BEWARE of the ECoG Test! Made My Tinnitus Much Worse

[Dizzyhead888]

Have you done an audiogram? My newest audiogram looked crazy with drops on both ears. I have mild hearing loss in noise in areas, according to speech in noise, since the CVEMP damaged my hearing.
Our H and T will be permanent now.....we have to accept our new life with limitations.
How loud was the ECOG and how long did it last?

I have a mild hearing loss but not attributable to this test
I don't know how to describe its loudness. It was really loud, I was pulling back out of annoyance from the sound.
ECOG was done twice consecutively, 2 min each attempt, so 4 min in each ear.

I took lexapro.. I was worried to take it obviously. I had no choice but to take it as I had other problems.
It didn't quiten my tinnitus nor worsen it. However, outside of the house in public/nature/mall (i.e. not a closed room, I can on good days, not hear the tinnitus. Of course when I am back home, I hear it very well, over the TV.

I used to put earplugs in the cinemas. Now I only put earplugs in case its a loud movie, eg. action movie

 

[dpdx]

I have a mild hearing loss but not attributable to this test
I don't know how to describe its loudness. It was really loud, I was pulling back out of annoyance from the sound.
ECOG was done twice consecutively, 2 min each attempt, so 4 min in each ear.

I took lexapro.. I was worried to take it obviously. I had no choice but to take it as I had other problems.
It didn't quiten my tinnitus nor worsen it. However, outside of the house in public/nature/mall (i.e. not a closed room, I can on good days, not hear the tinnitus. Of course when I am back home, I hear it very well, over the TV.

I used to put earplugs in the cinemas. Now I only put earplugs in case its a loud movie, eg. action movie

I hope you get better.
Keep us updated here. I am still struggling with very severe hyperacusis in which I cant even talk without causing discomfort (right ear-the tested ear)

 

[Dizzyhead888]

I hope you get better.
Keep us updated here. I am still struggling with very severe hyperacusis in which I cant even talk without causing discomfort (right ear-the tested ear)

thanks, man you too
I understand your pain trust me.. and it being caused by a doctor who is supposed to make you better not worse, is just too much.

 

[MuffinMan]

So MRI/CVEMP/ECOG are all dangerous since they generate very loud sounds?

So I guess the CT scan may be the safest?

 

[dpdx]

So MRI/CVEMP/ECOG are all dangerous since they generate very loud sounds?

So I guess the CT scan may be the safest?

I cant speak for anyone here besides Dizziyhead and this other user, but the CVEMP had damaged my hearing and I got Severe Tinnitus. I had T on my left ear which was moderate-mild, after the CALORIC/CVEMP it turned severe, I got T on the right ear and I got Severe H on that ear (which was tested). This was on January 15,2018 and today is October 13,2018 that should tell you lots.
Dizzyhead did the ECOG and is in the same boat, another lady did the acoustic reflex and her T worsened permanently. Those ear tests appear to cause further hearing damage...please be advised of the risks.

 

[MuffinMan]

I will avoid these tests at all cost.

 

[Gman]

Also avoid LDL tests audiologists do for H, if you have ASD or TTTS.

 

[dpdx]

Also avoid LDL tests audiologists do for H, if you have ASD or TTTS.

My Speech in noise test was mild hearing loss something I didnt have before those tests (in both ears that is).
Those ear tests can permanently damage ones ears!

 

[dpdx]

I will avoid these tests at all cost.

Avoid them. Audiologists say they are OK but they are not, they cause hearing loss. My speech in noise tests were fine October 2017 and now they revealed mild hearing loss in noisy areas (inner hair cell damage).

 

[dpdx]

I have a mild hearing loss but not attributable to this test
I don't know how to describe its loudness. It was really loud, I was pulling back out of annoyance from the sound.
ECOG was done twice consecutively, 2 min each attempt, so 4 min in each ear.

I took lexapro.. I was worried to take it obviously. I had no choice but to take it as I had other problems.
It didn't quiten my tinnitus nor worsen it. However, outside of the house in public/nature/mall (i.e. not a closed room, I can on good days, not hear the tinnitus. Of course when I am back home, I hear it very well, over the TV.

I used to put earplugs in the cinemas. Now I only put earplugs in case its a loud movie, eg. action movie

Hey buddy, how are you feeling? Has it gotten better. You and I did these tests around the same time so I am keeping track of our progress.

 

[Dizzyhead888]

Hey buddy, how are you feeling? Has it gotten better. You and I did these tests around the same time so I am keeping track of our progress.

no progress..

 

[Redocooking]

Are you able to get 8 hours of sleep?
Can you apply pressure to your jaw area and change the pitch/loudness of the T this way?

 

[dpdx]

no progress..

Same thing here. We must have damaged our hearing further.

 

[dpdx]

no progress..

Hey buddy has it gotten better for you? Mine is still really bad. Next month it will mark a year with Severe T and Severe H.

 

[dpdx]

@Dizzyhead888 How are you doing man? Any signs of improvement? I am worried about you.

 

[JohnAdams]

If you go to a specialist they are going to just start doing tests on you with telling you what they are even called so you're not going to know what it was until after it's done.

 

[dpdx]

If you go to a specialist they are going to just start doing tests on you with telling you what they are even called so you're not going to know what it was until after it's done.

