I think the research on hearing loss will also give insights into tinnitus. They are already doing clinical trials in America for stem cell therapy and hearing loss. So who knows, the next 10-20 years a breakthrough could happen.
Can Tinnitus Be Cured? What Is Going to End Up Being the Cure?
- Thread starter Erlend
- Start date
wizman, this topic has been covered in earlier posts. The one that generated the longest thread is this one:
https://www.tinnitustalk.com/thread...-end-up-being-the-cure.2225/page-3#post-21665
If you read trough some posts describe success stories and developments. It also covers potential cures and scientific theories. I've spoken to a person that had loud constant T for 4 years, then reduced levels for an additional 5 years and then zero T. That person is still T free and I spoke with him in July, a short while after I got T myself. So let's hope it can happen to many more.
Moderator note: Threads merged. Thanks Per.
https://www.tinnitustalk.com/thread...-end-up-being-the-cure.2225/page-3#post-21665
If you read trough some posts describe success stories and developments. It also covers potential cures and scientific theories. I've spoken to a person that had loud constant T for 4 years, then reduced levels for an additional 5 years and then zero T. That person is still T free and I spoke with him in July, a short while after I got T myself. So let's hope it can happen to many more.
Moderator note: Threads merged. Thanks Per.
Member
He went trough the same messy assessment systems that all of us do I guess. The hearing test will reveal any loss of hearing etc. I guess some also do a threshold test for those who also struggle with H as well. (like me) The hearings test came out good, so then its pretty much up to HIM to find the reason and the main cause of is T. Cause if the hearing test is okay then your out the door, theres no more words to be spoken about T when the ENT or audiologist has seen a normal hearing the cause could be anything from a billion drug types, air wax. burgers, air, traveling, sporting, music, movies etc etc They don't have single clue! So the guy Im referring to had find his path and after much time he started to do somatic training, of the inner soul, making him more relaxed and more sporty. He told me that he managed to build a new fundamental way of seeing his own T and from then I just learned that he experience less T after 4 year of heavy loud and constant T, it went on with a moderate level for even 9 years before it went away - for good!
Just found this today. VERY cool stuff on the horizon. Check out the last prediction on the list...it's happening, folks. Sooner than later.
http://www.futuretimeline.net/21stcentury/2022.htm
http://www.futuretimeline.net/21stcentury/2022.htm
Thats kewl for those who have a physical damage in the inner ear, seems to be that the science is all about curing severe hearing loss and deafness but not T in specific. As we know T can exist without people having hearing loss too, also people that think they have hearing loss could be belonging to the category with no loss at all. Since no one can retrieve a visual reference to the inner ear there's a lot of inaccuracy when diagnosing T and hearing loss in general. Wish science could focus on killing the phantom noises instead! Although its GREAT with ANY progress we need that terrible T noise to go away at the same time as people with severe hearing loss can be able to hear more frequencies of course. If the phantom noises is coming from a hyperactive neuro activity in the auditory cortex I really hope these scientists can start looking at how they can reduce these noise, let's hope the progress they are doing with deaf people can in some way lead to a greater understanding of T&H as well.
Hi Guys,
It's been a long 4 months. And the noise hasn't gotten any better. It hasn't gotten worse either though. I am frightened that things will stay this bad forever. In this last week I've decided that this thought is not beneficial to me at all, nor is this beneficial to any of you. So, I am trying to just accept that things are the way they are and no matter how hard you wish it to be gone, it will not do any use. Acceptance is not easy. I have not in fact accepted anything yet, but what I can say is that I have stopped researching for a magic cure. This unfortunately does not exist. And even if it did exist, the cure for me, would not be the cure for you, as tinnitus is so heterogeneous. This, I believe is the main reason that there is not a cure. Just like there can never be a universal cure for cancer. So what do you do now? There is no cure, now what?
Many people say, at this point you should stop searching the Net for that magic pill. Download some white noise or calming music and stop looking. However. Do not stop looking for a treatment. There are many credible treatments out there that you an try. Hopefully there is one for you that will help you. And again, everyone is different. What works for you, may not work for me. Don't give up hope. Just sit back. Be patient. And try various different treatments. One of them is sure to work for you! Good luck and happy holidays!
