- Apr 6, 2019
- 34
- Tinnitus Since
- 03/2019
- Cause of Tinnitus
- MRI, Stress - recovered after 4 years
Hi all,
I am Sasha and for 2 and a half weeks, a member of your "precious" club. Your Forum gave me quite some support by just reading it, some of your members are very positive and supportive and I have a huge amount of respect for everyone here, who is coping with our "symptoms" for such a long time.
Not sure if I would have the strength for that, especially after the setback yesterday.
But lets get started from the beginning.
I have been a DJ and music lover for more than 20 years now, had my own club and event series, played to lots of happy people and always took care of my hearing. I realized that protection is important, I never went into the reds and always let my ears rest after an event.
My hearing was pretty much that of a baby, they could not trace down any loss anywhere, even in the frequencies 8khz+. You could call that "perfect hearing" if you know what I mean by that expression. Yes, I noticed the differences between various mp3 formats and wav files could track down every single instrument and sound and so on.
4 Years ago, the doctors found a tumor in my head, suprisingly something two other DJ friends also had. Said tumor, has not grown one bit, nor has it affected my hearing or general life. You could say, I was raving on a good wave, with lots of happiness. That, however, all changed when I had my routine check at the hospital 17 days ago.
One of the nurses put the headphones on, which slightly removed my in ear plug, that I always had during MRIs. While the sounds inside the MRI were not "too loud", so that it hurt, I felt it was louder in my right ear than in my left and I became worried. 15 Minutes later, I came out of the MRI and all of a sudden my life was different. No changes to the tumor, but my right ear seemed damaged.
I had a strange feel in my ear, many of you described it as a fullness, so that I went home, always protecting my ear from noises. Once home, I realized how I was feeling contractions and noise, next to my right eye, kind of moving downwards into my ear. Of course I panicked, started protecting my ear even more and tried to sleep.
Once I woke up, I was still in distress, I was so afraid my ear got damaged, as I felt that i was hearing distorted things, however, not the stuff you hear coming from the outside, but more of sounds in the inside. I was hearing fine, yet I was not.
I started reading up on forums about how MRI´s are known to cause Tinnitus and boom, all of a sudden I heard about that illness for the first time and was shocked. I blamed myself for going to the MRI; blamed the nurse and me for not stopping the procedure immediately.
My situation became more problematic, as all of a sudden I noticed a very loud never stopping sound in my ear, it was kind of like that of a jet taking off.
Sleeping became impossible, the jet was driving me nuts (loudest), while I still had that distorted high pitched sounds, next to my right eye, causing contractions that lead to my inner ear.
After it did not get better, I started taking prednisolon, it seemed to help somehow, even though the dosage was just 40mg and later 60mg. When I checked in to the doctor 6 days later, the sounds had improved okish, so that while being in her office, I was feeling better and might have not played the victim card hard enough. She said, I should relax and wait and see how it goes, while keeping prednisolon, but she also noted that without hearing loss, there is usually no need for it.
I still kept taking it, my hearing is so important, my job and life depends on it, so i did not care about side effects like gaining weight or so. Unfortunately, was my situation very unstable in the following days. I could wake up with loud sounds or in total silence, it was unpredictable and unexplainable to me. After another sleepless night, i checked in with my regular doctor who immediately said, that the procedure I did is to be expected, but that we now must move on with a higher dosage of prednosolin.
He gave me 150/100/100/100/50.
He also did a hearing test, compared it to my old results and it was negative. No hearing loss and if I walk the street (always protected), I hear everything just fine, but I notice how the contractions become more noticable whenever I do more than just laying down, always as if something in my body was causing it. When I took the 150mg, I felt so much relief immediately on Monday, that I could sleep for 2 hours straight. I noticed how the sounds became quieter and quieter, within 30 minutes, it was a good feeling! Sadly, two hours later it was back. That being said, getting such a strong reaction, gave me hope and I got a lot of extra supplements to help me through as well. I always took care of these things, sport is important so is my fitness and general life. No smoking, alkohol or drugs.
Except for one, i took an antibiotic for 21 days, it´s low dosage should not cause any harm, but the possibility still existed but they had no statistics for it. I asked three doctors about it, the general idea about "SKID 50" was, that it might in very rare occasions be otoxic, but it should be out of the system with three - four weeks. I only took half of the recommended dosage btw. I immediately stopped the medication 4 days after the incident.