I love how the forum has been littered with horror stories from ear tests, just proves a point of how dangerous they are. My ENT told me that Tinnitus happens less than we think it does.

 

[JohnAdams]

I love how the forum has been littered with horror stories from ear tests, just proves a point of how dangerous they are. My ENT told me that Tinnitus happens less than we think it does.

You should tell him smart ENTs happen less than he thinks they do.

 

[dpdx]

You should tell him smart ENTs happen less than he thinks they do.

Well my Audiologist who has T said that T happens on the spot, it dosent delay. You cant get T 5 days after you been to a loud concert, that is a sign of something more sinister and not NIHL.

so much for the medical community eh?

 

[JohnAdams]

Well my Audiologist who has T said that T happens on the spot, it dosent delay. You cant get T 5 days after you been to a loud concert, that is a sign of something more sinister and not NIHL.

so much for the medical community eh?

I'd question that, however, mine did happen on the spot.

 

[dpdx]

I'd question that, however, mine did happen on the spot.

I am just suprised how the forums have been littered with these horror stories from doing the ear tests, for people who have NIHL, Hyperacusis..it is not safe.

I also cant believe how fragile our ears are, they are so easily damageable now. Easy to get other traumas.

 

[JohnAdams]

I am just suprised how the forums have been littered with these horror stories from doing the ear tests, for people who have NIHL, Hyperacusis..it is not safe.

I also cant believe how fragile our ears are, they are so easily damageable now. Easy to get other traumas.

Yeah it sucks. This is why I'm completely obsessed with technology that holds promise to heal this damage.

My theory is still that the damage cant heal simply because our cochlear fluids are devoid of healing factors that are present in human blood.

 

[Dizzyhead888]

@Dizzyhead888 How are you doing man? Any signs of improvement? I am worried about you.

Less reaction to it , but same level still. how about you
it takes the pleausure out of life but staying positive and accepting
checking this forum daily for neuromod

 

[dpdx]

Less reaction to it , but same level still. how about you
it takes the pleausure out of life but staying positive and accepting
checking this forum daily for neuromod

Same as I was back in January 2018. I cant believe yours didnt get better

 

[linearb]

If you go to a specialist they are going to just start doing tests on you with telling you what they are even called so you're not going to know what it was until after it's done.

This is not the experience I've had at all, with basically any of the, I don't know, four dozen medical specialists I've seen over the past twenty years for a myriad of health concerns.

If you don't like the quality of care you get from a doctor, leave and never go back. It's the same as any service industry. If some mechanic takes me for a ride and charges me $200 for "wheel bearing rotation" or some other made up thing, I fire them and never take my car back there... why would health be different?

As for ECoG, I've had two since the tinnitus got real bad. The first I tolerated no problem with no side effects; the second one I aborted half way through because it was loud and I remembered that it was a "useless test" which I'd already had. I don't think it's a really reasonable test to perform on people already suffering from T/H, but, generally it is very safe, these tests are performed hundreds or thousands of times a day, and for people without preexisting issues or who aren't insanely distressed already about the state of their audio systems, it's fine.

 

[OnceUponaTime]

@Dizzyhead888 @just1morething
@dpdx I just went to see Dr. Abraham Shulman in Brooklyn, he wants me to have the electrocochleaography test done. I really was not expecting this.... I dont think Im doing it. He said either way we will move forward and try to find a therapy that will help me. Have another appointment in 2 weeks.

He also wants me to do the EEG test. I do not think that's dangerous but who knows. Problem is the test costs $1650, the foundation/grant will cover $650 and I have to pay the rest. My insurance covers it as long as it is done in network.... well, guess what, the lab he referred me to is OUT of network. ugh. Trying to find and in network lab that will do this test.

Waiting on Neuromod.
Once

 

[dpdx]

@Dizzyhead888 @just1morething
@dpdx I just went to see Dr. Abraham Shulman in Brooklyn, he wants me to have the electrocochleaography test done. I really was not expecting this.... I dont think Im doing it. He said either way we will move forward and try to find a therapy that will help me. Have another appointment in 2 weeks.

He also wants me to do the EEG test. I do not think that's dangerous but who knows. Problem is the test costs $1650, the foundation/grant will cover $650 and I have to pay the rest. My insurance covers it as long as it is done in network.... well, guess what, the lab he referred me to is OUT of network. ugh. Trying to find and in network lab that will do this test.

Waiting on Neuromod.
Once

You made a smart decision, after those ear tests my tinnitus and hyperacusis have gotten far worse, lots of hearing was damaged.

 

[Ken219]

ENT told me that Tinnitus happens less than we think it does.

He went to college and medical school for that? There are too many stupid doctors. If I knew education was a matter of endurance I would have applied to a caribbean or south/central American medical school!

 

[dpdx]

He went to college and medical school for that? There are too many stupid doctors. If I knew education was a matter of endurance I would have applied to a caribbean or south/central American medical school!

You don't know much crap I heard from doctors. It is sad when I know more than they do.
My ENT said that audiogram above 8khz is useless as we loose hearing in higher frequencies.
But they finally agreed that the ear tests might have damaged some of my hearing, due to people with hyperacusis and tinnitus being more susceptible, although very unlikely its not entirely impossible

 

[OnceUponaTime]

@dpdx Is the eeg test safe??? It looks like it is....what do you guys think?
Once