It's been a long 4 months. And the noise hasn't gotten any better. It hasn't gotten worse either though. I am frightened that things will stay this bad forever. In this last week I've decided that this thought is not beneficial to me at all, nor is this beneficial to any of you. So, I am trying to just accept that things are the way they are and no matter how hard you wish it to be gone, it will not do any use. Acceptance is not easy. I have not in fact accepted anything yet, but what I can say is that I have stopped researching for a magic cure. This unfortunately does not exist. And even if it did exist, the cure for me, would not be the cure for you, as tinnitus is so heterogeneous. This, I believe is the main reason that there is not a cure. Just like there can never be a universal cure for cancer. So what do you do now? There is no cure, now what?
Many people say, at this point you should stop searching the Net for that magic pill. Download some white noise or calming music and stop looking. However. Do not stop looking for a treatment. There are many credible treatments out there that you an try. Hopefully there is one for you that will help you. And again, everyone is different. What works for you, may not work for me. Don't give up hope. Just sit back. Be patient. And try various different treatments. One of them is sure to work for you! Good luck and happy holidays!
I have had tinnitus for about 9 months now and it is still bothering me quite a bit. I just had a cold so it is acting up a bit, I just try to ignore it most times and I will always have TV on in the background so I have some noise. I was also sad when I found out there is no cure but all we can do is hope that there will be one some day or at least something to help it.
I still can't accept that this is it for me, only 7 short weeks ago i did not have this t thing, i've never exposed my ears to loud music, never taken drugs, i've never put my hearing at risk and yet here i am a person with t. I have however taken Citalopram on and off for 6 yrs, mainly off, and i was taking a baby aspirin twice a week for the last 6 months, maybe the combination of the two things brought about the t, i don't know ... i'm at a loss as to how this could just creep up on me, my life will never be the same and as yet i still haven't accepted that!!! a bit like a death, you just can't believe that special someone has gone!!!
Hi Neenie, Logan and Carol,
I understand what you are going through. My tinnitus began during ECT treatment for depression, triggered during one of my sessions a year and a half or so ago. My tinnitus is a 11.5 KHz tone - like fingernails on a blackboard at times, mostly in my right ear. It is loud enough to be painful on occasion. There is no cure and I use multiple sound generators (in the ear, on the computer, etc.) to mask the tinnitus. I highly recommend the Android app, Relax Melodies Premium. You can create a custom mix from a variety of sounds. I play a mix during the night and to help me get back to sleep if I wake up before morning. It helps.
I miss the quiet. I do notice differences in apparent volume. It seems much more intense when my depression worsens. It also 'competes' with my piano when I play, getting louder and louder until I am forced to end my session. There is ongoing research into the causes and treatments and I am hopeful that I might one day live tinnitus free. -- Michael
I understand what you are going through. My tinnitus began during ECT treatment for depression, triggered during one of my sessions a year and a half or so ago. My tinnitus is a 11.5 KHz tone - like fingernails on a blackboard at times, mostly in my right ear. It is loud enough to be painful on occasion. There is no cure and I use multiple sound generators (in the ear, on the computer, etc.) to mask the tinnitus. I highly recommend the Android app, Relax Melodies Premium. You can create a custom mix from a variety of sounds. I play a mix during the night and to help me get back to sleep if I wake up before morning. It helps.
I miss the quiet. I do notice differences in apparent volume. It seems much more intense when my depression worsens. It also 'competes' with my piano when I play, getting louder and louder until I am forced to end my session. There is ongoing research into the causes and treatments and I am hopeful that I might one day live tinnitus free. -- Michael
Hey guys! Carol. You will get used to it. Don't be angry about the fact that you have tinnitus for no reason. So do many people. As do I. You're only very new to Tinnitus. It's quite common to even feel suicidal at times. But you adapt. You find ways to cope with life. I never monitor my tinnitus as it makes me anxious and angry that I have it so loudly. I always listen to white noise or rain. 24hrs a day. I just pretend it's not there when in fact it is there just as loudly as it was at the beginning. The longer you worry about it, the longer it will have power over you. Take back that power!
