Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus
- Thread starter attheedgeofscience
- Start date
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Hi Mark,the nurse i spoke to this afternoon was reading out the information sent to the hospital from Autifony
Relief from T after a 4 week course for those between 6 to 18 months,a longer a course for those with longer T
I suppose the definition of relief is now trying to be ascertained by the trial
Hello Hotspur. Thank you. I think what we would like to hear is a positive effect coming through soon. Fingers crossed and thanks again for your updates.
Hi jeannie,still tricky to say,im not half way into the course yet ,usually im about a 4,have had a few recent days of about 2,but had those without this,not sure what everyones definition of a 2 is?For me its being in a quiet room but still hearing it quite faintly but it not bothering you too much? Hope this helpsHotspur, is there any change in your tinnitus yet?how long have you been taking it now a week or two? hopefully you will send us good news soon!
Hi mate thats no problem,it all seems quite open when you chat on the phone,hope i dont get a knock on the door from Autifony heavies in the middle of the night!@Hotspur
Thanks for the updates and your attempts to get as much info as possible. Its great to have a TT correspondent on the inside.
@Hotspur
Thank you also for updating us. Much appreciated.
Your T seems to be quite low anyway but it seems to have gone down a bit.
Did you see or enquire yet what the hearing criteria is or will be as you seem to have low T so I think that you also have minor hearing loss too......? maybe....
Thank you also for updating us. Much appreciated.
Your T seems to be quite low anyway but it seems to have gone down a bit.
Did you see or enquire yet what the hearing criteria is or will be as you seem to have low T so I think that you also have minor hearing loss too......? maybe....
Hi amandine,ive always found trying to rate T a bit vague!Surely one mans 4 is another mans 8?I tend to hear it over the tv and radio on bad days,dont it hear it so much when im at work
The most accurate gauge ive found is Audionotch Tuner,mine measured 12khz which im told is quite high,wish the NHS would use this site, as seems to match much better than what ive come across in hospitals!
Dont think i have minor hearing loss,as im 42 and been told i have the hearing of someone between 60 to 65
As for their criteria,always thought you had to have 20db loss across most frequencies?I had that, apart from 250 hz and 500 hz where i had about 18db
Thank you for the updates. Are you feeling any side effects or something that can be perceived as a side effect of the drug? I wonder If the trial hospital would give you any info on any of the other trialees? Might be worth a shot to ask!
This is quite sad that the trial hospital can't even get this correct. From autifony site :
A. AUT00063 is an orally active preparation that will be taken as 4 capsules once daily with food, for a period of 4 weeks.
Hi Rube ,no side effects at all,i was thinking as my hearing was quite bad ,one way of seeing if any effect has taken place ,would be too see the results of the hearing test when i go back
Hope now you might see something now that you are taking the one larger dose per day.
Thanks for that,quite disapointing really,think communication would be better,although autifony doctor didnt seem to think it was a big deal
How many days have you now taken the full dose at once? You went 8 days on the 1 tab per 4hr doses?
Ive done 12 days,ive got 17 left,tomorrow will be the start of the correct dosage
Is Autifony aware of this stuff up in your case?
12 days on an incorrect dosage may be a big deal in terms of drug efficiency
I don't want to trivialise your situation or pain in any way, but I think this is to be considered very low compared to most active people on this forum. I can hear mine basically at all times, even on good days - in heavy traffic, at the pub/club - everywhere.
It's awesome that you got on the trial though! And thanks for keeping us updated!
Hi Yes the nurse informed them this afternoon,Autifony dont think it seems to matter too much,only came to light when we were discussing what day i as was due to come in
Thats funny!But didnt he end up a recluse?Hopefully this will yield better results!
- Jul 21, 2013
- 842
- Tinnitus Since
- 01/2013
- Cause of Tinnitus
- Acoustic trauma from headphones
If my tinnitus got cured by Autifony's drug I'd quit my job and be a recluse for at LEAST 6 months so I could relish in the silence hahah. Then I'd start venturing out again, cuz ya know, might get hit by an airhorn randomly or something. At least wanna enjoy it for a bitThats funny!But didnt he end up a recluse?Hopefully this will yield better results!
Most people i know arent that interested ,suppose its something you have to experience to relate to,anyway hopefully youll all be on it soonIf my tinnitus got cured by Autifony's drug I'd quit my job and be a recluse for at LEAST 6 months so I could relish in the silence hahah. Then I'd start venturing out again, cuz ya know, might get hit by an airhorn randomly or something. At least wanna enjoy it for a bit
Great, please keep the updates coming especially now that youre going to take the correct dosage
@Hotspur
No you wont have problem. At the best you ll have some or a lot of improvement and the worst case scenario will be no change at all.
Thanks for telling me about your hearing loss - gosh! sounds like severe hearing loss but you can still hear, My loss of hearing must be pretty normal for my age group (older than you!) and also for explaining your T as well.
I too concur with @Valerie that it seems odd that they are not bothered at all by the dosage time table especially as you are nearly half way through (understandable if it wasnt explained to you which is also worrying). This cant be explained away with the idea that the hospital staff know you are getting placebo as it is a double blind study.
Unless it is just one giant con and they are testing for the sugar pill approach and intend to cure people with sugar who have enough faith in the pill they are taking. Mind over matter and all that..........
Cant possibly fathom that they dont care about the dosage time table? Strange indeed!
Anyhow looking forward to your reports as you go along with thanks from us all.
No you wont have problem. At the best you ll have some or a lot of improvement and the worst case scenario will be no change at all.
Thanks for telling me about your hearing loss - gosh! sounds like severe hearing loss but you can still hear, My loss of hearing must be pretty normal for my age group (older than you!) and also for explaining your T as well.
I too concur with @Valerie that it seems odd that they are not bothered at all by the dosage time table especially as you are nearly half way through (understandable if it wasnt explained to you which is also worrying). This cant be explained away with the idea that the hospital staff know you are getting placebo as it is a double blind study.
Unless it is just one giant con and they are testing for the sugar pill approach and intend to cure people with sugar who have enough faith in the pill they are taking. Mind over matter and all that..........
Cant possibly fathom that they dont care about the dosage time table? Strange indeed!
Anyhow looking forward to your reports as you go along with thanks from us all.
Hi amandine,oh yes,seem to hear fine ,never have to ask anyone to speak up,at the moment
Anyway thanks for that and i,ll let you know, bye for now
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