hear it constantly but still carry on. Also the general consensus on here is that habituation is possible - but habituation doesn't have to mean that you don't hear it anymore. I don't see how that's taking away hope for someone. It is not possible for everyone to ignore their tinnitus. Key people on here for me are for example: Bill, Fishbone, Michael, Glynis - but I don't see how they haven't moved on. They're not homebound, they're still doing a lot of things in their lives, they've found a way to live with their tinnitus. And the advice they're giving is similar to what you're recommending.
 
@Bassplayer
I know my tinnitus is down to Menieres and you would need to read up on that and what it leaves you with and the damadge it has done to my ears... lost my balance function,concentration,hearing loss and raging tinnitus ,
Lost the sense to locate sound around me as hear it with aids but know idea of direction and more...
I don't have emotional reaction as they blast away badly and I carn't do a dam thing about it only put in my hearing aids as comunication is hard...
Worst than having a nagging inlaw in your ears 24/7 .... hard going.
The thread is not being blocked just taken over...
Not nice for the authour.
Love glynis x

My w
So how did I redefine anything? And even though suffering is the wort part,it's still not the essence of what defines tinnitus. Try again.

If you no longer hear the T, then for all intent and purpose, you no longer have T.

As I inferred, everyone has tinnitus if they look for it. I think tinnitus is usually just a symptom of other issues for most people. In my case, big life issues 6 years ago.

I would guess that the vast majority of newbies who come on this forum will move on, however they need hope. They don't need to be dragged into doom and gloom.

Having said that, I'm not trying to put those down who are still suffering after many years. I'm just saying that realistically you are in the minority.

Perhaps I made a mistake coming back here, if so, I'n sorry.
 
They know they're part of the minority.

New members are met with support and advice on how to cope, same advice you're giving other people (positive mindset, distraction, etc). You will also find extreme stories in a support forum but I think people are usually aware when they're reading about the experiences of someone with severe tinnitus / severe hyperacusis and that those stories usually don't apply to the average tinnitus sufferer.
 
My w


If you no longer hear the T, then for all intent and purpose, you no longer have T.

As I inferred, everyone has tinnitus if they look for it. I think tinnitus is usually just a symptom of other issues for most people. In my case, big life issues 6 years ago.

I would guess that the vast majority of newbies who come on this forum will move on, however they need hope. They don't need to be dragged into doom and gloom.

Having said that, I'm not trying to put those down who are still suffering after many years. I'm just saying that realistically you are in the minority.

Perhaps I made a mistake coming back here, if so, I'n sorry.
Why are you still doing this? You're still attempting to essentially redefine tinnitus. If you have it at all, or can hear it by focusing on it, then you have tinnitus. End of discussion. And no, not everyone has tinnitus.

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They know they're part of the minority.

New members are met with support and advice on how to cope, same advice you're giving other people (positive mindset, distraction, etc). You will also find extreme stories in a support forum but I think people are usually aware when they're reading about the experiences of someone with severe tinnitus / severe hyperacusis and that those stories usually don't apply to the average tinnitus sufferer.

Thanks fir your very balanced view on this. However I did have very severe T with hyperacusus and wanted to give others hope.

You are quite correct, everyone can make their own mind up about what they decide to read.
 
@Bassplayer ,
Tinnitus Talk is world wide not like the BTA
Many suisidal members, strugglers,newcomers,scared and don't know what to expect or what tinnitus does

Struggling emotionally
Struggling as dont have NHS or insurance

My tinnitus is hard and thats why I understand what mild tinnitus to total mental torture can cause.
I devote my life to helping others.
Mild tinnitus can be mental torture to anyone in the early months or years .
It's nice have you on here and I know you mean well and everyones views are as important as eachothers and thats Why Tinnitus Talk has to be seen to cater for everyone and everyone can rant,moan,cry for help and give support and point them in the direction for help is Suisidal.
Tinnitus is like a pyramid
The top being mild to the wider tinnitus problems with sub catagories and cause.
We would love it be a dimond shape and the wider start to reach a point they can cope with like a pyramid but with out the extra help,support,hearing aids,mental health,family support or a cure it might not be that way for some.

Individual people all different with tinnitus and all have a place to come .
Love glynis x
 
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You are the one who seems to redefine what people say.

Actually suffering is the worst part of tinnitus. Lots of money is made out of suffering! Just saying...

The problem with this forum is that most of the key people giving advice haven't moved on. To be fair, any normal person who has moved on wouldn't come back to a forum which reminds them of the bad days.

I came back because I found a way to move on and wanted to pass it on. If it doesn't work for you then I wish you well but why take away hope for others?

I really like the blanket statement you just made. I am one of those "KEY" people giving advice here. I have moved on and don't seek advice from this forum 99% of the time. I come here to help out and not seek help in return. Don't assume so much.....

You have NO clue what my bad days are and what I been through, so don't assume again.......

If you want to help the forum, great do it, but making blanket statements won't hold much merit.....
 
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