I just don´t want to give up or waste my chances by focusing on just one path therefore I am giving you everything I have or know.
After the increased predno dosage, I had moments of silence, just some soft white noise in my ears, but that is normal for DJ´s and seems to also have something to do with regeneration, blood flow (a DJ doctor once told me that). Now the thing is, I also had these moments of silence during the first week, prior to the increased dosage of prednosolin, but they did not last that long, quite often were removed by me checking for sounds or moving around in bed and the very loud jet was always there at night.
Said jet, was now gone for 3 days this week and just a slight fan sound was in the background, almost non noticable and kind of triggered by my tubes, I could make it louder and quieter by yawning for instance.
On Thursday this week, I took 200mg, I did overdose accidently, but I felt better than ever before, it was like a positive spike by an accident, the doctor said, that this is ok, but that we will now wait with further meds, unless it comes back. For this purpose, he gave me 500mg, that I would use in either 200,200,100 or the older 150,100.... if it comes back.
On Friday I had a lot of back pain, did several excercises, to relax my muscles and it got away.
I am also using a teeth protection since a week, ordered it online, as I believe my tube issues are related to me pressing teeth at night.
Anyways,
As following the doctors advice, I took no predno on Friday, but in the morning I did notice a few setbacks already, a stiff neck and the contractions / high pitched distorted sounds became more visible again as always when I become more active since the incident (almost 24 hours since my last dosage). It´s almost as if my body triggers something and it is always combined with the contractions next to my right eye, half height to my ear, leading into it. As if I would cramp up or something. I know there is an arteria, I also noticed that this condidition improves by taking vitamins, glycin and arigin supplements. I can´t say it, but to me that is a procedure that I have an influence on, but I dont fully understand it yet.
The jet still wasn´t back though, so my doctor and I decided to take the mentioned break from predno as planned and see how it goes next. I was ok with that, after all I felt doing good and believed it would only take some more time to fully restore or heal up what was broken.
Now the thing is, during the afternoon, I noticed how these contractions became more and more noticable, including the distorted sound, less by sitting down, more by walking around. I was still trying to protect my ear, like always, but when I tried to do something on my pc in the evening, the jet all of a sudden came back. I had to turn the PC off and it settled down again. My fans are noisy, I lowered that volume a lot in the past 2 weeks, by getting quieter ones, but I don´t know, I still feel that there is a connection. When I am on my laptop, I dont have that many issues, but then again, I was on the PC just fine as well, during higher predno dosages.
When I went to bed, I had the jet back in my ear, so I decided to take 60mg prednosolin and found relief again, almost immediately. I slept for 3 hours, woke up had to pee and fell asleep again until 6. It was the longest time I have slept a night since the incident, even though I had the huge setback just hours ago and the bigger improvements with the higher dosage this week.
So here is the thing,
I have no visible hearing loss even above 8khz which is often not checked by the doctors. I have no audible loss either, by just hearing sounds, it all sounds okish, except for the distortion, that however, is not the sound from the outside that is distorted, but it´s inside, right next to my eye, half way to my ear and not triggered by the sound itself, I believe. It´s me thinking about it and boom, something triggers. It´s kind of the sound of a "fax" or old "router sound" or if you print something. I noticed this first, shortly after the MRI, long before the jet sound came up, it was the first symptom.
The medics obviously work on me and I will now take them over the weekend again, to see if it was a mistake to stop with them so early, but I am of course super worried now, as there are so many horror stories about this being permanent.
But if it´s permanent, then why do I get moments of silence from time to time? They are rare, right now I have a slight jet in my ear again, will take my dosage to lunch and see what happens, but it seems to me as not all hope is lost yet, if I get a reaction.
It´s quite funny that I make this post now instead of the success story post, that I wanted to make in a few weeks, I felt really good prior to yesterday afternoon, still worried but better, now all that has changed, was it because I did not take a dosage on friday? My doctor said, it stays in your blood for 10 days, but if it does, then why the setback?
You see I am a bit clueless and worried, forums in my native language have only negativity, so I try to avoid them and therefore came here.
