What would you rate your tinnitus at now, on average?It does get better but really damn slow…….really slow.
What would you rate your tinnitus at now, on average?It does get better but really damn slow…….really slow.
@TBH hope you will come back. I've spent a lot of time looking at your thread. It seems yes you have hyperacusis but when you talk about noises ramping it up for days, it sounds like reactive tinnitus / sound sensitive tinnitus. What makes me think that is you are sensitive to the hoover, passing cars, shopping centers and the refrigerators at the grocery. I have these too and it's fairly common on the forum. I wish there was better news, but it's hard to find a success story. @dpdx - did you ever have reactive tinnitus to specific sounds (in addition to your hyperacusis)?@TBH
It's been a while since you've updated the thread? How are you doing? I made the mistake of getting a second opinion at a specialist. I asked if I had fluid, they sent me to the back and before I knew it, tempanogram! I really messed up, my first test didn't cause hyperacusis but after the second I've been very sensitive to anything with a motor (fans, mowers, blowers). I've had to be on anxiety meds to help make it the past 3 weeks. I am praying it reduces, but hyperacusis fading feels so unlikely. I have a lot of the same symptoms. Seems that outside noise ramps up my tinnitus and I pay for it for days. I will also have the occasional good day, which I try to savor.
I don't know your sound, but my ring is horrible, it's like a 1000 angry cicadas oscillating back and forth. Then add in a motor, then it ramps up further.
This stuff is wicked. I really don't know how @dpdx made it a year and half. Hopefully we have similar results in time.
Hope you're well.
Does anyone actually know of a tympanogram induced tinnitus success story?
Can't believe something that's made my life a misery has been made so much worse by going somewhere for help.
I'm not so optimistic because I have two horrendous sounds day in day out, and they are now more consistent and far worse, so I don't see an end.
Did the NAC give you anxiety after taking it for a bit or when you stopped?@TBH I think that we should try and compare notes to see what has worked and what hasn't. Same for everyone following this thread. Please chime in with anything that has worked or not worked!
Things that have provided a little bit of benefit:
-Magnesium Chelate (helps with calming)
-Vitamin B12 (always take with the magnesium so I assume it helps with calming)
-Zinc (clears sinuses mostly)
Things that have had no noticeable impact:
Prescriptions:
-Prednisone, 25MG for 7, 12.5MG for 3 days - NO EFFECT
-Serc - NO EFFECT
Supplements:
-Ginkgo - NO EFFECT
-CoQ10 - NO EFFECT
-NAC (N-Acetylcysteine) - NO EFFECT. Was calming for a bit, but ringing still there. But holy hell did anxiety kick in worse than anything I have experienced before.
-GABA - NO EFFECT. Same anxiety as NAC.
-Picamilon - NO EFFECT. Same anxiety as NAC
Did the NAC give you anxiety after taking it for a bit or when you stopped?
Unfortunately, I think worse than when it was done 8 months ago, but thank you, and very true words. When did you have this done? Like we don't have enough to cope with Hyperacusis is an added non bonusI hope your tinnitus has settled by now? I truly understand how frustrating it is to go to 'professionals' for help for it to be made worse. I had very mild tinnitus but after a micro suction procedure by a bumbling audiologist it left me with intrusive tinnitus and hyperacusis. I think our ears are so delicate it's best to leave them be x
Thanks for this Lane, and I wish the best for you too. I suppose because I've not had any downtime from this, and every night and morning is torture, I'm of the opinion that this is the rest of my life.@TBH -- It took until about the 8 month mark for me to "start" to get a minor respite from feeling that tinnitus related "things" would never keep "piling up" on me. Up until then, new tones would constantly come up, and then somewhat diminish; intensities and loudness would do the same. But then things began to shift--ever so gradually--until I allowed myself to start to have a "bit" of optimism.
That fragile optimism would be tested many times over, but as the months went by, I couldn't deny that things were gradually getting better, but an an almost painfully slow pace. By the time I was approaching my 2-year mark in Feb., 2020, I even thought I might be able to post a semi-success story.
