Acoustic CR® Neuromodulation: a New Treatment for Tinnitus

Tonal High Pitch since early 2011. Chronic, pretty bad case, sudden onset (no apparent cause, woke up with it and into the horrible T world). Done and continue to do many things, like everyone. Seen some discussions about Acoustic Neuromodulation in Europe (UK and Germany). Saw that someone had mentioned they had tried it, anyone aware of any success?? Currently looking into the London Clinic. Obviously costly, esp coming from Boston, MA. Thanks. David
 
Tonal High Pitch since early 2011. Chronic, pretty bad case, sudden onset (no apparent cause, woke up with it and into the horrible T world). Done and continue to do many things, like everyone. Seen some discussions about Acoustic Neuromodulation in Europe (UK and Germany). Saw that someone had mentioned they had tried it, anyone aware of any success?? Currently looking into the London Clinic. Obviously costly, esp coming from Boston, MA. Thanks. David

Hey David,

Your case sound exactly like mine! Sucks doesn't it! I have been trying everything, with zero results. Looking into A.N. now. My remedial research shows it to have some promise. I will post anything I find out. Please do the same

Thanks!! (y)
 
I recently just found this site and happened to be reading these posts about this treatment, cause I've been looking at trying it, though when I was younger my bottom jaw was completely miss aligned and I read that a jaw misalignment can cause T, maybe weakened my ears or something ,not sure, I've got to the stage I can't cope with it anymore and can't seem to swallow that it's there for life,am 25 and had it as 3 years and for me it hasn't got any better and is gradually getting worse which is really worrying, anything I go to do now I think about my ears , am I gonna need ear protectors, I currently had to leave my job cause it was to noisey, now am trying to find a job to accommodate my ears! And I have another 40 odd years of work :( lol slowly losing the will to live, only reason I haven't done anything stupid is I couldn't do it on my mum because she has been through a lot, I would like to go try this treatment but don't have the money which sucks, a lot of the time I say to myself why me !!! :( ruined my life.
 
Company ANM in Germany selling those devices got insolvent last year in September. Tinnitus clinics here prefer TRT with counselling, hearing aids and/or white noise generators. I myself use hearing aids since I have little hearing loss in the high frequencies - where my T is located. Sometimes, when T is very loud, I use those self-made sounds from the generalfuzz side.
 
As posted earlier on this thread I will be off to London tomorrow to have my first consultation/tests on my participation of the Neuromodulation device trial in the UK...I will report back on the findings in the next couple of days...hopefully all is good...
Hi Philip. So how was your experience of the neuromodulation device?
 
I paid for this in their harley street office used it 6 hours a day for one year. Went 6 times in that year for recallibration Didnt touch it, the money ive spent on T is getting ridiculous.
 
So it didn't work at all? Were you confident in accurately pinpointing the frequency of your T?

I haven't done this treatment, but maybe a comment.

When I tried doing this with an audiologist, they could only play tones up to 10 khz.
I was not able finding out my T frequency. Also tried several times on the generalfuzz site.
I gave up after some hours. I really cannot determine my T frequency.
Since my hearing loss (age related) starts around 6 khz, I guess my T is somewhere in the high frequencies (between 8 and 15). So I took just 10 khz and generated the audio on the generalfuzz site.
This helps a little bit bringing T down for some minutes.
But I don't want to play this for months 6 hours a day, in particular since I do not found many success stories on the web.

So would be really useful seeing success stories here.
 
I did Neuromonics, and I think all of these devices do is get us to move closer to habituation.. but we can't do it if all we do is think about the T, stop thinking about it, it starts to fall back in your brain... I used the thing sooooo much they ask me to stop and move to normal sound.. but I sat all day at a computer.. and I found a new appreciation in classical music..... if I could do it over and had the ability to put high frequency noise buried in classical music I would do it on a MP3 player... but buy the really good Boise ear buds... 100.00 USA dollars.... they transmit high pitch noise better that the crappy ones they sell, b/c our brain is starving for a certain noise.. feed the T, and the brain lays down.. you look away.. and maybe one day, when asked, " You got the T..?".. I will stand there and really focus and say.. why yes I do.. and then it goes away again... like the guy who sat next to me at work.. actually 2 of them funny.. we all had it...
 
I am doing the ACRN thing. Here's the last post I did in another thread, on Notched Music Therapy. This thread seems more appropriate.
"I did a cheap (free) Iphone workaround. Go to the generalfuzz site and get your frequency playing. Download a free app called Audio Loop. This app lets you record audio, then play it in an endless loop. I held my phone by the speakers and recorded a one minute section.
Now I have the acrn playing on my phone, and can take it anywhere with me. It worls with the Apple earbuds, and of course my Bose noise cancelling ones too.
Now to see if it works for me..............................

P.S. I am trying this at very low volume, I think that's the idea? "

I've started a spreadsheet to record how many hours a day I listen, and what my T levels are, etc. I find it hard to fit in the 4-6 hours a day they say you should do.

I'll try to keep posting on any progress.
 
