Are Hyperacusis and Trigeminal Neuralgia Connected?

#31
Anyone else also feel their facial veins swelling and or have a venous hum in their ear because of hyperacusis? It's hard ard to believe that one tiny tensor tympani muscle can cause people so much pain.

I really want to get mine cut so at least the hyperacusis will all be over.
 
#32
frpp said:
Anyone else also feel their facial veins swelling and or have a venous hum in their ear because of hyperacusis? It's hard ard to believe that one tiny tensor tympani muscle can cause people so much pain.

I really want to get mine cut so at least the hyperacusis will all be over.
Click to expand...
I sometimes feel like something in my ear is lightly vibrating when it's at its worst.
 
#33
frpp said:
Anyone else also feel their facial veins swelling and or have a venous hum in their ear because of hyperacusis? It's hard ard to believe that one tiny tensor tympani muscle can cause people so much pain.

I really want to get mine cut so at least the hyperacusis will all be over.
Click to expand...
Hyperacusis is a cochlea problem. Don't mutilate yourself for no good reason.
 
#35
Anyone here get headaches or migraines from hyperacusis as well? Or tightness/spasms on the roof of their mouth?
 
#37
Juan said:
All the time... a month-long headaches...
Click to expand...
Same man. It never ends. Ears spasmes, the nerve gets pissed, the veins inflame, rinse and repeat. I don't even get the loudness anymore just reactive spasms, ETD, nerve pain, and migraines about 25-28 days per month.

Do you get pulsatile tinnitus as well?
 
#41
Juan said:
Not often. My main symptoms have always been ear pressure, migraines, pressure behind eyes, and irradiating towards temples an throat... It's pretty bad.
Click to expand...
Same. I get venous hum in both ears on top of all that, and a lot of rumbling. The whole thing just drives me bonkers.
 
#42
frpp said:
Same. I get venous hum in both ears on top of all that, and a lot of rumbling. The whole thing just drives me bonkers.
Click to expand...
For me the symptoms started to subside when I started progressing towards hearing loss. So for me it was a trade off: lost a chunk of hearing, and now it is harder for me to understand sound in some contexts and situations, but wearing earplugs I am ok going for a walk etc, and the amount of pain and pressure has decreased a bit.

Before all that happened sound went through my body and head like a knife on butter. I could feel sound going literally through my head, like amplified bone conduction; it was just awful, and this was triggered by loud sounds that are commonplace.
 
#43
Juan said:
For me the symptoms started to subside when I started progressing towards hearing loss. So for me it was a trade off: lost a chunk of hearing, and now it is harder for me to understand sound in some contexts and situations, but wearing earplugs I am ok going for a walk etc, and the amount of pain and pressure has decreased a bit.

Before all that happened sound went through my body and head like a knife on butter. I could feel sound going literally through my head, like amplified bone conduction; it was just awful, and this was triggered by loud sounds that are commonplace.
Click to expand...
Same but I haven't experienced any more hearing loss since my last accoustic trauma. Actually what you just said kind of matches up with the type II afferent theory going on in the FX-322 thread right now regarding hyperacusis.
 
#44
Juan said:
For me the symptoms started to subside when I started progressing towards hearing loss. So for me it was a trade off: lost a chunk of hearing, and now it is harder for me to understand sound in some contexts and situations, but wearing earplugs I am ok going for a walk etc, and the amount of pain and pressure has decreased a bit.

Before all that happened sound went through my body and head like a knife on butter. I could feel sound going literally through my head, like amplified bone conduction; it was just awful, and this was triggered by loud sounds that are commonplace.
Click to expand...
Would you trade hearing loss for hyperacusis with better hearing?
 
#45
NewLionel said:
So is it possible to calm down the the trigeminal nerve with medication and then the Tensor Tympani issues will subside?
Click to expand...
I believe anti-convulsants just alter the pain signals/block them, they don't really "calm" the nerve itself if there's something else that is irritating it. I could be wrong though.

Are you referring to any other meds?
 
#46
frpp said:
Same but I haven't experienced any more hearing loss since my last accoustic trauma. Actually what you just said kind of matches up with the type II afferent theory going on in the FX-322 thread right now regarding hyperacusis.
Click to expand...
I experienced hearing loss only years after hyperacusis started, way down the road...
 
#47
weab00 said:
Would you trade hearing loss for hyperacusis with better hearing?
Click to expand...
It's hard to say. I would say if I was retired I would rather stick with the hearing loss. But now probably I would prefer better hearing, as I need it to interact at work etc...

Hyperacusis is very painful and isolating but it is possible to interact, talk to others, sit in a group and enjoy the company, in a controlled environment (home, quiet place outside, park, the beach etc).

Hearing loss is isolating and frustrating, it is just that is hard to communicate even in controlled environments, and one needs to focus and pay full attention to listen to anything, so that's a big change for me. At the end of a normal (not a demanding) day it is usual to feel wrecked, very very tired, due to having to concentrate just to hear, something normal people do automatically.
 