Maybe you guys have heard about something similar in the past, if so, it would be amazing if you could help me through this.
Thanks,
Sasha!
I am Sasha and for 2 and a half weeks, a member of your "precious" club. Your Forum gave me quite some support by just reading it, some of your members are very positive and supportive and I have a huge amount of respect for everyone here, who is coping with our "symptoms" for such a long time.
Not sure if I would have the strength for that, especially after the setback yesterday.
But lets get started from the beginning.
I have been a DJ and music lover for more than 20 years now, had my own club and event series, played to lots of happy people and always took care of my hearing. I realized that protection is important, I never went into the reds and always let my ears rest after an event.
My hearing was pretty much that of a baby, they could not trace down any loss anywhere, even in the frequencies 8khz+. You could call that "perfect hearing" if you know what I mean by that expression. Yes, I noticed the differences between various mp3 formats and wav files could track down every single instrument and sound and so on.
4 Years ago, the doctors found a tumor in my head, suprisingly something two other DJ friends also had. Said tumor, has not grown one bit, nor has it affected my hearing or general life. You could say, I was raving on a good wave, with lots of happiness. That, however, all changed when I had my routine check at the hospital 17 days ago.
One of the nurses put the headphones on, which slightly removed my in ear plug, that I always had during MRIs. While the sounds inside the MRI were not "too loud", so that it hurt, I felt it was louder in my right ear than in my left and I became worried. 15 Minutes later, I came out of the MRI and all of a sudden my life was different. No changes to the tumor, but my right ear seemed damaged.
I had a strange feel in my ear, many of you described it as a fullness, so that I went home, always protecting my ear from noises. Once home, I realized how I was feeling contractions and noise, next to my right eye, kind of moving downwards into my ear. Of course I panicked, started protecting my ear even more and tried to sleep.
Once I woke up, I was still in distress, I was so afraid my ear got damaged, as I felt that i was hearing distorted things, however, not the stuff you hear coming from the outside, but more of sounds in the inside. I was hearing fine, yet I was not.
I started reading up on forums about how MRI´s are known to cause Tinnitus and boom, all of a sudden I heard about that illness for the first time and was shocked. I blamed myself for going to the MRI; blamed the nurse and me for not stopping the procedure immediately.
My situation became more problematic, as all of a sudden I noticed a very loud never stopping sound in my ear, it was kind of like that of a jet taking off.
Sleeping became impossible, the jet was driving me nuts (loudest), while I still had that distorted high pitched sounds, next to my right eye, causing contractions that lead to my inner ear.
After it did not get better, I started taking prednisolon, it seemed to help somehow, even though the dosage was just 40mg and later 60mg. When I checked in to the doctor 6 days later, the sounds had improved okish, so that while being in her office, I was feeling better and might have not played the victim card hard enough. She said, I should relax and wait and see how it goes, while keeping prednisolon, but she also noted that without hearing loss, there is usually no need for it.
I still kept taking it, my hearing is so important, my job and life depends on it, so i did not care about side effects like gaining weight or so. Unfortunately, was my situation very unstable in the following days. I could wake up with loud sounds or in total silence, it was unpredictable and unexplainable to me. After another sleepless night, i checked in with my regular doctor who immediately said, that the procedure I did is to be expected, but that we now must move on with a higher dosage of prednosolin.
He gave me 150/100/100/100/50.
He also did a hearing test, compared it to my old results and it was negative. No hearing loss and if I walk the street (always protected), I hear everything just fine, but I notice how the contractions become more noticable whenever I do more than just laying down, always as if something in my body was causing it. When I took the 150mg, I felt so much relief immediately on Monday, that I could sleep for 2 hours straight. I noticed how the sounds became quieter and quieter, within 30 minutes, it was a good feeling! Sadly, two hours later it was back. That being said, getting such a strong reaction, gave me hope and I got a lot of extra supplements to help me through as well. I always took care of these things, sport is important so is my fitness and general life. No smoking, alkohol or drugs.
Except for one, i took an antibiotic for 21 days, it´s low dosage should not cause any harm, but the possibility still existed but they had no statistics for it. I asked three doctors about it, the general idea about "SKID 50" was, that it might in very rare occasions be otoxic, but it should be out of the system with three - four weeks. I only took half of the recommended dosage btw. I immediately stopped the medication 4 days after the incident.