I can talk from the perspective of having tinnitus for almost 15 years. I was a basket case in the beginning as I was dealing with other symptoms including hyperacusis, vertigo, nystagimus, attacks of dizziness and horrible pressure in my bad ear. Most of those symptoms resolved themselves over a period of many years which I suspect was from eliminating as much salt from my diet as possible and because of burn out in that bad ear. Fast forward and now it is just(did I say just!) the tinnitus and occasional vertigo. I went through the fear and hopelessness components of the journey and really are surprised I'm still here today. At some point I did accept "it is what it is" and gave up searching for cures and fighting my enemy inside. Maybe it was then that I started to find some peace within myself. It might have coincided with me being able to get a reasonable nights sleep again which was something we all probably take for granted. So I would agree that acceptance is an important step on your road to recovery.
- Jun 19, 2013
- 177
- 43
- Tinnitus Since
- 06/2009
- Cause of Tinnitus
- Acoustic trauma
Immunotherapy is a generic approach that will accomplish that, even when all cancers are different and each treatment targets a particular antigen. Neenie I´ve read you since you arrived at this board and I´m glad to see you are a resourceful individual, figuring out notched music, and keeping a positive attitude. God bless you!
Thanks man!
Yer, I like to figure out which options I have. It seems that the medical profession only recommends one specific type of treatment, such as Neuromonics, and fails to inform you of the many other theories of tinnitus reduction which I actually believe is malpractice to a degree. I am starting my Master in Audiology next year (2 year course) and I will keep researching Tinnitus and hopefully by the end of that I will know a lot more about credible treatments and be able to share my knowledge!
Yer, I like to figure out which options I have. It seems that the medical profession only recommends one specific type of treatment, such as Neuromonics, and fails to inform you of the many other theories of tinnitus reduction which I actually believe is malpractice to a degree. I am starting my Master in Audiology next year (2 year course) and I will keep researching Tinnitus and hopefully by the end of that I will know a lot more about credible treatments and be able to share my knowledge!
I believe Daedelus mentioned this, and I thought it pretty interesting, so I looked it up.
http://www.tinnitusresearch.org/en/documents/downloads/Textbook_of_Tinnitus_Foreword.pdf
Is this a cause for cautious optimism? De Nora is probably in a better position than many of us to know the general direction that research is heading, but at the same time this kind of optimism is also somewhat necessary to play up the need for investment to potential donors. All the same, could we really be this close? I kind of imagined 10-20 years as a best case scenario, personally.
I'd be interested to know your thoughts if you have any.
http://www.tinnitusresearch.org/en/documents/downloads/Textbook_of_Tinnitus_Foreword.pdf
Is this a cause for cautious optimism? De Nora is probably in a better position than many of us to know the general direction that research is heading, but at the same time this kind of optimism is also somewhat necessary to play up the need for investment to potential donors. All the same, could we really be this close? I kind of imagined 10-20 years as a best case scenario, personally.
I'd be interested to know your thoughts if you have any.
I did a little research on him after seeing his name mentioned. Does he fund the TRI all himself? If so, that is incredible!
Hope he's right!
Hope he's right!
As far as I know, he funds all the administrative and staff costs himself. I think the actual research funding grants that the TRI provides relies on donors.
I was kind of surprised there's so little information on Matteo De Nora. This guy created his own research organization from scratch and he doesn't even have his own Wikipedia page.
Here's a little more background I dug up on him.
http://www.sail-world.com/uk/pda.cfm?Nid=31407&RequestTimeOut=180
Kind of funny that the tinnitus world has it's own Tony Stark-alike.
I was kind of surprised there's so little information on Matteo De Nora. This guy created his own research organization from scratch and he doesn't even have his own Wikipedia page.
Here's a little more background I dug up on him.
http://www.sail-world.com/uk/pda.cfm?Nid=31407&RequestTimeOut=180
Kind of funny that the tinnitus world has it's own Tony Stark-alike.
Just trying to sum up all possible approaches scientist are working with to treat or reduce tinnitus.
1. Targeting the Cochlear
a. Stem cells. This is as we all know far away. Even if it would be possible to repair the damaged hair cells, do we know if that would improve T?
b. AM101. Drugs that somehow turns of the process were damaged hair cells trigger neurons in the brain to get overactive. Seams quite promising but must be used before T gets chronic.
c. Capsules close to the cochlear to deliver drugs? Understand there is some work right now to develop the capsule but is there any drugs to be used?
Targeting vagus nerve
d. Companies like Micro Transponder are already in clinical trials. Would be interesting to know if this aloves to actually listing to the signaling on the nerve. In that case I believe this could be used to treat not only tonal T. Today this model seems quite invasive. Hopefully they find out some way to do the less invasive.
