It sucks. I just can't see how things are going to get any better. I am aware of it literally every waking moment. I'm so scared that it will be like this forever. I won't be able to cope. I don't want to have to cope. I don't want to die either. But my life just sucks so bad. No one cares anymore. No one listens anymore. Well, you guys do, but I can't count on your every hour coz I need to learn how to live on my own. I'm terrified. I'm starting uni next week and I know I won't be able to sit through lectures. I can't concentrate. I can't study. I hate going to people houses coz it's so quiet. When I mask it I can still hear it (not as bad, but it's there. Always). I'm absolutely miserable and I wish so bad I could somehow learn to ignore it. But I can't. I try. But I just want to tear my hair out and scream all the time. Will it go away? Please tell me this is going to go away. I can't do a life time of this. No way.
Hi Neenie,
In the beginning, I was told that part of successfully managing my t was to change my perception about it.
I didn't think this was possible. I in fact, didn't want to. I just wanted to get rid of it.
Nearly 2 months later, I am not distressed by it. I am enjoying moments through the day ( I am sitting in a quiet room even as I write this), where the t is no longer a constant intrusion. I am aware of the sound Neenie, but it isn't preventing me from living out this day in a way I choose. This is largely because I have faced a fact. I have t. it is with me 24/7. I have accepted it, and I know it wont hurt me. I would rather not have t, but since I do, the only way forward is acceptance. Acceptance isn't giving up. It takes a lot of emotional energy to fight. I am battling another illness concurrently. this has given me some perspective. I no longer feel t is the worst thing that could happen to me.
I never dreamt I would ever come to accept it, but I have. You will too Neenie. And, when you do, you will wonder what all the fuss was about....
The phone counsellor I spoke to with the tinnitus association of Victoria is a godsend. (he himself has t. so severe in the beginning that he didn't think like you, that he could live a normal live with it)
He also told me that there is no reason for my life not to continue as it previously did...
that t wouldn't prevent me from living a normal and quality life. He is right. Though, I didn't believe him at the time!
I looked at the evidence. I know several people (including this counsellor) who are successfully managing their t...they have habituated. My aunty became aware of her t five years ago. She is not bothered by it in the least. She only hears it when attention is drawn to it, and when she can hear it, shes not distressed by it whatsoever. She even went as far as to say that sometimes the sounds amuse her because they sound musical at night.
Since my diagnosis, I have learnt of several people whom I work with or even socialise with who have t. None of them have mentioned it up till now to me because it is such a non issue for them. That is reassuring to me. It should be to you too. I don't know about Germany, but I know the stats here in Australia are 1 in 5 people are aware of their t. (we all have t. not all of us are aware of it)
I have met 4 audiologists with t. Again, a non issue for them too.
Our brains naturally adapt to change. you know that
When I am at work, I sometimes fail to hear monitors or babies crying when I am so engrossed in something else. that is just one example of how the brain can filter noise.
What about the example of a nursing mother; who can sleep through a loud storm, but wake when she hears her baby cryin
www.tinnitus.org.au
above is an excellent website. it describes the four keys to successful management of the t.
I am sure you are well versed on t, but maybe revise the four keys will help reassure you.
Remember, most of us that have had it a long time, we aren't "dealing with it"... We just simply have tinnitus. It doesn't have us. My tinnitus slowly became something I no longer worried about, reacted to or cared about. And I have both pulsitile and ringing tinnitus. The only reason I came to this board last month is because my ringing tinnitus spiked and I wanted someone to commiserate with since my family cannot relate. I'm already to the point I don't care about the tinnitus anymore. I hear it, some days it's louder, some days it's quiet, but still there. I've just gotten to the point where I don't react. And sometimes I'm able to completely ignore it. I just don't notice it at all.
Have you taken my advice that I've given you on other threads? Seeking a second opinion regarding your meds?