I just don´t want to give up or waste my chances by focusing on just one path therefore I am giving you everything I have or know.
After the increased predno dosage, I had moments of silence, just some soft white noise in my ears, but that is normal for DJ´s and seems to also have something to do with regeneration, blood flow (a DJ doctor once told me that). Now the thing is, I also had these moments of silence during the first week, prior to the increased dosage of prednosolin, but they did not last that long, quite often were removed by me checking for sounds or moving around in bed and the very loud jet was always there at night.
Said jet, was now gone for 3 days this week and just a slight fan sound was in the background, almost non noticable and kind of triggered by my tubes, I could make it louder and quieter by yawning for instance.
On Thursday this week, I took 200mg, I did overdose accidently, but I felt better than ever before, it was like a positive spike by an accident, the doctor said, that this is ok, but that we will now wait with further meds, unless it comes back. For this purpose, he gave me 500mg, that I would use in either 200,200,100 or the older 150,100.... if it comes back.
On Friday I had a lot of back pain, did several excercises, to relax my muscles and it got away.
I am also using a teeth protection since a week, ordered it online, as I believe my tube issues are related to me pressing teeth at night.
Anyways,
As following the doctors advice, I took no predno on Friday, but in the morning I did notice a few setbacks already, a stiff neck and the contractions / high pitched distorted sounds became more visible again as always when I become more active since the incident (almost 24 hours since my last dosage). It´s almost as if my body triggers something and it is always combined with the contractions next to my right eye, half height to my ear, leading into it. As if I would cramp up or something. I know there is an arteria, I also noticed that this condidition improves by taking vitamins, glycin and arigin supplements. I can´t say it, but to me that is a procedure that I have an influence on, but I dont fully understand it yet.
The jet still wasn´t back though, so my doctor and I decided to take the mentioned break from predno as planned and see how it goes next. I was ok with that, after all I felt doing good and believed it would only take some more time to fully restore or heal up what was broken.
Now the thing is, during the afternoon, I noticed how these contractions became more and more noticable, including the distorted sound, less by sitting down, more by walking around. I was still trying to protect my ear, like always, but when I tried to do something on my pc in the evening, the jet all of a sudden came back. I had to turn the PC off and it settled down again. My fans are noisy, I lowered that volume a lot in the past 2 weeks, by getting quieter ones, but I don´t know, I still feel that there is a connection. When I am on my laptop, I dont have that many issues, but then again, I was on the PC just fine as well, during higher predno dosages.
When I went to bed, I had the jet back in my ear, so I decided to take 60mg prednosolin and found relief again, almost immediately. I slept for 3 hours, woke up had to pee and fell asleep again until 6. It was the longest time I have slept a night since the incident, even though I had the huge setback just hours ago and the bigger improvements with the higher dosage this week.
So here is the thing,
I have no visible hearing loss even above 8khz which is often not checked by the doctors. I have no audible loss either, by just hearing sounds, it all sounds okish, except for the distortion, that however, is not the sound from the outside that is distorted, but it´s inside, right next to my eye, half way to my ear and not triggered by the sound itself, I believe. It´s me thinking about it and boom, something triggers. It´s kind of the sound of a "fax" or old "router sound" or if you print something. I noticed this first, shortly after the MRI, long before the jet sound came up, it was the first symptom.
The medics obviously work on me and I will now take them over the weekend again, to see if it was a mistake to stop with them so early, but I am of course super worried now, as there are so many horror stories about this being permanent.
But if it´s permanent, then why do I get moments of silence from time to time? They are rare, right now I have a slight jet in my ear again, will take my dosage to lunch and see what happens, but it seems to me as not all hope is lost yet, if I get a reaction.
It´s quite funny that I make this post now instead of the success story post, that I wanted to make in a few weeks, I felt really good prior to yesterday afternoon, still worried but better, now all that has changed, was it because I did not take a dosage on friday? My doctor said, it stays in your blood for 10 days, but if it does, then why the setback?
You see I am a bit clueless and worried, forums in my native language have only negativity, so I try to avoid them and therefore came here.
Maybe you guys have heard about something similar in the past, if so, it would be amazing if you could help me through this.
Thanks,
Sasha!
Member