Yep, it's expensive, but there's the possibility of a refund though, except for the consultation fees. Of course they likely expect you to hand out nearly £6000 before they give you the device, so even with the possibility of refund it's a lot of money to give away for a short while...

If the device had a no-refund policy, I'd currently suggest it to nobody, as I haven't been able to find published results from that first trial and the two additional trials are only now starting...

You're right~ they are very careful with any promise of cure "7 out of 10" experience "improvement." However there is a 60% refund before 3 months and they only required £900 then you have a payment plan option which is very doable.
I've been wearing mine for almost 3 weeks and notice a shift for the better but I am also following an Ayurvedic protocol of herbs and diet.
 
It will be a noiser rauschgerät i get
Hi Rob,
OK. So the white/ping noise generators (which are different devices than ANM Neuromodulation).
I also have them, but they don't help for my high pitched T.
Since I have hearing loss in high frequencies, will go for hearing aids.
Normally I would not need them for speech, but in high frequencies they give me more input.
Best regards,
Martin
 
Hi Rob,
OK. So the white/ping noise generators (which are different devices than ANM Neuromodulation).
I also have them, but they don't help for my high pitched T.
Since I have hearing loss in high frequencies, will go for hearing aids.
Normally I would not need them for speech, but in high frequencies they give me more input.
Best regards,
Martin

All I can tell you is that a so called noiser gives a broadband noise which functions as Neuromodulation or TRT.
Early april when I have it I will message you
 
Hello all~

I wanted to keep folks in the loop about my investment in the CR Neuromodulator device.http://www.thetinnitusclinic.co.uk/tinnitus-treatment/acoustic-neuromodulation/

I have been using it now for about 6 weeks and have notice slight improvement in my T.
The pitch seems to be lowering and becoming less tonal which apparently is good sign.

On the down side the device itself can a bit faulty with regards to battery and pitch matching can be tricky as well.

I just discovered this link: http://www.generalfuzz.net/acrn/ which is VERY similar to the CR Neuromodulator however if you going to use it here are some things I've found helpful:

Start off using for 60 minute blocks for no more than 4 hours a day (I did 3 for the first month) then gradually move into the 6 hours recommended, no more!
Keep the volume low! So you have tune in to hear it. I didn't do this at first and it really aggravates the T.
So now I listen when it's quiet ie; not on trains, planes or anyplace noisy.

I hope this helps~ feel free to contact me if you've any questions about how/why it helps or anything else concerning you about this.

Peace~
 
How is it working now @Orea?

I talked to NHBRU last week; they hope to have the results of the Acoustic Neuromodulation trial published around June. It's in review so it all depends on the length of the review process.
 
Hi all,

I've just started the do-it-yourself ACRN using the generalfuzz website. I found it relatively easy finding my frequency of the tinnitus as I have a pure tone ring. After a week of using it for 3-4 hours a day, I retested my frequency and it went down a little bit from 6640 to 5900. No change in volume but wasn't expecting any so soon after starting.

I have one question for ACRN users. Is it ok to listen to the ACRN tones whilst listening to radio/music on a reasonably low volume? I'm listening to a radio app on my smartphone and also playing the ACRN tones and can clearly hear the ACRN tones through the radio talk/music. Will doing this be less effective? Or is it ok as long as you can hear the ACRN tones?

Any advice would be most appreciated.

I've had mild/moderate pure tone tinnitus since I was 18 (too many loud punk bands as a teenager) and have mostly habituated to it as I knew there was no cure but still have always had to use a fan when sleeping. But i perceived an increase in volume after forgetting to wear my earplugs at a gig a few weeks back. Whether its a real increase or just perceived due to some anxiety about how I may have increased it, who knows? But finding out about a potential treatment like ACRN that could reduce the volume a bit made me give it a go.

cheers
Bryn
 
There is still that question - do you hit the frequencies of t (residual inhibition), all frequencies but frequencies of t (notched music), or neighboring frequencies to t. Why are these therapies all so contradictory? There has to be one that works best? Or is everyone's t so different, that each response is different? Also, I do wonder with these research statistics from studies, how much is funded by the company itself?
 
There is still that question - do you hit the frequencies of t (residual inhibition), all frequencies but frequencies of t (notched music), or neighboring frequencies to t. Why are these therapies all so contradictory? There has to be one that works best? Or is everyone's t so different, that each response is different? Also, I do wonder with these research statistics from studies, how much is funded by the company itself?
I think that we respond differently to sound - take musical tastes as an example. I could react badly, through emotional connection to a sound, and become worse; whereas somebody else can find it pleasant and feel better. My biggest issue with ANM is that it irritates me, I can't ignore those 4 repetitive tones, not tuned to the equal temperament scale (or any musical tuning for that matter).

The Nottingham trial results of Acoustic Neuromodulation should be out any time now, so we'll have much better evidence for it soon.
 
Thank you, but I can't seem to match my T with the frequencies on the website. Unfortunately, I have two tones, high and low pitch at the same time.... I have been really struggling for the last month with no improvement (tinnitus for 15 years overall, but a very bad change in the last month) and it seem to be worsening.
 

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