Not to be. I happened to go into a down cycle at that very time, with my former optimism taking one of its bigger hits. But after about 3 weeks, things seemed to stabilize again. At this time, I can say I'm definitely coping with this much better than I was in the first two years, and especially those first 8 months. Just thought maybe this perspective will help.
I'm really sorry how your life got so upended by a stupid, senseless test. But based on dpdx's experiences, and my own, I think there's still hope for your situation to improve. -- BTW, I'm always looking for things that might help with my physical and psychological resilience. I recently discovered that eating 2-4 oz. of chia seeds (which are high in brain supporting Omega 3 fatty acids) have given me a new modest (but helpful) degree of calming. -- Take care...
That's what we're all here for, but it's not going to be easy, but we ALL understand you, and the outside world have no clue what we are going through on a daily basis. The comparing notes below is a great idea and well thought of.Yes very high. I am struggling to make it these days.
@TBH I think that we should try and compare notes to see what has worked and what hasn't. Same for everyone following this thread. Please chime in with anything that has worked or not worked!
Things that have provided a little bit of benefit:
-Magnesium Chelate (helps with calming)
-Vitamin B12 (always take with the magnesium so I assume it helps with calming)
-Zinc (clears sinuses mostly)
Things that have had no noticeable impact:
Prescriptions:
-Prednisone, 25MG for 7, 12.5MG for 3 days - NO EFFECT
-Serc - NO EFFECT
Supplements:
-Ginkgo - NO EFFECT
-CoQ10 - NO EFFECT
-NAC (N-Acetylcysteine) - NO EFFECT. Was calming for a bit, but ringing still there. But holy hell did anxiety kick in worse than anything I have experienced before.
-GABA - NO EFFECT. Same anxiety as NAC.
-Picamilon - NO EFFECT. Same anxiety as NAC
I am sorry, yes, it's truly unbearable, I've not had one day in 8 months without this thumping and high whine going on. Each day is just filled with anxiety and as if it's not bad enough to cope with, we've got selfish neighbours to contend with as well, heightening the hyperacusis. It's a real life ender. Like I've said prior, I don't see this going or improving if it's still just as bad as it was when it was done, 8 months ago. Maybe if I'd had some improvement, but even now as I type it's thumping like a sledgehammer in my head. I will never find anyone to help me because they are all protecting each other and nobody will say anything bad about the NHS, and it's easier for them to do nothing rather than admit malpractice and help me. My faith in the medical profession is at an all time low, and that goes for ALL staff and doctors I've seen. They're an absolute disgrace. The place where I had this life sentence done which (big surprise) has the highest COVID-19 death rate, was actually filthy.@TBH I had it done 4 years ago and not a day has gone by I have not regretted it. It has completed sucked the life from me and screwed my ear up. Truly wish I'd have never gone near the idiot of an 'audiologist' x
@TBH I'm so sorry that you too are suffering at such an intolerable level that truly kills your soul and drains the essence of life from you. I absolutely get it. That's not so good about your neighbours either, a stress you could really be doing without. It's hard enough to cope with never mind they too.I am sorry, yes, it's truly unbearable, I've not had one day in 8 months without this thumping and high whine going on. Each day is just filled with anxiety and as if it's not bad enough to cope with, we've got selfish neighbours to contend with as well, heightening the hyperacusis. It's a real life ender. Like I've said prior, I don't see this going or improving if it's still just as bad as it was when it was done, 8 months ago. Maybe if I'd had some improvement, but even now as I type it's thumping like a sledgehammer in my head. I will never find anyone to help me because they are all protecting each other and nobody will say anything bad about the NHS, and it's easier for them to do nothing rather than admit malpractice and help me. My faith in the medical profession is at an all time low, and that goes for ALL staff and doctors I've seen. They're an absolute disgrace. The place where I had this life sentence done which (big surprise) has the highest COVID-19 death rate, was actually filthy.
Oh man, I don't know how I missed your reply! I think I didn't dive into your post deep enough!That's what we're all here for, but it's not going to be easy, but we ALL understand you, and the outside world have no clue what we are going through on a daily basis. The comparing notes below is a great idea and well thought of.
