Atypical Meniere's Diagnosis — Is This My New Reality. I Can't Take It.

[Dominic1955]

@LongislandGuy do you have normal audiogram?
Does your hearing fluctuate?

 

[LongislandGuy]

I am seeing the doctor in 2 weeks. Before my hearing was normal

 

[Jkph75]

It 3 weeks since the tubes where take out. I still have the echo and pressure difference...it is better..but still there. I developed an atrocious low frequency humming / vibration sounds in my right ear. The only things I can attempt to compare it to would be the sound when you are inside a building and someone drives by with very loud bass in their car. Or, I could sometimes describe it as a car running off in the distance, or someone strumming a low frequency note on a bass guitar. It's devastating affect on my mood and sleep. A low-frequency loud roaring sound. the noise feels like it has a throbbing pulse

low-pitched vibrating type of sound,I find that it increases when I lie on my bed - especially when I put my ears against my pillow. This makes sleeping really uncomfortable and makes me really anxious and self-aware the whole night, and I am really distressed by it. Has anyone suffered from the same thing? Does anyone have any advice?

One way I would describe it is perhaps machinery running continuously in the distance, or the rumble of a loud car exhausted in the street. I can almost 'feel' the sound in my head, its so unnerving at times especially at the moment as its been pretty bad for a few days now. I also find that sometimes it can just go away, often for a few days and then it will be back. I simply cannot understand it,

I have the same thing. It's awful. Right now it's really bad. I also have a Morse code thing going on top of it. I noticed that if I get upset about something this low sound really cranks up.

 

[LongislandGuy]

Jkph75, You are right..when you get upset ..the sound cranks up alot.

You had your tube removed as well?

 

[Jkph75]

Jkph75, You are right..when you get upset ..the sound cranks up alot.

You had your tube removed as well?

No. I just have the same sound. Idk what's wrong with me. At a minimum, I have a fluctuating conductive loss.

 

[LongislandGuy]

I am sorry for your suffering Jkp75.

 

[LongislandGuy]

I had the same PCP look at my ear again today. Two weeks go.....it look like small hole like 0 ..and now it looks like a I.

 

[LongislandGuy]

It will be 5 weeks in Sat. and I am still having tinnitus, fullness, hyperacusis and autophony in my R ear. It is getting better..but so slowly. I am real worried that I might have to live with this forever. Time is going so slow when you are counting time. Waiting for something means that you are actually counting the time until that something happens. You are consciously and/or subconsciously thinking about how much time you still have to wait so it appears slower.

 

[LongislandGuy]

I got my ear check by the GP again and she said the hole is still there and the size hasn't changed since since 3 weeks ago. I am so upset...and sadden by this

 

[glynis]

Try not to worry,
A graft can be done if needed so just keep your ear dry and give it a little more time and I'm sure it will close up naturally.

Love glynis

 

[LongislandGuy]

Thank you for glynis

 

[japongus]

It 3 weeks since the tubes where take out. I still have the echo and pressure difference...it is better..but still there. I developed an atrocious low frequency humming / vibration sounds in my right ear. The only things I can attempt to compare it to would be the sound when you are inside a building and someone drives by with very loud bass in their car. Or, I could sometimes describe it as a car running off in the distance, or someone strumming a low frequency note on a bass guitar. It's devastating affect on my mood and sleep. A low-frequency loud roaring sound. the noise feels like it has a throbbing pulse

low-pitched vibrating type of sound,I find that it increases when I lie on my bed - especially when I put my ears against my pillow. This makes sleeping really uncomfortable and makes me really anxious and self-aware the whole night, and I am really distressed by it. Has anyone suffered from the same thing? Does anyone have any advice?

One way I would describe it is perhaps machinery running continuously in the distance, or the rumble of a loud car exhausted in the street. I can almost 'feel' the sound in my head, its so unnerving at times especially at the moment as its been pretty bad for a few days now. I also find that sometimes it can just go away, often for a few days and then it will be back. I simply cannot understand it,

This low pitched machinery rumble tinnitus you have, did you get it from the tympanostomy tubes or from the beginning of the injury?

 

[LongislandGuy]

I got the low pitched sound after the tubes were removed. Now I feel that my ear are clogged....very clogged ..different from before and i am still have some fullness and more tinnitus

 

[volsung37]

I've had the low throbbing hum for about 9 months now. It is pretty annoying. I find if I eat potatoes, fish fingers and baked beans with turmeric mixed in there is often a marked reduction in the sound for a day or two. Very strange. I am going to have some tonight. I also find rosemary or thyme tea helps a bit with the loudness. MSG or overly spicy food can spike the hum for me. Diet may have quite a bit to do with managing this condition.

 

[LongislandGuy]

This all happen after she took the tube out of my ear

 

[LongislandGuy]

I can't tell if my ear is getting better, my ear fluctuate constantly. I have an echo now ..it only been 1 week. I think it is getting better.