If possible, I'd like to get status update from those who have gone through the trial already to see how they are doing at this point.
It's been two weeks since my first injection, and at the point where I was told I should start noticing the effects.
I'm having mixed feelings about where I am at this point.
Positives: My tinnitus seems to be lower in volume, it's less annoying than it was, I'm sleeping better (though not as good I did before the tinnitus began), there's constant changes to my tinnitus. Yes, at times now I don't even notice it.
My mixed feelings on it: My tinnitus was showing gradual improvements almost on a daily basis before I started with the injections, so I'm not sure if these are the results of my natural healing process. I'm not sure if I received the drug.
Negatives: Other than the time that it took and continues to take to participate in the trial, I didn't find much downside to participating, other than the obvious discomfort of being jabbed in the ears 3 times over three days.
How I reached my decision: I discussed this at length with my own ENT and also a therapist. The ENT told me that pretty much the worst thing that would happen is that nothing would happen. He told me it was a low risk procedure and the side effects are most likely temporary. My therapist noted that she picked up in my voice when discussing this, that I'd probably feel like I missed out on an opportunity if I didn't take part in the trial. She didn't recommend or disapprove of me taking part just that we'd see what happens and if I gain relief from my tinnitus and never need to talk to her again, that'd would be wonderful.
After the procedure: My tinnitus was louder (has since returned or lessened to my pre-injection levels). My ears were clogged from the injection and that effected my hearing (even today 2 weeks they feel about 10% clogged). I had vertigo a couple of times.
Personal positives: Since the location of the injections was 2 hours from where I live, I turned it into a mini vacation. I did some of the tourist things, explored the town, and found some great restaurants. This helped me take my mind off the procedure and also helped with my depression.
I'm hopeful I received AM-101 and it works.
Time will tell and I will do my best to post updates as my condition either changes or doesn't.
I'm not going to recommend or suggest someone not take part in the trial. I can only share my experience.
Member
Keep us posted! And it will be interesting to see if the drug also helps lower the tinnitus you've had since 2001. If it helps by at least 40-50%, that means all chronic sufferers should try the drug when it is available!