This is a great idea, and appreciated too. Thank you. I'll have to see what gives and should have taken note, but I can tell you nothing I've tried has worked so far. Magnesium, Ginko(think it made it worse), B Complex, Zinc, I've tried since this started in September. No difference whatsoever.
I've just bought some CBD oil capsules. Mixed reviews, some say it makes it worse and some say it helps. I will report back on them. What are you still taking? And the top 3 in your list you think is worth still taking I assume? I did drop the Magnesium.
Also like to point out, that if you are going through this, food and drink you enjoy...? Go for it. I have tried.... milk chocolate, dark chocolate, coffee, cappuccino, tea, green tea, beer, Jack Daniels, wine.. and nothing makes a difference when I DON'T have any of these things. I really think food and drink are just luck of the draw. Does it genuinely affect anything, Maybe it does, but I do know that when I gave all up, it didn't make any difference, hence why I think you should not torture yourself anymore than we already are. Anyone think alcohol or chocolate, cheese affects anything? Let me know. I also know Paracetamol escalated it for me, but sometimes you need it.
Thanks for all responses, always appreciated. Stay very safe out there, Like we've not got enough problems eh!
Lipo-Flavonoid is a scam, why would you support a scam company like that?I did start taking Lipo-Flavonoid
This entire thing is new to me @ajc. I am willing to try anything that works for me. This did not, and I will not be buying it again. Is there some list of scam companies that is published here? I'd love a quick flag on potential scams.Lipo-Flavonoid is a scam, why would you support a scam company like that?
So sorry you're going through all of this. I can relate to the loudness, as I can hear mine over an idling semi-truck. It was having some letup prior to the last couple of days, but that seems to have gone away for some reason. And I also have various and varying (quite often, sometimes) sounds. Hope you find some answers soon!Sadly, it's as bad now as it was 11 months ago. I really don't know what I can do now. One other on here has said 12 - 18 months and it should get better, but when it sometimes gets even worse, it's very hard to imagine it ever improving or going away, which is obviously ideal. The worst day of my entire life was that test.
Food, drink, alcohol, etc. No difference, sleep or very little sleep, no difference. Zinc, Magnesium, etc.etc. no difference.
I think it would be hard enough to cope with just one sound in my head, but generally it's 2 or 3 and high and low. The banging low when trying to sleep makes it a battle every single night of my life to get to sleep.
My bilateral sounds in order in frequency high to low:This is normal tinnitus to have this consistently day and night, every day? I can't help myself, every day is torture. Still,
Thanks, I don't hear much from people with different varying sounds. It doesn't look great if I'm honest. It was a year Saturday just gone, and there is no improvement whatsoever.So sorry you're going through all of this. I can relate to the loudness, as I can hear mine over an idling semi-truck. It was having some letup prior to the last couple of days, but that seems to have gone away for some reason. And I also have various and varying (quite often, sometimes) sounds. Hope you find some answers soon!
As I've said, I don't read much about very loud thumping and the very high screech which I have. I read plenty about the one tone, but never very low and very high. Or people don't mention it as much.My bilateral sounds in order in frequency high to low:
tzz tzzz zzzzztzzztssss tzzzsss...
sssssssssssssssssssssssssssss...
eeeeeeeeeeeeeeeeeeeeeeeeee...
waaaaaaaaaaaaaaaaaaaaaaa...
buuu bu bu buuuuu bubu bu...
glglglg lglglglglg llglg lglglglg...
(24/7 non-stop)
As stated in this thread, mine was induced by an audiology test, not self inflicted by sounds. All of the sounds I now have a year on, were not there until the day of the test. Despite my doctor insulting my intelligence by saying it might be a 'coincidence' that it happened the same day as the tests. The lengths some doctors will go to to protect the NHS I feel.Jesus Christ...
Are all these sounds of tinnitus from noise-induced tinnitus / trauma or somatic as well? Has anyone ever wondered why their tinnitus gets progressively worse? Is there an etiology for it?
@Chinmoku, did you do the tests after all?They ordered MRIs and many other tests like cochleography, otoacustic emissions, caloric tests for balance, and they always measured ear pressure.