Targeting the brain
e. Brian Stimulation Treatments (rTMS & tDCS & tACS). Understand some success with this but dose it last? Dose this really reach to the overactive neurons of the brain?
f. HIFU. This is also quite invasive. Sounds good but could it be that easy to wipe out the overactive part of the thalamus without any side effects? Maybe, but then it is more to figure out just the right spots of the brain treat? Even if some works have been done here I believe it is still going to take some time until they really know how to safe to treat the overactive neurons.
To me HIFU seams most promising for some relief in short term (but very expansive). In long term, hooking up on the nerve between the cochlear and the brain and just reprogram seams very atraktive.
1. Targeting the Cochlear
a. Stem cells. This is as we all know far away. Even if it would be possible to repair the damaged hair cells, do we know if that would improve T?
b. AM101. Drugs that somehow turns of the process were damaged hair cells trigger neurons in the brain to get overactive. Seams quite promising but must be used before T gets chronic.
c. Capsules close to the cochlear to deliver drugs? Understand there is some work right now to develop the capsule but is there any drugs to be used?
Targeting vagus nerve
d. Companies like Micro Transponder are already in clinical trials. Would be interesting to know if this aloves to actually listing to the signaling on the nerve. In that case I believe this could be used to treat not only tonal T. Today this model seems quite invasive. Hopefully they find out some way to do the less invasive.
Targeting the brain
e. Brian Stimulation Treatments (rTMS & tDCS & tACS). Understand some success with this but dose it last? Dose this really reach to the overactive neurons of the brain?
f. HIFU. This is also quite invasive. Sounds good but could it be that easy to wipe out the overactive part of the thalamus without any side effects? Maybe, but then it is more to figure out just the right spots of the brain treat? Even if some works have been done here I believe it is still going to take some time until they really know how to safe to treat the overactive neurons.
To me HIFU seams most promising for some relief in short term (but very expansive). In long term, hooking up on the nerve between the cochlear and the brain and just reprogram seams very atraktive.
I of course am no expert, therefore no need to take me seriously. But I did read about some THEORIES (not results just hypothesis) that stress could also cause damage to the hair cells in the ear. Also, the audiograms nowadays (even up to 20 kHz) dont really detect hearing loss because for hearing loss there has to be a significant number of damaged cells (I understood that up to 50-60%). Unfortunately I dont remember where I read these things, so I have no links. However it could mean that all people with T have nerve damage, simply the methods used nowadays are unable to detect it.
Hi Stina
I have read this theory many times(hair cell loss), I don't know if I believe it as the sole cause ?
If this were the case why do some people start with tinnitus in one ear and have it spread to the
other ear?
Maybe it doesn't spread, but that when one ear is gets T, the other one is very close to T because the person has been exposed to so much loud noise. No after a little while, the other one gets T as well because it ALMOST had it when the first ear got it.
We don't know if AM101 doesn't work for chronic cases! Am101 is what gives me hope, I've had it since May 2013
@Erlend , http://www.reddit.com/r/tinnitus/comments/1v073n/am101_discussion/
Apparently it has been insinuated that they don't see why it shouldnt work on chronic sufferers.
I have some theory about pretty much everyone have a degree of hearing loss, considering audiologists only look for hearing loss in the field of speech, unless you're in range of hearing aid you wont count in their system, which is weird since the highest frequencies are the most sensitive as far as I've understood. If they manage to cure deafness, I think everybody would benefit, based on my theory only ofc. Everything could make sense at this unknown point so have hope on that=)!
Apparently it has been insinuated that they don't see why it shouldnt work on chronic sufferers.
I have some theory about pretty much everyone have a degree of hearing loss, considering audiologists only look for hearing loss in the field of speech, unless you're in range of hearing aid you wont count in their system, which is weird since the highest frequencies are the most sensitive as far as I've understood. If they manage to cure deafness, I think everybody would benefit, based on my theory only ofc. Everything could make sense at this unknown point so have hope on that=)!
I happen to be among the people that have absolutely no damage to my inner ear, cochlear nerve & no hearing loss, yet have extreme high pitch high volume T. Hoping there is some research going on to address my type of T. Also hoping for advances in treating hearing loss and trauma induced T as well!!! 
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