#48
Orions Pain said:
I believe anti-convulsants just alter the pain signals/block them, they don't really "calm" the nerve itself if there's something else that is irritating it. I could be wrong though.

Are you referring to any other meds?
Click to expand...
Just Pregabalin... It seems to be the most promising option... Something is definitely irritating it... I can't lift anything heavy... It seems to be getting worse/spreading... MRI showed nothing.
 
#51
Traumasux said:
How are you doing now with the nerve issue?
Click to expand...
I have recently been to a chiropractor who said my atlas/C1 is misaligned which is causing significant portion of my problems. Now it's a matter on working on getting that fixed which my chiropractor is confident he can help.
 
#52
NewLionel said:
I have recently been to a chiropractor who said my atlas/C1 is misaligned which is causing significant portion of my problems. Now it's a matter on working on getting that fixed which my chiropractor is confident he can help.
Click to expand...
That sounds great.

Is it a specialist or just a regular chiropractor?
Which symptom did you have from the nerve?
 
#53
NewLionel said:
I have recently been to a chiropractor who said my atlas/C1 is misaligned which is causing significant portion of my problems. Now it's a matter on working on getting that fixed which my chiropractor is confident he can help.
Click to expand...
Hey I have a few questions, we seem to have very similar symptoms. Do you have ear pain and face pain or mostly face pain?

Any neck pain at all? Did they do imaging to figure out it's your atlas that's misaligned?

And final one, do you find that your pain worsens with sound?
 
#54
Traumasux said:
That sounds great.

Is it a specialist or just a regular chiropractor?
Which symptom did you have from the nerve?
Click to expand...
The right side has the bad hyperacusis. Lifting anything, and from stress and stuff, I get pain. I'm fairly sure the misaligned C1 was caused from lifting weights incorrectly.

My jaw radiates pain and is connected to noise sensitivity... maybe it's connected to my neck.
 
#55
NewLionel said:
The right side has the bad hyperacusis. Lifting anything, and from stress and stuff, I get pain. I'm fairly sure the misaligned C1 was caused from lifting weights incorrectly.

My jaw radiates pain and is connected to noise sensitivity... maybe it's connected to my neck.
Click to expand...
Can you feel sound vibrations in your neck?

I can feel my nerves getting irritated by certain sounds, it feels like a rubberband in my neck and ear. I also get tingling or an electrical feeling in the back of my head.
 
#56
Traumasux said:
Can you feel sound vibrations in your neck?

I can feel my nerves getting irritated by certain sounds, it feels like a rubberband in my neck and ear. I also get tingling or an electrical feeling in the back of my head.
Click to expand...
I get pain in my jaw from sounds... though sometimes it feels like my whole nervous is system is going crazy... hard to describe... Kinda like everything is getting inflamed.
 
#57
I have the same symptoms, maybe because I have TMJ and cervical problems (bad posture) for many years, but I did not have any trigeminal pain until now.

Now it exploded, I have pain almost 24/7, I cannot even put my face on the pillow, I have to sleep facing up, no side sleeping for me.

When the trigeminal nerve hurts I feel that also the neck hurts and the LDL is very low, my own voice hurts. I started yesterday Carbamazepine --- my neurologist gave it to me.

One of the causes are surely the earmuffs, when I put them on I feel a lot of pressure and pain to my trigeminal nerve. I stretched them a lot, but it seems that the nerve is too sensitive.
 
#58
Lilah said:
Where do you get the pain?

What are your symptoms?

I think TTTS, hyperacusis, TMJ, TN present similar symptoms but I'm not sure if/how they are related. I've had a dull ear ache/burning sensation since I got tinnitus which I thought was hyperacusis-related, but recently I got a sharp ear ache and I'm wondering if it is trigeminal neuralgia, or some type of neuralgia. Usually I only had this pain with noise but then it stopped going away.
Click to expand...
@Lilah, I have the exact same symptoms as you.

How are you these days? Did you improve in terms of pain?

Thanks.
 
#59
Taw said:
@Lilah, I have the exact same symptoms as you.

How are you these days? Did you improve in terms of pain?

Thanks.
Click to expand...
I have not had a sharp pain (voodoo doll/ice pick) in my ear since that time (September 2020). I believe that was caused by my jaw, it as my ear/jaw were pressed on a hard wedge pillow on a very elevated level. I still have on/off dull ache in the same ear which I believe is caused by jaw or hyperacusis.
 
#60
I know this thread is old, but I just wanted to say that I think you're onto something here. I had trigeminal neuralgia and "numb chin syndrome" in March of this year and it required a CT and MRI scan to check for a brain tumor (luckily nothing). Then in August I forgot my earplugs at a wedding and developed pain hyperacusis two days later; still hoping it'll go away!

There's some good and bad news here. If these nerve issues are truly related, there are some alternative therapies that seem to have actual scientific efficacy for facial nerves like electroacupuncture, LLLT, and even some supplements. For example, I found that Alpha Lipoic Acid seemed to decrease the incidence of my facial numbness, as did regular cardio. I'll be trying a lot of different things with this in mind over the next few months and I'll post again with results :)
 

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